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10.03.2026 15:51
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Write a letter today using our template.
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Politicians claim to want to get kids back to school and adults back to work but fail to grasp the health impacts of the pandemic. Chronic illness is devastating families and costing the UK billions. Germany invests half a billion but the UK closes all the long covid services and ignores the crisis
Policy briefing executive summary on a blue background with Long Covid Kids logo. Paediatric Long Covid is affecting tens of thousands of children in the UK yet remains poorly tracked. Many affected children experience severe, multi system symptoms that limit their ability to attend school and participate in everyday activities. Evidence shows Long Covid can affect multiple body systems, including the immune, cardiovascular and neurological systems. Despite the growing impact on children, families and schools, national prevalence monitoring has largely stopped, specialist services are closing, and schools still lack clear guidance on how to support affected pupils.
Today we’re launching our new Policy & Parliamentary page.
Visit our website to read the full policy briefing, citations and policy priorities.
🔗 linktr.ee/LongCovidKids
📣 Tag anyone who should read it, or let us know who you’ll be sharing it with.
#LongCovidKids #LongCovidAwareness #Policy
Policy Briefing policy priorities. Visit our website for the full policy briefing, citations and policy priorities. Blue background with a screenshot of Long Covid Kids website policy and parliamentary page. Long Covid Kids logo.
Today we’re launching our new Policy & Parliamentary page.
Visit our website to read the full policy briefing, citations and policy priorities.
🔗 linktr.ee/LongCovidKids
📣 Tag anyone who should read it, or let us know who you’ll be sharing it with.
#LongCovidKids #LongCovidAwareness #Policy
Policy Briefing. Recognition and Support Gaps. White background, Long Covid Kids logo. Children with Long Covid often experience delays in diagnosis, limited access to specialist care and a lack of recognition within education and healthcare systems. National tracking of infections and Long Covid prevalence has largely stopped. Most specialist Long Covid clinics have closed despite continuing demand (19).
Today we’re launching our new Policy & Parliamentary page.
Visit our website to read the full policy briefing, citations and policy priorities.
🔗 linktr.ee/LongCovidKids
📣 Tag anyone who should read it, or let us know who you’ll be sharing it with.
#LongCovidKids #LongCovidAwareness #Policy
Policy Briefing. Economic Impact, blue background with white Long Covid Kids logo. Long Covid has significant financial impacts on families, including lost earnings and additional healthcare costs. Estimates suggest Long Covid costs the UK economy billions annually, with around 250 million working hours lost in 2024 (17) and £5.7 billion in lost productivity in 2023 (18). The long-term impacts on young people's education, employment and economic participation remain poorly assessed.
Today we’re launching our new Policy & Parliamentary page.
Visit our website to read the full policy briefing, citations and policy priorities.
🔗 linktr.ee/LongCovidKids
📣 Tag anyone who should read it, or let us know who you’ll be sharing it with.
#LongCovidKids #LongCovidAwareness #Policy
Policy briefing. nsufficient Focus on Airborne Infection Control in Schools . White background. Long Covid Kids logo. Indoor air quality in UK classrooms has been described by the Building Engineering Services Association as “a national scandal”(14). Most school buildings still rely primarily on natural ventilation. Classroom monitoring shows ventilation rates in schools are almost 4 times less than the absolute minimum in new office workplace guidelines (15) Evidence shows that air filtration can significantly reduce airborne virus transmission and illness in classrooms, improving both pupil and staff health (16).
Today we’re launching our new Policy & Parliamentary page.
Visit our website to read the full policy briefing, citations and policy priorities.
🔗 linktr.ee/LongCovidKids
📣 Tag anyone who should read it, or let us know who you’ll be sharing it with.
#LongCovidKids #LongCovidAwareness #Policy
Policy briefing. Reinfections Increase Risk. Blue background with Long Covid Kids logo. Each COVID infection increases the risk of developing Long Covid. The US NIH RECOVER study revealed that children and teenagers were twice as likely to develop Long Covid after a second infection (12). Other research shows reinfections are associated with increased cardiovascular disease, diabetes and neurological symptoms (13).
Today we’re launching our new Policy & Parliamentary page.
Visit our website to read the full policy briefing, citations and policy priorities.
🔗 linktr.ee/LongCovidKids
📣 Tag anyone who should read it, or let us know who you’ll be sharing it with.
#LongCovidKids #LongCovidAwareness #Policy
Policy briefing. Long Covid Can Be Severe and Multi-Systemic. White background. Long Covid Kids logo. Long Covid can affect multiple organ systems even after mild SARS-Cov2 infection. Immune Dysfunction: Children may become more susceptible to infections and chronic immune dysregulation (5, 6). Cardiovascular Effects: Covid has been described as ‘a vascular disease masquerading as a respiratory one’. Studies show increased risks of conditions like myocarditis and pericarditis (7). Post-infection Chronic Illness: A substantial proportion of Long Covid patients meet diagnostic criteria for Myalgic Encephalomyelitis (M.E). Severe cases can leave children housebound or bedbound for extended periods (8, 9). When including adults, the impact on individuals and society is significant: “Current estimates of the cost are upwards of £22 billion per year.”(10). Neurological Effects: Rising school absences are frequently attributed to mental health concerns alone, overlooking the role of physical illness. SARS-CoV-2 Infection : Infection can produce long term neurological effects, including cognitive impairment (brain fog) and sensory sensitivities. Abnormal neuroimaging findings including brain lesions, have been reported in 44% of children with post-COVID neurological symptoms (11). Other Overlapping Illness: Children and adults with Long Covid frequently develop complex conditions including dysautonomia, POTS, MCAS, EDS, PANS and diabetes.
Today we’re launching our new Policy & Parliamentary page.
Visit our website to read the full policy briefing, citations and policy priorities.
🔗 linktr.ee/LongCovidKids
📣 Tag anyone who should read it, or let us know who you’ll be sharing it with.
#LongCovidKids #LongCovidAwareness #Policy
Policy briefing. Physical illness is a major driver of the school attendance crisis. Blue background with white Long Covid Kids logo. Child illness-related absence remains almost 30% higher than pre-pandemic levels according to Department for Education data (1). Teacher illness absence remains almost 40% higher than pre-pandemic, increasing disruption and costs for schools (2). Surveys suggest many children with Long Covid struggle to attend school regularly; affected pupils can lose over 20 hours of learning per week due to symptoms. Promised DfE guidance for supporting pupils with Long Covid has not yet been published.
Today we’re launching our new Policy & Parliamentary page.
Visit our website to read the full policy briefing, citations and policy priorities.
🔗 linktr.ee/LongCovidKids
📣 Tag anyone who should read it, or let us know who you’ll be sharing it with.
#LongCovidKids #LongCovidAwareness #Policy
Policy Briefing, prevalence and persistence.White background with Long Covid Kids logo. The most recent survey from the Office of National Statistics estimated that over 111,000 children aged 3–17 in England and Scotland were estimated to be living with Long Covid (ONS, 2024). (3). Between March 2023 to March 2024, numbers nearly doubled, equivalent to around 1,000 new paediatric cases per week before national surveillance stopped. More than 20,000 children reported severe limitations to daily activities including school attendance and physical activity. The UK-based CLoCk study found that nearly a third of children with Long Covid had not recovered two years after infection, and that 25% of infected children still had symptoms after 3 months(4).
Today we’re launching our new Policy & Parliamentary page.
Visit our website to read the full policy briefing, citations and policy priorities.
🔗 linktr.ee/LongCovidKids
📣 Tag anyone who should read it, or let us know who you’ll be sharing it with.
#LongCovidKids #LongCovidAwareness #Policy
Policy briefing executive summary on a blue background with Long Covid Kids logo. Paediatric Long Covid is affecting tens of thousands of children in the UK yet remains poorly tracked. Many affected children experience severe, multi system symptoms that limit their ability to attend school and participate in everyday activities. Evidence shows Long Covid can affect multiple body systems, including the immune, cardiovascular and neurological systems. Despite the growing impact on children, families and schools, national prevalence monitoring has largely stopped, specialist services are closing, and schools still lack clear guidance on how to support affected pupils.
Today we’re launching our new Policy & Parliamentary page.
Visit our website to read the full policy briefing, citations and policy priorities.
🔗 linktr.ee/LongCovidKids
📣 Tag anyone who should read it, or let us know who you’ll be sharing it with.
#LongCovidKids #LongCovidAwareness #Policy
#LongCovidKids #LongCovidAwareness #LongCovid
www.longcovidkids.org/contact-us
💙 Children must not be overlooked
🩵 Children must be protected
💙 Children must be listened to
March is #LongCovidAwarenessMonth.Children cannot afford another year of inaction.
If your organisation supports children with #LongCovid, #ME or #OverlappingIllnesses, we would love to connect.
#LongCovidKids was the first, and remains the longest-serving, #charity dedicated to raising awareness of #LongCovid in #children & #youngpeople.
Today we’re proud to work alongside a growing international network of organisations, clinicians, #researchers & advocates supporting children worldwide.
With young people who spoke up when others were still questioning whether #LongCovid existed.
Their voices changed the conversation, and we continue to work to ensure children are recognised in #research, #healthcare, #education and #policy.
Six years on, children living with #LongCovid are still fighting to be recognised.
Today we stand with #children and #youngpeople around the world living with Long Covid.
This movement began with #families.
With children.
Our campaign “Invisible to Policy, Visible in Children’s Lives” is ensuring that the experiences of children living with Long Covid are heard in;
#Westminster
#Holyrood
#Senedd
#Stormont.
There is still time to take part.
Help turn the map red.
#LightUpForLongCovid
#LongCovidAwareness
🩵 This is what collective action looks like.
Over 1,000 messages sent to elected representatives across the UK.
This is the power of coming together.
🔗 www.longcovidkids.org/post/invisib...
#LongCovidKids #LongCovidAwareness #InvisibleToPolicy #ChildHealth #Advocacy
Already sent an email to your elected representative?
Could you share with friends and family?
📍https://www.longcovidkids.org/post/invisible-to-policy-visible-in-children-s-lives-long-covid-kids-march-2026
#LongCovidAwareness #LongCovid #LongCovidKids
#ChildrensRights #WriteALetter
Help heat up this map!
Thanks to your support, nearly 1200 emails sent so far.
Stand with children with Long Covid?
📍https://www.longcovidkids.org/post/invisible-to-policy-visible-in-children-s-lives-long-covid-kids-march-2026
#LongCovidAwareness #LongCovid
#ChildrensRights #LightUpForLongcovid
#Blog
Add your voice to our call for action; support children with Long Covid and overlapping illnesses.
www.longcovidkids.org/post/invisib...
#LongCovidKids #LongCovidAwareness #LongCovid #ChildrensRights
Thank you. We have been involved in ongoing shaping of this document and have shared the live link with members for their direct feedback.
An illustration from Long COVID Transformed My Mommy shows two kids in bed with their mother. She wraps them both up in a hug.
An illustration from Long COVID Transformed My Sister Into a Turtle shows a turtle wearing sunglasses and headphones. The text reads, "My mommy is like a turtle that doesn't want to come out of her shell. She avoids loud noises and bright lights. She prefers cozy, quiet places."
We haven’t seen many narratives about — or for — kids whose family members have #LongCOVID. Author and educator Sara Robitaille seeks to change that with her two new children’s books, Long COVID Transformed My Mommy and Long COVID Transformed My Sister into a Turtle. bit.ly/4csWXfE
Three brand-new resources, created by #YoungPeople and for young people, have just been launched, and we believe they have the power to make a real difference to the lives of #children and #families living with #LongCovid.
www.longcovidkids.org/post/covid-m...
#LongCovidAwareness #Resources
Help us keep the pressure on.
bsky.app/profile/long...
#LongCovidAwareness #LongCovidKids #LongCovid #Donate
It just takes a minute to send our template letter to your elected representative today in advance of Long Covid Awareness Day on March 15th.
#LongCovidAwareness #LongCovid #LongCovidKids
bsky.app/profile/long...
A grey blurred background with a blue anatomical heart in the top left corner. Long Covid Kids white logo bottom left. A white test box in the middle says - Less visible than a racing heart. Less visible than inflamed vessels. Children are living with it. Long Covid. #EveryHeartbeatCounts
Less visible than a racing heart.
Less visible than inflamed vessels.
Children are living with it.
Long Covid.
#EveryHeartbeatCounts
#LongCovidAwareness #LongCovidKids