Amy 🌀️'s Avatar

Amy 🌀️

@cloudsandsunshine

Long Covid pediatric advocate #CovidisAirborne #LongCovidKids #pwLC #pwME Hate has no home here. A life long reader, a sometimes baker and a community gardener. Views are my own.

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20.10.2024
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Latest posts by Amy 🌀️ @cloudsandsunshine

Apgar scores came from a woman.
m&NA vacinces came from a woman.
CRISPR gene editing came from a woman.
Modern nursing came from a woman.
Hospital sanitation standards came from a woman.
Leukemia chemotherapy drugs came from a woman.
Malaria treatment breakthroughs came from a woman.
Hormone blood tests came from a woman.
Disposable medical syringes came from a woman.
Antifungal antibiotics came from a woman.
DNA structure imaging came from a woman.
Genetic "jumping genes" came from a woman.
Stem cell isolation came from a woman.
Medical statistics in hospitals came from a woman.
Pediatric anesthesia safety came from a woman.
Life-saving vaccine research came from a woman.
Cells used for modern medical research came from a woman.
Breakthroughs in human genetics came from a woman.
You came from a woman.
Women in Medicine

Apgar scores came from a woman. m&NA vacinces came from a woman. CRISPR gene editing came from a woman. Modern nursing came from a woman. Hospital sanitation standards came from a woman. Leukemia chemotherapy drugs came from a woman. Malaria treatment breakthroughs came from a woman. Hormone blood tests came from a woman. Disposable medical syringes came from a woman. Antifungal antibiotics came from a woman. DNA structure imaging came from a woman. Genetic "jumping genes" came from a woman. Stem cell isolation came from a woman. Medical statistics in hospitals came from a woman. Pediatric anesthesia safety came from a woman. Life-saving vaccine research came from a woman. Cells used for modern medical research came from a woman. Breakthroughs in human genetics came from a woman. You came from a woman. Women in Medicine

Belated happy international women’s day!

09.03.2026 20:21 πŸ‘ 460 πŸ” 143 πŸ’¬ 7 πŸ“Œ 4
Despair (1894), Edvard Munch: A person is standing looking down, they appear sad. They have brown hair, and are wearing a brown sweater. They are leaning on a fence and appear to be on a bridge walkway. There is a group of people in the distance. In the background is a sunset with orange, yellow, and blue colors that is set over dark blue water, with a green hillside lining the waterway. The text reads, β€œThe Sick Times. My child and I both have Long COVID. Even in COVID-aware spaces, we are excluded because of their pre-existing disability. By eZme Fern, aka MadMaskedMxma.”

Despair (1894), Edvard Munch: A person is standing looking down, they appear sad. They have brown hair, and are wearing a brown sweater. They are leaning on a fence and appear to be on a bridge walkway. There is a group of people in the distance. In the background is a sunset with orange, yellow, and blue colors that is set over dark blue water, with a green hillside lining the waterway. The text reads, β€œThe Sick Times. My child and I both have Long COVID. Even in COVID-aware spaces, we are excluded because of their pre-existing disability. By eZme Fern, aka MadMaskedMxma.”

Medical facilities have handled Long COVID the same way they have the ongoing pandemic: ignore it and hope it goes away. - My child and I both have Long COVID. Even in COVID-aware spaces, we are excluded because of their pre-existing disability.

Medical facilities have handled Long COVID the same way they have the ongoing pandemic: ignore it and hope it goes away. - My child and I both have Long COVID. Even in COVID-aware spaces, we are excluded because of their pre-existing disability.

eZme Fern and their ten-year-old both have #LongCOVID, but they’ve discovered that even in COVID-aware spaces, they're excluded because of their child’s pre-existing disability. They argue that COVID-aware communities must provide safe spaces for generationally disabled families. bit.ly/4sAkobN

09.03.2026 18:12 πŸ‘ 69 πŸ” 25 πŸ’¬ 1 πŸ“Œ 6

Thank you The Sick Times, Betsy, and Miles for the ability to tell our generationally disabled families story.

Collective care is collective liberation, and we can only move together in collective disabled liberation when we learn the tools needed to keep our crip kin alive.

09.03.2026 20:36 πŸ‘ 9 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Today for #InternationalWomensDay I received a rose at church and 50% off my dinner bill.

My child, I receive this, and I hunger for freedom for us all. For flowers in the ground and not on the graves of children being slaughtered daily by mad men.

Freedom is our birthright. For all women. All.

08.03.2026 15:57 πŸ‘ 7 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

β€œPerhaps the most consistent experience long COVID patients face is the uncertainty that comes with having a medical condition doctors don’t yet fully understand.”

05.03.2026 17:24 πŸ‘ 33 πŸ” 15 πŸ’¬ 1 πŸ“Œ 0

I designed these! πŸ’ž Please boost these posts so our very deserving and #LongCovid and #MECFS communities (and all who care about us) can stay stylish while funding education, research, awareness and advocacy β€οΈβ€πŸ©Ή

01.03.2026 00:29 πŸ‘ 8 πŸ” 5 πŸ’¬ 0 πŸ“Œ 0
Abstract
In a preliminary cohort of children recovering from asymptomatic or mild coronavirus disease 2019, subclinical cardiac contractility alterations were associated with reduced regulatory T cells, shorter telomeres and elevated inflammatory markers 3 months post-infection. These findings suggest that immune dysregulation may contribute to silent post-coronavirus disease 2019 cardiac dysfunction and warrant confirmation in larger cohorts with long-term follow-up.

Abstract In a preliminary cohort of children recovering from asymptomatic or mild coronavirus disease 2019, subclinical cardiac contractility alterations were associated with reduced regulatory T cells, shorter telomeres and elevated inflammatory markers 3 months post-infection. These findings suggest that immune dysregulation may contribute to silent post-coronavirus disease 2019 cardiac dysfunction and warrant confirmation in larger cohorts with long-term follow-up.

We keep infecting and reinfecting ALL the children 😭

Impaired Treg Response and Subclinical Cardiac Dysfunction in Children Following SARS-CoV-2 Infection

journals.lww.com/pidj/fulltex...

28.02.2026 16:43 πŸ‘ 67 πŸ” 20 πŸ’¬ 0 πŸ“Œ 6
Preview
Breaking Down Silos: A Multidisciplinary Approach to Mitigate Indoor Airborne Pathogen Transmission - Alex Zhu, William P. Bahnfleth, Richard Bruns, Giorgio Buonanno, David Fisman, Cria O. Gregory, Ch... Addressing indoor air quality (IAQ) is essential for reducing respiratory disease risks. In this commentary, we highlight the need for increased connections bet...

πŸŒ€ Indoor air quality, research stuck in silos.
Authors call for integrated teams across engineering, epidemiology, & aerosol science to study real‑world transmission, build shared language, & drive practical, scalable interventions that cut airborne disease risk.
journals.sagepub.com/doi/10.1177/...

26.02.2026 10:52 πŸ‘ 19 πŸ” 7 πŸ’¬ 2 πŸ“Œ 0
Pediatric long COVID is characterized by myeloid CCR6 suppression and immune dysregulation β€” Jon Izquierdo-Pujol et al.
"Our findings indicate that pediatric long COVID is associated with a dysregulated immune response characterized by altered innate immunity and overactivated T-, B- and NK-cell responses."

Pediatric long COVID is characterized by myeloid CCR6 suppression and immune dysregulation β€” Jon Izquierdo-Pujol et al. "Our findings indicate that pediatric long COVID is associated with a dysregulated immune response characterized by altered innate immunity and overactivated T-, B- and NK-cell responses."

From πŸ‡ͺπŸ‡Έ

"Our findings indicate pediatric long COVID is associated with a dysregulated immune response characterized by altered innate immunity & overactivated T-, B- and NK-cell responses."

insight.jci.org/articles/vie...

Screenshot from Science for ME weekly update

#LongCovidKids #LCKids

26.02.2026 01:44 πŸ‘ 6 πŸ” 5 πŸ’¬ 1 πŸ“Œ 1

I thought the same thing when I heard that news

26.02.2026 02:38 πŸ‘ 273 πŸ” 28 πŸ’¬ 1 πŸ“Œ 0
Black background with teal smoke rising on the left and event info. Quote: we've learned that there is no such thing as rebuilding; it's just building in a new reality." Amanda Finley

Black background with teal smoke rising on the left and event info. Quote: we've learned that there is no such thing as rebuilding; it's just building in a new reality." Amanda Finley

Join @ancirabecky.bsky.social and me on Thursday, March 5 at 1 pm Eastern, 6 pm GMT, for a conversation with @publichealthaction.bsky.social and @airsupportproject.bsky.social on living with long COVID. You'll need a registered Zoom account (free!).

us06web.zoom.us/meeting/regi...

26.02.2026 02:25 πŸ‘ 17 πŸ” 10 πŸ’¬ 0 πŸ“Œ 3
Preview
Differentiating COVID-19 vaccine-related adverse events from long COVID: A comprehensive review of clinical manifestations, pathophysiology, and diagnostic approaches The global deployment of COVID-19 vaccines has introduced diagnostic challenges due to overlapping symptoms with long COVID, or post-acute sequelae of…

A recent study found a 40% risk reduction with JN.1-targeted vaccines - maybe that's ok for you to risk going back to normal. I know many exceptions disabled by LC despite vaccination so it's not high enough for me to.

www.sciencedirect.com/science/arti...

26.02.2026 01:50 πŸ‘ 51 πŸ” 12 πŸ’¬ 1 πŸ“Œ 1
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An idea a few years in the making. When I first attending LCDC in Washington, D.C. taking part in #LongCOVID advocacy, I knew my privilege in being able to travel. While many are bedridden and unable to leave the house, I wanted to put a focus on change nationally closer to home!

26.02.2026 02:28 πŸ‘ 4 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

I am as well.

24.02.2026 01:08 πŸ‘ 5 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

"Don't EVER Stop"
"Don't keep this hidden"
"There are people who care about you"

This #podcast is really worth a listen.

#LongCovidKids #LongCovid #PatientAdvocacy #Family #ChildrensRights #Parenting #LivedExperience

@longcovidkids.bsky.social
@longcovidfam.bsky.social

22.02.2026 11:51 πŸ‘ 13 πŸ” 5 πŸ’¬ 0 πŸ“Œ 1

Wonderful ❀️

19.02.2026 02:39 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

We will discuss this in class!

Sign up on the interest form! www.resistancestudiesseries.com/worldcupwait...

16.02.2026 21:00 πŸ‘ 38 πŸ” 9 πŸ’¬ 0 πŸ“Œ 0

Since 2020, untold millions of children have suffered repeated infections of Covid-19. Those children are now carrying a deep burden of irreparable harm within their bodies, a burden of irreparable harm that will, in many cases, result in serious illness and early mortality.

#COVID19 #children

17.02.2026 00:57 πŸ‘ 14 πŸ” 4 πŸ’¬ 0 πŸ“Œ 2
Preview
World Cup Waitlist β€” RESISTANCE STUDIES SERIES

Friends!

The New School has cancelled one of its most popular graduate courses, Global Soccer and World Politics.

We want to host this course for @resistanceschool.bsky.social ahead of the 2026 World Cup.

Interested? Fill the interest form here!

www.resistancestudiesseries.com/worldcupwait...

13.02.2026 18:07 πŸ‘ 554 πŸ” 264 πŸ’¬ 12 πŸ“Œ 23
Preview
Winter Olympic athletes are rightfully taking COVID-19 precautions - The Sick Times Despite a lack of COVID-19 precautions implemented by the 2026 Winter Olympics organizers in Italy, some athletes, teams, and their loved ones are protecting themselves from airborne pathogens by mask...

It's embarrassing that AP News talks about athletes using lots of hand sanitizer when we know Covid is airborne. SickTimes has it right, talking about athletes masking and wearing respirators. thesicktimes.org/2026/02/10/w...

14.02.2026 22:16 πŸ‘ 87 πŸ” 28 πŸ’¬ 1 πŸ“Œ 3

Praying πŸ™.

10.02.2026 03:09 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Happening Tuesday!

The first @resistanceschool.bsky.social public lecture salon!

07.02.2026 19:01 πŸ‘ 51 πŸ” 18 πŸ’¬ 1 πŸ“Œ 0

The usury interest rate on #pwME energy usage is the problem. Budgeting (pacing) helps but it’s not a cure, it’s a coping strategy. We need medical treatments that remove whatever is siphoning off our energy, not gaslighting or denial of this energy theft. #GreatestMEdicalScandal

05.02.2026 15:07 πŸ‘ 26 πŸ” 7 πŸ’¬ 0 πŸ“Œ 3

I know, it’s you. Beaming and cheering you on.

07.02.2026 02:52 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
This is a flyer for the Rest & ME/CFS research study, IRB number 26-6. It says "participate in a survey about rest, energy, and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome". In the upper right corner it says β€œQuestions? Email Study Co-PI Victoria: empwrtc@protonmail.com”. Below the header is interwoven circles, one is black with text that says Fully Virtual, low- energy version included. The circle behind is an image of white silk wrinkled. Next to it text says β€œTo participate you must be: Over the age of 18 AND EITHER Have ME/CFS worked with at research (self or professionally diagnosed) or be A medical/healthcare provider who has least one person with ME/CFS, currently practicing or conducting research”. Below this it says learn more at www.restandmecfs.com There are two icons on the bottom left corner. One says ETC and above it are six icon-stick figure people holding hands in a circle. Next to it is Cal Poly Pomona's logo, a diamond with an orangey yellow background and palm trees and a building inside.
The Cal Poly Pomona Institutional Review Board has reviewed and approved for conduct this research involving human subjects under protocol IRB 26-6.

This is a flyer for the Rest & ME/CFS research study, IRB number 26-6. It says "participate in a survey about rest, energy, and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome". In the upper right corner it says β€œQuestions? Email Study Co-PI Victoria: empwrtc@protonmail.com”. Below the header is interwoven circles, one is black with text that says Fully Virtual, low- energy version included. The circle behind is an image of white silk wrinkled. Next to it text says β€œTo participate you must be: Over the age of 18 AND EITHER Have ME/CFS worked with at research (self or professionally diagnosed) or be A medical/healthcare provider who has least one person with ME/CFS, currently practicing or conducting research”. Below this it says learn more at www.restandmecfs.com There are two icons on the bottom left corner. One says ETC and above it are six icon-stick figure people holding hands in a circle. Next to it is Cal Poly Pomona's logo, a diamond with an orangey yellow background and palm trees and a building inside. The Cal Poly Pomona Institutional Review Board has reviewed and approved for conduct this research involving human subjects under protocol IRB 26-6.

PLRC member Dr. Copeland has launched a research study on rest, energy, & #MECFS β€” open to people with ME/CFS & healthcare providers who are currently practicing or conducting research & have had at least 1 patient or participant with ME/CFS.

More info: restandmecfs.com

06.02.2026 22:51 πŸ‘ 34 πŸ” 24 πŸ’¬ 0 πŸ“Œ 3

I said what I said.

06.02.2026 14:43 πŸ‘ 390 πŸ” 63 πŸ’¬ 14 πŸ“Œ 0

πŸ“£πŸ“£πŸ“£

06.02.2026 19:48 πŸ‘ 4 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Friends!

Tuesday, Feb. 10th, at 6:00 pm EST, @resistanceschool.bsky.social will host our very first virtual public salon!

We will discuss the killings of Renee Good, Alex Pretti, and why the system erases white martyrs in the fight for civil rights.

Register here: buy.stripe.com/28EfZi7VN6RA...

06.02.2026 15:25 πŸ‘ 420 πŸ” 163 πŸ’¬ 5 πŸ“Œ 16

Settle in for 2.5 hours 😳 of #Bridgerton analysis as we discuss:

πŸ•°οΈ Cinderella, of course
🫰🏼 The Handless Maiden
🧀 and her Silver Hands
πŸͺ† Vasilisa the Wise/Beautiful/Brave
πŸͺœ Upstairs Downstairs
πŸ‘ΈπŸ» Sophie as the Hidden Goddess
πŸ‘Ώ Araminta as the Devil
βš–οΈ Power Imbalance
❀️‍πŸ”₯ Diversity of Feminine Pleasure

04.02.2026 14:12 πŸ‘ 16 πŸ” 6 πŸ’¬ 2 πŸ“Œ 2

We're all we've got. Best to spend time figuring out how to live into this truth.

05.02.2026 21:21 πŸ‘ 679 πŸ” 146 πŸ’¬ 6 πŸ“Œ 0