Bluesky Blowup
How the ME/CFS patient community is reading Invisible Illness
1/ In response to Emily Mendenhallβs recent Substack on critiques of her book Invisible Illness by the community & Wessely's legal threats.
Anthropology is often open to dialogue & critique, so letβs situate this moment historically & structurally. π§΅
open.substack.com/pub/emilymen...
19.01.2026 00:51
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Englandβs curriculum review needs to be more radical | Letters
Letters: Dr Rupert Higham, Caroline Norbury and Colin Richards on recommendations in the Francis report
IOE academics weigh in on the Curriculum and Assessment Review, a π§΅
"Cooperation, more than competition, will secure young peopleβs futures... knowledge without the capacity to bring about change is a fast-devaluing currency" says @ruperthigham.bsky.social
www.theguardian.com/education/20...
25.11.2025 12:20
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Not ALL in Your Head? Think Again
A Campaign Guide for the Bait and Switch Tactic
π’ Our Campaign Guide is out!
It deals with common media traps that we need to know how to deal with
π£οΈ Part One covers the βBait & Switch' tactic: βIts not ALL in you Head Butβ¦β
Easy-to-read download & audio included
π Help us shift the paradigm and share away!
25.07.2025 10:35
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Phenomenal journalism investigating the FII crisis for families with disabled, ill & vulnerable children by Emily Dugan.
We know this is negatively impacting #LongCovid families & urgent change is needed to the @rcpch.bsky.social FII guidelines. π§΅1/7
TW
ποΈποΈ tinyurl.com/bdcrsxrj
20.07.2025 07:06
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π Thank you to Dr Kane for highlighting this deeply problematic mandatory training for FII.
This broad model is embedded within healthcare yet is NOT backed by evidence.
Capturing highly vulnerable families whom the medical system is failing.
It is discriminatory & damaging. We need change.
15.07.2025 13:34
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We have serious concerns about the appointment of Dr Terry Segal as paediatric expert in the @covidinquiryuk
This is due to her problematic history with ME, association with BACME & present framing of #LC
π§What does the evidence say? /1
11.06.2025 18:33
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This is a great statement - it captures many aspects of a dire situation and offers solutions.
So good to see ME and Long Covid charities and advocacy organisations standing shoulder to shoulder.
#WorldMEDay
12.05.2025 09:40
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Self portrait of me (39 year old ww with wavy dark hair wearing sweatpants & a blue robe) seated in bed with my chi mix on my lap. Iβm holding a sign that says Fuck M.E. in white all-caps over black
Fuck M.E. in white all-caps over black
TLDR: This is an SOS. If you donβt have capacity to read this whole thread, please skip ahead to ***WAYS YOU CAN HELP*** Please pick at least one! ππ»π
#MEAwareness
#MillionsMissing
#DisabilitySOS
#WorldMEDay
#GreatestMEdicalScandal #MyalgicEncephalomyelitis
#MECFS
#LongCovid
11.05.2025 18:50
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The eco-populist against net-zero
Zack Polanski is looking to lead the Green Party, and to challenge Labour's climate policy from the left.
"We constantly hear thereβs no money left,β Polanski said, βbut actually there is a lot of wealth in this countryβ¦ but we are taxing people who are working really hard far more than weβre taxing wealth.β He added: βthatβs totally the wrong way round!β
www.newstatesman.com/the-weekend-...
10.05.2025 07:15
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Neuro-Spicy: Discussing ADHD with Dr. Kristin Carothers [VIDEO]
Spotify video
A great podcast for anyone with or around ADHD. That's all of us.
open.spotify.com/episode/5ID2...
10.05.2025 15:17
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New article:
School Leadership in the Anthropocene: Four Pillars of an Intelligent, Humane Response
With my UCL colleagues, David Godfrey and Monica Mincu. Full text and summary available here. Enjoy - and be in touch!
responsibleleadershipblog.wordpress.com/2025/02/24/s...
08.05.2025 15:30
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Proud to endorse Zack Polanski to be the next leader of The Green Party.
Zack is inclusive and welcoming to new members and understands the urgent need for The Green Party to become a broad church. He is also ready to take the fight to all shades of Toryism.
05.05.2025 11:00
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No narrow party can rise to get into government. The current Labour Party is dying on its feet because it's dogmatic and has lost touch. The Greens welcome socialists, and others too. The Labour Right couldn't take it over if they tried.
05.05.2025 13:38
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Brave move, Zack - and a good one. Your senior Green colleagues are great, but the message isn't cutting through. Reform have all the momentum. Ethical left populism is what we need.
#BackZack
05.05.2025 13:22
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We need bold leadership. Now.
That's why I'm running to be the next leader of the Green Party.
Join our campaign: backzack.com
#BackZack
05.05.2025 05:50
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We are proud to campaign alongside disabled people in our constituencies. They are not expendable. They are not a burden. They are not β as Frances Ryan writes - a cost to society . They are our neighbours and friends, and they deserve to live healthy, social and fulfilling lives just like anyone else. If ministers took the time to speak to people with illnesses and disabilities, they might understand not only the hardships they face but their humanity that successive governments have denied. There is an alternative: treat disabled people with care, respect and dignity instead.
Thanks to @jeremycorbyn.bsky.social for mentioning my work in his piece about Labourβs disability benefits cuts.Β The narrative that disabled people are βa costβ on the rest of society is pernicious and becoming more and more engrained.Β www.mirror.co.uk/news/politic...
19.03.2025 08:19
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Digital graphic on dark blue featuring magenta headings and text: "Long Covid Awareness." White text describes long-covid. Below left are magenta hashtags related to the campaign. A circular crop on right contains a protest scene. The protesters hold signs saying: "Long Covid Me/CFS Destroy Lives," "1.9 million Have Long Covid," and other statements of protest. The upper right corner features a magenta hand icon. Bottom text promotes the 'Voice of Reason' campaign with website.
π We're started the #Postcards4LC campaign for #LongCovidAwareness because we urgently need funding for:
β biomarkers
β pathophysiology
β treatments
@ashleydaltonmp.bsky.social
@england.nhs.uk
@nihr.bsky.social
#LongCovidAwarenessDay
15.03.2025 12:05
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Writing my postcards to @ashleydaltonmp.bsky.social and more for #LongCovidAwarenessDay as part of @longcovidadvoc.com campaign
We need funding now!
#pwME #LongCovid
15.03.2025 14:51
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Dear @sadiqkhanlondon.bsky.social,
I was invited to join your roundtable with Thames Water.
Will you call for them to be nationalised?
Stopping us from being there isn't going to stop me asking the questions!
13.03.2025 11:51
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Testing, Testing β Why are Black applicants not getting graduate jobs? | UCL Centre for Education Policy and Equalising Opportunities (CEPEO)
UCL Homepage
π£Another blog post I hear you ask? Yes! Here's today's with @clairetyler.bsky.social & Catherine Dilnot:
π€Testing, Testing β Why are Black applicants not getting graduate jobs?ππΌ
Black applicants are 45% less likely to get a graduate role than their white peers
blogs.ucl.ac.uk/cepeo/2025/0...
11.03.2025 16:49
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The Pedantic Zebra Podcast with Dr Jonathan Stea
YouTube video by Long Covid Advocacy
πΊ Our #pedanticzebra book club recording is now available!
We have a fascinating discussion with @jonathanstea.bsky.social that covers:
βΆοΈ Pseudoscience
βΆοΈ US Politics & misinformation
βΆοΈ The Lightning Process
Audio, video & text versions available
Links belowπ
www.youtube.com/watch?v=lP6B...
10.03.2025 12:49
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It's not nothing, and these should have been reported. But it's such small change. Monumental lack of ambition, vision and urgency from a Labour government.
09.03.2025 06:32
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Thank you graphic celebrating 15K followers, featuring large gold and silver "15K" text, pink butterflies, and a "Thank You!" message in a stylish font, with the text "FOLLOWERS" below and the website handle "@LONGCOVIDADVOC.COM" at the bottom, alongside a verified badge.
πIt is important in these times to have choices to where we place our social media attention.
π©βπ»So, we've worked to create a viable community on Bluesky.
π₯³To celebrate your support we are now VERIFIED!
06.03.2025 11:04
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Looking forward to this panel @ucl.ac.uk next Weds 5-7pm.
5 years since covid, what are the lessons for communicating in a crisis?
Jonathan Van-Tam
@profaliceroberts.bsky.social
@susanmichie.bsky.social
Professor Jack Stilgoe
Dr Philip Ball
and me!
www.eventbrite.co.uk/e/communicat...
04.03.2025 16:34
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Long Covid Advocacy support video for the #FundThePlan campaign
YouTube video by Long Covid Advocacy
π LCA wholeheartedly supports @thereforme.bsky.social #FundThePlan campaign.
It is crucial that strong foundations are formed for #pwME and that means investment.
One of our members explains below in our video contribution. 1/8
youtube.com/shorts/4yCiM...
27.02.2025 10:22
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Steve Reed: include public ownership as an option in your independent commission on the water sector. | We Own It
Steve Reed must put public ownership back on the table.
Privatised water has failed. Just look at your water bills or the sewage pouring into our rivers. Steve Reed - include public ownership as an option in your independent commission on the water sector. Sign the petition
weownit.org.uk/act-now/stev...
27.02.2025 21:03
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