Exquisite!!! 💚
13.01.2025 08:11
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Exquisite!!! 💚
Poor #MEcfs care in Sweden contributes to patients committing suicide
At least 10,000 Swedish people with ME are bedridden and unable to leave their homes. There are many who are so sick that they see no other option but to take their own lives. www.altinget.se/artikel/sver...
My adult son is 100% bedbound and can only travel by stretcher. I bought a whole house generator and hurricane shutters to hunker down in the event of a hurricane.
Living on the coast in South Carolina a fire is not likely, but imagine very severe ME in LA!
“You’re overconfident. You act like you’re a grad student.” I was a freshman. That pretty much killed my confidence for the next 20 years.
Power needs to be tempered with empathy and wisdom.
It is a journey no one expects to take. But writing about it could actually prevent thousands from becoming as sick as James. I just need a commercial publisher!
Beautifully written by @drjogreer.bsky.social a Mum caring for a daughter with severe ME.
PS This photo is not representative of that period, nor could it be taken today. James has returned to the abyss.
Excerpt from my forthcoming memoir about severe ME:
meglobalchronicle.wordpress.com/2024/12/06/t...
Yes. She needs to do a TED Talk on this!!!
Done! 🩵🩵🩵
Wow. Fun!
In case you’re wondering whether you have ME, or whether your long COVID has progressed to become ME, here is a fantastic short explanation from the Bateman Horne Center. #mecfs #longcovid #myalgicencephalomyelitis
How to diagnose ME
youtu.be/8LXIXx7woCo
A dove of peace carries a peace sign. Above her is a large heart. Image symbolizes the Gift of Peace comes from Love.
The Gift of Peace comes from Love.
Newsweek: 'Map Shows US States With Highest Levels Of Long COVID'
'Around 400 million people worldwide are believed to have long COVID, and 17.8 million of those are in the U.S., according to medical journal JAMA.'
www.newsweek.com/map-shows-us...
The History of ME.
How a serious physical disease was hijacked by powerful influential psychiatrists leading to neglect and abuse of an entire patient population. Deaths. Collusion with government. A story that urgently needs telling.
#ME #MECFS #LongCovid #journalists
medium.com/@abrokenbatt...
It’s EXCELLENT!
Encephalogirl has published a chapter from my forthcoming book to educate about Severe Myalgic Encephalomyelitis. #myalgicencephalomyelitis #severeme #severemecfs
open.substack.com/pub/encephal...
Thank you.
Galen and sister holding Westie.
Galen with sister. Galen holding Ragdoll kitten.
Galen on bench on dock with Westie and Ragdoll kitten
My son James with #verysevereME is doing poorly. We’ve begun communicating with hand signals assigned to just a handful of his needs.
My little sister is visiting me now, which gives me an emotional lift. Here we are walking my dog and cat in Sunday.
Thank you
Oh yes he has much more. I was just curious because one of his many supplements is high dose taurine
Thank you!
Thank you! 💙
How long should it take? 🥴
At what dose did you see this result? Do you take Taurine with/without food? At 2g a day my son has not improved.
My son James Strazza started high-dose Taurine about 2 weeks ago. 500mg 4x day. (He’s very severe. I have to feed him 50% of the time) So far no improvement.
Following!
Wonderful. Well, I’m new to this so I am just Follow All-ing my way into the depths!
I will be posting links to my work for severe ME but, seriously, I realize most have that potential on their mind and might be interested too.
💔❤️
It’s fantastic. I realize the situation is still bad, but all of these ripples in the pond WILL create a wave.
Learning Bluesky. My first video post.
