@erininthemorning.com will you be doing a list of Girl Scouts to purchase cookies from like you did in 2023? It was so helpful to find trans and nonbinary scouts and their inclusive troops. As an enby who left Texas, I would love to help others who are struggling.
Hollywood Reporter post on the strike at Denver Alamo Drafthouse.
Alamo workers go on strike in Denver today. Shit is going down at their Colfax Ave location in Sloan's Lake. QCJ stands with the workers. ✊️
Alamo Drafthouse workers in Manhattan and Brooklyn walked out on strike this evening after Alamo fired 70 workers this month. Join the picket line and support the workers! ⚡
I hate asking for help but I’m to the point that I don’t know what else to do. I have more medical debt and medical costs than I do income. Any support is appreciated.
www.gofundme.com/f/help-harle...
I have had to increase my salt consumption to help my POTS symptoms. Subsequently my tastebuds adapted and I can no longer tell when things are too salty for other people. What that means is when I cook everyone has to add salt because I end up undersalting everything from fear.
Show up for your chronically ill & disabled friends, I promise they need it right now. Don’t shame them if they are finding joy in the fact the health insurance CEOs are having to live in fear right now. It’s nice to think that the people responsible for the system are facing consequences. (16/16)
Protecting my quality of life isn’t accesible in our current system. If the ACA is repealed it will be close to, if not completely, impossible. Providing quality and accessible healthcare to everyone shouldn’t be a radical concept. (15/16)
In 2022 Kate and I hiked from Carrick-a-Rede to Giants Causeway (14ish miles). This year I was told to stop riding motorcycles. Attending Austin FC matches require a three day recovery window. I spend more time in bed than not. Protecting as much of my quality of life as I can is important. (14/16)
So basically in the current healthcare system I have to pay a minimum of $10k a year to try to stay healthy on top of my insurance premium and covered costs. That leaves me (and my partners) going into debt all in an attempt to manage my health. (13/16)
Then there’s the time lost to the appointments. Most of the providers I saw in Texas were at least an hour drive away from me. Two were four hours away. I had to drive to and from and frequently get a hotel. That was time that I missed work and it took a toll on body/health. (12/16)
Then there’s the time lost to navigate care. Between researching doctors and the latest info on my conditions, navigating insurance coverage, dealing with the appointment process and referrals, and keeping my medical records organized, I usually spend around 10 hours a week on these tasks. (11/16)
Plus there’s the “disabled tax”
My cost of living is more expensive because of things like gluten free and allergen free food, necessary OTC medications, items like pulse oximeters and blood pressure monitors, joint braces and KT tape, mobility aids, safety equipment, and travel for care. (10/16)
Some of the out of pocket costs I’ve had:
$150 for an evaluation with a PT & $130 for every weekly follow up appointment, $50 a month for a prescription to help manage my pain, $175 for IV therapy several times a year, $150 a session for EMDR therapy. That’s around $6785 and missing a lot. (9/16)
That leaves me with paying out of pocket as my option. As my ability to work declines, my ability to pay for that care disappears. I’ve been lucky to have partners who have helped shoulder that cost but the amount of debt that we have feels like a hole that will never be filled. (8/16)
Healthcare is experiencing the fallout from COVID. Dysautonomia cases have skyrocketed and existing conditions have worsened after infection. Providers can’t keep up with the need. For example the only in network EDS care in Texas was a doctor four hours away with a minimum 6 month wait. (7/16)
The pre-auth was completely denied and I had to go through the appeal process before we even scheduled the procedure. After spending three months jumping through hoops before surgery, I am still left with that much in denied claims. Dealing with my insurance is its own full time job. (6/16)
Even with insurance, costs are exorbitant. I had a spinal fusion at my L3 through my SI joints in July 2023. I’m still dealing with trying to get claims fixed and at the moment owe $80,000 for denied claims. Apparently anesthesia isn’t medically necessary even with pre-authorization. (5/16)
In 2024, I was told that I will likely need 3-5 surgeries in as many years. If the ACA is removed I will watch my quality of life deteriorate without access to these procedures. In no uncertain terms: I will lose mobility and independence as well as my already limited ability to work. (4/16)
Prior to the ACA, pre-existing conditions meant that insurance could charge you ridiculous premiums or just deny coverage. Considering my documented hEDS, POTS, spinal deterioration, shoulder & hip joint instability, ADHD, & PTSD with suspected BVD, CCI, & MCAS, w/o the ACA I’m uninsurable. (3/16)
If you are confused as to why there is some joyful responses to a health insurance CEO being shot, you haven’t been paying attention. Insurance companies discard lives for profits and the disabled community pays most of that cost. (2/16)
Here’s some things I think a lot of liberals miss re: how the US healthcare system impacts disabled people. I’m sharing my experiences in this thread but realize that I’m not the exception or the worst case scenario. I have had a better experience than most patients with a chronic illness. (1/16)
I’ve been a fan of Wicked since I heard the broadway soundtrack in high school and then read the book. I’m super excited for both films but it is definitely a deterrent for casual fans and people unfamiliar with the story
They did… Part two comes out in November 2025 🫠
Post a picture you took to bring some zen to the skyline
Glencoe, Scotland June 2022
