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IBDSuperHeroes

@ibdsuperheroes

#CrohnsDisease & #UlcerativeColitis support, #IBDawareness & fundraising ๐Ÿ’œ https://linktr.ee/ibdsuperheroes ๐Ÿ’œ ๐Ÿงซ We fund #IBDresearch via Bowel Research UK ๐Ÿงฌ ๐Ÿ’œ #IBD #Crohns #Colitis #Ostomy #Stoma #PatientAdvocacy #IBDAdvocacy ๐Ÿ’œ

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28.02.2025
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Latest posts by IBDSuperHeroes @ibdsuperheroes

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In-person & virtual fundraising ideas ๐Ÿ‘‡
๐ŸŽฎ๐Ÿšถโ€โ™€๏ธ buff.ly/1YGkYB8 ๐Ÿง๐Ÿƒโ€โ™‚๏ธ

People with #IBD may not always be in the best health, so we've taken that into account when compiling our list. Some are challenging, some are fun, & some are just a bit weirdโ€ฆ

#IBDSuperHeroes #Crohns #Colitis

07.03.2026 13:15 ๐Ÿ‘ 2 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Happy Purim!

Wishing our community a day of joy and courage. Like the story of Esther, #IBDWarriors show incredible bravery in the face of "hidden" challenges every day. ๐Ÿ’œโœจ

#Purim #IBDSuperHeroes #Resilience

03.03.2026 10:00 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Relationships & The โ€œInvisibleโ€ Load: Loving Beyond the Flare When we talk about Inflammatory Bowel Disease, we often focus on the medical: the meds, the scans, and the bathroom trips. But for those of us living the โ€œSuperHeroโ€ life, thereโ€™sโ€ฆ

Living with #IBD adds an "invisible load" to our relationships ๐Ÿ’œ

Our new article explores how to navigate #Crohns or #Colitis with your partner. Loving beyond the flare is possible! ๐Ÿคโœจ buff.ly/APnx2ZP

#IBDSuperHeroes #Support

27.02.2026 12:34 ๐Ÿ‘ 0 ๐Ÿ” 1 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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Itโ€™s #EatingDisorderAwarenessWeek.

Many with #IBD struggle with ARFID (Avoidant/Restrictive Food Intake Disorder). Unlike other eating disorders, ARFID is often driven by a fear of pain or negative consequences after eating - a daily reality for #Crohns & #Colitis patients. ๐Ÿ’œ๐Ÿ’ช

#IBDSuperHeroes

23.02.2026 10:01 ๐Ÿ‘ 1 ๐Ÿ” 2 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Folic acid deficiency in IBD ~ Written by Annie Richards. How I found out I needed folic acid supplements In 2017, I found myself becoming increasingly tired. I was due by B12 injection so I assumed it was that. Until I droppeโ€ฆ

Annie thought her extreme fatigue was due to a missed B12 injection - until she slept for 25 hours straight! Blood tests revealed almost non-existent folate levels, later linked to her #CrohnsDisease and right #hemicolectomy. ibdsuperheroes.wordpress.com/2021/01/10/f...

#IBDSuperHeroes

21.02.2026 20:01 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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The invisible side of #IBD can be the loneliest. ๐Ÿ’œ
Our private Facebook group is a space where you can "rant" or just have a chat with people who truly understand life with #IBD.
Join the #IBDSuperHeroes community today buff.ly/S3gNmBr You don't have to fight this alone! ๐Ÿค๐Ÿฆธโ€โ™€๏ธ

19.02.2026 16:24 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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#RamadanMubarak! ๐ŸŒ™

To our #IBDSuperHeroes starting their fast today, please prioritise your health. Managing #IBD medications is vital, so do consult your medical team and remember there are exemptions for health conditions. Wishing you a peaceful month. ๐Ÿ’œ

โœจ #Ramadan2026 #Crohns #Colitis

17.02.2026 18:46 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Happy #LunarNewYear! ๐Ÿฎ Welcome to the year of the #FireHorse ๐Ÿ”ฅ

A year of passion, energy, and strength. May your "inner fire" burn brighter than your #IBD symptoms this year! ๐ŸŽโœจ

Wishing all our SuperHeroes a year of health and power. ๐Ÿ’œ

๐Ÿ’ช #IBDSuperHeroes #YearOfTheFireHorse #Crohns #Colitis

17.02.2026 16:36 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Happy #ShroveTuesday! ๐Ÿฅž

Beyond the pancakes, today is about being "shriven" - a time for reflection and clearing out the old before a new season begins. For the #IBD community, we're experts at reflecting on our health and navigating "forbidden" foods!

๐Ÿ’œ What are you reflecting on today? ๐Ÿฅžโœจ

17.02.2026 15:28 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Living with #IBD can make #Relationships a bit more complex. ๐Ÿ’œ

As we head into Valentine's weekend, whatโ€™s your top tip for navigating dating or marriage with #Crohns or #Colitis? Letโ€™s support each other! ๐Ÿ’ฌ๐Ÿ’•

#IBDSuperHeroes #IBDWarrior #DatingWithChronicIllness

13.02.2026 15:45 ๐Ÿ‘ 2 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Happy #DarwinDay! ๐Ÿงฌ

Science is the key to our future. Weโ€™re proud to support the "evolution" of #IBD care by funding research via #BowelResearchUK. Letโ€™s keep pushing for the discoveries that will lead to a cure for #Crohns and #Colitis! ๐Ÿ”ฌ๐Ÿ’œ

#IBDSuperHeroes #MedicalResearch

12.02.2026 13:31 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Happy Birthday to the ultimate SuperHero and our founder, @sahara88uk.bsky.social! ๐ŸŽ‚๐Ÿฅณ

Thank you for your vision, your advocacy, and for building this incredible #IBD community. We hope you have a day as wonderful as you are! ๐Ÿ’œ๐Ÿฆธโ€โ™€๏ธ

#IBDSuperHeroes #IBDWarrior #Crohns #Colitis

11.02.2026 11:01 ๐Ÿ‘ 3 ๐Ÿ” 0 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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Rest is a necessity, not a luxury. ๐Ÿง˜โ€โ™€๏ธ

Today is #SelfCareSunday, so listen to your gut and take it slow. Your body works hard fighting #IBD, give it the break it deserves. ๐Ÿ’ค๐Ÿ’œ

#Crohns #Colitis #IBDWarrior #Spoonie #RestIsProductive

07.02.2026 14:56 ๐Ÿ‘ 2 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Join us at 10:30am in our for a cuppa and a catch-up. (Facebook group event).

Plus, it's the final day of #FeedingTubeAwarenessWeek! Massive respect to our #Tubie warriors fueled by strength to fight #IBD. ๐Ÿฆธโ€โ™€๏ธโ›ฝ๏ธ

#Crohns #Colitis #FTAW2026

07.02.2026 14:49 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Itโ€™s #TimeToTalkDay! ๐Ÿ—ฃ๏ธ

Living with #Crohns or #Colitis is a mental battle as much as a physical one. Don't carry the load alone. Our community is here for the rants, the chats, and the support. ๐Ÿ’œ buff.ly/dYaIXKC

#IBDSuperHeroes #MentalHealth #IBD

05.02.2026 11:00 ๐Ÿ‘ 0 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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New week, same mission! ๐Ÿงฌ

Every penny raised by #IBDSuperHeroes goes directly to @bowelresearchuk.bsky.social to fund vital #IBDresearch.

Letโ€™s fund the science that finds a cure for #Crohns and #Colitis. ๐Ÿ’œ๐Ÿ’ช

#MondayMotivation #Fundraising

04.02.2026 16:13 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Itโ€™s #FeedingTubeAwarenessWeek! ๐Ÿฆธโ€๏ธ๐Ÿฅฃ

For many with #IBD, tubes are the "SuperHero fuel" that keeps them going. We're "cutting the crap" on stigma this week - a feeding tube is a tool of strength, not a sign of failure. ๐Ÿ’œ

#IBDSuperHeroes #FeedingTube #Tubie #Crohns #Colitis #IBDawareness

04.02.2026 11:40 ๐Ÿ‘ 0 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Wishing a happy #TuBShevat to all celebrating! ๐ŸŒณ๐ŸŽ

As we mark the "New Year of Trees," we celebrate the deep roots of resilience in the #IBD community. Remember, growth takes time, but your strength is unshakeable. ๐Ÿ’œ

#IBDSuperHeroes #Crohns #Colitis #IBDawareness #Growth

02.02.2026 12:01 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Wishing a peaceful #Imbolc to all! ๐ŸŒฑ As we celebrate the return of light and the first signs of spring, we honour the resilience of our #IBD community. Even in the "winter" of a flare, your inner strength is growing. ๐Ÿ’œ

#IBDSuperHeroes #Crohns #Colitis #IBDawareness #Resilience

01.02.2026 10:45 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Help us make the invisible visible! ๐Ÿ“ข #IBDSuperHeroes is on a mission to raise awareness and stamp out the stigma of #InflammatoryBowelDisease.

Check out our #IBDawareness resources for images and info you can share: tinyurl.com/IBDSHAwareness ๐Ÿ’œ

#Crohns #Colitis #IBD

30.01.2026 18:45 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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๐ŸŒˆ Love, support, and understanding define our #IBD community. Let's continue to make a positive impact and show the world what #IBDSuperHeroes look like. ๐Ÿ’ช

Tag IBDSuperHeroes to allow us to share your posts๐Ÿ’œ

#Crohns #Colitis #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDVisible

28.01.2026 16:13 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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This is NOT an exhaustive list! Throw your associated conditions in the comments ๐Ÿ‘‡๐Ÿป

Visit our website to find out more about #CrohnsDisease and #UlcerativeColitis! ๐ŸŒhttps://tinyurl.com/About-IBD

We cover symptoms, commonly related conditions, causes and more!

#IBDSuperHeroes #Crohns #Colitis #IBD

28.01.2026 13:39 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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โ˜•๏ธ Join us for the #IBDSuperHeroes mid-morning cuppa & catch-up, every Saturday at 10:30am!

Pop over to our Facebook group & check the events section for joining info. Let's connect! ๐Ÿ’ฌโœจ

#Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDVisible #IBDHasNoBorders

26.01.2026 15:15 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 1
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Happy #BurnsNight! ๐Ÿด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ Sending love to our team member AJ in Stirling!

Is haggis a "superfood" or a "super-trigger" for your gut? ๐Ÿฒ Tell us how you're celebrating #IBD style tonight! ๐Ÿ’œ

#IBDSuperHeroes #Crohns #Colitis #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders

25.01.2026 16:30 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Check out our community tips & experiences tinyurl.com/IBDSHCommuni... ๐Ÿ’œ

Whether youโ€™re newly diagnosed or have lived with #IBD for years, here, youโ€™ll find a wealth of insights and support from people who truly understand what itโ€™s like.

#IBDSuperHeroes #Crohns #Colitis

24.01.2026 16:02 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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โ˜€๏ธโžก๏ธ๐ŸŒ‘ Shorter days = lower #VitaminD.

For people with #IBD, this can mean more inflammation + weaker immunity.

Check your levels & chat with your care team.
๐Ÿ‘‰ buff.ly/4nwnzM4

#IBDSuperHeroes #Crohns #Colitis #CrohnsDisease #UlcerativeColitis #IBDawareness #CutTheCrap #IBDHasNoBorders

23.01.2026 18:26 ๐Ÿ‘ 1 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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The #Crohns & #Colitis Congress is happening now! From new genetic discoveries to AI-driven drug targets, the future of #IBD is being reshaped as we speak.

We're proud that our fundraising helps fuel this progress via @bowelresearchuk.bsky.social. Together, weโ€™re #MakingTheInvisibleVisible. ๐Ÿ’œ

22.01.2026 15:45 ๐Ÿ‘ 2 ๐Ÿ” 1 ๐Ÿ’ฌ 1 ๐Ÿ“Œ 0
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๐Ÿค— #IBD support, awareness, and fundraising is our mission! ๐Ÿ“ข

We believe that:
Together, we are stronger. ๐Ÿฅท
Together, we can fight harder. ๐Ÿ’ช
Together, we CAN be HEROES! ๐Ÿฆธ

If you believe that too, join us: buff.ly/fmk2Lbw

#IBDSuperHeroes #Crohns #Colitis #CrohnsDisease #UlcerativeColitis

21.01.2026 17:15 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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Today might be #BlueMonday, but you donโ€™t have to face it alone. ๐ŸŒง๏ธ

Living with #Crohns or #Colitis is a mental battle as much as a physical one. If you're struggling, reach out. Our community understands the invisible weight of #IBD www.facebook.com/groups/IBDSuperHeroes ๐Ÿ’œ

#IBDSuperHeroes

19.01.2026 09:52 ๐Ÿ‘ 1 ๐Ÿ” 1 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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From our FAQ and #IBDmyths section: buff.ly/MQuNtKx

โœจ IBD is NOT contagious โœจ

#CrohnsDisease and #UlcerativeColitis are not bacterial, fungal, or any other type of infection which can be passed on. We cannot infect you with our immune-mediated disease!

#IBDSuperHeroes #Crohns #Colitis

18.01.2026 16:13 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0