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Sondra Butterworth

@sondrabutterworth

Dr Sondra Butterworth. CEO of RareQoL [www.rareqol.com]. Community Psychologist, mixed methods researcher, EDI specialist, Educator, Mentor and Coach.

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24.11.2024
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Latest posts by Sondra Butterworth @sondrabutterworth

This looks good. Thank you for sharing.

12.03.2026 10:15 ๐Ÿ‘ 1 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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The Illusion of Inclusion!
So often I am asked about my thoughts about iinclusion or engagent with marginalised communities.

So... here are some of my thoughts.
#rare_disease #inclusion #patient_engagement

12.03.2026 10:12 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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#Whose_Voice_is_it_Anyway?
From "Book of #Doers" to "Circle of Doers"

We aim to continue the success of this project and aim to seek out like minded Doers to work with.
Follow link for more info.
EDIRA Academy: Inclusive Learning & Networking - EDIRA Academy share.google/uilMVzU4A5f5...

26.01.2026 08:39 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0

Looking forward to connecting

08.01.2026 14:04 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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EDIRA: How to fix a broken flower? Check out case examples from our Book of Doers featured on
lnkd.in/eQx2RQh7

#diagnostic_journey #lived_experience #health_inequity #rare_disease #systems_failure #mistrust #edi #ethnic_minority #PPIE.

Happy to chat... DM me.

08.01.2026 14:00 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0
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07.01.2026 06:30 ๐Ÿ‘ 0 ๐Ÿ” 0 ๐Ÿ’ฌ 0 ๐Ÿ“Œ 0