I think meditation apps are #ablist and exclude other groups like #poverty #violence and #addiction. What do you think? I think they are superficial and don't promote the radical acceptance of mindfulness.
A big part of living with #myastheniagravis is acceptance.
I wake up with anxiety like a gaping hole in my chest. As I become conscious, my body regrets walking up, being alive. #myastheniagravis #anxiety #depression
🩵 Charlie Stands with Myasthenia Gravis (MG) Patients
Today, we raise awareness and stand in solidarity with those living with Myasthenia Gravis (MG)—a rare neuromuscular disorder that affects strength and mobility.
#MGAwareness #PeopleCareAI #StandWithMG #MyastheniaGravis #ChronicIllnessAwareness
Are you being treated with more than mestinon? MG needs to be treated aggressively. Before modern treatments 70% of MG patients died.
I'm housebound with it and was bedbound for a few months. It's hell.
Yesterday I took my longest continuous walk to date, since becoming disabled. I got down to the lake with my dog, it was frozen and beautiful and I felt so great getting out of the house and off the property. Today I'm in so much pain, so much inflammation, my nose is stuffed up. #myastheniagravis
Nobody talks about how scary and emotional #healing is. #myastheniagravis #vyvgart
Are you on vyvgart?
The recovery isn't that bad! Real pain was gone in a few days, most discomfort gone in a couple weeks.
I'm wearing real shoes for the first time in 2+years for my first PT appointment. I've only been wearing moccasins and slippers. #myastheniagravis #disability #vyvgart
I'm sick of being smarter than my doctors. I should not have to tell a back doctor that a scoliosis X-ray needs to be performed standing up. #chronicillness #scoliosis
It's the other way around. Long covid is very likely me/cfs, which is good news for me/cfs research.
