Trending
Raven's Avatar

Raven

@cyber-raven

Living with Long Covid ME/CFS which has brought inactivity.

559
Followers
151
Following
1,298
Posts
21.08.2023
Joined
Posts Following

Latest posts by Raven @cyber-raven

Improves or long covid starts seeing treatment plans that can lead to improvement and getting a semblance of my old passions back in return!

Anyway- this isn’t goodbye forever. This is just a “see ya later”.

Thanks for following and continuing to support me throughout the years ❤️

19.06.2025 02:25 👍 7 🔁 0 💬 2 📌 0

And continue to be creative while I feel forced to stay in place and be left behind. The few MOCing sessions I’ve done over the last 4 years have been painful and full of discomfort due to my condition.

And I WANT to build and enjoy the hobby again, but I can’t. Hopefully down the line, my health

19.06.2025 02:25 👍 4 🔁 0 💬 1 📌 0

Years - since my COVID infection- have shifted massively. Lego hasn’t been on my priority list for a long time especially next to the reality of living with long covid.

I’ve grown resentful seeing posts of MOCs and I recognize that’s not healthy. The rest of the Bionicle community gets to move on

19.06.2025 02:25 👍 3 🔁 0 💬 1 📌 0

I made the announcement on IG but after some consideration- I think it will also apply to this account too despite this platform being a little more “open ended” for me.

I have been toying with this for a bit now- but gonna abandon my account/s for the time being.

My priorities over the last 4

19.06.2025 02:25 👍 8 🔁 0 💬 1 📌 0
Post image

Makuta Kalvus: leader of the Xahrakh horde, and agent of Xaraku

Kalvus is a fierce and cunning warrior, who lives for challenge and sport, traits that drove him to work against the grain, and take a side in the universal conflict that would see him fight insurmountable odds

#Bionicle #BionicleMOC

12.06.2025 15:10 👍 58 🔁 12 💬 2 📌 0
Types of stress: stress, hypertension, migraine, YOUR TAKING TOO LONG

Types of stress: stress, hypertension, migraine, YOUR TAKING TOO LONG

Deltarune Chapter 4 meme I stole off the subreddit. Marked it as suggestive to prevent accidental spoilers.

12.06.2025 13:24 👍 4 🔁 0 💬 0 📌 0
Pepe Silvia meme

Pepe Silvia meme

How I probably look to my followers mostly consisting of LEGO and art fans when I go on about covid in 2025:

12.06.2025 08:22 👍 6 🔁 0 💬 0 📌 0

I wasn’t expecting my drama queen session about potentially dying to disease within next 4 years to hit the damn discovery tab- but here we are 💀.

11.06.2025 00:39 👍 5 🔁 0 💬 0 📌 0

Sounds super dramatic and I hope I am wrong and just coming off being a drama queen rofl. But for real- I feel fucked. A simple cold does me in- all this talk about bird flu or another covid infection or some other horrible disease? I’m a goner.

10.06.2025 04:38 👍 6 🔁 0 💬 0 📌 0

The only person who is effectively boned on another pandemic or rise of diseases we about eliminated when we were actually not a nation full of fucking conspiracy theorists.

I feel like I have to come to terms with a very real possibility that I may not live through the next 4 years.

I know that

10.06.2025 04:38 👍 7 🔁 0 💬 1 📌 0

I don’t mean to sound doom and gloom and touch on politics but ofc an antivaxxer just dismantled CDC paneling overseeing vaccinations.

I don’t think I’m going to survive through another pandemic. Real talk- I’m immunocompromised and covid nearly killed me in 2021 and it left me crippled. I am not

10.06.2025 04:38 👍 27 🔁 6 💬 2 📌 0

Begging, pleading even. Tag your nsfw content. I do not care that you post it, but I would like to choose when and if I see it.

09.06.2025 14:55 👍 102 🔁 20 💬 2 📌 0
Post image

Shoutout to MikeyBastard1 for being one of the only Redditors to have a brain!

09.06.2025 12:45 👍 87 🔁 12 💬 3 📌 0

I’m doing A LOT better than a week or two ago don’t get me wrong. But I don’t have energy for anything. I do my remote job and then sleep pretty much. Haven’t even been gaming.

It sounds like depression, but it’s not. I’m vibing- but mitochondrial is fucked up so who tf knows ahaha.

10.06.2025 02:06 👍 3 🔁 0 💬 0 📌 0

So I took down my comms post and removed comms from my profile for time being. Plus my Etsy shop is still shut down.

I haven’t unpacked my shop from our move yet tbh and it’s on the back burner.

Art I’m not really in the mood for lately. But I’ve been in a weird place with my chronic illness bs,

10.06.2025 02:06 👍 3 🔁 0 💬 1 📌 0

I’ve learned from Twitter that people will find literally any reason to bitch over anything- ESPECIALLY gamers.

10.06.2025 01:55 👍 1 🔁 0 💬 0 📌 0

Dealing with it about as well as anyone else in the country. Except I’m crippled and immunocompromised so I couldn’t actively participate in protests anyway. I just have to sit and see what happens next.

It’s disgusting it’s gotten to this point. Still pissed Kamala didn’t win.

10.06.2025 01:45 👍 3 🔁 0 💬 0 📌 0

Dude I don’t even buy games at $60 let alone much more than that ahaha. Shit’s gotta be on sale nowadays before I even entertain the thought.

10.06.2025 01:42 👍 0 🔁 0 💬 0 📌 0

In a weird place rn. Don’t feel like starting convos or threads, but responding to them. Been back on Reddit a lot. My activity is kinda in the shitter with all other sites at the moment.

09.06.2025 02:53 👍 3 🔁 0 💬 0 📌 0
Without me, Teridax would not have become ruler. The Toa would control the senate. The Makuta would be overran.

Without me, Teridax would not have become ruler. The Toa would control the senate. The Makuta would be overran.

Man this breakup is getting out of hand.

#lego #bionicle

06.06.2025 01:38 👍 33 🔁 5 💬 0 📌 0
just wanted to say that following your page and reading your stories has educated me a TON on ME/ CFS. before following you i never even heard of it. i really hope things get better for you, or at the very least more comfortable.

just wanted to say that following your page and reading your stories has educated me a TON on ME/ CFS. before following you i never even heard of it. i really hope things get better for you, or at the very least more comfortable.

So I’ve made it my personal mission to start on my backlog of IG DMs and this one gave me feel-good vibes.

I’m sure my IG followers are tired of my stories being focused so much on ME/CFS and not LEGO as much anymore- but this is why I do it!

03.06.2025 13:18 👍 4 🔁 0 💬 0 📌 0

An update from my IG story relating to recent health developments:

01.06.2025 02:34 👍 7 🔁 1 💬 0 📌 0

The GoFundMe for Tobias is not at the mercy of a character limit- like I am here + battling my mush brain.

ME/CFS is a devastating multisystem illness that has lower quality of life than cancer, organ failure, and MS to name a few. It is incomprehensible. It is Living Death.

30.05.2025 03:26 👍 3 🔁 0 💬 0 📌 0
Preview
Donate to Help Save Tobias: His Last Hope to Live, organised by Tobias Schweikert [English below – Deutscher Text weiter unten] Hi, my name is Tobias. I a… Tobias Schweikert needs your support for Help Save Tobias: His Last Hope to Live

I would like to take this moment to shine a light on someone else who has very severe ME/CFS and is to the point where their country has approved euthanizing them. Tobias has one last hope of seeking treatment and living. Please read more here:

www.gofundme.com/f/help-save-...

30.05.2025 03:16 👍 3 🔁 3 💬 2 📌 0

I am 90% bedbound at this point. The pain I feel is seeped into my joints. I have a hard time with light and sound again. Processing large amount of texts on screen is difficult. My brain is getting closer to being jello. The fatigue is brutal- but sleeping allows escapism and time to past.

30.05.2025 03:16 👍 4 🔁 0 💬 2 📌 0

Have not been on BSky lately. My ongoing battle with ME/CFS has taken a turn for the worst as summer approaches. This week has been particularly brutal and it will only get worst as we get deeper into summer with hotter temps. This existence is painful and I am afraid to go back into the dark again.

30.05.2025 03:16 👍 6 🔁 4 💬 2 📌 1

ME/CFS at work. Overdid and brain no work.

But. Rejoice! Everything out of old house!

It’s done. Fin. Done! Yay!

Cept now to clean. That can come later tho. Rest.

09.05.2025 06:15 👍 2 🔁 0 💬 0 📌 0

I remember liking Oblivion okay enough back in the day- but not being in love with it. I tried to go back to it again after playing Skyrim- but just preferred Skyrim. Then r this remaster hits and gives everything a fresh coat of paint and I’m having a blast.

I also wanna check out Expedition 33.

28.04.2025 08:25 👍 3 🔁 0 💬 1 📌 0

I’m dying to play more Oblivion. I’m addicted again. Oops.

Wife is asleep in bed and I can’t turn the PC in (same room) without waking her 😭.

27.04.2025 08:39 👍 2 🔁 0 💬 0 📌 0

Just closets and Whats lefts of the garage… that’s it! My body is screaming.

26.04.2025 07:12 👍 4 🔁 0 💬 0 📌 0