With Mirela DeΕΎman @echdoheart.bsky.social making sure the voices of Europeβs congenital heart community are heard.
At the European Patientsβ Forum Congress β a gathering of patient leaders, health experts, and policymakers shaping the future of healthcare across Europe. #EPFCongress25
Never doubt the power of touch! β€οΈβπ©Ή
New blog post: www.fontanheart.com
β€οΈ Basal stimulation helped us immensely in the ICU - and beyond. We're living proof that parental involvement matters.
How do you support your hospitalized child? I'd love to hear your experience! π»
#chdawareness #fontanheart
β¨ Our next πππ will be held in ππ©π₯π’π, ππ«π¨πππ’π, π¨π§ ππ‘π πππ‘ ππ§π ππππ‘ π¨π πππ² ππππ. Registration is open to all members. Email Info@echdo.eu for member queries. Visit our website for more details. π
ππ¨π π π¦ππ¦πππ«? Complete the member application form under the ππππ menu.
www.echdo.eu
Hi! I'm a mom to a 7Y-old with single ventricle. I already worry about her transition. I've heard once that by the age of +/- 12, a parent should let the child be alone with the doctor. I'm writing a blog post on the topic. Please, connect. I'd love to hear & write about your thoughts & experiences.
Happy 7th, kiddo! What a journey! π»
www.fontanheart.com/birthday-cel...
Also: Hi! I'm here to talk about congenital heart disease, share life with a single ventricle heart, and empower parents to keep fighting for the best outcomes for their kids.
Iβd love to connect! β€
#chdawareness #fontanheart
