open.substack.com/pub/livingwi...
08.02.2026 16:44
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This is really Bad JuJu ☠️😳
bmcinfectdis.biomedcentral.com/articles/10....
Mesmerising pics- wow!
You were brilliant on the radio this morning btw! 🌌
A comprehensive review published by Yale provides the most extensive analysis to date of the neurological effects of COVID
The conclusion is unequivocal:
Long COVID is a chronic neuroimmune disorder that affects the brain, spinal cord, and peripheral nerves
onlinelibrary.wiley.com/doi/10.1111/...
Our friend Ondine was a powerful advocate for all with #LongCovid.
Working with her in various arenas was a privilege, including with the NHS Long Covid Taskforce, Covid Inquiry, with Parliamentarians & policy makers. She spoke truth to power & championed the hidden. We miss you.
So we’re really doing the “summer flu” thing again? C’mon, people.
#COVID
We want transparency on COVID @eddavey.libdems.org.uk @carladenyer.bsky.social
Post infection risks are not mild and last years!
Everyone is at risk including children from long covid
Covid is airborne! Known from day 1! See Covid inquiry
Clinically vulnerable continue to die due to lack of 🧵
Experiences of POTs patients in Scotland 😔
Covid is a social justice issue.
Respirators cost money.
HEPA filters cost money.
Tests cost money.
Vaccines cost money.
Paid time off is rare.
Affordable child care is non existent
Covid disproportionately impacts those who are already the most marginalized
Mask up & protect your community
COVID-19 is still a public health issue five years after the start of the pandemic. Changing vaccination guidelines, ever-evolving variants and strains, threats to health insurance and more mean COVID is still very much a concern.
www.usatoday.com/story/news/h...
Have you responded to the Scottish Government's public consultation yet?
Don't panic if you haven't - There's still time, but read this first to find out why it's so critical...
www.linkedin.com/pulse/time...
😡Tired of people telling you where to stick it?
✊Well now you can raise awareness of Long Covid, and Stick it wherever you want!
100% of profits from every sticker are donated straight to supporting #LongCovidScotland
longcovidscotland.shop/prod...
A new large study suggests gene FOXP4, which helps control our lungs, is involved in long covid . It’s a different gene than the one linked to severe Covid, showing that Long Covid is its own condition, not just a “slow recovery”.
www.nature.com/articles/s41... #LongCovid #LongCovidScotland
Did you know you can raise money for us without putting your hand in your pocket? :)
Checkout easyfundraising
💻Set it up in minutes
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www.easyfundraising.org.uk/...
🗣️ Living with #LongCovid in Scotland? The govt wants your views on long-term conditions — but the consultation is hard to navigate.
We’ve made a simple guide to help you speak up and be heard. Your voice matters.
📥 Download here:
drive.google.com/file/d/17v...
🗣️ Have you responded yet to the Scottish Government's Public consultation on long term conditions? Our guide will help you speak up and be heard. Your voice matters.
📥 Download here:
drive.google.com/file/d/17v...
Time To Tell ScotGov The Truth About These Five Things...
#LongCovid #LongCovidScotland #PublicConsultation
www.longcovid.scot/blog/the...
Read the joint statement here: meassociation.org.uk/nsts
POTS is way more than “just” a high heart rate or fainting (in fact you don’t even need to faint to have POTS).
Your autonomic nervous system controls all the unconscious processes in your body. When it malfunctions, everything goes haywire.
Signed… a gal who’s POTS is monster flaring today
People keep saying Covid is here to stay and we’ve “learned to live with it”.
No we haven’t. We’ve capitulated to it.
We’ve accepted repeat infections as inevitable.
Learning to live with it would involve clean air, masks in healthcare, better tests & treatments and free respirators
