Naylor007

Finally finding my way here... #pwME

Here's a pic that sums up how I feel today about everything #ME #LC & how we relate to the world currently 💙🙏🏼💙

Let’s say this loud and clear:

Exercise is not the goal, recovery is the goal so one can exercise.

Listen to this man - he’s a world leading expert on PEM/PENE
#ME #Longcovid

I have started a Starter Pack for ME and Long COVID. 💙

It includes some mutuals with other packs but also some new faces too. :)

Please let me know if you want to be added. I know I still have about a million wonderful people to add. 💙

go.bsky.app/6R7bqc7

Just wow 😳

Printscreen from an article about ME/CFS. https://zeitung.faz.net/fas/leben/2023-10-29/2fb7f9437f2e11dbe076d026366330ca/?GEPC=s5

Printscreen from an article about ME/CFS. https://zeitung.faz.net/fas/leben/2023-10-29/2fb7f9437f2e11dbe076d026366330ca/?GEPC=s5

Great German article on ME/CFS, how patients are treated, the history, PACE trial, the link with Long Covid & insights from Scheibenbogen.

I read it by auto-translating it, found it doable to read it that way.

zeitung.faz.net/fas/leben/20...

#MECFS #LongCovid

Brain fog in long COVID: A glutamatergic hypothesis with astrocyte dysfunction accounting for brain ... Brain [18F]FDG-PET scans have revealed a glucose hypometabolic pattern in patients with long COVID. This hypometabolism might reflect primary astrocyt…

Interessanter Preprint, der auch die Frage aufwirft, ob mit Repurposing bereits erhältlicher Medikamente (u. a. Guanfacine oder Memantine; Wirkprinzip Blockade NMDA-abhängiger Kanäle) eine Verbesserung von neurokognitiven Beschwerden erreichen kann.

frontiersin.org/articles/10.33…

In thought & linking the NO/ONOO cycle with known impacts of 🔁inflammation on mitochondria ATP, NMDA, HPA, Thyroid, Cortisol hypotheses, makes for a sobering (rudimentary) understanding of how serious this is for us. Really 😡 at the downplay of #ME

Our paper has been published in Mayo Clinic Proceedings! This is a Concise Clinical Review, meaning it MUST be short, with a limited number of pages and citations. Drs. Grach, Ganesh, and Chon and I worked very hard to pare it down to the essentials. www.mayoclinicproceedings.org/article/S002...

🧵
Danish newspaper BT writes about the terrible story to #severeME sufferer Morten Brandt who recently passed. Due to this disease being viewed as a "functional disorder" in Denmark, Morten was refused help

Google English translation
tinyurl.com/yc8pbb4e

#MEcfs #CFS #PwME

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Auslan and Easy Read and accessible doc versions of the final #DisabilityRC report are here. (Click into each volume)

disability.royalcommission.gov.au/publications...