#LupusChat

Carly, Liz, Tiffany, Christèle. They are all wearing LupuChat shirts and purple scarves.

Dr Knight, Christèle, Li, Miah, attending the 2025 LRA gala.

Miah and Liz, speaking at 2024 ACR conference.

Hey everyone, please join us in wishing our amazing friend, fierce advocate, and awesome #LupusChat Co-host, @caringforlupus.bsky.social a Happy Birthday! Thank Liz you for all your hard work. It is an honor to advocate alongside you.
We love you and hope you have the best day and year! 🥳💜

Happy New Year #LupusChat family! We're another year stronger & we're looking forward to thriving together with each of you in 2026! 🥳💜

🆕 2025 ACR Guideline for Treatment of Systemic #Lupus Erythematosus 🦋

Just Released: Nov 3 #ACR25 🔥
🔸Review organ-specific treatment recommendations
🔸Steroid & HCQ Use Guidance
🔸Management of Comorbidities

➠ Read the Full Guideline here: acr.tw/47mkegj

#RheumSky #SLE #Rheumatology

#LADAorg is honored to sponsor a table at the LRA Gala to recognize people with #lupus for their grace, dignity and courage while supporting #lupusresearch.
@lupuschat.bsky.social @annezab.bsky.social @caringforlupus.bsky.social @masonicresearch.bsky.social @lupusresearch.bsky.social

Call for patient input on anifrolumab (Saphnelo®) for systemic lupus erythematosus - Arthritis News If you are a patient or caregiver of someone living with systemic lupus erythematosus, we want to hear from you!

JointHealth™ express - Call for patient input on anifrolumab (Saphnelo®) for systemic #lupus erythematosus.

Learn more: bit.ly/ACECDAPatien...

#SLE #patientinput #ACEAdvocacy @arthritispower.bsky.social @lupuschat.bsky.social @fibroandlupus.bsky.social @schroeder-uhn.bsky.social

a purple christmas card with purple ornaments and the words happy holidays . ALT: a purple christmas card with purple ornaments and the words happy holidays .

Happy Holidays to everyone in the #LupusChat family! We wish you nothing but peace, love, and happiness. Remember to take some time for self-care. We love you all! 💜 🎄📯☃❄⛄

~ The #LupusChat Team

Meeting with like-minded people to improve lives of patients at @ACRheum #ACR25 is wonderful #Sjogrens #lupus #SLE

Absolutely adore @ireneblanco.bsky.social, such an amazing person and one of my favorite rheumatologists. Thank you for stopping by & bringing your mentee who also happens to be my old rheumy by the lupus community booth at #ACR25!

#LADAorg #LupudChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social

So excited about Dr. Daniel Whibley’s presentation at #ACR25 on Cognitive Dysfunction and how it Manifests in those living w/Fibromyalgia. He shared several ways to conduct baseline cognitive tests.

cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat

Absolutely thrilled to catch this #ACR25 session on the Cognitive Function in Rheumatic Diseases. The first presentation was given by, patient advocate, Mary Alore sharing her experience with brain fog.

Cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat

Dr. Jillian Rose also shared some great analogies for what NOT talking about sex health is like!

🔸…it’s like treating half the disease.
🔸…is like measuring function without asking about QoL (quality of life)

See images for reference ↴ #ACR25

cc: @ladaorg.bsky.social @lupuschat.bsky.social

Surprise @lupuschat.bsky.social spotting in Dr. Martha Delgado’s #ACR25 session! An FYI, #LupusChat gave a presentation at the NIH NIAMS annual clinical research event in both 2019 and 2024 on the importance of utilizing digital tools to build communities and advance health literacy. #LADAorg

Andrea Fava speaking at the ACR plenary

Can’t get better than this start to your plenary:

“Lupus nephritis is bad.”

#ACR25

Up early at #ACR25 sitting in on sessions about sexual & reproductive health and rheumatic conditions. Sessions are being led by Dr. Lisa Sammaritano, Dr. Jillian Rose, and Patient Advocate extraordinaire, Monique Gore-Massy. #LADAorg #LupusChat

Patient experience researcher & advocate extraordinaire, Monique Gore-Massy gave a great presentation at #ACR25 on the importance of sexual health being an essential part of patient care! #LADAorg #LupusChat

cc: @ladaorg.bsky.social @lupuschat.bsky.social

Dr. Jillian Rose is giving a remarkably informative presentation on Sexual Health & Rheumatic conditions.

🔹 90% of women w/SLE have reduced arousal

🔹56% of women w/Sjogren’s experience vaginal dryness

🔹89% of men w/Systemic Sclerosis experience erectile dysfunction

#ACR25 #LADAorg #LupusChat

If you see me at #ACR25 ask me for a #LupusChat sticker!

Dr. Martha Delgado gave a great #ACR25 presentation focused on improving patient participation in clinical trials in Latino communities. She shared barriers for both patients & providers as well current efforts to remove barriers.

cc: @ladaorg.bsky.social #LADAorg @lupuschat.bsky.social #LupusChat

A multicolored archway designating a Hall of Posters. There are people walking under it

Spending some time in the Poster Hall at #ACR25! I’m excited to see the results of several studies as well as the Patient Prospectives posters.
#LADAorg #LupusChat

@ladaorg.bsky.social
@lupuschat.bsky.social

#LADAorg is appreciative of our strong partnerships with our patient advocacy colleagues at the #Lupus Community Booth #2121 at #ACR2025. Kudos for collaborating to improve lives! @lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @infusioncenter.bsky.social

🆕 ACR 2025 Guidelines for Treatment of Systemic Lupus Erythematosus 🦋

#ACR25 #Lupus #RheumSky

Two ladies standing in front of a lupus community booth

Representing @lupuschat.bsky.social at the lupus community booth at #ACR25 with @ladaorg.bsky.social! Stay tuned as I share updates on new and intriguing studies on lupus and rheumatic conditions!

Please visit our community booth in the Exhibit Hall at booth 2121! #LADAorg #LupusChat #ACR25

We are excited to attend #ACR25 to network, learn and share our resources. Visit us at the #Lupus Community Booth # 2121. #PatientVoice
@lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @acr25.bsky.social @rheumepi.bsky.social @rheumcat.bsky.social

#LADAorg

Headshot of Tiffany, with a green afroprint outfit, with pink glasses, hair out in a curly twist out.

Hey #LupusChat fam, please join us is wishing our Founder & CEO @tiffanyandlupus.bsky.social a very Happy Birthday!!! We are forever grateful for all you do for the community. You are a beacon of light and we appreciate you. We hope you have THE BEST day! 🎉🎂

a cartoon character from bob 's burgers is celebrating her birthday with her hands on her head . Alt: a cartoon character from bob 's burgers is celebrating her birthday with her hands on her head .

🎂💜 Happy Birthday to our colleague & #LupusChat co-host @syncenerdcarly.bsky.social! 🥳 Thank you for advancing lupus research & always showing up for the community. We celebrate you today & every day! 🎉

Got SLE? 💜 Been on a biologic? You could earn $150 for sharing your experience in a 90-min online lupus research interview! Ages 21–55, no Lupus Nephritis. Apply by TODAY Aug 8 👉 https://shorturl.at/GfJk5

Got SLE? 💜 Been on a biologic?
You could earn $150 for sharing your experience in a 90-min online lupus research interview!

Ages 21–55, no Lupus Nephritis.

Apply by TODAY Aug 8 👉 shorturl.at/GfJk5 #LupusChat

Please join us in celebrating all the wonderful Dads and Father figures in our community and across the world. Happy Father's Day to you all!!

~The #LupusChat Team 💜

Michael #Highlights #LupusGPT developed by @lupuseurope.bsky.social, a new AI tool aimed for patients, who just won the PFMD “Made with Patients” award. Congratulations! 🥳
Find it here: lupusgpt.org

✅ Meaningful patient collaboration X GenAI = real impact

Congratulations to #LupusGPT on winning the #MadeWithPatients Award 🏆 at #EULAR25

🔊LISTEN IN 👇🏽

@lupuseurope.bsky.social @lupuschat.bsky.social @lupusdnadoc.bsky.social @lupuswarrior69.bsky.social @lupus.org @disorderlupus.bsky.social

We need cross-sector collaborations, public-private partnerships and robust basic, clinical and translational projects to identify biomarkers, better clinical trial methodologies, prevent complications, develop better dx measures and safer, more effective treatments, and cures.

We need crosssector collaborations, public-private partnerships and robust basic, clinical and translational projects to identify biomarkers, better clinical trial methodologies, prevent complications, develop better dx measures and safer, >effective #lupus drugs and cures. @lupuschat.bsky.social