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Long COVID Physio

@longcovidphysio

#LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies https://bio.site/longcovidphysio

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Latest posts by Long COVID Physio @longcovidphysio

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Join us on Wednesday, May 6, 2026 from 12:30pm to 2:30pm EDT for a free, online post-Forum Fireside Chat. Engage in discussion with our 2026 Forum speakers and panelists! Visit tinyurl.com/yc5ddrnt for more information and registration details.

10.03.2026 13:51 👍 2 🔁 2 💬 1 📌 2
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The Museum of Vancouver's “Living with Long COVID” exhibition is on until March 22nd. Candidly documenting the often-invisible daily life of 46 people living with Long Covid, this project was developed in collaboration with Simon Fraser University’s Faculty of Health Sciences

09.03.2026 01:28 👍 4 🔁 3 💬 1 📌 0
A dark blue graphic for International Women’s Day featuring a purple and blue gradient hand icon with a heart in the palm at the top. The word "WOMENS" is written in large block letters, with each letter containing a black-and-white photo of women. Below it, the word "Day" is written in pink script. At the bottom, pink text reads: "Diseases that mostly affect women – like Long Covid and ME – are still trivialised, psychologised, and dangerously underfunded. Medical misogyny isn’t a relic. It’s alive and well."

A dark blue graphic for International Women’s Day featuring a purple and blue gradient hand icon with a heart in the palm at the top. The word "WOMENS" is written in large block letters, with each letter containing a black-and-white photo of women. Below it, the word "Day" is written in pink script. At the bottom, pink text reads: "Diseases that mostly affect women – like Long Covid and ME – are still trivialised, psychologised, and dangerously underfunded. Medical misogyny isn’t a relic. It’s alive and well."

👭 On #InternationalWomensDay we honour the women with Long Covid and ME and allies who keep pushing for truth, research, and care.

♀️Listen to women. Fund the science.

08.03.2026 08:59 👍 51 🔁 24 💬 1 📌 2
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Today is the annual Covid-19 #DayOfReflection. 6 years have passed since the start of the pandemic. We reflect today, alongside our community, on the people who lost their lives to Covid-19; the people who still face day-to-day impacts; and on the road ahead.

#Covid19 #DayOfReflection #LongCovid

08.03.2026 10:01 👍 29 🔁 15 💬 2 📌 1
Graphic for March 8th International Women’s Day. The Long Covid SOS logo appears at the top in awareness day colours. Beneath it, “March 8th International Women’s Day” in teal and underneath in a lighter teal shade “Women living with Long Covid and other invisible illnesses deserve to be heard, believed and supported” 
“No more gaslighting” in orange italics. 
At the bottom the image shows layered silhouettes of diverse women in profile, in different colours and hairstyles to represent solidarity and shared experience. A faint lifering motif from the Long Covid SOS logo forms the background. And at the bottom left text reads “#IWD2026”

Graphic for March 8th International Women’s Day. The Long Covid SOS logo appears at the top in awareness day colours. Beneath it, “March 8th International Women’s Day” in teal and underneath in a lighter teal shade “Women living with Long Covid and other invisible illnesses deserve to be heard, believed and supported” “No more gaslighting” in orange italics. At the bottom the image shows layered silhouettes of diverse women in profile, in different colours and hairstyles to represent solidarity and shared experience. A faint lifering motif from the Long Covid SOS logo forms the background. And at the bottom left text reads “#IWD2026”

Women are too often dismissed when it comes to their health told it’s “anxiety”, “your age” or “all tests are normal”

#LongCovid is following a pattern many women already know. Women living with Long Covid deserve to be heard, believed and supported.

#IWD2026 #NoMoreGaslighting

08.03.2026 10:57 👍 78 🔁 49 💬 1 📌 2
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Brain and muscle chemistry in myalgic encephalitis/chronic fatigue syndrome (ME/CFS) and long COVID: a 7T magnetic resonance spectroscopy study
"The changes in lactate in ME/CFS are consistent with the presence of energetic stress and mitochondrial dysfunction. A reduction in total choline in long COVID is of interest in the context of the recently reported association between blood clots and 'brain fog', and earlier animal studies showing that choline might prevent intravascular coagulation. Importantly, differences in findings between ME/CFS and long COVID suggest that the underlying neurobiological mechanisms, while leading to similar clinical presentations, may differ." 
Read more here>>

Image of a brain Brain and muscle chemistry in myalgic encephalitis/chronic fatigue syndrome (ME/CFS) and long COVID: a 7T magnetic resonance spectroscopy study "The changes in lactate in ME/CFS are consistent with the presence of energetic stress and mitochondrial dysfunction. A reduction in total choline in long COVID is of interest in the context of the recently reported association between blood clots and 'brain fog', and earlier animal studies showing that choline might prevent intravascular coagulation. Importantly, differences in findings between ME/CFS and long COVID suggest that the underlying neurobiological mechanisms, while leading to similar clinical presentations, may differ." Read more here>>

UK research study

Brain and muscle chemistry in myalgic encephalitis/chronic fatigue syndrome (ME/CFS) and long COVID: a 7T magnetic resonance spectroscopy study

www.nature.com/articles/s41...

Screenshot from AMMES March 2026 newsletter

#MEcfs #LongCovid #CFS #PwME #COVIDBrain #NeuroPASC

08.03.2026 01:31 👍 41 🔁 14 💬 2 📌 0

Exactly this.

“What if the question isn’t, “How can I tolerate more?” but, “Where can I remove friction?”
What if progress isn’t measured by how much you push, but by how much strain you no longer have to carry?
What if sustainability (not endurance) is the metric that actually matters?”

07.03.2026 23:41 👍 17 🔁 6 💬 1 📌 0
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Today is the National Day of Reflection.

The UK "must learn lessons" - not only "to be better prepared for the next pandemic" but to protect vulnerable lives and health now.

Our thoughts are with everyone who suffered and those living with loss. ❤️💛

08.03.2026 12:23 👍 20 🔁 9 💬 1 📌 2
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PART 2 - Prevalence of Long Covid

Professor Danny Altmann, Immunologist at Imperial College London and Trustee of Long Covid Support, explains why the number of Long Covid cases in the UK is increasing .

#LongCovid #LongCovidAwareness #ProfessorDannyAltmann #LongCovidSupport

07.03.2026 13:01 👍 42 🔁 30 💬 2 📌 1
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This #BrainInjuryAwarenessMonth, let’s include people with #LongCOVID. Cognitive dysfunction, headaches, and fatigue are real, and research and treatments are needed.

07.03.2026 17:34 👍 12 🔁 2 💬 1 📌 1
News Release 5-Mar-2026
How viruses mess with our brains
A team from the UNIGE and the HUG reviewed 900 scientific articles to better understand the impact of viruses on memory, attention, and concentration.

Peer-Reviewed Publication
Université de Genève

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What impact does a viral infection have on our memory, attention, and concentration? The COVID-19 pandemic has reignited interest in this question, which has now been extended to other infections such as HIV, herpes, and hepatitis. A team from the University of Geneva (UNIGE) and Geneva University Hospital (HUG) reviewed over 900 scientific articles exploring the links between the immune system and cognitive functions. This analysis, published in Neuroscience & Biobehavioral Reviews, has identified several biological markers associated with cognitive decline in the context of infection. It also provides a solid foundation for future research.

News Release 5-Mar-2026 How viruses mess with our brains A team from the UNIGE and the HUG reviewed 900 scientific articles to better understand the impact of viruses on memory, attention, and concentration. Peer-Reviewed Publication Université de Genève FacebookXLinkedInWeChatBlueskyMessageWhatsAppEmail What impact does a viral infection have on our memory, attention, and concentration? The COVID-19 pandemic has reignited interest in this question, which has now been extended to other infections such as HIV, herpes, and hepatitis. A team from the University of Geneva (UNIGE) and Geneva University Hospital (HUG) reviewed over 900 scientific articles exploring the links between the immune system and cognitive functions. This analysis, published in Neuroscience & Biobehavioral Reviews, has identified several biological markers associated with cognitive decline in the context of infection. It also provides a solid foundation for future research.

News Release 5-Mar-2026

"How viruses mess with our brains: A team from the UNIGE and the HUG reviewed 900 scientific articles to better understand the impact of viruses on memory, attention, and concentration"

www.eurekalert.org/news-release...

#COVIDBrain #NeuroPASC #LongCovid #PASC #MEcfs #CFS

06.03.2026 15:23 👍 12 🔁 11 💬 1 📌 0
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Multilayer metabolomic integration reveals bioenergetic disruption in Long COVID - Journal of Translational Medicine Journal of Translational Medicine - Long COVID represents a significant health challenge, with 10–20% of patients with COVID-19 experiencing persistent multiorgan symptoms. The heterogeneity...

link.springer.com/article/10.1...

06.03.2026 16:57 👍 5 🔁 5 💬 0 📌 0
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1) 🇩🇪 This study of hospital employees (HEs) infected with Sars-Cov-2 in three medical centres in Cologne, found that a year later, at least 3.2% meet ME/CFS criteria.

05.03.2026 09:41 👍 48 🔁 17 💬 1 📌 0
Graphic featuring a quote in the centre, which reads: 
“Covid-19 has a profound and lasting impact on cardiovascular health, with complications emerging during acute illness, recovery, and even after reinfections or vaccination.” 
Dr. Vassilios Vassiliou, lead author of “Cardiovascular disease prevention and management in Covid-19,” a clinical consensus statement

The text is placed on a background showing an ECG chart with a subtle navy and teal gradient overlay.

Graphic featuring a quote in the centre, which reads: “Covid-19 has a profound and lasting impact on cardiovascular health, with complications emerging during acute illness, recovery, and even after reinfections or vaccination.” Dr. Vassilios Vassiliou, lead author of “Cardiovascular disease prevention and management in Covid-19,” a clinical consensus statement The text is placed on a background showing an ECG chart with a subtle navy and teal gradient overlay.

There is strong research evidence that Covid-19 and Long Covid increase the risk of many cardiovascular conditions, including heart attacks, clotting events, POTS, vascular ageing and more.
#LongCovidHeartbeats #LongCovid #ILCAD2026 #LongCovidAwareness #hearthealth
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06.03.2026 02:28 👍 81 🔁 47 💬 2 📌 1
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COVID-19 Day of Reflection Sunday 8 March 2026 is the Day of Reflection for the COVID-19 pandemic. People and communities are invited to mark the day in ways that feel meaningful to them.

This year's annual Covid-19 #DayOfReflection takes place on Sunday 8 March, remembering those who have lost their lives since the pandemic began 6 years ago.

Head to dayofreflection.campaign.gov.uk to find out about local events you can attend in your area.

#Covid19 #LongCovid #DayOfReflection

06.03.2026 09:00 👍 13 🔁 9 💬 0 📌 0
BBC Radio Sheffield | Fran Haddock on Long Covid & ME/CFS
BBC Radio Sheffield | Fran Haddock on Long Covid & ME/CFS YouTube video by Broken Battery

Clip from BBC Radio Sheffield :

@franhaddock.bsky.social calls in to speak to Paulette Edwards about #LongCovid, #MECFS, post-exertional malaise, and why being “deconditioned” is not the cause of her condition. (10 mins) Aired yesterday.

youtu.be/uNbKpnxX3jU?...

03.03.2026 17:56 👍 9 🔁 4 💬 0 📌 0
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🗓️15 March 2026 – International #LongCovid Awareness Day

Long Covid isolates people.
It renders millions of lives invisible.

To mark this day, we are launching a simple, visible and symbolic movement:

💛 Let's make hearts beat everywhere.

06.03.2026 12:17 👍 4 🔁 3 💬 1 📌 3
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Rosetta Stone Study - Summary: Three month update - The ME Association The Rosetta Stone Study, led by Professor Danny Altmann and […]

2/3 Three months into the project, Professor Altmann provided an update covering progress, challenges, recruitment, and next steps.

Read the full update here: meassociation.org.uk/um9p

05.03.2026 16:44 👍 2 🔁 1 💬 1 📌 0
IMAGE DESCRIPTION: An image of a research laboratory with a circular image of Danny Altmann, Professor or Immunology at Imperial College London. Title: Rosetta Stone Study - Summary: Three month update. The MEA and Ramsay Research Logos (bottom right)

IMAGE DESCRIPTION: An image of a research laboratory with a circular image of Danny Altmann, Professor or Immunology at Imperial College London. Title: Rosetta Stone Study - Summary: Three month update. The MEA and Ramsay Research Logos (bottom right)

1/3 Rosetta Stone Study - Summary: Three month update

The Rosetta Stone Study, led by Professor Danny Altmann and Professor Rosemary Boyton at Imperial College London, is a £1.2 million ME Association–funded project investigating shared and distinct biological mechanisms in ME/CFS and Long Covid.

05.03.2026 16:44 👍 7 🔁 4 💬 1 📌 0
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PART 1 - What is Long Covid?

Professor Danny Altmann, Immunologist at Imperial College London and Trustee of Long Covid Support, explains what Long Covid is.

#LongCovid #LongCovidAwareness #ProfessorDannyAltmann #LongCovidSupport

05.03.2026 17:01 👍 26 🔁 17 💬 2 📌 0
IMAGE DESCRIPTION: An image of a healthcare professional with a device looking up information with the cover of the Spring Edition  of ME Medical. The MEA logo (bottom right)

IMAGE DESCRIPTION: An image of a healthcare professional with a device looking up information with the cover of the Spring Edition of ME Medical. The MEA logo (bottom right)

1/3 ME Medical - Spring 2026 Edition has been sent out to healthcare professionals & GP surgeries on our current mailing list

If you'd like to nominate your GP to be added to the mailing list to receive the ME Association's ME Medical magazine, please complete the form via the link (see 2/3)

05.03.2026 10:30 👍 4 🔁 3 💬 1 📌 0
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Join us as we spread awareness and support the Long Covid community throughout March. We’ve planned events, a live webinar on disability benefits applications, interviews with experts, lightings of buildings, landmarks and signs, and much more.

04.03.2026 23:56 👍 6 🔁 5 💬 1 📌 1
Black-background WHN graphic with white and pink text. At the top is the logo text “whn.global” with a pink dot. Large central headline: “COVID isn’t ‘just a cold.’” Below that: “It can affect the brain, heart, and immune system, even months later.” In bright pink near the lower middle: “Prevention matters.” At the bottom: “World Health Network - Science for a safer, healthier world.”

Black-background WHN graphic with white and pink text. At the top is the logo text “whn.global” with a pink dot. Large central headline: “COVID isn’t ‘just a cold.’” Below that: “It can affect the brain, heart, and immune system, even months later.” In bright pink near the lower middle: “Prevention matters.” At the bottom: “World Health Network - Science for a safer, healthier world.”

COVID is not “just a cold.” Even mild or asymptomatic infections can cause lasting health effects, damaging blood vessels and organs, affecting the brain, and weakening the immune system.

03.03.2026 12:15 👍 105 🔁 57 💬 3 📌 2

A member of the community @kschnickelfritz.bsky.social has written an excellent template to send to your MP about the Pulse Today Course
👇
💌 tinyurl.com/4bf386jc

If you can write directly to Pulse Today email is:
📧 support@pulse365.uk

05.03.2026 09:49 👍 13 🔁 10 💬 0 📌 0
Image des trois visuels cœurs pour notre action pour le long Covid Awareness

Image des trois visuels cœurs pour notre action pour le long Covid Awareness

🗓️15 mars 2026 – Journée internationale de sensibilisation au #CovidLong

Le Covid Long isole.
Il rend invisibles des millions de vies.

À l’occasion de cette journée, nous lançons un mouvement simple, visible et symbolique :

💛 Faisons battre des cœurs partout.

04.03.2026 15:04 👍 5 🔁 6 💬 1 📌 1
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Clip: Dr @binitakane.bsky.social explains how ME is an energy-limiting illness.

The hallmark symptom, Post-Exertional Malaise (PEM), means even normal activities can trigger a worsening of symptoms. Some of her patients have to choose between a shower or preparing a meal that day.

04.03.2026 11:33 👍 45 🔁 21 💬 2 📌 3
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The proteome (>7,000 circulating proteins) in people with ME/CFS exhibits immune system, vascular and metabolic dysregulation compared with controls
(and likely homologous in #LongCovid)
www.cell.com/cell-reports...

04.03.2026 15:58 👍 107 🔁 37 💬 1 📌 0
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👏👏👏Thanks to Rivka Gottlieb from @cbffjuk.bsky.social 💕

Ongoing issues today:
"Wider access to vaccination...
Legislation around air quality...
Mask wearing in healthcare settings that would protect the vulnerable."

These are simple things, but they have become so politicised."

04.03.2026 16:41 👍 35 🔁 20 💬 1 📌 2
On behalf of Solve M.E., President & CEO Emily Taylor calls for the Los Angeles City Council to recognize International Long Covid Awareness Day on March 15.

On behalf of Solve M.E., President & CEO Emily Taylor calls for the Los Angeles City Council to recognize International Long Covid Awareness Day on March 15.

Solve M.E. is proud to have supported the call for the Los Angeles City Council to acknowledge International Long Covid Awareness Day (March 15). The Council passed the resolution and will light the LA City Hall teal. Read our letter here:
https://ow.ly/hLQz50YoSzY

#LongCOVIDAwareness

03.03.2026 21:55 👍 6 🔁 4 💬 0 📌 0
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WORKWELL JOINS "COFFEE WITH A CLINICIAN"
The sessions are dedicated to sharing key principles and practical tips from the BHC Clinical Care Guide.

Wed, March 11th
10 am MDT (9 am PT / 11 am CT / 12 pm ET)

Register for Free
conta.cc/3NeLfuQ

#MECFS #LongCOVID #PEM @batemanhornecenter.bsky.social

04.03.2026 18:07 👍 6 🔁 3 💬 0 📌 0