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Anisha

@anishasekar

ME/CFS, POTS & Long COVID | standard nerd stuff | cat parent | still masking 😷

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28.01.2025
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Latest posts by Anisha @anishasekar

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Tell the Department of Energy to Stop Attacking Civil Rights and Section 504 - DREDF Disability Rights Education & Defense Fund

NOTE DEADLINE OF THE 16th!
The US Department of Energy s trying to get rid of important rules of Section 504 that will take effect July 15 unless β€œsignificant adverse comments” are received by June 16th.

Take action with @dredf.bsky.social: dredf.org/action-alert...

#disability #pwME #MECFS

14.06.2025 20:30 πŸ‘ 24 πŸ” 24 πŸ’¬ 1 πŸ“Œ 3
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Today RFK and co. removed the COVID vaccine from the CDC's recommended immunization schedule for children and pregnant people.

This is junk science. COVID puts children and pregnant people at higher risk for ER visits and hospitalizations, and Long COVID can cause chronic health issues for anyone.

27.05.2025 16:06 πŸ‘ 1124 πŸ” 435 πŸ’¬ 147 πŸ“Œ 91

it ignores the risk of severe, permanent disability following infection.

This administration claims to prioritize freedom of choice. The proposed changes would stop us from making our own health choices. Don't take this freedom away from people who want to protect themselves and their loved ones.

21.05.2025 21:40 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

of their lives. It ignores the risk to the elderly, immune-compromised, kids too young for vaccines, and others whose loved ones and caregivers want to protect them but will be prohibited from doing so. By studying only death and extreme adverse outcomes,

21.05.2025 21:39 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

none of that protected me from being permanently disabled. I would not wish this living hell on anyone.

Restricting the COVID-19 vaccine ignores the fact that everyone is at risk for long COVID - up to one in 4 Americans who gets COVID goes on to have Long COVID, which can upend every part

21.05.2025 21:39 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I had to spend 23 hours a day in a darkened bedroom. I needed canes and wheelchairs to walk, couldn't stand long enough to brush my teeth at the sink, forgot simple words, talked so slow I sounded half-asleep, and couldn't remember what happened an hour before. I was healthy, young, and fit - and

21.05.2025 21:38 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

My comment on www.regulations.gov/commenton/FD...

I would not qualify for a COVID-19 booster under the proposed regulations, nor would my fiancΓ©, who is my caregiver. I used to work 50+ hours a week, volunteer after hours, and run ultramarathons. Then I got COVID, and suddenly,

21.05.2025 21:36 πŸ‘ 3 πŸ” 0 πŸ’¬ 5 πŸ“Œ 0
Regulations.gov

URGENT: FDA plans to limit COVID vaccine access to those 65+ and those with qualifying health conditions.

It will be almost impossible for kids to get vaccinated against new variants.

You can submit a comment today to oppose this.

PLEASE submit here:
www.regulations.gov/commenton/FD...

21.05.2025 17:29 πŸ‘ 7 πŸ” 2 πŸ’¬ 1 πŸ“Œ 0
Photo from this week - U of T rehabilitation science group shot. Everyone is wearing a mask indoors. Several N95s.

Photo from this week - U of T rehabilitation science group shot. Everyone is wearing a mask indoors. Several N95s.

This beautiful picture is from Toronto. This week. Not 2022, not 2021. 2025.

Covid is still ongoing. It never ended. If your event doesn't have a mask requirement it isn't accessible or inclusive & puts others at risk.

26.04.2025 15:59 πŸ‘ 1029 πŸ” 245 πŸ’¬ 17 πŸ“Œ 13
Actual Scientists Promise to Reveal Cause of RFK Jr Epidemic

Actual Scientists Promise to Reveal Cause of RFK Jr Epidemic

Scientists suspect untreated brain worms may have something to do with the recent epidemic taking over our nation.

11.04.2025 19:27 πŸ‘ 6 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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S.F. to cut city funding protecting against 'informal evictions' One Bayview group says it's given legal aid to 20 percent of the neighborhood's residents. Its city grant is being slashed by $2.2 million.

San Francisco is cutting $4.2M in funding to 7 nonprofits providing free civil legal aid, including against "informal evictions."

Landlords often evict tenants under the table, by cutting utilities or changing locks.

Now, those tenants are on their own.

missionlocal.org/2025/04/sf-n...

10.04.2025 16:53 πŸ‘ 15 πŸ” 9 πŸ’¬ 0 πŸ“Œ 2

It’s been a full week, and not a single penguin has backed down or sold out. Could there be a lesson here for America’s law firms and universities?

09.04.2025 16:33 πŸ‘ 3299 πŸ” 567 πŸ’¬ 48 πŸ“Œ 27

I have tariffed
the penguins
that are on
Heard Island

and which
you were probably
assuming
did not export goods

forgive me
they were taking advantage of us
so cunning
and so cold

03.04.2025 19:45 πŸ‘ 28804 πŸ” 7036 πŸ’¬ 553 πŸ“Œ 339
A black background with neon purple and turquoise gaming-esque framing features photos of John Oliver and Jon Stewart facing off. White text reads, β€œThe Sick Times. The history of ME deserves a late-night spotlight. That’s why we started the #JohnVsJonVsME campaign. by Eliza Charley, Emily Fraser, Julie, Katie Klocksin, Melissa Mazur, MarΓ­a Richardson.”

A black background with neon purple and turquoise gaming-esque framing features photos of John Oliver and Jon Stewart facing off. White text reads, β€œThe Sick Times. The history of ME deserves a late-night spotlight. That’s why we started the #JohnVsJonVsME campaign. by Eliza Charley, Emily Fraser, Julie, Katie Klocksin, Melissa Mazur, MarΓ­a Richardson.”

White text inside a neon colored speech bubble reads, "Medical professionals don’t just neglect people with ME but often only offer them harmful treatments like cognitive behavioral therapy or graded exercise therapy. COVID-19 has added millions of new people with ME to the millions already sick, making coverage of this scandal imperative now more than ever." - #JohnVsJonVsME Core Planning Group: 
Eliza Charley, Emily Fraser, Julie, Katie Klocksin, Melissa Mazur, and MarΓ­a Richardson

White text inside a neon colored speech bubble reads, "Medical professionals don’t just neglect people with ME but often only offer them harmful treatments like cognitive behavioral therapy or graded exercise therapy. COVID-19 has added millions of new people with ME to the millions already sick, making coverage of this scandal imperative now more than ever." - #JohnVsJonVsME Core Planning Group: Eliza Charley, Emily Fraser, Julie, Katie Klocksin, Melissa Mazur, and MarΓ­a Richardson

In a crisis-filled world, breaking through the noise requires creativity, strategy β€” and, occasionally, a really good meme. This is why the #JohnVsJonVsME campaign began. bit.ly/4hTwUxa

01.04.2025 19:00 πŸ‘ 68 πŸ” 27 πŸ’¬ 2 πŸ“Œ 6

@schiff.senate.gov thank you for supporting Senator Booker's filibuster!

01.04.2025 19:47 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Thank you, Senator!

01.04.2025 06:04 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Thanks @thesicktimes.bsky.social @betsyladyzhets.bsky.social @mileswgriffis.bsky.social for your reporting on #NoLongCOVIDCuts advocacy. Grateful coverage shouted out #LongCOVID bipartisan Hill supporters & uplifted the patient outreach that made #RECOVER grant restorations today possible. #teamwork

29.03.2025 02:13 πŸ‘ 24 πŸ” 9 πŸ’¬ 0 πŸ“Œ 0
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With so many physically disabled people living on S.F. streets, what happens to wheelchairs during sweeps? Take a trip to downtown SF and it’s impossible not to notice the sheer number of seemingly homeless people navigating the streets via wheelchair or walker.

new from me: on how disability complicates the reality of homelessness, and why a city might be OK with confiscating or discarding unhoused people's wheelchairs www.sfchronicle.com/opinion/sole...

16.03.2025 19:14 πŸ‘ 176 πŸ” 69 πŸ’¬ 10 πŸ“Œ 10
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Five Years of Pain, Fatigue, and Gaslighting: Life With Long Covid People with Long Covid are still sick from a pandemic the rest of the world would rather forget.

Rolling Stone: 'Five Years of Pain, Fatigue, and Gaslighting: Life With Long Covid'

'We've been discounted for half a decade, still sick from a pandemic the rest of the world would rather forget'

www.rollingstone.com/culture/cult...

15.03.2025 16:15 πŸ‘ 79 πŸ” 44 πŸ’¬ 4 πŸ“Œ 4
Three people in sky blue shirts and jeans climbing the steps of the US Capitol, including a young blonde girl wearing a red and white bandanna around her head and turning to look at the camera

Three people in sky blue shirts and jeans climbing the steps of the US Capitol, including a young blonde girl wearing a red and white bandanna around her head and turning to look at the camera

Today is the 35th anniversary of the Capitol Crawl, in which disabled activists discarded their mobility aids at the foot of the Capitol steps to climb them in support of passage of the Americans with Disabilities Ac. Jennifer Keelan-Chaffins, 8, told reporters "I'll take all night if I have to!"

12.03.2025 13:35 πŸ‘ 9277 πŸ” 3083 πŸ’¬ 69 πŸ“Œ 179
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Why Masks-Required Concerts Still Sell Out in the Bay Area | KQED COVID-conscious musicians and fans have created a tight-knit, DIY scene that’s all about accessibility.

So great to see groups practicing community care. We need to do this more than ever in light of mass dismantling of government institutions.

06.03.2025 22:11 πŸ‘ 988 πŸ” 227 πŸ’¬ 12 πŸ“Œ 10
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S.F. homeless families say Mayor Lurie promised reprieve. They got eviction notices instead. Two dozen homeless families had a meeting with Mayor Lurie in which they say he promised they could stay housed. Now, they're being evicted.

In a 1-1 meeting, Mayor Lurie promised some two dozen homeless families they wouldn't be evicted from city shelters, they said, as long as they were making "positive progress."

Now, a couple weeks later, they're being evicted anyways.

by @xueerlu.bsky.social

missionlocal.org/2025/03/s-f-...

06.03.2025 16:52 πŸ‘ 13 πŸ” 13 πŸ’¬ 2 πŸ“Œ 1
Texas Proposes Section 504 of Debilitation Act

Texas Proposes Section 504 of Debilitation Act

What’s the Debilitation Act? A thread... 🧡

04.03.2025 15:08 πŸ‘ 8 πŸ” 3 πŸ’¬ 1 πŸ“Œ 1
3x3 grid. Positions 1-3 across the top labeled Lawful, Neutral, Chaotic. Positions 1-3 down the left side labeled Good, Neutral, Evil. US gov department logos and the email guidance they gave are plotted in this grid. DOJ: Lawful Good, β€œDon’t reply. Our work is confidential and sensitive.” HHS: Lawful Neutral, β€œReply is optional. Expect it to be read by malign foreign adversaries.” IRS: Lawful Evil, β€œYou must reply, unless you’re on leave.” DOD: Neutral Good, β€œDon’t reply. We review our own performance.” USDA: Neutral Neutral, β€œReply or don’t. Nothing will happen. There are no consequences.” DOT: Neutral Evil, β€œYou must replay. Here’s an example reply with sensitive information in it.” HUD: Chaotic Good, β€œIdk but here is a video of Trump sucking Elon’s toes.” Department of commernce: Chaotic neutral, β€œReply, but send it to your boss only, no OPM.” Department of interior: Chaotic evil, β€œYou must reply. We will evaluate non-responses. Also, we’ll be doing this every week from here on.”

3x3 grid. Positions 1-3 across the top labeled Lawful, Neutral, Chaotic. Positions 1-3 down the left side labeled Good, Neutral, Evil. US gov department logos and the email guidance they gave are plotted in this grid. DOJ: Lawful Good, β€œDon’t reply. Our work is confidential and sensitive.” HHS: Lawful Neutral, β€œReply is optional. Expect it to be read by malign foreign adversaries.” IRS: Lawful Evil, β€œYou must reply, unless you’re on leave.” DOD: Neutral Good, β€œDon’t reply. We review our own performance.” USDA: Neutral Neutral, β€œReply or don’t. Nothing will happen. There are no consequences.” DOT: Neutral Evil, β€œYou must replay. Here’s an example reply with sensitive information in it.” HUD: Chaotic Good, β€œIdk but here is a video of Trump sucking Elon’s toes.” Department of commernce: Chaotic neutral, β€œReply, but send it to your boss only, no OPM.” Department of interior: Chaotic evil, β€œYou must reply. We will evaluate non-responses. Also, we’ll be doing this every week from here on.”

Are you one of the many federal employees wondering what the hell is going on with those stupid bullet point emails? Well don’t worry. We’ve got all the guidance you could possibly need right here.

01.03.2025 21:19 πŸ‘ 1217 πŸ” 248 πŸ’¬ 39 πŸ“Œ 13
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A lack of provider literacy is straining people with Long COVID. Training programs for doctors could help. - The Sick Times Across the board nationally, primary care providers are largely uneducated on Long COVID, and typically don’t have the time or expertise to appropriately treat it. But some medical institutions are tr...

Today @thesicktimes.bsky.social: great piece by @meganburbank.bsky.social about efforts to train medical providers on Long COVID, and why that education is so important! thesicktimes.org/2025/02/28/a...

28.02.2025 22:45 πŸ‘ 49 πŸ” 21 πŸ’¬ 0 πŸ“Œ 1

Gutting (but not surprising) that my supervisor Rafael Mandelman voted to remove independent police oversight, based not on performance or character, but on the whims of our billionaire mayor. @deanpreston.bsky.social 's right on the money.

26.02.2025 20:37 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
NOT-OD-25-038: Request for Information (RFI): Inviting Feedback on the Framework for the NIH Strategic Plan for Disability Health Research FY26-FY30 NIH Funding Opportunities and Notices in the NIH Guide for Grants and Contracts: Request for Information (RFI): Inviting Feedback on the Framework for the NIH Strategic Plan for Disability Health Rese...

NIH is developing the NIH Strategic Plan for Disability Health Research FY26-FY30, and they are inviting our comments and feedback. Learn more here:

ow.ly/G6Rj50V74vp

26.02.2025 18:00 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Asking as your constituent, what are you doing to: 1) limit Musk's unelected power grab, 2) provide practical support to federal workers who lost their jobs and 3) prepare for wildfires in understaffed areas? Posting about it is not enough.

24.02.2025 20:10 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
2025 Governors Ball US Army - "Do You Hear the People Sing" BRILLIANT TRUMP TROLLING!
2025 Governors Ball US Army - "Do You Hear the People Sing" BRILLIANT TRUMP TROLLING! YouTube video by Anti Trump

You GUYYYYSSSSSSS

The military choir sang Do You Hear the People Sing from Les Mis at the governor's dinner at the white house. Thanks to @beebrookshire.bsky.social for helping me fact check tihs one. As far as I can it's only "officially" been posted on Dan Scavino's FB

23.02.2025 22:14 πŸ‘ 6170 πŸ” 1834 πŸ’¬ 82 πŸ“Œ 605