@clairetheqsw
Practice Development Consultant @SCIE. MCA geek. Supporting organisations improve outcomes for people drawing on care & support. Work: Autism, Learning Disabilities, MHA & reform, MCA, Safeguarding, Co-Production, Integration www.scie.org.uk Views my own.
📢It's here - Get Me To Hospital
www.scie.org.uk/mca/practice...
A guide for people, families and practitioners when supporting someone to go to hospital who is deemed as unable to make the decision and is refusing.
Co-produced with The Stop People Dying Too Young Group.
Share away.
#NHS #MCA
I haven't been this excited since the time I sat in a room with Lady Hale and Mr Justice Hayden.
Will likely devour this later and report back.
Rather pleased to see this in my personal medical notes today.
A bed that has "#No Bedtime" spray painted on it.
Can you choose your bedtime?
We want to know how adults with learning disabilities &/or autistic adults spend their evenings & if they can choose their bedtimes!
If you have lived experience/support someone who does – please fill in our survey (online or easy read): stayuplate.org/the-stay-up-...
It is not a tragedy that people with learning disabilities and autistic people spend much of their lives locked up in hospitals. This isn’t bad fortune. It is deliberate state sanctioned harm.
www.bbc.co.uk/news/article...
Terminally Ill Adults (End of Life) Bill: Questions on the amendments to the High Court approval requirement: www.mentalcapacitylawandpolicy.org.uk/terminally-i...
Get Me to Hospital
We are working towards a final draft of guidance and discussion on supporting people determined as lacking the capacity to decide to be conveyed to hospital and refusing - using The Mental Capacity Act.
Huge thanks to everyone involved. Hope to share the outputs with you all.
Would the public rather the government prioritise spending on access to care in the community, or hospitals? Polling by @ipsosintheuk.bsky.social and @healthfoundation.bsky.social said they'd rather community services. Read more public opinions of the plans for health & care. https://buff.ly/4kbdQNd
If the solutions don't lie in a clinical approach or system then it should not be ruled or driven by a clinical approach or system.
A thought I've been pondering all day.
Check out the varied range of resources available via the SAAIL website in relation to supporting autistic adults’ intimate lives 👇🏻
#AutRes #AutismResearch #ActuallyAutistic #AcademicSmy
Whatever your view on assisted dying, the fact the approach voted through can fundamentally be changed in just two weeks- moving from a court to expert panel-does not calm concerns.
If society wants to make a change, it should do so knowing that safeguards can -and will- be changed over time.
Terminally Ill Adults (End of Life) Bill resources page updated - www.mentalcapacitylawandpolicy.org.uk/terminally-i...
New blog post from the Open Justice Court of Protection Project. Hayden J approves experimental treatment requested by woman with anorexia.
openjusticecourtofprotection.org/2025/02/03/j...
Who else is watching the CoA live stream - looking at DoL for children!?
Will we get any clearer answers on Lieven's challenge to Cheshire West?
Probably unlikely but still good background nerd fodder.
www.youtube.com/watch?v=m43e...
#DoLS #DoL #Health #SocialCare
Reigniting debate - researchers, self-advocates and family carers have produced this grim timeline of failed promises to Transform Care since Winterbourne View bpb-eu-w2.wpmucdn.com/blogs.bristo...
39 Essex Chambers February 2025 Mental Capacity Report and Walkthrough: www.mentalcapacitylawandpolicy.org.uk/39-essex-cha...
Really important blog and discussion here about the (lack of) evidence.
Please share 1st of 3 coproduced workshops developing a guide on supporting young adults with a learning disability or autism
www.ticketsource.co.uk/curators-of-...
@angelacat.bsky.social @mroutled.bsky.social @martinwalkersds.bsky.social @learningdiseng.bsky.social @oonaghsmyth.bsky.social
👍
Come and do a fully funded PhD with me and brilliant colleagues @moniquehuy.bsky.social and @suecaton.bsky.social at MMU on Navigating the Mental Capacity Act to support Sexual Decision-Making for People with Learning Disabilities www.findaphd.com/phds/project...
1 in 100 inquests lead to a prevention of future death report. In 2023, 2 of 569 reports concerned learning disabled and/or autistic people. And many echo the same problems.
Vital explainer by @georgejulian.bsky.social
Remembering lives of Mia Gauci-Lamport and Peter Seaby.
#LearningDisability
A bird's-eye view of a former Auschwitz II-Birkenau camp showing a wide dirt pathway flanked by parallel rows of barbed-wire fences. Groups of visitors walk along the path, surrounded by the remnants of brick structures and barracks, now reduced to foundations. Green grass contrasts with the somber history of the site, as the path leads toward a guard tower in the distance.
Auschwitz was at the end of a long process. It did not start from gas chambers.
This hatred was gradually developed by humans. From ideas, words, stereotypes & prejudice through legal exclusion, dehumanization & escalating violence... to systematic and industrial murder.
Auschwitz took time.
I don't have any words. It's with this story and many others in my mind that I do everything I can to address the health inequalities and deaths faced by autistic people and people with learning disabilities.
BBC News - Coroner raises concerns over vulnerable man's death
www.bbc.com/news/article...
Sounds like someone who will leave many a lasting mark, thinking of you and his family.
Yep, this one from NMCF?
MCA = Mental Capacity Act
What would you add?
Top MCA tips as I travel home on the train:
1. Plan ahead, while you're able to make the decision.
2. Be clear what the decision is.
3. Don't think about a capacity assessment unless you've tried things to support the person to make the decision without success.
Oh and it applies at the age of 16.
MCA = Mental Capacity Act
What would you add?
Thanks Ian 😊
Thanks Rob😊
