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Jane

@everhopeful1000

Mainly found trying to do the right thing in a world that has covered itself in red tape. #Autism #Apraxia #Advocacy

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01.10.2023
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Latest posts by Jane @everhopeful1000

I loved it!

29.11.2025 20:13 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Believing in Nonspeakers and Communication Rights We spoke with Dr. Jaswal about his research validating and supporting non-speakers with speech disabilities in their communication efforts.

Really cool interview caught this morning from @thinkingautism.com

Believing in Nonspeakers and Communication Rights share.google/MA3qXvW3RmnW...

26.10.2025 08:52 πŸ‘ 19 πŸ” 9 πŸ’¬ 1 πŸ“Œ 0
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We. Get. Tired! Recovering From Situational Autistic Burnout β€” THINKING PERSON'S GUIDE TO AUTISM Parents need to know that autistic kids get TIRED. We autistics need rest, more frequently and in greater durations than non-autistic people.

How can autistic people recover from short-turn autistic burnout? @mx-joyner.bsky.social has very specific, tried-and-true strategies that might help you or your autistic loved one, at TPGA (and yes this includes kids and adults with high support needs).

thinkingautismguide.com/2025/10/we-g...

25.10.2025 19:19 πŸ‘ 63 πŸ” 22 πŸ’¬ 4 πŸ“Œ 4

Thanks Helen. The shades of grey go both ways.

26.10.2025 16:44 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Interesting blog. The difficulty in our experience is that for non-speaking autists who move differently to the β€œnorm” incompetence is generally presumed.

26.10.2025 16:03 πŸ‘ 1 πŸ” 0 πŸ’¬ 2 πŸ“Œ 0

Further discussions about swimming in the sea today. Autistic son says he loves having a break from apraxia and feels that his body is developed to be in the water. I have strong suspicions that he was a seal in a former life!

22.06.2025 16:25 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

1. A story. Please read.
Reposts hugely appreciated on this. You'll see why in a bit.
I was born in Pakistan and lived there until I was 4. My parents worked there as doctors. While we were there we were very close to a couple called Christine and Mike Miles.

11.06.2025 17:49 πŸ‘ 82 πŸ” 105 πŸ’¬ 16 πŸ“Œ 23

On holiday currently and my non-speaking autistic son was having difficulty getting into the sea despite wanting to have a swim. We discussed his anxieties and practised some mindfulness and hey presto he had a lovely swim. Never underestimate the gift of communication ❀️

16.06.2025 15:15 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Augmented Reality Could Unlock the Voices of Nonspeaking Autistic People Jeremy, a 31-year-old autistic man, defies assumptions by using an AR headset to communicate via the HoloBoard. Despite challenges, new research shows that nonspeaking autistic individuals can type in...

Exciting research to enhance communication amongst non-speaking autistic people using AR

spectrum.ieee.org/nonverbal-au...

13.05.2025 19:54 πŸ‘ 4 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Beyond Vikram Jaswal's @craeioe.bsky.social talk on supporting nonspeaking autistic ppl's flourishing (recording below), Vikram collaborated w/ nonspeakers to design augmented reality communication technology
"The quest to ensure nonspeaking autistic ppl are heard" spectrum.ieee.org/nonverbal-au...

13.05.2025 19:01 πŸ‘ 23 πŸ” 9 πŸ’¬ 0 πŸ“Œ 0

I used to. Feel free to message.

14.05.2025 20:03 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Augmented Reality Could Unlock the Voices of Nonspeaking Autistic People Jeremy, a 31-year-old autistic man, defies assumptions by using an AR headset to communicate via the HoloBoard. Despite challenges, new research shows that nonspeaking autistic individuals can type in...

Exciting research to enhance communication amongst non-speaking autistic people using AR

spectrum.ieee.org/nonverbal-au...

13.05.2025 19:54 πŸ‘ 4 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Q1. What are your top three priorities for Autism Research?
A.1. Providing support for for autistics who don’t use spoken language, their families, and all the professionals who work with them.

03.05.2025 19:56 πŸ‘ 17 πŸ” 6 πŸ’¬ 0 πŸ“Œ 0
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Conceptualizing and describing autistic language: Moving on from β€˜verbal’, β€˜minimally verbal’ and β€˜nonverbal’ - Kristen Bottema-Beutel, Alyssa Hillary Zisk, Jordyn Zimmerman, Betty Yu, 2025

New editorial in @journalautism.bsky.social with @yesthattoo.bsky.social @jordynbzim.bsky.social and @bettyyu.bsky.social where we argue that "nonverbal" and "minimally verbal" are not useful constructs for grouping or describing autistic people. journals.sagepub.com/doi/10.1177/...

12.04.2025 14:14 πŸ‘ 79 πŸ” 42 πŸ’¬ 4 πŸ“Œ 5
Supporting nonspeaking autistic people's flourishing, Vikram Jaswal (3rd April 2025)
Supporting nonspeaking autistic people's flourishing, Vikram Jaswal (3rd April 2025) CRAE's 2025 annual lecture - Supporting nonspeaking autistic people's flourishing using collaborative cognitive science, with Prof. Vikram Jaswal

Just in case you missed it, last week's #CRAElecture is now available on YouTube:

Supporting nonspeaking autistic people's flourishing using collaborative cognitive science, with Vikram Jaswal

youtu.be/qnVs5u2S8bA

11.04.2025 08:08 πŸ‘ 6 πŸ” 5 πŸ’¬ 0 πŸ“Œ 0

Supporting an advocate the same age as my eldest son today. We had loads to chat about - A levels that weren’t taken, online university lectures etc but boy does that make me feel old!

09.04.2025 16:59 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Who is it this time?

08.04.2025 18:07 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Fabulous lecture from Vikram. The Matty J referred to in the chat is our very own @mattythenonspeaker.bsky.social

08.04.2025 18:01 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Supporting nonspeaking autistic people's flourishing ... using collaborative cognitive science. With Vikram Jaswal

It’s still not too late to get yourself a ticket to listen to Vikram Jaswal on Supporting nonspeaking autistic people’s flourishing.

This Thursday at 6pm GMT

Link:

www.eventbrite.co.uk...

29.03.2025 14:48 πŸ‘ 14 πŸ” 8 πŸ’¬ 2 πŸ“Œ 1

β€œI’ll be as bold as Attlee” Keir Starmer promised on the eve of the last general election, telling the Big Issue magazine that β€œI ran a public service during austerity, I saw the impact of the Tories’ decisions. There will be no return to austerity with a Labour Government.”

23.03.2025 18:58 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Reeves thinks she’s facing an economic crisis.  She’s wrong.  We have a political crisis.
Reeves thinks she’s facing an economic crisis. She’s wrong. We have a political crisis. YouTube video by Richard J Murphy

Ravel Reeves thinks she is facing an economic crisis. She’s wrong. She and Labour are facing a political crisis that demands that she spends. But will she realise that?

youtu.be/b6EEzOofQbM?...

23.03.2025 07:08 πŸ‘ 265 πŸ” 102 πŸ’¬ 16 πŸ“Œ 11
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Councils and NHS could face millions in extra costs due to disability benefit cuts Government plans for Pip cuts will drive up costs for local authority social care services and NHS, campaigners warn

#DisabilityBenefits cuts will cost more in every way.

β€œFor every pound that someone loses in benefits, you know that – if a council has to step in to cover the shortfall – it’s about Β£1.50 additional impact”- Disability Policy Centre.

Important piece by @cjayanetti.bsky.social tinyurl.com/3vun5uz8

22.03.2025 15:46 πŸ‘ 96 πŸ” 56 πŸ’¬ 4 πŸ“Œ 2
First they came poem by Martin NiemΓΆller

First they came poem by Martin NiemΓΆller

Thinking about this today…

21.03.2025 19:40 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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The video of Trump’s deportees arriving in El Salvador is horrific.

This is 21st century Nazism.

Identities concealed, trafficked to a foreign labour camp. No due process, no evidence of crime. Dehumanised.

Where is the global outrage?

The crime is historic; the normalisation catastrophic.

17.03.2025 11:50 πŸ‘ 4890 πŸ” 2606 πŸ’¬ 380 πŸ“Œ 621

We’re only two months in, & they’re cancelling research into pediatric brain cancer. They’re deporting US kids with brain cancer. They’re putting millions at risk of malaria, TB, & polio.

I for one will never forgive or forget those who said β€˜it won’t be that bad’.

😑

16.03.2025 15:30 πŸ‘ 31812 πŸ” 8283 πŸ’¬ 939 πŸ“Œ 389
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β€˜Teachers are describing something different’: the escalating culture of misogyny in Australian classrooms | Jess Hill Alongside stories of increasing β€˜performative toxicity’ among boys, teachers say this generation is also the most switched on ever. Can education really change student behaviour?

After watching β€˜Adolescence’ on Netflix, this article hits home. www.theguardian.com/society/2025...

16.03.2025 20:34 πŸ‘ 238 πŸ” 52 πŸ’¬ 14 πŸ“Œ 8

We’ll have it if you’d like to send it our way….

15.03.2025 22:45 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Not to mention the disabled people who live with uncertainty and insecurity.

15.03.2025 20:49 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Thank-you x

14.03.2025 20:41 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

One for you too @porschespider.bsky.social When we saw him last spring he was very into dinosaurs.

14.03.2025 20:27 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0