@jfreemandaily
Lung cancer patient and research advocate. Cofounder #LCSM Chat, The ROS1ders, IASLC STARS. Also writer, retired engineer, science geek. Temporarily between feline overseers. Blog at grayconnections.net.
Logo for STARS program
Are you a person who has/had lung cancer (or caregiver for same), and an active patient advocate interested in providing a lung cancer patient perspective to research? Apply to one of the IASLC STARS programs!
www.iaslc-stars.org/stars-program
Applications close March 12, 2026 #LCSM
I screen for #LungCancer annually. So does my kid sister. Our mother died as a result of LC treatment. Most LC is caught at an advanced stage. Catch it in time. #StayAlive #lcsm
Living with ROS-1 Positive Lung Cancer webinar graphic
I'll be speaking in a webinar about ROS1+ lung cancer on November 17. Registration is FREE and available here: floridasocietyofclinicaloncologyjune152017.growthzoneapp.com/ap/Events/Re...
Hope you can join us!
Join me at #ILCSC25 September 26-27 for breakout session w/Upal Basu Roy and rockstar @drcamidge.bsky.social. The International Lung Cancer Survivorship Conference is a free virtual conference for people w/ #lungcancer, #caregivers and #advocates. Learn more and register
here: lungevity.org/ilcsc
A moment in my cancer history
Thirteen years ago today, I experienced a revival of hope. In mid September 2012, I had learned my cancer had grown despite two different lines of chemotherapy plus radiation. But on this date, the University of Colorado notified me that my tumor tissue tested…
Chances are strong that at least one person you know and love (or even you) will have cancer at some point. Why should you care? Because people are dying for better cancer treatments.
News I did not want to hear
Dr. D Ross Camidge is many things. Today he's the source of news that broke my heart.
Do you assume a person had to have known they had metastatic cancer before they were diagnosed? Here are four reasons why they often don't know.
Remembering Mount St. Helens
45 years ago today, Mount St. Helens erupted. From my home in Tacoma over 70 miles away, I could hear and feel the blast and see the plume of ash, rock, and hot gases rising into the atmosphere. Such major blasts of chaotic energy and hot gases produce extensive…
If you're concerned about this serious security breach, which is a federal crime, TAKE ACTION! Call:
Congressman Mike Rogers (head, House Armed Services Committee)
(202) 225-3261
Senator Roger F. Wicker (head, Senate Armed Services Committee)
(202) 224-6253
www.wsj.com/politics/nat...
What a great news! Finally we have a journal dedicated to liquid biopsy research! I am truly excited. 🔥
Erasing unique accomplishments as DEI
If anyone is still inclined to think the government's efforts to delete "DEI" hires are aimed at people hired for reasons other than their skills, consider the case of the Navajo Code Talkers. Pages about them have been removed from DOD websites and replaced…
Updated @ascocancer.bsky.social living guidelines for NSCLC are out! Participating on the Expert Panel not only gives me hope to see so many new treatments, it also reminds me how challenging it must be for clinicians to keep up.
ascopubs.org/doi/10.1200/...
ascopubs.org/doi/10.1200/...
Musk's approach to reducing the federal workforce is already showing significant negative consequences. I wish we could learn from history. 4/4
Now DOGE is indiscriminately firing groups of people without considering whether they have essential expertise. DOGE is discovering that it's difficult to recover essential expertise such as people staffing the nuclear arsenal and tracking bird flu developments. 3/4
Many people happily took the deal--so many in fact, that Boeing suddenly discovered it had lost significant expertise. The damage to Boeing's capabilities was evident. A number of friends who took the deal were invited back as contractors so the company could retain essential expertise. 2/4
I was working as an engineer at Boeing when the company offered early retirement benefits in 1995 to workers 55 and older. It was offered in part to avoid layoffs. www.nytimes.com/1995/03/25/b... 1/4
Edit to add: Only one of the five has died. Apologies for the misinformation!
It's rewriting a hypothetical journal article, not a grant application. For demonstration purposes only.
Thanks. And yes, so sad that the USA's world-class science/medical infrastructure and workforce is being randomly decimated.
Even though the [women] participants with 2 X chromosomes responded better, the lack of [diversity] differences in genetic, genomic, and epigenetic characteristics in the study population means the results cannot be applied to people in general. 3/3
Half of the group was male, the other half [was female] had two X chromosomes. The results may be [biased] tilted because all participants lived within one mile of the Major Cancer [Research] Analysis Center. 2/3
Rewriting journal articles to eliminate the forbidden words research, woman, female, systemic, bias, diversity:
Our [research] analysis considered a group of people treated with a [systemic] cancer drug which travels throughout the body. 1/3
A thoughtful perspective on the importance of government-supported research infrastructure. It's not perfect, and could use reform. But you can't reform something that's disappeared due to lack of funding for labs, support staff, equipment and office space.
www.nytimes.com/2025/02/14/o...
🚨 Applications Open! The 2025 #IASLC STARS PRA & Scholar Program empowers lung cancer advocates to drive patient-centered research & scientific progress.
📅 Apply by March 14, 2025
🔗 Learn more & apply: www.iaslc-stars.org
Make a difference! #LungCancerAdvocacy #IASLCSTARS
Amp up your lung cancer patient advocacy! Apply for the STARS Program
Take steps to amp up your lung cancer patient advocacy! Applications are now open for the 2025 IASLC STARS PRA & Scholar Programs. STARS (Supportive Training for Advocates on Research and Science) can help you develop and…
@jfreemandaily.bsky.social our first #ayacsm #OncSky #MedSky #SkyChat is tomorrow! Please follow back and spread the word! #Rebuilding
DEI is not the same as diversity in clinical trials.
Diversity in clinical trials aims to test new drugs in a wide variety of people, because response to some medicines can vary by gender, age, ethnicity, and genetics.
www.statnews.com/2025/01/23/f...
Science alert:
new administration is imposing wide range of restrictions on NIH, "including the abrupt cancellation of meetings such as grant review panels. Officials have also ordered a communications pause, a freeze on hiring, and an indefinite ban on travel."
www.science.org/content/arti...