@erinuk
Co-production | NHS | Lived experience | Shared decision making | Mental health | Long term conditions | 🎧📚 I work for NICE, volunteer @shh-uk.bsky.social & relax with 📚 🎧 📺 in #Lancashire Reposts are not necessarily endorsements. Views are my own.
March 15 is Long Covid Awareness Day 💚
Our Long Covid awareness pins are available now.
Shop here 👉 shh-uk.org/shop/
#LongCovid #LongCovidAwareness #LongCovidAwarenessDay #LivingWithLongCovid #InvisibleIllness #ChronicIllness
Based in the UK? Looking for a new challenge? Why not join our team of online support group moderators led by @erinuk.bsky.social or our social media team led by Lisa.
Coming soon 👀
A new monthly evening support group for UK healthcare workers with Long Covid — for those in work or planning a return.
Because going back shouldn’t mean going alone 💙
Follow for details.
#LongCovid #HealthcareWorkers #SHHUK
Two days to go. If you’re a healthcare worker living with Long Covid, this is your reminder. Join our online peer support group:
Tuesday 24 February 11:00–12:00 (UK time)
A safe space to connect with others who understand the impact of Long Covid.
🔗 teams.microsoft.com/...
🚨 New resources
📊 Young doctor sickness in the National Health Service
🌬 IAQ guide (Health and Safety Authority)
📣 Safe Air letter to the UK Health Security Agency
🔗 shh-uk.org/sickness-...
🔗 shh-uk.org/indoor-ai...
🔗 shh-uk.org/letter-to...
#SafeAir4All #NHS #PublicHealth
Last months audiobooks 🎧📚
Sunrise on the Reaping 5⭐ I hope it's not the last in the series.
Amazing opportunity for someone with lived experience of mental illness
👇👇👇
🧠 NEW RESEARCH SUMMARY 🧠
The Benefits & Limitations of Self-Tracking Long Covid
🔗 shh-uk.org/?p=34441
#LongCovidResearch #SelfTracking #PatientLedResearch #SHHUK #HealthJustice #PostViral
Thanks to millions of people speaking up about their care, we've been able to champion big healthcare changes.
Think there's no power in your feedback? Don't believe it can make a difference to health and social care services? We want to show you that isn't the case. Check out some recent examples of how you made a difference - www.healthwatch.co.uk/our-impact
infographic on the PLRF with an address to register at bit.ly/PLRF-2025
list of researchers presenting, including on T cell responses, foraminal stenosis in ME/CFS patients, and more
list of researchers presenting, including on microclots, PEM pathophysiology, clinical trial results, and more
We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET!
Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers.
🗓️ Register: us02web.zoom.us/webinar/regi...
#LongCOVID
"This is clearly a sad day for our staff, volunteers and everyone associated with Healthwatch who have proudly supported people and communities to speak up about their experiences of health and social care. Over the past 12 years, we've helped millions of people raise concerns, access vital advice and influence real change in the services they rely on. By championing the voices of local communities, we've helped drive countless improvements across the NHS and social care - successes I understand the government recognises. Our focus is now on ensuring a smooth transition of our function to the NHS and government, so that the voices and patients and the public continue to be heard." Quote from Louise Ansari, Chief Exceutive at Healthwatch England.
Our Chief Executive Louise Ansari responds to news that #Healthwatch is to be closed down.
"This is clearly a sad day for our staff, volunteers, and everyone associated with Healthwatch who have proudly supported people and communities to speak up about their experiences of health and social care."
🛑 Help us contact every MP in the UK 🛑
📄 Visit 👉 shh-uk.org/get-in-to...
📬 Use our simple tool to contact your MP and make your voice heard.
#safeair4all #longcovid #workplacesafety #infectioncontrol #PublicHealth #Healthcareleadership
#SafeAir4All
In collaboration with @gmhazardscentre.bsky.social we've produced a fact sheet for MPs. #SafeAir4All campaign
Can you contact your MP about the need for safe air in healthcare settings?
Find out more here: shh-uk.org/get-in-touch...
This is gorgeous 😍 The children were so respectful to Mum duck & her ducklings 🦆
A month of trusted detectives & another great story by Michael Morpurgo.
#booksky 📚🎧
⬇️⬇️🧵
Covid-19 is airborne.
Poor indoor air quality in healthcare settings increases infection risks for staff, patients & visitors.
We’re calling for urgent action. Read our second position statement:
🔗 shh-uk.org/shh-uk-posit...
#SafeAir4All #ProtectHCWs #LongCovid
Image of library book display labeled:
“It's A Warning Not An Instruction Manual.”
Books on display:
• On Tyranny
• Twenty Lessons From
The 21st Century
• 1984
• A Handmaids Tale
• Diary of Anne Frank
• Parable of The Sower
• Fahrenheit 451
• Animal Farm
• Brave New World
~TAiLS of a Bookworm
We're looking to speak with people in the UK who have experienced psychosis and worry about relapse. Could you help?
Reposts/shares hugely appreciated! 🙏
#PsychSciSky #AcademicSky #psychsky #Psychosis #MentalHealth #MentalHealthResearch #schizophrenia
I really enjoyed this audiobook too 💙🎧
At the top is the text "World ME Day 2025" on a vibrant orange background. Below, text reads: "After generations of neglect and empty promises, now is the time for action." Underneath, there is a collection of logos from various ME/CFS, fibromyalgia, and Long COVID advocacy groups, including #ME Action UK; #ThereForME; Action for ME; Cambridge ME Group; Crunch ME; Hope 4 ME & Fibro Northern Ireland; Kirklees & Calderdale IMESG; Long Covid Nurses & Midwives UK); The ME Association; ME Local Groups Network UK; MERC PAG; Not Recovered UK; Oxfordshire ME Group for Action; Physios for M.E.; Tymes Trust; The 25% ME Group; Keyworker Petition UK; Long Covid Advocacy; Long Covid Physio; Long Covid Scotland; Long Covid Support; ME positive; Sheffield ME & Fibromyalgia Group; Walsall Fibro M.E. Support; Bury & Bolton ME/CFS & Fibromyalgia Support Group; ME/CFS Friendship Group in Gloucestershire; and ME Group Staffordshire.. Below, a dark blue banner reads "JOINT STATEMENT" in white capitals.
Today, on World ME Day, we stand with all those affected by ME to deliver a simple message to the UK government.
@joplatt.bsky.social @eddavey.libdems.org.uk @tessamunt.bsky.social
Read the joint statement: meassociation.org.uk/nsts
#WorldMEDay #MEAwarenessWeek2025
🏃♀️ Every step you take helps protect healthcare workers with Long Covid. Join #TeamSHHUK in the #RunForCharities and fundraise for a cause that matters 👉 shh-uk.org/run-for-c...
#LongCovid #NHS #CharityRun
Have you seen our Patient Partnership Week events for this year? Take a look and book on to our free webinars, happening 30th June to 4th July. #PPW2025 buff.ly/EKU2vAg
Instead of slashing welfare and disability benefits — forcing more disabled people and children into poverty — the government could introduce a 2% tax on assets over £10 million.
It would raise £24 billion — five times the savings from these cuts.
This is austerity 2.0
On Thursday we launched the Lost Mothers Project findings @birthcompanions.bsky.social @britishlibrary.bsky.social Powerful performances from @cleanbrk.bsky.social, art by Beci Ward. Experiences shared reveal a depth of unimaginable pain - ‘…my whole body craved him’ Time 4 change is now.
Don't miss your chance to make healthcare settings safer for patients & staff.
Sign the petition 👇
#PatientSafety #PublicHealth
#SafeAir4All
It’s my birthday. I’m 44. I feel deeply happy. That feels extraordinary - after 22 years with ME, and now 17 days in hospital with post-Covid microvascular failure.
What I’m going through feels otherworldly. But it’s common. Not rare.
We must take ME and Long Covid seriously!
You can’t put a price on good mental health. But we’re all paying for the lack of investment.
Ahead of the #SpendingReview, we're calling on the Government to #InvestInMentalHealth. We've set out six key areas where investment could make a real difference: tinyurl.com/ypjusv3z
Love this 😀
A graphic titled "Hot weather reminder" with a sun illustration at the top. The text advises staying hydrated, resting in cool environments, and finding shade to stay safe during hot weather.
Just a gentle reminder for those on antidepressants in this heat 🔥 Not everyone knows this, so please share to spread the word ❤️
