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Olenka Sayko

@osayko

Theater/film/music/book lover. Lipstick hoarder. Ukrainian-American. Life on pause due to #LongCOVID of the #MECFS / #POTS / #MCAS variety. Left-ish libertarian-ish. Suffering NY Rangers fan. Audiobook connoisseuse.

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22.04.2023
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Latest posts by Olenka Sayko @osayko

Preview
Black Actresses Are Carrying One Battle After Another Teyana Taylor, Chase Infiniti, and Regina Hall propel the film’s most conflicted ideas, for better and worse.

With One Battle After Another winning big at the Globes last night, it's the perfect time to read @angelicabastien.bsky.social's fantastic analysis of the film and Teyana Taylor's fantastic performance that provides an interiority the script often lacks

12.01.2026 15:41 πŸ‘ 15 πŸ” 6 πŸ’¬ 1 πŸ“Œ 0

And if you fear that you will now be at higher risk of death and complications because you cannot stay up to date on vaccines, please consider for a moment that that is the burden you’ve been happy to put on disabled and vulnerable people for several years.

28.08.2025 17:07 πŸ‘ 250 πŸ” 78 πŸ’¬ 1 πŸ“Œ 4

If you are angry, as you should be, that restricting access to the vaccine will make covid worse and more dangerous, please start wearing a mask, which actually does a significantly better job of preventing transmission in the first place.

28.08.2025 17:06 πŸ‘ 1307 πŸ” 586 πŸ’¬ 19 πŸ“Œ 19

The compounding pharmacy that used to prepare my thymosin alpha-1 is no longer doing it and my usual compounding pharmacy doesn’t offer it. Anyone with #LongCOVID or #MECFS and at TA-1 script have a compounding pharmacy that offers it? If so, details pls!

11.07.2025 13:52 πŸ‘ 3 πŸ” 3 πŸ’¬ 0 πŸ“Œ 1
a red square image with translucent flames in the background. All text is in capital letters, and reads "DISABILITY IN DYSTOPIA ANTHOLOGY". The bottom of the image features graphics in dark red, purple, and pink, of several differently disabled people holding flags, signs, and capes.

a red square image with translucent flames in the background. All text is in capital letters, and reads "DISABILITY IN DYSTOPIA ANTHOLOGY". The bottom of the image features graphics in dark red, purple, and pink, of several differently disabled people holding flags, signs, and capes.

#Disability is the only universal marginalisation, making up 1/5 to 1/4 of the world's population, yet so few of our stories are published!

Help me uplift disabled & chronically ill #writers by supporting & submitting to this #anthology ❀️‍πŸ”₯

Guidelines: shorturl.at/jges6
Deadline: July 31st 2025.

29.06.2025 02:47 πŸ‘ 45 πŸ” 39 πŸ’¬ 2 πŸ“Œ 9

Rich white women really coming to BookTok, a place where (primarily) women make content about (primarily) books where people bang out of wedlock, at a time of a puritanical crackdown on reproductive freedom and ask when did things get political… 🫠

30.03.2025 06:07 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I’m always so tickled when people go β€œugh when did [insert thing here] become political?” And it’s like, sorry babe, but as long as groups within society use the state as a cudgeol to decide who has what rights and how collective resources are allocated, most things will be political.

30.03.2025 06:02 πŸ‘ 6 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

🚨 🚨 🚨

Really important action for #LongCOVID community and allies! Call or email your federal legislators to let them know #NoLongCOVIDcuts!

This condition impacts millions of Americans, many of whom are severely disabled with NO treatments!

26.03.2025 02:38 πŸ‘ 9 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

Sprained my ankle. Time for all these peptides I’ve been shoving into my body to do something miraculous.

06.03.2025 08:11 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Yes and yes, but your son’s mileage may vary.

27.02.2025 03:46 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

As we approach the 4th and 11th anniversaries of the war that Russia started, it is important to remember that this has always been a blatant land grab that turned genocidal as soon as they realized Ukrainians do not want to be Russians

22.02.2025 18:42 πŸ‘ 170 πŸ” 35 πŸ’¬ 1 πŸ“Œ 1
Screenshot from the Lancet.com

Interpretation

Among participants followed up to 3 years after initial infection, those with current Long COVID had worse physical and mental health outcomes. The majority of those with Long COVID did not resolve, with less than 2% having resolved Long COVID. The resolved Long COVID cohort had moderately worse physical and mental health compared with those never-having-Long COVID. COVID-19 vaccination was associated with better outcomes.
Funding

Centers for Disease Control and Prevention.

Screenshot from the Lancet.com Interpretation Among participants followed up to 3 years after initial infection, those with current Long COVID had worse physical and mental health outcomes. The majority of those with Long COVID did not resolve, with less than 2% having resolved Long COVID. The resolved Long COVID cohort had moderately worse physical and mental health compared with those never-having-Long COVID. COVID-19 vaccination was associated with better outcomes. Funding Centers for Disease Control and Prevention.

New Lancet study shows extremely low, 2%, recovery rate from Long COVID.

However, those who considered their Long COVID resolved were still in worse health than those who never had Long COVID.

www.thelancet.com/journals/lan...

20.02.2025 12:48 πŸ‘ 174 πŸ” 83 πŸ’¬ 8 πŸ“Œ 16

Anyone in the #LongCOVID or #MECFS universe tried the antimicrobial and antiviral peptide LL-37? Would love to touch base about folks’ experiences and dosages.

20.02.2025 02:11 πŸ‘ 3 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
ClinicalTrials.gov

Regeneron is recruiting for a phase 2 RCT of REGN7544 (an NPR1 antagonist mAb) for POTS. They’re seeking 81 patients in Pasadena, CA; Carlsbad, CA; Nashville, TN; and Clearwater, FL clinicaltrials.gov/study/NCT065...

18.02.2025 17:09 πŸ‘ 29 πŸ” 16 πŸ’¬ 1 πŸ“Œ 0

It’s wild how much calmer my nervous system feels when I’m on my period. I wish I knew what was happening in my body that makes it so and how I can reproduce it the other three weeks of every month. πŸ€” #LongCOVID

19.02.2025 06:22 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Preview
Where Do You Protest Elon Musk? Everywhere, It Turns Out. From Stonewall to Tesla dealerships, protesters are pioneering a form of opposition that doesn't necessarily center on Washington, D.C..

Unexpected niche beat for @melissagiragrant.com: Covering the myriad protests happening right now despite claims on social media that 'no one is protesting.'

18.02.2025 20:40 πŸ‘ 707 πŸ” 257 πŸ’¬ 8 πŸ“Œ 2

It’s no longer low. In fact my amino acids rebounded spectacularly well for the most part since treating SIBO. But interesting to think about certainly.

15.02.2025 23:42 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Anyone with #LongCOVID, #MECFS, or #ChronicLyme tried supportive oligonucleotide technique (SOT) for EBV, CMV, HHV-6, and Lyme and its co-infections? My functional medicine doc does it in his office and I’m considering it to try to shift symptoms. Would love personal anecdotes!

14.02.2025 22:17 πŸ‘ 4 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
Preview
a man with a beard is looking at the camera with a serious look on his face . Alt: Justin Timberlake with a beard is looking at the camera with a serious look on his face getting his mugshot taken.

Me: β€œThis is gonna ruin the microbiome.”

Inner voice: β€œWhat microbiome?”

Me: β€œThe gut microbiome”

14.02.2025 19:52 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Luckily I had some on hand so I just took one this morning and the jaw pain has gotten less severe but the tonsils are LOUD. 😣

14.02.2025 19:50 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Even my jaw hurts 🫣

14.02.2025 19:45 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

The sinus part is very mild but the left side of my throat feels like it’s on fire. It’s extremely unpleasant πŸ˜΅β€πŸ’«

14.02.2025 19:43 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Have a tonsil and sinus infection. Happy Valentines Day to me from AmoxClav. πŸ˜₯

14.02.2025 19:39 πŸ‘ 3 πŸ” 0 πŸ’¬ 2 πŸ“Œ 0
Preview
Project 2025 is gutting medical funding that helped Russell Vought's own kid Its architect's daughter has cystic fibrosisβ€”and benefits from a "miracle drug" backed by an agency he's attacking.

Incredible: Russ Vought’s daughter has cystic fibrosis and benefits from a β€œmiracle drug” made possible by the National Institutes of Healthβ€”an agency Vought now aims to gut as part of the Project 2025 attack www.motherjones.com/politics/202... Scoop from @motherjones.com’s @metrauxjulia.bsky.social

12.02.2025 01:42 πŸ‘ 6826 πŸ” 3158 πŸ’¬ 571 πŸ“Œ 662

Haven’t really decided yet. I’m adding in truvada shortly and seeing how my body responds. All likely depends on how kidneys and liver respond.

12.02.2025 02:26 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Preview
The potential of Sofosbuvir against COVID-19 neurological symptoms Researchers discuss how SARS-CoV-2 infects cortical neurons and damages their synapses that form the connection between brain cells.

Not specifically for nervous system. Just LC/viral persistence in general. This came out a few years ago. www.news-medical.net/news/2022112...

12.02.2025 00:59 πŸ‘ 3 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Symptoms. I’ve had no side effects, even at the higher dose. Which I tried because someone else who had success on it for LC said they saw no benefit at 400mg but did get benefit at 800mg

12.02.2025 00:58 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

I’m on day 5 of Sofosbuvir. The first two days I only took one pill, but have been taking 2 the other two days. Very up and down but the ups are very up. My nervous system feels very calm on those days.

11.02.2025 23:59 πŸ‘ 7 πŸ” 1 πŸ’¬ 2 πŸ“Œ 0

Which is really fucking saying something. Because NYC has had some terrible fucking mayors.

11.02.2025 07:18 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0