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@soniamalik

Associate Director - Policy, Influencing and Voice at children and young people’s cancer charity - Young Lives vs Cancer. Into evidence based policy change - esp on children's health & disability. Own views. She/her

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16.11.2024
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Latest posts by @soniamalik

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What is 'Voice' at Young Lives vs Cancer? Emma Wood, Voice Manager talks about the crucial work of bringing young people with lived experience into our work.

Emma Wood, Voice Manager at Young Lives vs Cancer talks about how we bring young people with lived experience of cancer and their families into our work and decision-making, and how you can get involved.

Read more: ow.ly/oTmu50VwjQk

08.04.2025 09:06 👍 4 🔁 4 💬 0 📌 0
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Today's Spring Statement was a chance for UK Government to support children and young people with cancer with the extra costs that come with a diagnosis.

Our CEO @rachelkirby.bsky.social shares her reflections on how the statement missed the mark for the families we support.

👉 bit.ly/4hP8PYr

26.03.2025 16:38 👍 3 🔁 3 💬 0 📌 1
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Looking forward to the @cclguk.bsky.social conference with team @younglivesvscancer.bsky.social come and find us on our stand if you’re there!

24.03.2025 10:39 👍 6 🔁 1 💬 1 📌 0
Photo of a report titled ‘from lived experience to national policy: a citizen’s jury approach to improving cancer care

Photo of a report titled ‘from lived experience to national policy: a citizen’s jury approach to improving cancer care

Photo of a room in the House of Lords, uk parliament. A panel discussion with observers is taking place in the room

Photo of a room in the House of Lords, uk parliament. A panel discussion with observers is taking place in the room

A thoughtful discussion at parliament today on the findings of this report. I was struck by Minnal (a lived experience speaker) who said that just fixing the ‘basics’ like communication would be transformative. I’ve loved watching this unique method of engagement unfold over the last few months.

04.12.2024 18:10 👍 1 🔁 0 💬 0 📌 0
Young Lives vs Cancer staff stand with Fleur Anderson MP holding a sign which says I stand with children and young people with cancer

Young Lives vs Cancer staff stand with Fleur Anderson MP holding a sign which says I stand with children and young people with cancer

Earlier this week @fleuranderson.bsky.social met with us @younglivesvscancer.bsky.social about the needs of young cancer patients in Northern Ireland and across the UK- they often cross borders for care so systems need to flex for unique needs but also consistency of care across the UK is vital.

28.11.2024 13:53 👍 1 🔁 0 💬 0 📌 0
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'An ordinary life': The King's Fund's work on services for disabled people This exhibition to mark Disability History Month 2024 delves into The King's Fund's archives to explore our work with, and for, disabled people over the past 80 years.

To mark #DisabilityHistoryMonth2024, @kingsfundlibrary.bsky.social has launched a new online exhibition that delves into The King’s Fund’s archives to explore our work with and for disabled people over the past 80 years. Explore it now: features.kingsfund.org.uk/ordinary-lif...

25.11.2024 13:31 👍 24 🔁 12 💬 0 📌 3

Hello everyone 👋 Bluesky has grown quickly over the last few days so we wanted to say hello from all of us who support children and young people with cancer, and their families. Please share this thread with anyone who might find it useful. 1/4

19.11.2024 15:12 👍 23 🔁 8 💬 2 📌 1
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Expert Voices: Trauma-informed practice: beyond the buzzword Join the Centre for Justice Innovation on 16th December 12.30-13.20 for their next Expert Voices event, looking at trauma informed practice.

Join us for our latest Expert Voices event where Dr Sheena will be discussing what it actually means to be trauma-informed, and Nickii Webster will be explaining how it feels to receive a trauma-informed service.

www.eventbrite.co.uk/e/expert-voi...

20.11.2024 14:23 👍 10 🔁 3 💬 1 📌 0
A screenshot of Bluesky's alt text reminder options. At the top of the page it says "Accessibility" then underneath there are two options for "Alt text" which are "Require alt text before posting" and "Display larger alt text badges." The first of these is toggled to "on." There's also a "Media" option which is "Disable autoplay for videos and GIFs."

A screenshot of Bluesky's alt text reminder options. At the top of the page it says "Accessibility" then underneath there are two options for "Alt text" which are "Require alt text before posting" and "Display larger alt text badges." The first of these is toggled to "on." There's also a "Media" option which is "Disable autoplay for videos and GIFs."

19 million @bsky.app users? Better make sure they all know about the handy alt text reminder! 🫡

Go to Settings > Accessibility and make sure "Require alt text before posting" is toggled on.

We love that accessibility is such a priority here.

18.11.2024 10:14 👍 101 🔁 74 💬 8 📌 17