"The COVID-19 pandemic at 6 years: Mass death, debilitation and media silence"
"The pandemic has killed over 30 million people worldwide, left more than 400 million suffering from Long COVID... It is one of the most catastrophic events in modern history—and it is not over."
I think about the last point a lot too. I haven’t made anyone’s life harder with sickness!
I really wish this had just carried over and became a norm.
Mask when you’re sick, in a crowded area, in medical settings - if these small changes had stuck we would see so much less disease transmission.
Like, let’s also get fresh air and hepas!
Shared air is gross!
I was talking to my sister today and said, “When a medical appt or interaction goes well that is the exception not the norm.”
And realizing that thought after saying it made me so very sad.
I know I’m not the only one so the sadness is for myself and everyone else whose experienced the same.
When I’m crashing my anxiety goes up and I feel very frenetic.
I know this is the MCAS and inflammation, but it is such a deeply unsettling feeling and often makes me feel worse bc it makes it hard to really rest.
This heat in the Bay Area this early in the year is unsettling. I feel like this summer is gonna be H-O-T.
The leaders of the covid amnesia project are in charge. They don’t want you to remember nightmares from 6 years ago and 1.2 million deaths.
Of course if they were in charge then, they would have handled Covid as completely as they are handling measles.
Black text on a teal background reads: The Sick Times SHARE YOUR ACTIONS! We're putting together an article and podcast episode summarizing advocacy and awareness efforts for Long COVID Awareness Day and Month 2026. Please share our form with advocates organizing events and actions! Advocates, please fill this out after your event/action! For questions or to share additional information and/or media that doesn't fit in the form, reach out to us at editors@thesicktimes.org.
We're putting together an article summarizing advocacy and awareness efforts for #LongCOVID Awareness Day and Month 2026. Please share this form with advocates organizing events and actions! bit.ly/4sxqtpg
Santa Barbara Independent: Health Experts Convene in Santa Barbara to Advance Clinical Care for Long Covid
3/21/26 1:30P-5:30P PST
Event gathers healthcare leaders, clinicians, researchers, and community members to help better diagnose & treat Long COVID & IACCI
www.independent.com/2026/03/09/h...
Yes, it was a negative outcome. But I really encourage folks to read this paper. It's a really thoughtful contextualization of the results and provides endless lessons for others designing LC trials.
(Disclosure: I collaborate with the UCSF team and have been in UCSF trials.)
Screenshot of a news article from The Post titled “Repeatedly getting Covid doesn’t build immunity, ‘it’s more like accumulating damage’,” written by Melanie Earley of RNZ and dated March 10, 2026. Below the headline is a portrait of leading vaccinologist and associate professor Dr Helen Petousis-Harris, shown facing the camera against a dark background. The article discusses how repeated COVID-19 infections may cause cumulative harm rather than building lasting immunity.
"Leading vaccinologist Helen Petousis-Harris says there's not enough awareness of the impact of COVID-19 on overall health."
"What many people don't realise is that getting COVID repeatedly is not like building immunity, it's more like accumulating damage," she says.
Source: archive.md/Qsv13
Had to do a double take when the news covered ME/CFS this morning and it was pretty accurate.
Pain today is pretty much a 9/10. My eyes hurt so badly as well as the back of my neck and joints.
This disease is torture.
#longcovid #mecfs
Or in my case what is known as -
all of the above.
I’m feeling really freaking down.
The eye pain that sent me to the ER six months ago that they couldn’t figure out what it was?
Well, I emailed them about noticing a pattern associated with the nose cold sores/eye pain and they think it might be:
herpes zoster ophthalmicus
Don’t get covid.
To a bunch of us, there is no mystery here!
Since I have had to severely limit the breadth of food in which I can currently eat, I have found myself watching more and more cooking videos. 😂
MCAS is such a pain.
Since the big scary MCAS flare a month ago my muscle spasms have generally changed.
Used to be little muscles here and though. Now it’s the big, larger muscles spasms.
So weird.
The hematologist I saw recommended an iron infusion, but I was hesitant with MCAS.
This isn’t a new finding though right?
In that chronic infection stimulates iron removal from the blood as a way of disrupting the infxn?
Or is my brain making that up?
Light. Heat. Water.
All my enemies today.
#mcas #longcovid #mecfs
Now more than ever I’m convinced losing Anthony Bourdain meant we lost probably the biggest person on tv who advocated for the wonders of meeting new people and calling anyone online who hated learning new cultures the children they were, ruthlessly to the camera.
I wonder how many people realize this is the norm.
“Households containing an adult w/a work-disability require, on average…an additional $17,690/year…to obtain the same standard of living as a comparable household w/o a member w/a disability.”
www.nationaldisabilityinstitute.org/reports/extr...
Well, we did it. We go rid of about 3/4 of my closet bc I am too big for the clothes or they are too tiring/impractical to put on.
I had a whole drawer of snowboarding socks which we gave away, but I couldn’t bear to get rid of my snow/surf outerwear yet.
I know the time is coming. 😞
"‘You’ve given us all a lot of hope’: Dropkick Murphys play outdoor Abolish ICE benefit"
'The free concert took place across the street from the Alex Pretti memorial on Eat Street in Minneapolis.'
bringmethenews.com/minnesota-li...
Germany 5 patients with severe lupus received a single CAR T cell infusion and entered drug free remission.
Scientists reprogrammed their immune cells to remove harmful B cells.
The living therapy may offer hope for lupus and multiple sclerosis.
www.newyorker.com/culture/anna...
![But when Porzingis addressed reporters afterward, before the fifth question, he let out a yawn.
An uncontrollable, extended yawn. Porzingis apologized, as if to make sure he wasn't being perceived as rude.
Then he yawned again, sending out a hidden reminder of the persistent exhaustion that is threatening to derail his NBA career: The 30-year-old former All-Star was diagnosed last year by Celtics doctors with postural orthostatic tachycardia syndrome (POTS), an autonomic condition that can dramatically increase heart rate and cause dizziness and fatigue.
"I felt all right. Far from being in perfect shape," Porzingis said. "But I think for [the] first game back after a while, getting some energy back, feeling good. ... I think it's just a matter of time to get in a better rhythm."
Three mornings later, Porzingis woke up sick in his team-provided San Francisco hotel room and called the training staff. He went from being the spotlight story of the ABC afternoon game against the Denver Nuggets to being so ill that he couldn't even come to the arena.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:43rudsv62fuwsmnk7oppgtdy/bafkreifdhuz4dpe2tf3u7k2zdsodccovcigo4weunnmjfufmeywwfddkna)
But when Porzingis addressed reporters afterward, before the fifth question, he let out a yawn. An uncontrollable, extended yawn. Porzingis apologized, as if to make sure he wasn't being perceived as rude. Then he yawned again, sending out a hidden reminder of the persistent exhaustion that is threatening to derail his NBA career: The 30-year-old former All-Star was diagnosed last year by Celtics doctors with postural orthostatic tachycardia syndrome (POTS), an autonomic condition that can dramatically increase heart rate and cause dizziness and fatigue. "I felt all right. Far from being in perfect shape," Porzingis said. "But I think for [the] first game back after a while, getting some energy back, feeling good. ... I think it's just a matter of time to get in a better rhythm." Three mornings later, Porzingis woke up sick in his team-provided San Francisco hotel room and called the training staff. He went from being the spotlight story of the ABC afternoon game against the Denver Nuggets to being so ill that he couldn't even come to the arena.
Long article on 'mysterious' illness of NBA's Kristaps Porzingis
www.espn.com/nba/story/_/...
Just parts on his health:
www.s4me.info/threads/well...
Viral onset plus these symptoms suggest ME/CFS as a big possibility. Best for his long term health I think to take an extended break
#CFS #MEcfs
When I’m crashing my door dash bill for that time goes up.
I don’t have a full time caretaker and my spouse works.
So when crashes happen this is how I’m feed.
Which is tricky bc eating low histamine limits options.
It is also cheaper than in home help.
First, this sucks majorly and I hope the PEM moves on swiftly.
Second - what the heck is with the ear pain?!! I have it too and I think so does @rahallclifford.bsky.social ?! It is so dang weird.
