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@shouldbeasleep

Woke but sleepy, except at night. Workaholic MarTech geek turned stay at home mum. Reliant on 90% Lindt. Always neurodivergent, painfully Gen X, furiously perimenopausal & too bendy. Intoleraces: intolerance, gluten, lactose, histamine, stress & exercise

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14.11.2024
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Latest posts by @shouldbeasleep

Please try and shut that down. You know it's not true. I had well over 20 years of therapy before I realised I was actually autistic during lockdown. She really doesn't know what she's talking about.

09.03.2026 23:53 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Preview
No One Saw Me Until I Did ~ Pablo ~

I’ve been working on this for eight months. It’s more personal than anything else I’ve written. Not politics. Not theory. Just me.

~ Pablo ~

open.substack.com/pub/pabloist...

08.03.2026 11:12 πŸ‘ 12 πŸ” 2 πŸ’¬ 2 πŸ“Œ 0

Self alienation perhaps?

05.03.2026 00:52 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

PSHCE lessons should have included neurodivergence. Nobody ever taught me what different minds look like. I would've recognised myself and advocated for myself much earlier.

25.02.2026 07:24 πŸ‘ 24 πŸ” 9 πŸ’¬ 0 πŸ“Œ 0

I'm sure it's because they struggle with those things too and so assume it must be "normal' to struggle like that. They can cope, so everyone else should too.

23.02.2026 21:49 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Absolutely! Reassessment when you need it = awesome! When you don't and you're finally functioning after years of struggle = cruelty.

20.02.2026 12:13 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I'm just thinking that major life transitions don't end at 25. I'm hoping Access to Work might help me when I'm ready to get back into the workforce after a late diagnosis and kids. And I'll probably need support for retraining since I'm pretty sure AI has eviscerated my previous roles.

20.02.2026 11:44 πŸ‘ 1 πŸ” 0 πŸ’¬ 4 πŸ“Œ 0

Or the summer borns are lucky because their neurodivergence sticks out more so they actually get the validation support they need?

20.02.2026 09:37 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Or when they become parents themselves or hit the perimenopause.

20.02.2026 08:54 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Neurodivergent parenting often feels like a built in contradiction. We’re expected to raise the next generation of "functioning" adults while our own internal systems, autistic or ADHD, are frequently designed in direct opposition to the world we’re raising them in. 1/7

16.02.2026 11:57 πŸ‘ 13 πŸ” 3 πŸ’¬ 1 πŸ“Œ 0

I’ve stopped apologising for being neurodivergent. Liberation isn't just "tolerance"; it’s dismantling an economy that demands we be "normal" to survive. We need a society where we are valued for who we are, not how well we mimic the "perfect worker." We aren't broken; the system is. 6/6

13.02.2026 15:33 πŸ‘ 18 πŸ” 5 πŸ’¬ 1 πŸ“Œ 0
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β€œEverything Failed Her”: A Whistleblower Speaks On Chanté’s Death And Why #ChantesLaw Matters A whistleblower opens up about what they witnessed

The death of ChantΓ© was completely avoidable and this interview with the whsitleblower from the company responsible for her care shows just how avoidable it was

www.davidgrayhammond.co.uk/p/everything...

#ChantesLaw #ActuallyAutistic #AutisticRights #MentalHealth #Autism

03.02.2026 20:50 πŸ‘ 5 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

Happy birthday Ben!

10.02.2026 22:28 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Post image

- Today is my Birthday!
I have autism and I officially
turn 29 years old. I would like
to receive lots of birthday wishes
from people around the world!
please Share/Like! to help
make my birthday
wish come true! ❀️

10.02.2026 20:06 πŸ‘ 1285 πŸ” 247 πŸ’¬ 667 πŸ“Œ 28

Is the purpose really unclear? Correcting an 80-year blind spot so that we're no longer condemning autistic women to a lifetime of feeling broken, anxious, and depressed seems pretty valid to me.
You don't receive a diagnosis unless you're experiencing significant struggles in very specific ways.

05.02.2026 23:53 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

#Thread
If you’re wondering if you might be Autistic but ruling it out because some of the diagnostic criteria don’t apply read on.
Initially Autism wasn’t considered a likely explanation for my difficulties because I was married, employed, seemed to cope with change, and had social skills.

11.12.2024 08:37 πŸ‘ 116 πŸ” 16 πŸ’¬ 5 πŸ“Œ 5

The NHS appears to have set up an Independent Review re: 'increased demand for mental health, autism and ADHD assessment and support across all age groups'. They are looking for people with relevant Lived Experience to join the Review as 'Partners' - important work! #livedexperience #autism #adhd

28.01.2026 15:33 πŸ‘ 3 πŸ” 4 πŸ’¬ 1 πŸ“Œ 0

My experience is that undiagnosed neurodiversity - and the resulting trauma - can combine with culture and patriarchy to lead people to become abusive. They can't accept your diagnosis or that of their child because it directly challenges their fragile sense of who they are.

21.01.2026 14:23 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Trying to be proudly AuDHDtastic today. I told my 7-year-old what ADHD is and that I have it - and he immediately said, β€œOh, I think I have that too!” He's absolutely chuffed about it so I must be doing something right. πŸ₯²

21.01.2026 10:02 πŸ‘ 4 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Calling all neuroaffirming online communities

Calling all neuroaffirming online communities

Do you run a neuroaffirming online community for ND people?

I'd love to hear from you if you'd like it included in a round up which will be published on Substack.

Details at www.facebook.com/share/p/17vn... or substack.com/@jadefarring...

I'm particularly keen to hear from more non-Autistic ones!

18.01.2026 10:55 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Video thumbnail

For anyone that needs to hear this. #demodex

08.12.2025 02:54 πŸ‘ 413 πŸ” 84 πŸ’¬ 15 πŸ“Œ 10
A paper plate held in a left hand with four slices of white sliced bread toast, all with different spreads. At 12 o’clock we have just buttered toast. Going clockwise there is cinnamon and powdered sugar, then creamy peanut butter, then blueberry jelly.

A paper plate held in a left hand with four slices of white sliced bread toast, all with different spreads. At 12 o’clock we have just buttered toast. Going clockwise there is cinnamon and powdered sugar, then creamy peanut butter, then blueberry jelly.

Autism: my safe food is toast

ADHD: I require variety and novelty

AuDHD:

11.01.2026 02:47 πŸ‘ 351 πŸ” 57 πŸ’¬ 24 πŸ“Œ 12
A sheep standing in a green field against a dark sky 

β€œYOU'RE NOT UNLOVABLE,
AND NO ONE IS MAD AT YOU.”


credit: @sinxline

A sheep standing in a green field against a dark sky β€œYOU'RE NOT UNLOVABLE, AND NO ONE IS MAD AT YOU.” credit: @sinxline

02.01.2026 20:38 πŸ‘ 208 πŸ” 76 πŸ’¬ 7 πŸ“Œ 3
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New petition: Fund mandatory neurodevelopmental screening for all children Screening could take place in primary care, including GP appointments, health visitor reviews, and school entry health at key developmental stages. It should involve early, trauma-informed, and identity-safe screening tools, with clear referral pathways, follow-up support, and outcomes monitored.

New petition: "Fund mandatory neurodevelopmental screening for all children"

Deadline 1 February 2026, created by Ingrida Jogminiene

#NewPetition

01.08.2025 15:12 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

I'm crap at spending and spelling and proofing things I right.

31.12.2025 23:10 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I'm crap at spending and I could easily spell diarrhea like that.

31.12.2025 23:07 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

cure fascism, not autism

28.12.2025 02:31 πŸ‘ 121 πŸ” 35 πŸ’¬ 5 πŸ“Œ 0

Casual reminder that the myth of β€œpulling yourself up by your bootstraps” is a cruel hoax designed to convince poor people from all walks of life that the injustices they face are a result of their own actions, rather than an oppressive system rigged against them.

21.12.2025 23:00 πŸ‘ 18314 πŸ” 5214 πŸ’¬ 512 πŸ“Œ 202
A well known meme which is split into two halves. The top half features  a person pointing to a board with words that read: "All we want for Christmas is..."

And the second half features a board with words on that read: "A mental health ststem that works for everyone"

A well known meme which is split into two halves. The top half features a person pointing to a board with words that read: "All we want for Christmas is..." And the second half features a board with words on that read: "A mental health ststem that works for everyone"

Who's with us? πŸŽ„

22.12.2025 09:30 πŸ‘ 9 πŸ” 2 πŸ’¬ 1 πŸ“Œ 1

PSA...

Disabled doesn't mean can't do anything. It means can't do certain very specific things without support.

20.12.2025 02:58 πŸ‘ 157 πŸ” 41 πŸ’¬ 5 πŸ“Œ 0