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NETSAS

@netsas

Neuroendocrine Tumor Southern Africa Support. NETSAS provides support for NETs patients and empowers patients with knowledge http://www.netsas.org.za

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19.03.2025
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Latest posts by NETSAS @netsas

To all the PCPs that completed the course we salute you! 🫑

#ThinkNENs

20.05.2025 20:40 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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πŸ“ŒJoin the amazing group of #PrimaryCarePhysicians from 35 countries worldwide who already completed the free online CME-accredited #ThinkNENs Global Educational Program for Primary Care Physicians!
βœ…Check here and enroll: incalliance.org/think-nens/ #LetsTalkAboutNETs

08.05.2025 06:20 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 1
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πŸ“ŒWatch the NEW NET research video on the INCA website:
Dr. Mauro Cives presents the latest updates in translational NET research.
πŸ“ŒWatch the video: incalliance.org/dr-mauro-civ...
#LetsTalkAboutNETs

14.05.2025 06:17 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

πŸ™ Please share widely with your medical networks!

# NETSAS
#LetsTalkAboutNETs

20.05.2025 20:36 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

πŸ“£Great opportunity to engage with your GP.

πŸ™Œ Make them aware of this invaluable resource, in our narrow experience it has been well received and highly appreciated!

#InternationalNeuroendocrineCancerAssociation

#LetsTalkAboutNETs

20.05.2025 20:35 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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πŸ‘On the #WorldFamilyDoctorsDay, we would like to praise the key role #PrimaryCarePhysicians play in timely diagnosis and patient management.
πŸ“ŒShare with your family doctor the free #ThinkNENs e-learning program with CME credit in 6 languages: incalliance.org/think-nens/
#LetsTalkAboutNETs

19.05.2025 06:42 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 1

πŸ™Œ Great work by @neuroendo-can-uk.bsky.social

20.05.2025 20:26 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Hi Burt - thanks for sharing your journey and raising awareness. Are you the same Burt that developed NET Sherpa? πŸ™Œ

20.05.2025 12:05 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Gastrointestinal symptoms, such as nausea or vomiting, can be signs of #MultipleEndocrineNeoplasia type 1 (MEN1).
πŸ‘‰These symptoms can mislead clinicians if they do not suspect something less common.
βœ…Get to know MEN1 in 11 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs

13.05.2025 06:53 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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πŸ“ŒDr. Jaydira Del Rivero, Medical Oncologist and Endocrinologist at NCI: β€œWe need patient-centric approach in NET research and to consider tolerability and quality of life of patients.”
βœ…Watch the video in 6 languages: incalliance.org/dr-jaydira-d...
#LetsTalkAboutNETs

28.04.2025 08:33 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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πŸ“ŒDr. Simron Singh, NEN expert on the #ThinkNENs Global Educational Program for PCPs: β€œSomatostatin analogues remain the mainstay of treatment for all NENs."
βœ…Enroll in the free CME-accredited e-learning in 6 languages: incalliance.org/think-nens/
#LetsTalkAboutNETs

01.05.2025 09:08 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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In case you needed a reminder of the not-so-predictable somatostatin receptor expression of lung NETs, here you have it...

Keep in mind that only 44% had uniformly positive SSTR expression and some have none at all like this patient.

jnm.snmjournals.org/content/64/1...

25.03.2025 18:10 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Trying to summarize nuanced treatment decisions in one slide... What to do with small NF-pNETs? Who to observe? When to intervene...? What am I missing/getting wrong...?

09.04.2025 13:29 πŸ‘ 4 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Such an important topic - thanks @oncothor.bsky.social

01.05.2025 09:48 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Including patients in the development of their treatment plans pathway leads to better outcomes. Patients that are empowered and feel heard typically respond better!

#LetsTalkAboutNETs #netsas

01.05.2025 09:47 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Differentiation Versus Grade for Pancreatic Neuroendocrine Neoplasms Context.β€”. Pancreatic neuroendocrine neoplasia (panNEN) is a tumor disease with distinctive morphology and often poses diagnostic challenges.Objective.β€”. To present and discuss the current diagnostic ...

Still a little confused on the difference between grade and differentiation in panc NETs...? Need a quick primer on the pathology of pNETs including the genetic/molecular alterations. If so, Dr's. Rindi and Inzani have you covered.

meridian.allenpress.com/aplm/article...

14.03.2025 00:04 πŸ‘ 5 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Relationship Between Best Tumor Shrinkage and Progression‐Free Survival and Overall Survival in Patients With Progressive Midgut Neuroendocrine Tumors Treated With [177Lu]Lu‐DOTA‐TATE: Ad Hoc Analysis of the Phase III NETTER‐1 Trial We analyzed data from the phase III NETTER-1 study of 177Lu‑DOTATATE for patients with advanced midgut neuroendocrine tumors to explore whether tumor shrinkage is associated with durable efficacy. Al...

It is not all about tumor shrinkage after PRRT. In this NETTER-1 analysis, PFS and OS were not different in patients where tumor shrinkage was seen. Not a new observation but a topic I discuss every week with patients. Benefits can be seen w/o high ORR...

onlinelibrary.wiley.com/doi/10.1002/...

25.04.2025 11:55 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 1