@mikeys-wish.bsky.social @jititterington.bsky.social @drhelenslt.bsky.social @vjoffe.bsky.social @carolinebowen.bsky.social @peterdjust.bsky.social @speechapraxia.bsky.social @tricmc.bsky.social
This is fantastic in shining a light on the complex issues, and barriers, to providing and accessing therapy for CAS.
Agree, this is a very important step in starting dialogue and, hopefully, lead to solutions that will enable the therapy needs of people with CAS to be met.
This study highlights the need for parental education and communication when working with children with Childhood Apraxia of Speech. Learn how to better ensure that caregivers' concerns about their children's speech are addressed https://pubs.asha.org/doi/10.1044/2025_AJSLP-25-00358 @sydney.edu.au
We also support @rarediseaseday
Because…
Researches have identified over 30 genes linked to CAS.
CAS is a Red flag for a Rare Condition, with 1 in 3 cases being of genetic cause.
geneticsofspeech.org.au and Translation Centre for Speech Disorders
#RareDiseaseDay
@mikeys-wish.bsky.social @speechapraxia.bsky.social
It's Rare Disease Week!
Learn your stripes with a 5 min video from Medics 4 Rare Disease youtu.be/JBKZTHx-OEc?...
Did you know CAS Childhood Apraxia of Speech is a red flag for a rare condition, with 1 in 3 cases being of genetic cause.
pubmed.ncbi.nlm.nih.gov/36117209/
Quote from Steve Jamieson, the Chief Executive of the Royal College of Speech and Language Therapists, about the UK Government's Health and Growth Accelerators announcement in February 2026: "We welcome the UK Government’s £25m investment in Health and Growth Accelerators to better link health and work support. If the NHS is to be accountable for employment outcomes, we must involve the right professionals. Speech and language therapists play a vital role in supporting people with communication, cognitive, and voice needs to stay in and return to work. Enabling support from and access to speech and language therapists to advise on workplace support is critical to ensuring people get tailored, expert support to meet their communication needs. Good work and good communication go hand in hand.”
📢 'Good work and good communication go hand in hand.'
🚨 The RCSLT responds to the Govt's Health and Growth Accelerators announcement.
🗣️ It is essential that people with communication, cognitive, and voice needs can access speech and language therapy so they can stay in and return to work.
It's Rare Disease Week!
Learn your stripes with a 5 min video from Medics 4 Rare Disease youtu.be/JBKZTHx-OEc?...
Did you know CAS Childhood Apraxia of Speech is a red flag for a rare condition, with 1 in 3 cases being of genetic cause.
pubmed.ncbi.nlm.nih.gov/36117209/
🆓🔓 @maria-cairney.bsky.social, Kevill S, & @drjoannecleland.bsky.social 2026. PROTOCOL for a Systematic Review of Interventions Not Delivered by Speech and Language Therapists for Children With Speech Sound Disorders. IJLCD, 61(1). doi.org/10.1111/1460...
🧒 #childSPEECHdis 🦋 #bskySPEECHIES
That is just fantastic to hear!
Would love to hear more about that model.
Love working in a service where leadership supports evidence based intensity and duration of intervention for severe SSD. 3 sessions per week with breaks based on clinical decision making not arbitrary service delivery models 🙌🏻
🙌 15 mins of pure gold! 🙌
In this EXCELLENT 🆓 video from @coursebeetle.co.uk, @jititterington.bsky.social, @heleneslt.bsky.social & @katinkabaker.bsky.social from the Raising Awareness of Dosage in SSD " #RADiSS" group talk about dosage in #CHILDspeechDIS. vimeo.com/1133992280?s... 🦋 #bskySPEECHIES
@mikeys-wish.bsky.social @gillianrudd.bsky.social @peterdjust.bsky.social @speechapraxia.bsky.social @bammo44.bsky.social
@carolinebowen.bsky.social
@tricmc.bsky.social
@nikkimcdonald.bsky.social shares her son's journey with speech and language therapy for his severe #SSD showing the value of evidence-based dosage to support Raising Awareness of Dosage in Speech Sound Disorder (RADiSSD). Find it here www.thespeechdoctorni.co.uk/radissd @csdrnetwork.bsky.social
I've just had a look at Babble Boot Camp, amazing work. 💙
Thank you so much for mentioning this @carolinebowen.bsky.social
Thank you Caroline, that gives hope for the next lot of youngsters....
Seen it mentions a further study is underway, which is great to hear too. Thank you 😊
We will never know what life would have been like if she had received appropriate early intervention but, we are still paying the price for the lack of it, and nearly 12 years later, are still battling for appropriate speech therapy for CAS for her.
3/3
My, now teenage daughter, was diagnosed with CAS about 6 years of age yet had been under SLT since 2 yr old. She also has a genetic condition, 'de novo', which is the cause of CAS for her.
Something has to change, to ensure everyone with CAS gets the therapy that is needed without delay.
.
Interested to hear whether
diagnosis, and very importantly, treatment for CAS for those under 3 years is going to happen, or happening now?
For children with a genetic diagnosis, where CAS is a
symptom, surely there is no need to wait? We all know early intervention is key.
1/3
💰🔐40% of EI SLPs believed CAS can't be diagnosed in under-3s; 52% wouldn’t tell caregivers. Of SLPs who DID diag/treat CAS in <3s, most used caregiver coaching & play. Highly structured, clinician-directed tx was relatively underused despite ➕evidence. pubs.asha.org/doi/abs/10.1...
🦋 #bskySPEECHIES
🆓🔓 WOW! Food for thought🤔. #childSPEECHdis
🦋 #bskySPEECHIES @katieh-wisc.bsky.social @jprestonslp.bsky.social @sharynnemcleod.bsky.social @lynn-williams.bsky.social @yvonnewren.bsky.social @csdrnetwork.bsky.social @drjoannecleland.bsky.social @drhelenslt.bsky.social @annettefox-boyer.bsky.social
“Speech and language therapists break down communication barriers, unlocking learning, inclusion, and opportunity for every child. They play a critical role in early intervention for children and young people.” Georgia Gould, education minister, September 2025
Quote by Dr Zubir Ahmed, UK Minister for Health Innovation and Safety, November 2025: ‘We recognise the impact that long waits to access speech and language and occupational therapy can have on the individual, their families and carers. We are working closely with NHS England to improve access to community health services and on actions to reduce long waits for people of all ages.’
Quote by Baroness Merron, UK Minister for Women's Health and Mental Health, November 2025: ‘The Government recognises the important role that speech and language therapy services play in supporting people to overcome health and social barriers and enhancing overall quality of life.’
Extract on guideline on rehabilitation for chronic neurological disorders including acquired brain injury: ‘Improved speech, language and communication may also increase participation in education and employment offering broader social and economic benefits.’
🚨With the Budget just a day away, some quotes from ministers and NICE over the past few months which kind of highlight why the Govt needs to #InvestInSLT and publish its SLT Action Plan.
1/
WAIT-UP SLT is a research project aiming to explore experiences of waiting within children's speech & language therapy services in England from the perspective of:
- Speech & language therapy teams
- Parents & caregivers
- Children & young people
Please share & follow for updates
linktr.ee/waitupslt
"Recruitment is one side of the coin, but retention is the other."
During the #InvestInSLT debate on 27 Jan 2025, Dave Robertson, MP for Lichfield, recognised the issues with burnout, insufficient support and unsustainable workloads in speech and language therapy.
Children and families accessing speech and language therapy don't just experience waiting for first appointments - many experience further waits for therapy and support as described in this @itsmylondon.bsky.social article ⤵️.
www.mylondon.news/news/south-l...
New #WaitUpSLT blog article: What To Do Whilst You're Waiting for Speech and Language Therapy for Your Child waitupslt.blogspot.com/2025/11/what...
The image shows a poster advertising the WAIT-UP SLT research project and an opportunity to join advisory group. You can express an interest if you: ✅ are a parent/caregiver of a child or young person who has accessed children's speech and language therapy services in the last 3 years https://app.onlinesurveys.jisc.ac.uk/s/bcu/waitupslt-pac-advisory-group or ✅ work within a SLT service in England as a service lead, SLT, SLTA, admin/clerical assistant or other associated role and have contact with families who experience waiting https://app.onlinesurveys.jisc.ac.uk/s/bcu/waitupslt-slt-advisory-group
The first #WaitUpSLT project advisory group meetings take place next month and it's not too late to join us.
If you'd like to read more about the project, the #WaitUpSLT blog is a good place to start: waitupslt.blogspot.com/2025/07/intr...
Please share to help spread the word 🙏
"We need increased investment to reduce waiting times and to ensure that every child, no matter their background, gets the support they need."
@shockatadam.bsky.social at the #InvestInSLT Speech and Language Therapy debate on 27 January 2025
"Many people, especially those from disadvantaged communities, live in areas where services are scarce and where waiting times are long. That can exacerbate some of the issues faced by those communities, as well as the individuals affected."
Dave Robertson at the #InvestInSLT debate on 27/01/25
On the right hand side of the picture is the official photo of Sureena Brackenridge, MP, smiling and looking at the camera and wearing a white top with a red blazer. On the left side is a quote that reads: "In September 2024, more than 64,000 children in England were waiting for speech and language therapy. In my Wolverhampton North East constituency, children and families are facing unacceptable delays and limited access. Behind each number is a child struggling to communicate in the classroom, a young adult trying to rebuild their life after a brain injury, or a stroke survivor who feels isolated because their voice has been taken away." Sureena Brackenridge, MP, at the Speech and Language Therapy debate on 27 Jan 2025
"In September 2024, more than 64,000 children in England were waiting for SLT... Behind each number is a child struggling to communicate in the classroom, a young adult trying to rebuild their life after a brain injury..."
@sureenawne.bsky.social at the #InvestInSLT debate on 27 Jan 2025
