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Eden Dora Trust

@edendoratrust

Helping children & families affected by childhood Encephalitis & Acquired Brain Injury, feel less misunderstood & alone, through dedicated support, research & more. For more info: Www.edendoratrust.org

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09.01.2025
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Latest posts by Eden Dora Trust @edendoratrust

Thank you so much @cbituk.bsky.social for your birthday wishes 🫢
We love our relationship with you. Making a difference together is key πŸ’™

#ABI #Encephalitis #ChildhoodEncephalitis #WorldEncephalitisDay #edtbirthday #12years #collaboration #TeamWork

22.02.2026 15:55 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Join our free, CPD-accredited Understanding Childhood Acquired Brain Injury (UCABI) workshops! πŸ’™ Free to attend, thanks to the generous funding of @edendoratrust.bsky.social

Learn more and secure your space now: buff.ly/tXJJ2C4

18.02.2026 10:01 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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We’re incredibly grateful to Brain Injury Group for choosing us as a charity partner at their conference next weekπŸ’™
We can't wait to see everyoneπŸ˜€
This support means so much to us, not only to raise vital funds, but also to spread awareness
#ABI #Encephalitis #ThankYou #CharityPartner

09.01.2026 18:06 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Learning about childhood ABI is vital to ensure YP receive the best support, care & future - we know this 1st hand!
We’re so proud that this is just 1 of the things we are able to do as a charity, because of YOU our fantastic supporters
Thank you, we couldn’t do it without youπŸ’™

#ABI #Encephalitis

02.01.2026 20:32 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Building Brighter Days – Christmas Appeal for Eden Dora Trust Support our Building Brighter Days Christmas Appeal and help children and families affected by Encephalitis and Acquired Brain Injury (ABI). Your donation provides vital support now and in the future...

There's still time to support us with our appeal, any donation you’re able to give will do so much to ensure children affected by #Encephalitis and #ABI have the support they need when they need it πŸ’™
Thank you, every single penny WILL make a difference!

www.justgiving.com/campaign/edt...

30.12.2025 22:43 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Thank you to all our supporters, families, and companies who make our work possible. Your generosity & support helps children and families affected by encephalitis and acquired brain injuries.

We couldn’t do it without you πŸ’™

Merry Christmas from all at Eden Dora Trust πŸŽ„

19.12.2025 15:12 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Through CPD workshops + tailored sessions, we share practical tools, real experiences + evidence-based strategies. Our Understanding Childhood Acquired Brain Injury Workshop equips professionals with insight and practical tools. We are grateful to the @edendoratrust.bsky.social for funding these.

14.12.2025 10:01 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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A huge thank you to everyone who joined our recent Understanding Childhood Acquired Brain Injury workshop at Bolt Burdon and Kemp in London. These workshops are kindly funded by @edendoratrust.bsky.social, whose generosity makes it possible for professionals across the UK to access them for free!

15.12.2025 15:03 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Charity Partner Spotlight - The Eden Dora Trust

We had a great day recording this podcast with The Brain Injury Group, discussing all things Eden Dora Trust, how we got here & why we do what we do, thank you B.I.G!πŸ’™

Please have a listen here πŸ‘‡

open.spotify.com/show/1dwrExT...

#Encephalitis #ABI #Teamwork #Collaboration

11.12.2025 12:00 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Thank you @cbituk.bsky.social We are so happy/proud to be able to fund this fabulous and necessary workshop and are over the moon the in person UCABI tomorrow is fully subscribed πŸ‘πŸΌπŸ‘πŸΌ

08.12.2025 15:07 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

We're so proud to fund the vital 'UCABI' workshops, making it free for anyone working with a child that has an ABI to attend πŸ’™
Huge thanks to @cbituk.bsky.social for running this incredible workshop, we know 1st hand how important this workshop and ABI training is! 🫢

#Encephalitis #ABI #Teamwork

08.12.2025 15:02 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Building Brighter Days – Christmas Appeal for Eden Dora Trust Support our Building Brighter Days Christmas Appeal and help children and families affected by Encephalitis and Acquired Brain Injury (ABI). Your donation provides vital support now and in the future...

Festive Fundraising Challenge πŸŽ„
Take on a xmas challenge & help us support families affected by Encephalitis & ABI

You could do a -
πŸŽ… Santa run
🧦 Jumper challenge
🍰 Festive bake sale
or anything you'd like!

Start your fundraiser here πŸ‘‰ www.justgiving.com/campaign/edt...

Thank you 🫢

04.12.2025 17:48 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Building Brighter Days – Christmas Appeal for Eden Dora Trust Support our Building Brighter Days Christmas Appeal and help children and families living Encephalitis and Acquired Brain Injury (ABI). Your donation provides vital support now and in the future, ens...

✨ Our Christmas Appeal is LIVE! βœ¨πŸŽ„

β€œWhen our child got Encephalitis, our world turned upside down, EDT was there for us, I don't know how we'd have coped without them.”

You can help us reach more families like theirs
Please support our Christmas AppealπŸŽ„πŸ’™

www.justgiving.com/campaign/edt...

01.12.2025 16:18 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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πŸŽ„βœ¨ Skipping the Christmas Cards This Year? βœ¨πŸŽ„

If you’re thinking about sending fewer Christmas cards - Pls consider supporting our charity instead πŸ’™

Help us to continue supporting children living with the effects of childhood Encephalitis & ABI. 🧠

Thank you πŸŽ…πŸŽ„πŸ’™

#Encephalitis #ABI

18.11.2025 17:13 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
NABLES Patient Passport - United Kingdom Acquired Brain Injury Forum

The fabulous team we work with @nables.bsky.social have a new resource:
An editable ABI Passport, designed by our incredible Young Experts By Experience in ABI A way to emphasise the YP's voice & help teachers understand more about their specific ABI
#ABI #Encephalitis

ukabif.org.uk/page/NABLESA...

13.11.2025 16:41 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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"We need to bring the best of the NHS, to the rest of the NHS"

At the #UKABIFSummit2025, Ashley Dalton, MP and Under-Secretary of State for Public Health and Prevention DHSC delivered an outstanding presentation. Listening to her motivational stories was truly inspiring!

(1/2)

05.11.2025 08:01 πŸ‘ 1 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
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Dr. Hope Kent delivered an exceptional talk at the @ukabif.bsky.social #Summit2025. She shared her ongoing research, highlighting the lack of SEN support for young people with #ABI, as they aren't listed on the school census.

#BrainInjuryAwareness #EducationMatters #Inclusivity

06.11.2025 08:01 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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National Acquired Brain Injury In Learning And Education Syndicate help make educators aware of abi The National ABI Education and Learning Syndicate (N-ABLES) was set up to identify ways to support all education professionals in gaining a minimum level of awareness and understanding about acquired…

On #AntiBullyingWeek, it's vital to highlight the importance of creating nurturing, respectful environments, particularly in schools. If you have a student with an #AcquiredBrainInjury (ABI), understanding and empathy are crucial!

πŸ”— More information:

12.11.2025 12:02 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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"Teachers have the professional skills to support these children, but don’t have the knowledge... there is a lack of consistent training for #ABI"

Joanna Woodhouse from N-ABLES shared insights from the Educators' Perspective at the #UKABIFSummit2025 symposium.

13.11.2025 13:42 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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So many incredible, passionate people wanting to make a difference @ukabif.bsky.social summit & @n-ables.bsky.social speakers were amazing. So proud (bursting!) of our very own young expert by experience (Eden 🌟) speaking with Baroness Estelle Morris🧠
The day really was superb πŸ’™

#ABI #Encephalitis

05.11.2025 17:22 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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πŸ“§ Join our mailing list!

πŸ”— Subscribe for regular updates about our resources and upcoming events by clicking on the following link buff.ly/mvMZSSk or email us at: NABLES@UKABIF.org.uk.

Thank you for your continued support!

#BrainInjuryAwareness #EducationMatters

28.10.2025 12:05 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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🧠TOPS-UK supports young people (13–19) with an ABI to manage everyday challenges
Struggling with planning, organisation, or feeling overwhelmed?

πŸ’‘ Learn simple strategies
πŸ“±Online & accessible (with coach support)
🌐tops-uk.org
πŸ“§topsuk@exeter.ac.uk

#ABI #Encephalitis

27.10.2025 13:20 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Half term is approaching, with lots of activities planned πŸŽƒ
We understand that for some families of children after Encephalitis & with an ABI, school holidays can be a tough time 🫢
We are here to support you via our helpline, email, or through our online resources πŸ’™
#ABI #encephalitis #halfterm

24.10.2025 09:15 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Incredible opportunity for someone to take advantage of our NEW funded 3 year PhD project🧠
πŸ‘‰ www.exeter.ac.uk/study/fundin...

Please get in touch if you/candidates have questions
#Encephalitis #ABI
@annaadlam.bsky.social @emilytalbot.bsky.social

18.10.2025 19:19 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Improve Inclusion, Attendance and Engagement for Pupils with an ABI Create a brain injury-aware school to boost inclusion, attendance & engagement for students with acquired brain injuries (ABI).

Last chance to sign-up to our @twinklresources.bsky.social Teachmeet tomorrow.

The key areas of focus include...
πŸ“š Inclusion
🧠 Fatigue Management
🌟 Peers and Participation

πŸ”— Sign-up here: www.eventbrite.co.uk/e/improve-in...

06.10.2025 07:01 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

We know 1st hand just how important it is to understand a young person with an ABI & how helpful, informative & necessary the 'UCABI' workshop is🧠
Which is why we fund it completely, so ANYONE working with a child that has an ABI can attend at no cost to themselves!
Link below πŸ’™
#ABI #Encephalitis

09.09.2025 13:37 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Thank you to all the amazing people who chose to take part in the Great North Run for us today. You are amazing & we couldn’t do what we do with out you! Thank you πŸ’™

#ABB #encephalitis #support #marathon #GreatNorthRun

07.09.2025 18:33 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Please help us while you shop...πŸ‘‡πŸΌ
Sign up to @easyfundraising.bsky.social & when you shop online, they’ll donate to usπŸ‘
It's free & your shopping won't cost you any extra - the retailers you shop with will donate, not you! join.easyfundraising.org.uk/theedendorat...

04.09.2025 15:10 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Run the London Marathon for EDT | Eden Dora Trust

*** LONDON MARATHON 2026 PLACE AVAILABLE***
Would you like to run the @LondonMarathon '26
We have 1 place left - register interest here πŸ‘‰
edendoratrust.org/london-marat...

Do something legendary & apply to be part of #TeamEdenDoraTrust πŸ’™

Please Share πŸ€—

#londonmarathon #Run4EDT #Encephalitis #ABI

12.08.2025 12:23 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Run the London Marathon for EDT | Eden Dora Trust

Would you like to run the @londonmarathon.bsky.social 2026πŸƒπŸƒβ€β™€οΈ
We have one place left - register your interest here πŸ‘‡
edendoratrust.org/london-marat...

Do something legendary this year and apply to be part of #TeamEdenDoraTrust πŸ’ͺπŸ’™

Please Share πŸ™

#londonmarathon #Run4EDT #Encephalitis #ABI

23.07.2025 17:44 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0