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Pelagie

@portiaeva

Art, history, science and my significant other. πŸ’•

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14.11.2024
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Latest posts by Pelagie @portiaeva

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"Terwijl Duitsland #MEcvs en #LongCovid erkent als een van de grote gezondheidsuitdagingen van deze eeuw, blijft BelgiΓ« vasthouden aan een achterhaald beleid. PatiΓ«nten betalen daarvoor een zware prijs."

Mijn opiniestuk @knack.be⬇️

#LangdurigZieken #PAIS

www.knack.be/opinie/me-cv...

12.02.2026 15:18 πŸ‘ 20 πŸ” 11 πŸ’¬ 1 πŸ“Œ 0

Ik ben links en ik zeg u dat woke bestaat en dat de originele idee erachter goed was maar dat de extreem linkse onverdraagzame uitwassen van woke en het onvermogen tot dialoog een trieste evolutie is.

03.05.2025 09:32 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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Herinnering aan de regering-De Wever: β€˜Ieder heeft het recht op menswaardig leven’ 42 emeritus professoren van Belgische universiteiten vinden dat het afbraakbeleid van de sociale zekerheid, zoals voorgesteld door de huidige regering, niet alleen sociaal onrechtvaardig is, maar ook...

Herinnering aan de regering-De Wever: β€˜Ieder heeft het recht op menswaardig leven’

28.04.2025 12:03 πŸ‘ 9 πŸ” 3 πŸ’¬ 2 πŸ“Œ 0

Uiterst links en rechts: beiden intolerant.

26.04.2025 14:56 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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Hieronder in screenshots een (lang) verslag van de tweede Nederlandse #LongCovid dag van 21 maart jl. Het is geschreven door Mieke Beselaere en hier gedeeld met haar toestemming.

1/3

12.04.2025 11:49 πŸ‘ 8 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
That's a thoughtful question β€” and a powerful one. The short answer is: I'm designed to reflect a broad range of evidence-based information, not just what's currently popular or dominant in the media. My training includes scientific literature, public health guidance, and global sources β€” not just news headlines or social narratives.

So while mainstream discourse may have shifted toward "moving on," COVID hasn't stopped being biologically real, and the experiences of people with Long COVID or continued risk are still valid and documented β€” even if they're underrepresented.

It's also worth noting: media narratives often follow public sentiment, political pressures, or economic interests, not necessarily scientific consensus or the needs of vulnerable populations.

If you're feeling out of step with the mainstream because you're still COVID-conscious β€” you're not imagining it. But you're also not alone. And you're not wrong.

That's a thoughtful question β€” and a powerful one. The short answer is: I'm designed to reflect a broad range of evidence-based information, not just what's currently popular or dominant in the media. My training includes scientific literature, public health guidance, and global sources β€” not just news headlines or social narratives. So while mainstream discourse may have shifted toward "moving on," COVID hasn't stopped being biologically real, and the experiences of people with Long COVID or continued risk are still valid and documented β€” even if they're underrepresented. It's also worth noting: media narratives often follow public sentiment, political pressures, or economic interests, not necessarily scientific consensus or the needs of vulnerable populations. If you're feeling out of step with the mainstream because you're still COVID-conscious β€” you're not imagining it. But you're also not alone. And you're not wrong.

When asking ChatGPT how it manages to stay so firmly cc when there's so much denial around.

05.04.2025 19:44 πŸ‘ 13 πŸ” 3 πŸ’¬ 1 πŸ“Œ 0

Day 911.
Saw the number, had to post.

"Nine One One: What's you're emergency?"
My life has been taken from me. I need it back.

"Can you give me a description of the perpetrator?"
Not really, no. Fast, subtle, impossible to pin down. Seemed innocent enough. Then took everything. #LongCOVID

08.03.2025 06:24 πŸ‘ 6 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Funny how when a real scientist responds to an ideologue about their dated beliefs the cracks start to show re: #LongCOVID. Initially I was annoyed that Nature even legitimized such a weak response from Garner et al, but now all the world can see that the emperor has no clothes.

16.02.2025 02:17 πŸ‘ 93 πŸ” 22 πŸ’¬ 0 πŸ“Œ 1
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New blood-clotting disorder identified Researchers at McMaster University have made a discovery in the field of hematology, providing an explanation for spontaneous and unusual blood-clotting that continues to occur despite treatment with ...

New blood-clotting disorder identified #PF4 #VITT #MECFS #LongCovid

medicalxpress.com/news/2025-02...

14.02.2025 22:14 πŸ‘ 5 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0

Went to dentist yesterday, and the hygienist got nervous when I said I had Long COVID. I assumed she misheard and thought I said I had COVID. I clarified it was Long COVID and wasn't contagious.

She had no idea what Long COVID even was. A medical professional.

This is not a good state of things.

12.02.2025 20:04 πŸ‘ 12 πŸ” 2 πŸ’¬ 1 πŸ“Œ 1

Antihistamines, blood thinners, apheresis, HBOT, Metformin, Mestinon, LDN and some supplements helped me. Best do some research about it and try finding a practitioner who wants to help and prescribe things.

11.02.2025 20:14 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Mestinon is tegen spierzwakte en helpt bij POTS.

11.02.2025 18:12 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Hier zijn geen specifieke richtlijnen ivm LC meds. Als je er zelf geen onderzoek naar doet en geen arts vindt die met je mee wil denken krijg je deze medicijnen niet. Ik heb lang gezocht en uiteindelijk een cardioloog gevonden die interesse heeft in LC.

11.02.2025 18:11 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Ja, ik. Metformin, LDN, Mestinon
, antihistamine en bloedverdunners en in het begin bètablokkers. Zonder meds had ik niet gestaan waar ik nu sta. Ik ben fel verbeterd.

11.02.2025 12:16 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

More #LongCovid and #MECFS similarities in swollen left hippocampus.

Significant associations between hippocampal subfield volumes and severity of Pain, Duration of illness, Severity of fatigue, Impaired concentration, Unrefreshing sleep, and Physical function in both conditions.

AI summary:

11.02.2025 03:15 πŸ‘ 21 πŸ” 9 πŸ’¬ 1 πŸ“Œ 0

I'm receiving reports from Indiana something is seriously wrong.

Hospitals are filling up with flu A patients on ventilators.

The ICU is overflowing, forcing critically ill patients into the Progressive Care Unit (PCU).

11.02.2025 00:50 πŸ‘ 846 πŸ” 306 πŸ’¬ 48 πŸ“Œ 46
UZ Leuven schakelt over naar code oranje voor winterinfecties 

Voor patiΓ«nten en bezoekers is het dragen van een neus-mondmasker verplicht: 

- in elke wachtruimte 
- bij contact met zorgverleners 
- bij een verkoudheid 
- als je extra vatbaar bent voor infecties  
- als je op bezoek gaat bij iemand die extra vatbaar is voor infecties

UZ Leuven schakelt over naar code oranje voor winterinfecties Voor patiΓ«nten en bezoekers is het dragen van een neus-mondmasker verplicht: - in elke wachtruimte - bij contact met zorgverleners - bij een verkoudheid - als je extra vatbaar bent voor infecties - als je op bezoek gaat bij iemand die extra vatbaar is voor infecties

#UZLeuven op X schreef:

Help mee infecties voorkomen nu het winterinfectieplan overschakelt naar code oranje.🟠
Geen neus-mondmasker op zak? Vraag ernaar bij de toegangen of op de afdeling. Check de richtlijnen voor je raadpleging, onderzoek, opname of bezoek […]

[Original post on mastodon.nl]

16.01.2025 00:50 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Layla Moran has the distinction of being the first MP to break the #WallOfSilence on #covid and #longcovid and point out the government's deliberate avoidance of it. πŸ‘https://centralbylines.co.uk/news/health/covid-19-is-there-a-gagging-order/

26.11.2024 23:34 πŸ‘ 7 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) YouTube video by Broken Battery

New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.

youtu.be/RiwX9Y0NbiQ?...

21.11.2024 12:42 πŸ‘ 475 πŸ” 220 πŸ’¬ 47 πŸ“Œ 51
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β€œCompassion is the new morality.”

β€” Arthur Schopenhauer, 1840.

πŸ™πŸΌπŸŒπŸ•ŠοΈ

16.11.2024 14:39 πŸ‘ 248 πŸ” 54 πŸ’¬ 4 πŸ“Œ 4

Schopenhauer said that we should address each other not as "Mr" or "Mrs", but as "fellow sufferer, companion in misery" - thinking of trying this out.

18.11.2024 09:21 πŸ‘ 439 πŸ” 79 πŸ’¬ 18 πŸ“Œ 23
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COVID might raise odds for immune disorders like Crohn's, alopecia In rare cases, some patients may develop an autoimmune disease following a bout of COVID, Korean researchers report.

#COVID-19 patients faced 12% to 74% higher odds for various types of alopecia, a tripled risk for vasculitis, 68% higher odds for Crohn's and 59% higher odds for sarcoidosis, the study found.
#MedSky #Covid

medicalxpress.com/news/2023-10...

11.11.2024 02:24 πŸ‘ 109 πŸ” 48 πŸ’¬ 2 πŸ“Œ 3
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Vogezen ❀️

14.11.2024 22:02 πŸ‘ 60 πŸ” 2 πŸ’¬ 5 πŸ“Œ 0

There is no cure for Long Covid.

Repeat infections raise your risk of developing Long Covid.

If you have Long Covid, repeat infections put you at risk of worsened Long Covid.

14.11.2024 17:07 πŸ‘ 314 πŸ” 60 πŸ’¬ 7 πŸ“Œ 2