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Hochsen

@hochsen

I got a virus, I didn’t die, but I never recovered. That was years ago. I have ME (me/cfs). Miss a lot that I have lost. Profile picture from favourite band: Mono (monoofjapan)

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09.10.2023
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Latest posts by Hochsen @hochsen

Since ICE got to Minneapolis, 5-year-old Vera has a new hobby: setting traps.

“All bad guys are trying to take dark skin people like my friend,” Vera said. “So I try to keep them safe.”

@setharichardson.bsky.social on how kids, parents, and schools are handling the upheaval of ICE violence.

03.02.2026 15:06 👍 234 🔁 113 💬 2 📌 8
Bruce Springsteen - Streets Of Minneapolis (Official Lyric Video)
Bruce Springsteen - Streets Of Minneapolis (Official Lyric Video) YouTube video by Bruce Springsteen

Oh our Minneapolis, I hear your voice
Singing through the bloody mist
We’ll take our stand for this land
And the stranger in our midst

Directed by Thom Zimny
Edited by Thom Zimny and Samuel Shapiro
Production Footage: Pam Springsteen and Thom Zimny

29.01.2026 17:22 👍 6412 🔁 2494 💬 257 📌 260

Jag var också där. Samt nästa dag när vi gick till ett nytt hus, började bygga scen och baka bullar. Första gången jag greps av polis. Första gången en polis hånflinade åt mig, jag såg säkert rädd ut när jag tittade på hans tårgasgevär.

28.01.2026 08:05 👍 1 🔁 0 💬 0 📌 0

My most common phantom smell is cigarette smoke, second is mixture of gasoline and exhaust smell.

I so much prefer the very rare smell of cinnamon bun baking.

20.01.2026 07:25 👍 2 🔁 0 💬 0 📌 0

And make notes to help you set and keep the agenda as the doctor loves talking about useless stuff and wastes the time

05.01.2026 16:57 👍 1 🔁 0 💬 1 📌 0
Fitbit watch with display falling off

Fitbit watch with display falling off

My Fitbit have a new way of informing me of how broken my health is.

#MEcfs #PwME #ChronicIllness

05.01.2026 16:41 👍 5 🔁 0 💬 1 📌 0
@wonder_cripple When you say be positive to a disabled or chronically ill person, you're not saying it for their benefit. You're saying it because their their discomfort makes you uncomfortable and you don't wanna hear it. Stop lying to yourself.

@wonder_cripple When you say be positive to a disabled or chronically ill person, you're not saying it for their benefit. You're saying it because their their discomfort makes you uncomfortable and you don't wanna hear it. Stop lying to yourself.

08.11.2025 14:54 👍 262 🔁 71 💬 8 📌 2

I am lucky that I often can handle sounds so I can still listen to music. Sometimes my ME illness kills it though. And when I can the emotions and sorrow is hard to handle. I miss concerts so much. #ME #MECFS

04.11.2025 11:58 👍 4 🔁 0 💬 1 📌 0
@LINGUA IGNOTA -  HAVING A ANCADODXIC BODY *ABSOLUTE BULLSHIT* -HAS CONSTANT NEEDS DOESNT DO WHAT YOU WANT -OUTSIDE LOOKS WEIRD INSIDE IS EXPONENTIALLY WORSE -FEELS VERY BAD EVERY DAY -MUST LUG SAME ONE AROUND THE WHOLE TIME -CONSTANT DECAY MUST WATCH IN HORROR -EA IS FINAL SURPRISE

@LINGUA IGNOTA - HAVING A ANCADODXIC BODY *ABSOLUTE BULLSHIT* -HAS CONSTANT NEEDS DOESNT DO WHAT YOU WANT -OUTSIDE LOOKS WEIRD INSIDE IS EXPONENTIALLY WORSE -FEELS VERY BAD EVERY DAY -MUST LUG SAME ONE AROUND THE WHOLE TIME -CONSTANT DECAY MUST WATCH IN HORROR -EA IS FINAL SURPRISE

24.10.2025 13:37 👍 153 🔁 39 💬 3 📌 2
Preview
Pseudovetenskaplig trend sprids av Läkartidningen Carl Sjöström, läkaren som intervjuades i Svensk förening för allmänmedicins podd SFAMpen om funktionella symtom, skriver nu i Läkartidningen på samma tema tillsammans med kollegorna Arwa Josefsson…

Some in the Swedish medical community insist on using GET/CBT for post-viral illnesses. Do not get fooled by CBT in the name. It is based on the pseudoscience of BPS model, a revival of hysteria.
Some doctors published in The Medical Journal some pseudoscience.
themeinquiryreport.com/2025/09/26/p...

26.09.2025 10:32 👍 17 🔁 10 💬 1 📌 0
Video thumbnail

Here I’m doing a live demonstration of what it’s like to live with POTS (or other forms of OI) using my Lumia. We look fine on the outside, but this is what’s happening inside. Remember blue is my HR and gray is blood flow to my head. Note: Lumia is not a medical device.
#wearlumia #pots #mecfs

18.02.2025 19:21 👍 32 🔁 12 💬 1 📌 3
Sweden Disturbing discovery by patient advocate "the ME inquiry report" who in a series of three articles writes about a new ME clinic which claims to use and follow the Canadian diagnostic criteria, but instead through a loophole uses persistent physical symptoms/functional somatic symptoms.
Articles 1 2 3 (automatically translated into English) l Thread

Sweden Disturbing discovery by patient advocate "the ME inquiry report" who in a series of three articles writes about a new ME clinic which claims to use and follow the Canadian diagnostic criteria, but instead through a loophole uses persistent physical symptoms/functional somatic symptoms. Articles 1 2 3 (automatically translated into English) l Thread

"about a new ME clinic which claims to use & follow the Canadian diagnostic criteria, but instead through a loophole uses persistent physical symptoms/functional somatic symptoms"

Screenshot from latest Science for ME weekly update

#MEcfs #CFS

1/

01.09.2025 12:33 👍 5 🔁 3 💬 1 📌 1

We're all just one moment away from a different life. One diagnosis, one crisis, or one accident away from a completely different life. Life doesn’t ask before it changes, so this is just a reminder to not take your health or physical abilities for granted.

28.08.2025 21:06 👍 586 🔁 147 💬 16 📌 13
070 - Why ME/CFS "fatigue" is not normal fatigue
070 - Why ME/CFS "fatigue" is not normal fatigue YouTube video by Jarred Younger, PhD

This is so validating.

Please watch and share.

#PwME #SevereME #NEISvoid

26.08.2025 09:04 👍 11 🔁 5 💬 3 📌 0
Preview
Scientists find link between genes and ME/chronic fatigue syndrome Large study suggests people’s genetics could ‘tip the balance’ on whether they would develop the illness Scientists have found the first robust evidence that people’s genes affect their chances of developing myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS), a mysterious and debilitating illness that has been neglected and dismissed for decades by many in the medical community. Early findings from the world’s largest study into the genetics of the condition pinpointed eight regions of the human genome that were substantially different in people with an ME/CFS diagnosis compared to those without the illness. Continue reading...

Scientists find link between genes and ME/chronic fatigue syndrome

06.08.2025 18:15 👍 326 🔁 155 💬 11 📌 24
uKanDanZ - WAR PIGS (Official Music Video)
uKanDanZ - WAR PIGS (Official Music Video) YouTube video by ukandanz

This is the cover (released this year) of the war pigs song that I mentioned on twitch today. You really should watch the video. I promise you’ll like it! www.youtube.com/watch?v=8kVY...

23.07.2025 14:52 👍 1 🔁 0 💬 1 📌 0
uKanDanZ - WAR PIGS (Official Music Video)
uKanDanZ - WAR PIGS (Official Music Video) YouTube video by ukandanz

Have been losing my mind all morning at this absolutely bowel-crushing Franco-Ethiopian jazz-funk cover of War Pigs. Holy shit. www.youtube.com/watch?v=8kVY...

02.07.2025 13:43 👍 763 🔁 241 💬 27 📌 92

Hot om nekad sjukpenning. Hot om ny arbetsförmågeutredning som garanterat orsakar försämrad hälsa minst i flera månader.
Det finns ingen botande behandling o den specialistmottagning för ME som fanns stängdes pga beslut i landstinget. Men känns som det är vårat eget fel att vi sjuka o ej förbättras

18.06.2025 12:10 👍 2 🔁 0 💬 2 📌 0

Önskar Försäkringskassan kunde respektera att det är min fru som ska kontaktas (registrerat hos dem) då jag i min ME-sjukdom ej klarar kognitivt att hantera den typen av samtal. Men nej - de ringde mig med en massa svåra frågor.
Känner mig anklagad, misslyckad o rädd. Gråter o skakar.

18.06.2025 12:01 👍 3 🔁 0 💬 1 📌 0
a person holding on to the side of a pier with weights tied to her

...no one knows how close I am to drowning

a person holding on to the side of a pier with weights tied to her ...no one knows how close I am to drowning

11.06.2025 16:39 👍 201 🔁 22 💬 6 📌 7

Beklagar. Jag sökte sjukersättning efter fem års heltidssjukskrivning. Avslag med motivering att jag skulle kunna må bättre i framtiden. Hur vet jag inte då vi som ME-sjuka inte får vård. De beviljade dock fortsatt sjukpenning. Ett år senare är jag minst lika sjuk o vård existerar inte.

11.06.2025 19:46 👍 2 🔁 0 💬 1 📌 0
Square text box with blue background. Text in white saying Nothing new to say this #MEAwarenessDay. My brain’s wrecked, my body’s broken, and after 27 years, nothing has changed: no  progress, no treatments, no cure.  It's #StillTheSaME and the fury burns. Sending love & solidarity to you all. #LeftToRot

Square text box with blue background. Text in white saying Nothing new to say this #MEAwarenessDay. My brain’s wrecked, my body’s broken, and after 27 years, nothing has changed: no progress, no treatments, no cure. It's #StillTheSaME and the fury burns. Sending love & solidarity to you all. #LeftToRot

Nothing new to say this #MEAwarenessDay. My brain’s wrecked, my body’s broken, and after 27 years, nothing has changed: no progress, no treatments, no cure. It's #StillTheSaME and the fury burns. Sending love & solidarity to you all. #LeftToRot

12.05.2025 08:34 👍 40 🔁 16 💬 1 📌 3
I Am One of the Millions Missing | Maggie Boxey | TEDxOjai
I Am One of the Millions Missing | Maggie Boxey | TEDxOjai YouTube video by TEDx Talks

My talk is now available to watch! Please watch, share, comment- all the things <3 #mecfs #millionsmissing #chronicillness #momsky #disabledsky

youtu.be/JzKfi8LOMQU?...

15.04.2025 15:31 👍 67 🔁 30 💬 14 📌 11

Oops.

Turns out that bullshit may work on people, but it doesn't work on reality. Decades of bullshit doesn't work any better either.

The belief that rehabilitation must work here has been just that: a belief. A blatant, fraudulent lie.

It never worked. They knew that. They didn't care.

21.03.2025 16:02 👍 47 🔁 20 💬 3 📌 1
Post image

Das beste Bild des Tages. #NieWieder ❗️

25.01.2025 16:56 👍 4696 🔁 909 💬 72 📌 79
Preview
Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? | George Monbiot Chronic fatigue syndrome is as physiological as a broken leg. ​We must learn all we can from this tragic case, says Guardian columnist George Monbiot

This story is one of the most disturbing I've ever covered. It's about how the views of a deeply weird ideological sect affected science, medicine and the media, with devastating impacts on patients. Please read and pass on. This horror has to stop. www.theguardian.com/commentisfre...

18.10.2024 06:39 👍 953 🔁 489 💬 48 📌 75
Nia | The Chronic Notebook
@chronicnotebook
That chronically ill person you know
has probably never answered a "how
are you" honestly. They probably
told you "it is what it is", laughed and
trivialised their pain because their
real answer was long, traumatising
and intense and they didn't want to
make you uncomfortable.

Nia | The Chronic Notebook @chronicnotebook That chronically ill person you know has probably never answered a "how are you" honestly. They probably told you "it is what it is", laughed and trivialised their pain because their real answer was long, traumatising and intense and they didn't want to make you uncomfortable.

#neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

24.07.2024 17:01 👍 39 🔁 13 💬 2 📌 3
Lecture slide with quotes claiming that migraines are caused by psychiatric issues

Lecture slide with quotes claiming that migraines are caused by psychiatric issues

Lecture slide showing information on stomach ulcers and how they are not caused by stress

Lecture slide showing information on stomach ulcers and how they are not caused by stress

Lecture slide with quotes claiming that AIDS was caused by psychological factors, with original article in which these quotes appeared

Lecture slide with quotes claiming that AIDS was caused by psychological factors, with original article in which these quotes appeared

Lecture slide with quotes claiming that multiple sclerosis is caused by early childhood trauma and lack of positive bonding experiences, with original source (from 2002)

Lecture slide with quotes claiming that multiple sclerosis is caused by early childhood trauma and lack of positive bonding experiences, with original source (from 2002)

It's that time of year again! Today I look at the history of so-called "Medically Unexplained Symptoms" with my students (part of our #pseudoscience class).

Migraines? Rooted in "perfectionism"
Ulcers? "stress"
AIDS? "shame/guilt"
MS? "childhood trauma"

Tropes now recycled for #MECFS & #LongCovid

18.10.2023 11:14 👍 191 🔁 98 💬 18 📌 2