Pseudomyxoma Survivor

Maddy Lomas has set up our stand at #PSOGI2025!

This year, PMP patient groups from 🇬🇧🇺🇸🇫🇷🇳🇱🇪🇸 unite to launch the International Barcelona Patient Manifesto, the first time our voices are heard together.

Tim Brill speaks this afternoon!
#PMPAwareness #AppendixCancer #RareCancer

30th Oct, #psogi2025 in #Barcelona , patient associations will present the #PatientManifesto on #PeritonealMalignancies

Using #patientvoice to highlight the needs, challenges, & hopes of those living with appendix cancers.
#HealthAdvocacy #GlobalCollaboration

To our incredible runners in the #RoyalParksHalf today #TeamPS - Francesco, Cardhelle, Josh, Jane, Emma, Kaelan, Andrew, Joe, Anthony, Nicola.
#ThankYouRunners for every mile, step, bit of energy you’re putting in.
#PMPAwareness #AppendixCancer #PseudomyxomaSurvivor

#teamPS at the #RCGPAC25, #raisingawareness among 2,400 GPs. Maddy, Anne & Jo are ready to start conversations, share stories, & help frontline medical professionals recognise our ultra-rare cancer sooner.

#AppendixCancer #PseudomyxomaSurvivor #RareButReal #EarlyDiagnosisMatters

We are optimistic that Jess’s Rule could make a real difference for the PMP community.

Find out more: www.gov.uk/.../jessica-....
#JesssRule #PMPAwareness #RareCancer #AppendixCancer #EarlyDiagnosisMatters #PseudomyxomaSurvivor

“How are you doing?” can be overwhelming, the answer might be complicated/exhausting to explain.
“How was your day?” allows space for the good/hard, without pressure.
Words matter, compassion lives in subtleties.
#PMPAwareness #RareCancer #AppendixCancer #PseudomyxomaSurvivor

Two different trials that may offer alternative treatments for PMP🤞in the future. We’ll keep you updated as more information emerges on either trial.
#PMPAwareness #AppendixCancer #PseudomyxomaSurvivor #BromAcTrial #PIPACTrial #RareCancerResearch

Jane & Emma are running #RoyalParksHalf, 12 Oct, #InMemory of Jane's Mum who died from PMP.

Thank you for doing this & honouring your mum.

Support them here - www.justgiving.com/page/kate-bo...

#teamjane #PMPAwareness #PseudomyxomaSurvivor #FundraisingForHope #RunForACause #TeamJane

This is a major step forward in the long journey towards new treatment possibilities for PMP. 🤞

#Pseudovax #PMPAwareness #AppendixCancer #PseudomyxomaSurvivor #ResearchMatters #ClinicalTrials #HopeThroughResearch

To everyone affected by appendix cancer & PMP: we see your strength. We’re with you & we’ll keep raising awareness not just in August, but every day after.

#AppendixCancerAwareness #PMPAwareness #RareCancerCommunity #TryAgainTomorrow #EndOfAwarenessMonth #AwarenessEveryDay

At just 12 years old, Flynn is shaving his hair on 27th Sept to raise money for PS. His mum, Tracy, was diagnosed with PMP when he was only 9.

👉 Support Flynn’s fundraiser:
gofundme.com/.../help-fly....

#FindYourBrave #PMPAwareness #ShaveForACause #TeamFlynn #LittleHeroBigHeart

Kay is running the Great North Run 2025 for us!

A champion for PMP rehab needs, she’s helped shine a light on how vital physio + recovery support are after surgery. Let’s cheer her on!

Support Kay: ajbellgreatnorthrun2025.enthuse.com/pf/kay-stand...

#GreatNorthRun2025 #PMPAwareness #RunForACause

Sue is running the #GreatNorthRun2025 she is a supporter & advocate #PMPAwareness. She has hosted online #physioforPMP, helping them regain strength & confidence. #ThankYouSue
ajbellgreatnorthrun2025.enthuse.com/.../sue...

#AppendixCancer #PMPSurvivor #RunForACause #SupportOurSupporters

This #appendixcancerawarenessmonth, we pause to honour those we have lost to #appendixcancers #PMP. Their voices continue to echo in our hearts & actions. #Inmemory, we recommit to raise awareness, fund research, & support those living with cancer.

#LifeAndLoss #PMPRemembrance

"Are there any research trials for appendix cancer/pmp?" Is one of the questions we’re asked most.
Trials are limited & costly. Our supportive community allows us to fund seed-level research.
You can donate here www.pseudomyxomasurvivor.org/donate/

#RareCancer #appendixcancerawarenessmonth

"When you hear hoofbeats, think horses, not zebras."
A phrase medical students use to consider common diagnoses before #rarecancer. However, for some patients, this mindset can lead to misdiagnosis, sometimes it really is a zebra!

#ZebraStrong #RareDiseaseAwareness
#PMPZebra

PMP, a rare & complex disease, requiring specialised treatment. Early referral to an expert can make a significant difference in outcomes. Patients advocating for their own healthcare, is pivotal. #patientadvocacy #PMPExpert #pmpCare #CRSHIPEC #SpecialisedTreatment #appendixcancerawarenessmonth

There are actually differ types of #appendixcancer & #pseudomyxomaperitonei, some are more aggressive.
Early diagnosis & access to specialised care make all the difference.
Raise #AppendixCancerAwareness #PMPAwareness, spark conversation, & support those facing #RareCancer

Well said! Keep well.

Even during Appendix Cancer Awareness Month, we’re allowed to laugh. In fact, sometimes we need to. Here’s to strength, science, and still finding reasons to smile.
#AppendixCancerAwareness #RareButReal #LaughterIsMedicine #PMPAwareness #PseudomyxomaPeritonei #StillSmiling #AppendixCancer

💡 These tests are key to early detection and proper treatment planning.
If symptoms persist and answers are unclear, ask about further investigations.
#AugustAwarenessMonth #PMPDiagnosis #AppendixCancer #TumourMarkers #KnowTheProcess #EarlyDetectionMatters

This Appendix Cancer Awareness Month, we recognise the complex path to diagnosis.
That’s why our message is simple but powerful: Trust your gut.
Listening to your body can make all the difference.
#PMPAwareness #AppendixCancer #AugustAwarenessMonth #KnowTheSigns #TrustYourGut

Early detection can save lives, push for answers if you have abdominal symptoms that can not be explained.
#PMPSymptoms #AugustAwareness #EarlyDetectionMatters #AppendixCancerAwareness

All the way from Gibraltar... to support us!
@KaelanJoyce is determined to raise awareness and funds by running the #RoyalParksHalf. We have a few places - bit.ly/45R1vYv
#AppendixCancer #AwarenessIntoAction #TeamSurvivor
Support Kaelan here - www.justgiving.com/fundraising/...

This is Appendix Cancer Awareness Month. Awareness without action is worthless. Real change happens when awareness leads to action. Share info, support patients & research, push for earlier diagnoses & better treatments, your involvement matters.
Learn. Share. Donate. Advocate.

#Bex is doing a fantastic job for #pseudomyxomaAwareness. The BBC - www.bbc.co.uk/news/article..., & coverage on BBC Radio Cumbria & Look North. This is for the @chrishoy #TourDe4, raising funds for @PMPSurvivor. Cheer her as she rides to make a difference & inspire!
#RareDiseaseAwareness #TeamBex

This August is Appendix Cancer Awareness Month—an initiative started by us in 2013. Throughout the month, we’ll be raising awareness about the disease, symptoms, diagnosis, treatment options, & what the future holds. Please share widely. #whatispmp #pmpexplained #augustawareness

This August, #PMPSurvivor #acpmpresearch #alliance82039 #pmppalsnetwork #AssocAmarape #APeritoneum stand together to increase understanding & support for people affected by appendix cancer & the related condition pseudomyxoma peritonei (PMP).
#appendixcancerawarenessmonth

In 2013, we established Augus as PMP Awareness Month. It has evolved into Appendix Cancer Awareness Month, garnering recognition from organisationss & individuals around the globe, we couldn't be more delighted. #pseudomyxomasurvivorcharity #pmpawarenessmonth #appendixcancerawareness #rarebutreal

@pmpsurvivor.bsky.social