Centre for Research Ethics & Bioethics

New on the #EthicsBlog >> Do you dare to be fearless? https://ethicsblog.crb.uu.se/2026/03/10/do-you-dare-to-be-fearless/?utm_source=rss&utm_medium=rss&utm_campaign=do-you-dare-to-be-fearless&utm_source=rss&utm_medium=Sendible&utm_campaign=RSS

Severity as a Criterion for Prioritizing Diagnostic Measures - Health Care Analysis Health Care Analysis - The extent to which a condition is severe constitutes an important part of several approaches to healthcare priority setting. For example, the Netherlands, Norway, Sweden,...

Based on this publication

Gustavsson, E., Juth, N. Severity as a Criterion for Prioritizing Diagnostic Measures. Health Care Anal (2026). doi.org/10.1007/s107...

Who gets priority? Severity is not enough for diagnostics – Centre for Research Ethics & Bioethics (CRB) – Uppsala University

Many tests and tools used for diagnosis are expensive. For long, the principle of severity has been used in decisions about drug pricing. Now, researchers are examining whether it can be used to prioritise between diagnostic measures.

www.uu.se/en/centre/cr...

Meaningful assent matters: Children’s autonomy as right, value, and relationship – Centre for Research Ethics & Bioethics (CRB) – Uppsala University

Children with cancer are often asked to participate in research studies. They are often too young to consent, but they can assent to participate. But assent is not always obtained in consistent or meaningful ways. New research explores children’s autonomy and research.

www.uu.se/en/centre/cr...

JUST PUBLISHED | Why children’s research assent matters: Exploring three dimensions of autonomy

doi.org/10.1177/0969...

How is ethical review perceived by researchers in the social sciences and humanities? - The Ethics Blog Research involving humans requires ethical review. Ethical review is important to protect the rights and interests of research participants, and to maintain public trust in research. Ethical review wa...

NEW ON THE #ETHICSBLOG >> How is ethical review perceived by researchers in the social sciences and humanities?

ethicsblog.crb.uu.se/2026/03/03/h...

Read about gut feelings & the need for clear, respectful #RiskCommunication about #ColorectalCancer 👇

www.uu.se/en/centre/cr...

#ColorectalCancerAwarenessMonth

Colorectal cancer risk: stereotypical assumptions and competing values – a qualitative study with the general public - BMC Public Health BMC Public Health - Informing the public about lifestyle-related risk factors for colorectal cancer (CRC) is central for cancer prevention. More knowledge is needed about the public’s...

JUST PUBLISHED | Colorectal cancer risk: stereotypical assumptions and competing values – a qualitative study with the general public

doi.org/10.1186/s128...

Taking the science of consciousness to the clinic is a collective endeavor - The Ethics Blog “Consciousness” is an ambiguous concept that arouses the interest of people with different expertise, including the general public. This situation naturally creates several related ambiguities, for ex...

New on the #EthicsBlog >> Taking the science of consciousness to the clinic is a collective endeavor

ethicsblog.crb.uu.se/2026/02/24/t...

General practitioners and management control through guidelines: a qualitative study of its effects on their practice - BMC Primary Care Background Changes in healthcare governance and the rise of evidence-based medicine (EBM) have over the last decades contributed to an increase in guideline-driven management of general practice. Ther...

doi.org/10.1186/s128...

Riktlinjestyrning skapar komplexa utmaningar för distriktsläkaren - Etikbloggen Ett centralt instrument för att säkerställa och förbättra kvaliteten i sjukvården är medicinska riktlinjer. Riktlinjer används som minnesstöd för att hjälpa sjukvårdspersonalen att fatta evidensbasera...

etikbloggen.crb.uu.se/2026/02/10/r...

Management control through guidelines creates complex challenges for general practitioners - The Ethics Blog A vital tool for ensuring and improving quality in healthcare is clinical guidelines. Guidelines are used to support the clinicians’ memory and evidence-based decision-making, as well as to guide the ...

ethicsblog.crb.uu.se/2026/02/10/m...

💭 How do clinical guidelines shape — and sometimes complicate — the everyday work of GPs?

Clinical guidelines are meant to support. But as they grow in number and complexity, and don’t just guide practice — they increasingly govern it. Jens Lundegård explores the shift on #EthicsBlog.

Management control through guidelines creates complex challenges for general practitioners - The Ethics Blog A vital tool for ensuring and improving quality in healthcare is clinical guidelines. Guidelines are used to support the clinicians’ memory and evidence-based decision-making, as well as to guide the ...

NEW ON THE #EthicsBlog >> Management control through guidelines creates complex challenges for general practitioners

ethicsblog.crb.uu.se/2026/02/10/m...

Förslaget: Slopa 40-årsgräns för IVF-behandling - Vetenskapsradion Nyheter Statens medicinetiska råd föreslår att åldersgränsen för assisterad provrörsbefruktning, IVF, ska slopas för kvinnor över 40 år. Rådet menar att det nuvarande ...

Vetenskapsradion: Förslaget: Slopa 40-årsgräns för IVF-behandling

https://www.sverigesradio.se/artikel/9153700

Kajsa Norberg Wieslander's work explores how children with cancer & their families experience being recruited to research. This work offers important insights and guidance for developing best ethical practices when involving children in childhood cancer research. #ChildhoodCancer

🎉Congratulations to Kajsa Norberg Wieslander on a successful & beautifully executed PhD defense this Friday!🥳

uu.diva-portal.org/smash/record...

Self-assessed knowledge of genomic medicine among non-genetics physicians – results from a nationwide Swedish survey - Journal of Community Genetics Journal of Community Genetics - Genomic medicine is becoming essential to clinical everyday practice in many medical fields. At the same time ethical, economic and practical challenges impede the...

Read the paper 👇

Björk, J., Friedman, M., Nisselle, A. et al. Self-assessed knowledge of genomic medicine among non-genetics physicians – results from a nationwide Swedish survey. Journal of Community Genetics 16, 669–677 (2025). doi.org/10.1007/s126...

Do physicians have sufficient knowledge about genomic medicine? - The Ethics Blog As patients, we are used to providing samples so that the physician can make a diagnosis and prognosis and choose treatment. But it is becoming more common for physicians to also order genomic tests i...

Read the full text by Pär Segerdahl on the Ethics Blog: ethicsblog.crb.uu.se/2026/01/27/d... Want it in Swedish? Visit the Swedish language sister blog Etikbloggen: etikbloggen.crb.uu.se/2026/01/27/h...

Do physicians have sufficient knowledge about genomic medicine? A post from The Ethics Blog, a research blog from the Centre for Research Ethics & Bioethics at Uppsala University.

Pär Segerdahl reflects on a recent paper about how doctors view their own knowledge gap on genetics.

Philosophical musings on The Ethics Blog! ethicsblog.crb.uu.se / etikbloggen.crb.uu.se

"Do phuysicians who are not specialists in clinical genetics have sufficient knowledge to be able to order relevant tests, interpret test results and talk to patients? How do they prefer to work with genomic medicine? What support do they need and how to they want to learn more? [...]" Continue reading on the Ethics Blog! Link in comments!

💭 Do physicians have sufficient knowledge about #GenomicMedicine?

As #GenomicTesting becomes an increasingly routine part of clinical care — from #RareDiseases to tailored treatments for diabetes and cardiovascular disease — an important question arises: are physicians sufficiently prepared?

Preferences, attitudes and views regarding genetic newborn screening (gNBS) for rare diseases: a systematic review of the literature and synthesis from 2009 to 2022 - Orphanet Journal of Rare Diseases Orphanet Journal of Rare Diseases - Newborn screening (NBS) and its genetic version, genetic NBS (gNBS), are now used to identify a broad range of conditions, including metabolic, endocrine, and...

Martin, S, Kyosovska-Peshtenska, G, Audi, J et al. Preferences, attitudes and views regarding genetic newborn screening (gNBS) for rare diseases: a systematic review of the literature and synthesis from 2009 to 2022. Orphanet J Rare Dis 21, 27 (2026) doi.org/10.1186/s130...

#SystematicReview #gNBS

New systematic review: Access & attitudes to genetic newborn screening for rare diseases – Centre for Research Ethics & Bioethics (CRB) – Uppsala University

Genetic screening of newborns can identify a wide range of conditions, some of which are severe. A new systematic review describes the reasons behind differences in access and attitudes to newborn screening in different countries.

www.uu.se/en/centre/cr...

What we can learn from the resignation syndrome endemic in Sweden – Centre for Research Ethics & Bioethics (CRB) – Uppsala University

Resignation syndrome left previously healthy children unresponsive and dependent on full-time care for extended periods. Can the strong commitment to protecting the children have impacted symptoms' interpretation, care and even the condition itself?

www.uu.se/en/centre/cr...

JUST PUBLISHED | Preparedness for working with genomic medicine among Swedish non-genetics physicians – a nation-wide survey study

doi.org/10.1007/s126...

JUST PUBLISHED | Advancing the science of consciousness: From ethics to clinical care

doi.org/10.1016/j.ne...

Ethical challenges and action alternatives: Case reflections in ambulance care - Anna Bennesved, Anders Bremer, Anders Svensson, Andreas Rantala, Mats Holmberg, Joar Björk, 2025 Background Ambulance clinicians regularly encounter medical, caring, existential and ethical challenges. Meeting patients with complex medical presentations und...

JUST PUBLISHED | Ethical challenges and action alternatives: Case reflections in ambulance care

doi.org/10.1177/0969...

Self-assessed knowledge of genomic medicine among non-genetics physicians – results from a nationwide Swedish survey - Journal of Community Genetics Journal of Community Genetics - Genomic medicine is becoming essential to clinical everyday practice in many medical fields. At the same time ethical, economic and practical challenges impede the...

JUST PUBLISHED | Self-assessed knowledge of genomic medicine among non-genetics physicians – results from a nationwide Swedish survey

doi.org/10.1007/s126...

JUST PUBLISHED | Research gaps in #nursing status and interventions – A deductive qualitative analysis of healthcare professionals’ perspectives from Swedish #ChildhoodCancer care

doi.org/10.1016/j.ej...

General practitioners and management control through guidelines: a qualitative study of its effects on their practice - BMC Primary Care Background Changes in healthcare governance and the rise of evidence-based medicine (EBM) have over the last decades contributed to an increase in guideline-driven management of general practice. Ther...

Based on this paper: Lundegård J, Grauman Å, Juth N, Johnsson L. BMC Prim Care. Epub 10 jan 2026. doi: www.doi.org/10.1186/s128...

Kliniska riktlinjers inverkan på allmänläkares arbete studerad Allmänläkare tillfrågades om konsekvenserna av riktlinjestyrning.

Jens Lundegård & Linus Johnsson in Läkartidningen: Kliniska riktlinjers inverkan på allmänläkares arbete studerad

lakartidningen.se/vetenskap/kl...