Read the full news item: tinyurl.com/3wf6buns
Are you interested in joining the Network? Let us know here: tinyurl.com/kp38xwz8
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04.03.2026 10:00
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Read the full news item: tinyurl.com/3wf6buns
Are you interested in joining the Network? Let us know here: tinyurl.com/kp38xwz8
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We’re excited for this next chapter and for the opportunity to deepen relationships with organisations working with people experiencing health inequalities.
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🚀 From April 2026, the programme will adopt a refreshed and more ambitious approach to how CQC and the Partnership work with Network members. Find out more about our plans here: tinyurl.com/yravknj9
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The Public Engagement Network (PEN) brings together more than 200 equality charities – big and small - across England. Through engaging with this network, the CQC aims to ensure that local health and care services meet the needs and preferences of the communities they serve.
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We are proud to lead this Partnership, working alongside @innovationunit.bsky.social and @collaboratecic.bsky.social. Together, we bring deep experience of tackling health inequalities and strengthening community voice in health and care.
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✨ We’re delighted to share that the Care Quality Commission (CQC) has awarded a three-year contract to the Voices for Health Equity Partnership to deliver its Public Engagement Network programme from 1 April.
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This month we have published new user-led information on assisted dying for our website.
Here’s why (a thread) ⬇️
compassionindying.org.uk/blog-post/ne...
This week marks the next stage of our major public dialogue reviewing the 14-day rule for human embryo research, in partnership with @sciencewise.bsky.social and delivered by @ipsosintheuk.bsky.social, @nationalvoices.bsky.social and @theliminalspace.bsky.social.
Find out more here:🔗 bit.ly/4rFZZ4B
This image shows a graphic of a computer monitor with a webpage showing a blog title of, ‘Beyond compliance: Why patient engagement must shape medical device design’ To the left of the blog title is a picture of the author, Louis Horsley, depicting a white man with short hair. The bottom right of the graphic shows the National Voices logo.
💬 “Real change requires manufacturers to recognise that patient engagement isn’t just a regulatory requirement, it’s also a source of insight that leads to better products, better outcomes, and ultimately better business. "
👉 tinyurl.com/2bdk3m42
📢 Beyond compliance: Why patient engagement must shape medical device design
In this week's blog, Louis Horsley, National Voices' Research and Insight Manager, stresses the importance of medical device design being shaped by meaningful patient engagement.
🔗 tinyurl.com/2bdk3m42
This image shows a graphic of a computer monitor with a webpage showing a blog title of, ‘Organising cancer care around people, not systems’ To the left of the blog title is a picture of the author, Matt Heath, depicting a white man with short hair. The bottom right of the graphic shows the National Voices logo.
💬 “Importantly, the Plan looks beyond treatment to consider patients individuals with their own physical, mental and social needs. This is made explicit in the commitment to providing personalised needs assessments and personal cancer plans as part of the universal offer to cancer patients.”
🚀 Organising cancer care around people, not systems
Earlier this week, the government launched its National Cancer Plan for England. In a new blog, @matt-heath.bsky.social, Policy and Comms Manager at National Voices, reflects on the Plan and its person-centred approach.
🔗 tinyurl.com/ye23uhwh
This image shows a graphic of a computer monitor with a webpage showing a blog title of, ‘Turning lived experience into impact’ To the left of the blog title is a picture of the author, Katie-Rose, depicting a white woman with short red hair. The bottom right of the graphic shows the National Voices logo.
💬 “Seeing the final report also helped with my own mental wellbeing, realising that what I think and feel is shared by others, and that it’s justified. I gained a lot from being part of the project.”
👉 tinyurl.com/bp566t43
Full report tinyurl.com/ys754rbp
🚀 Turning lived experience into impact
In this week’s blog, Katie-Rose, a National Voices' Lived Experience Partner, reflects on using her lived experience to help shape and analyse our research into patients’ experiences of medical devices outside hospital settings.
🔗 tinyurl.com/bp566t43
This infographic is titled, ‘ What do patients think of medical devices prescribed to them outside of hospital?’ Below the title is the following text, ‘In November 2024, the Department of Health and Social Care commissioned National Voices to gather patient insights on this question. Between November 2024 and March 2025, we held focus groups and interviews with 66 people and collected 679 survey responses to better understand the experiences people in England have of medical devices prescribed to them outside of hospital and what could be done to improve them. What we heard:’ In five separate clouds the following points are written. Alongside each cloud are graphics portraying people using different medical devices. ‘1. Patients want and expect medical devices to help them live their lives to the fullest.’, ‘2. Appearance, comfort and fit matter.’, ‘3. One size doesn’t fit all, so patient choice is important.’, ‘4. It is important that medical devices respond to the needs of the diverse groups of people who use them.’, ‘5. High quality and accessible information is important for patients to make choices about the right device for them.’ The bottom of the page reads: ‘Responding to these findings, National Voices and the Department of Health and Social Care have identified next steps which can be taken to ensure that people have access to the medical devices they need to live as fully and independently as possible.’ Read more in our report: ‘Patient views on medical devices prescribed to them outside of hospital in England’
These actions demonstrate a major win for patient voice, as the lived experience captured in this report is actively shaping decisions at both national and local levels.
📄 tinyurl.com/ys754rbp
In response to the findings, DHSC has committed to introduce a new 'value add' Quality Evaluation Framework component to reward manufacturers who can evidence their product is designed to address health inequalities, and much more.
The findings show that patients value devices that are reliable, easy to use, comfortable, and compatible with their everyday lives. The report also highlights the impact that device choice can have on people’s independence, dignity, and ability to manage their health and wellbeing at home.
The report is grounded in engagement with people who use medical devices prescribed outside of hospital settings. We gathered 679 survey responses and carried out interviews and focus groups with 66 people with lived experience of using prescribed medical devices outside hospital.
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🚀 Today, we’ve published a new report with the Department of Health and Social Care, Patient views on medical devices prescribed to them outside of hospital in England, exploring people’s experiences of using medical devices prescribed under Part IX of the NHS Drug Tariff.
📄 tinyurl.com/ys754rbp
Read the report to explore key insights and recommendations.
👉 tinyurl.com/3yx9dsn2
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The discussion focused on understanding how (in)effective improvement work happens from the perspective of patient organisations, and on identifying practical recommendations to support meaningful patient & VCSE sector involvement in the design and delivery of future improvement initiatives.
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The roundtable brought together charities to reflect on emerging findings from the Birmingham, RAND and Cambridge Evaluation (BRACE) Centre evaluation of general practice improvement programmes (tinyurl.com/yfx3p5sv).
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🚀 We’re pleased to announce the publication of our new report summarising a roundtable discussion we held with some of our member charities in mid-November.
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This image shows a graphic of a computer monitor with a webpage showing a blog title of, ‘Breaking down digital barriers’ To the left of the blog title is a picture of the author, Tim Clarke, depicting a white man with short brown hair. The bottom right of the graphic shows the National Voices logo.
💬 ”We’re committed to digital inclusion by design, ensuring our proactive approach includes individuals with lived experience of disabilities, underrepresented groups and deprived communities to prevent barriers when accessing NHS services.”
👉 tinyurl.com/4aefm427
In this week’s blog, Tim Clarke shares how the NHS Transformation Directorate is tackling digital exclusion head-on, from library partnerships and free data schemes to inclusive design and accessibility testing across the NHS App and website.
🔗 tinyurl.com/4aefm427
This image shows a graphic of a computer monitor with a webpage showing a blog title of, ‘Hoovering up more patient experience data isn't the answer, it's what the NHS does with it that matters.' To the left of the blog title is a picture of the author, Jacob Lant, depicting a white man with short brown hair. The bottom right of the graphic shows the National Voices logo.
💬 “Whilst I support the 10 Year Plan’s direction on patient experience, to make it work the Quality Strategy really needs to start with a good audit of what is being captured and how it is being used at the moment.”
🔗 tinyurl.com/z62f8hbr
📢 In this week’s blog, Jacob Lant, Chief Executive at National Voices, argues that the NHS doesn’t need more patient feedback, it needs to start listening to and acting on the vast experience data it already has.
👉 tinyurl.com/z62f8hbr
This image shows a graphic of a computer monitor with a webpage showing a blog title of, ‘The journey home: Insights into people's experiences of hospital discharge and follow-up care’ To the left of the blog title is a picture of the author, Louis Horsley, depicting a white man with short brown hair. The bottom right of the graphic shows the National Voices logo.
💬 “When the health and care system doesn’t provide adequate support, it simply shifts the burden onto families, who often receive no training, no respite, and often no recognition of the role they’re playing.”
👉 tinyurl.com/49skzzfu
Full report tinyurl.com/76nepdcx
📢 In this week’s blog, Louis Horsley, National Voices’ Research and Insight Manager, shares new research commissioned by the Care Quality Commission (CQC) for the State of Care 2024/25 report, exploring people’s experiences of follow-up care after hospital discharge.
🔗 tinyurl.com/49skzzfu
"In the meantime, I will repeat the message that over the next few days people should continue to seek care if they need it. And if people do experience a cancellation of their planned care, we understand NHS England guidance has told trusts to rebook those appointments there and then."
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