In loving memory of Graham Robertson

Today we remember Graham Robertson. Graham remains at the heart of Insulinoma Charity’s purpose and mission. Graham, you are deeply missed, & you will always be remembered, with love, by those who walked alongside you & whose lives you touched in our insulinoma community.
#inlovingmemory

Read Alex’s insulinoma experience: insulinoma.co.uk/our-stories/...

#insulinoma #neuroendocrinetumour #myinsulinomaexperience

Danielle Walker

A Mother’s Fight

Danielle’s Story - Living With Insulinoma and Metastatic Neuroendocrine Cancer

Read Danielle Walkers Story and help
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#insulinoma #neuroendocrinecancer #DanielleWalker

#insulinoma #newyear2026 #neuroendocrinetumour

As 2025 comes to a close, we take look back at some of our highlights from this year. #insulinoma #insulinomaawareness #neuroendocrine

To download a copy of Insulinoma Newsletter December 2025:

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Find out more: upliftstudy.com

#insulinoma #clinicaltrial #Rezolute

Insulinoma experience

Read Debbie’s Insulinoma Experience
insulinoma.co.uk/our-stories/...

#netcancerday #NETCancerDay #netcancerday2025
#insulinoma #NeuroendocrineCancer #Insulinomaawareness #InsulinomaCharity #Hypoglycaemia

Two years after undergoing major surgery for an insulinoma, lan Houson completed his first ever half marathon, the AJ Bell Great Scottish Run, raising an incredible £2,963.67 for Insulinoma UK Charity.
#insulinomacharityuk #insulinomaawareness
#neuroendocrinetumour #grateful #insulinoma #fundraiser

#WorldNETCancerDay
#LetsTalkAboutNETs
#LetsTalkAboutINSULINOMAs
#NeuroendocrineTumours

Two years ago, Ian underwent major surgery, for an insulinoma. Tomorrow he runs the AJ Bell Great Scottish Run Half Marathon his first ever half marathon, support Ian by helping him to reach his fundraising goal.
www.justgiving.com/page/ian-hou... #insulinoma

For more information: insulinoma.co.uk/quiz-night
#insulinoma

Find out more: insulinoma.co.uk/useful-resou...
#insulinoma

#100%Insulinoma

Meeting Sarah Dearman at the Children’s Hyperinsulinism Charity conference and learning about the charity’s work was inspiring. It was great to connect face to face with Davelyn Hood from Rezolute. Ersodetug offers real hope for better care, and I am excited about future collaboration #insulinoma

For more information on diagnosing an insulinoma: insulinoma.co.uk/insulinoma-d...

#Insulinoma

@blenheimpalace.bsky.social

Elliot’s Triathlon for Insulinoma Charity UK

I could not be prouder of my son, Elliot, for completing the Blenheim Palace Triathlon and raising £1,000 for Insulinoma Charity UK.

#insulinoma

Elliot's fundraiser for Insulinoma Charity UK Help Elliot Wright raise money to support Insulinoma Charity UK

Today @blenheimpalace.bsky.social triathlon, please show your support and kindness by donating in support of Elliot’s fundraiser for @insulinoma.bsky.social

www.justgiving.com/page/elliot-...

#insulinoma

💙 Hyperinsulinism Awareness Day 💙
We stand with @CHCharityUK

We are proud to stand alongside Children's Hyperinsulinism UK on #HyperinsulinismAwarenessDay

#AimHiTogether #AimHiforHyperinsulinism #HyperinsulinismUK #Hyperinsulinism
#Insulinoma #InsulinomaAwareness #InsulinomaCharityUK #RareDiseases

Support Elliot’s Triathlon Fundraiser for Insulinoma Charity UK

This June, my son Elliot is taking on his first triathlon at Blenheim Palace to raise funds for Insulinoma Charity UK (ICUK).

To Donate:
www.justgiving.com/page/elliot-...

#insulinoma

Produced by the consultant at the hospice who cared for Pete, who had a metastatic insulinoma, during his final days. This consultant presented the paper at a palliative care conference, and with Pete’s wife permission, it is now being shared more widely. #insulinoma

FDA approves cabozantinib for pNET and epNET On March 26, 2025, the FDA approved cabozantinib (Cabometyx, Exelixis, Inc.) for previously treated, unresectable, locally advanced or metastatic, well-differentiated pancreatic neuroendocrine tumors ...

On March 26, 2025 the US Food and Drug Administration (FDA) approved cabozantinib (Cabometyx) for treating adults & children aged 12 & older with advanced pancreatic neuroendocrine tumors (pNET) & extra-pancreatic neuroendocrine tumors (epNET) including insulinomas. www.fda.gov/drugs/resour...

Modified cornstarch as an effective treatment for insulinoma-induced hypoglycemia: a case report - European Journal of Clinical Nutrition European Journal of Clinical Nutrition - Modified cornstarch as an effective treatment for insulinoma-induced hypoglycemia: a case report

NEW - Case Report Published: 21 March 2025

Modified cornstarch as an effective treatment for insulinoma-induced hypoglycemia: a case report.

Abstract available to read for free

www.nature.com/articles/s41... #insulinoma

Improved Localization of Insulinomas Using 68Ga-NODAGA-Exendin-4 PET/CT Keywords: insulinoma, exendin PET/CT, diagnostic imaging, GLP-1 receptor

This study demonstrates the superior performance of exendin PET/CT in locating an insulinoma

pmc.ncbi.nlm.nih.gov/articles/PMC...

#Insulinoma
#RareDiseaseDay2025 #InsulinomaCharityUK #InsulinomaAwareness #InsulinomaSupport #MetastaticInsulinoma #IndolentInsulinoma #Hypoglycaemia #NeuroendocrineTumour #NETCancerAwareness #ICUK #RareDisease #VolunteerDriven #InsulinomaResearch #Smallcharity #Rarebutreal #rarerevolutionmagazine

#Insulinoma

#insulinoma

📢 Next week is Children’s Mental Health Week! (3-9 Feb)
❤️‍🩹For children with Congenital Hyperinsulinism (CHI), the emotional challenges can be just as tough as the physical ones. Join us throughout the week as we explore the impact of CHI on mental health
#ChildrensMentalHealthWeek

Dedicated to advancing our efforts for the insulinoma community in 2025.

#insulinoma #InsulinomaCharityUK #ICUK #InsulinomaResearch #neuroendocrine #neuroendocrinetumour #SmallCharity #insulinomasupport #hypoglycemia #insulinomaawareness #metastaticinsulinoma #indolentinsulinoma #NYE2025