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Kat Jones

@ciaracat

Fan of science fiction, musicals, and cats. She/her. Data privacy professional.

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28.07.2023
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Latest posts by Kat Jones @ciaracat

And I am lucky! I am getting care. And had the means to travel across the country for care, sick as the travel made me.

11.03.2026 00:03 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

If there are any other Long Covid clinics in Houston, I am unaware of them. Fourth largest metropolitan area in the country. Millions of people, even by lowest estimates of LC in population, there have to be hundreds of thousands of us here. 7/7. #MECFS #PACS #LongCOVID

10.03.2026 21:38 πŸ‘ 3 πŸ” 0 πŸ’¬ 2 πŸ“Œ 0

In Jan 2026, BCM rescheduled me from April 2026 to FEB 2027. Reason given "Dr [] is out, and we have very few Providers for this Clinic, I have you on our wait list." Their web site still exists, so hopefully their clinic is still running. 6/

10.03.2026 21:36 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

At the same time I booked UTHH LCC, I booked at Baylor College of Medicine's Post Covid Care Clinic, just in case, since I knew clinics were closing everywhere.. 9 month wait. Appointment in April 2026. Kept it on the books just in case UT falls through. 5/

10.03.2026 21:34 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

A few weeks after my first appointment at UT Health Houston LCC, that long covid clinic closed down, doctors returned to their original department, losing all their experienced long covid support staff. My doc continues to see existing patients - I am lucky! 4/

10.03.2026 21:32 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

...to find out what new treatments were available. I followed up at 1 year and was told "The Post-COVID Care Clinic has transitioned out of its area and is no longer able to offer follow-up visits." Referred to UT Health Houston long covid clinic. Only 2 month wait due to a cancellation! 3/

10.03.2026 21:31 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

...Got in to the Mayo Clinic in Rochester after several months' wait in 2024. Consultation clinic only - they worked me up, provided several remote education sessions after I was home, provided a dense 16 page report of things to try for my PCP. Said I could follow up with them annually... 2/

10.03.2026 21:27 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

A researcher found that only 30 out of 400 clinics offering #LongCOVID care in the US responded to multiple attempts to contact them to ascertain whether they still provide Long COVID care. Reported in @thesicktimes.org at clinics.thesicktimes.org

My experience has been... 1/

10.03.2026 21:25 πŸ‘ 25 πŸ” 8 πŸ’¬ 1 πŸ“Œ 1
By the Numbers 10 - Arley's House

"What are the experiences of people of color in the publishing industry?"

arleysorg.com/by-the-numbe...

06.03.2026 23:14 πŸ‘ 140 πŸ” 104 πŸ’¬ 4 πŸ“Œ 18
Trout Fishing In America House Concert - Driving Through The Driving Rain
Trout Fishing In America House Concert - Driving Through The Driving Rain YouTube video by spongebobgl1800

Trout Fishing in America, Drivin' Rain: youtu.be/89WnKKDSkj4?...

06.03.2026 18:31 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Summer Glau's was posted to Nathan Fillion's Instagram on Monday. And I'm personally hoping they'll acknowledge that the movie doesn't exist!

04.03.2026 22:31 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

never, ever, ever, ever accept "how will you pay for it?" as an argument against social programs.

04.03.2026 20:50 πŸ‘ 7214 πŸ” 2618 πŸ’¬ 20 πŸ“Œ 36

Hyperion helped break me of my young-person insistence that I had to finish every book I started, no matter how much I hated it.

27.02.2026 20:30 πŸ‘ 7 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I am so sorry for your loss. I do not know, but am following so I can add the charity/ies to my list.

24.02.2026 21:44 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Like I said, all I was doing was answering your question what was meant by 'smaller generation.' Not defending crappy people in my generation, of which there are many. It could also be argued that Millennials NOT voting bears some responsibility for the outcome.

20.02.2026 22:28 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Births underlying each generation

Not agreeing with tiny&boxed in, not agreeing with Trump support. We're a smaller generation because fewer of us were born than in surrounding generations: www.pewresearch.org/short-reads/...

20.02.2026 21:59 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Always nice when someone extends their sincere.

17.02.2026 18:50 πŸ‘ 3 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
Preview
No One, Including Our Furry Friends, Will Be Safer in Ring's Amazon Ring’s Super Bowl ad offered a vision of our streets that should leave every person unsettled about the company’s goals for disintegrating our privacy in public.In the ad, disguised as a

Don’t be fooled by Ring’s latest attempt to make mass surveillance and real-time identification the new norm in our neighborhoods. www.eff.org/deeplinks/2...

16.02.2026 23:31 πŸ‘ 164 πŸ” 70 πŸ’¬ 6 πŸ“Œ 5
Solid purple orchid flowers of the type you find commonly in grocery stores in the US

Solid purple orchid flowers of the type you find commonly in grocery stores in the US

Solid purple orchid flowers of the type you find commonly in grocery stores in the US, backlit by window with grass and neighbors brick wall visible

Solid purple orchid flowers of the type you find commonly in grocery stores in the US, backlit by window with grass and neighbors brick wall visible

Two of my orchids survived my winter neglect, but aren’t showing any interest yet in blooming this year. So I treated myself to a new friend. #bloomscrolling

13.02.2026 21:09 πŸ‘ 4 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Tori Amos - Silent All These Years (Official Music Video)
Tori Amos - Silent All These Years (Official Music Video) YouTube video by UPROXX Indie Mixtape

#MusicChallenge
#WrongDisneySong

Day 10- The Little Mermaid

Tori Amos - Silent All These Years

youtu.be/HSYr0etDzRM?...

09.02.2026 23:14 πŸ‘ 12 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

If I can put it into words I will come back and share! <3

09.02.2026 22:09 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
Preview
We Will Rise Again by Malka Older, Karen Lord, Annalee Newitz From genre luminaries, esteemed organizers, and exciting new voices in fiction, an anthology of s...

I'm 29% of the way through this new anthology (you may have heard of it? :-)) and am really enjoying it. It isn't quite what I was expecting, but I think it's what I needed right now. Thank you very much for it! app.thestorygraph.com/books/f1fac4...

09.02.2026 21:34 πŸ‘ 3 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
Post image

I read the β€œSAVE Act” (the GOP’s new voter suppression bill) so you don’t have to. This is my one page summary. Jesus it’s bad. 1/

06.02.2026 19:54 πŸ‘ 3315 πŸ” 2159 πŸ’¬ 147 πŸ“Œ 173

Would this be disenfranchising disabled voters? Millions of Americans are disabled with long covid, for one example. If the purge occurs near the deadline... I am physically unable to go be in a long line without further damage to my health, potentially long-term and permanent.

06.02.2026 23:30 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

a woman reached out to donate 500,000 delta skymiles to get people home to MN as they are released from custody in TX.

we're getting flights booked today. it should be enough to get at least 15 people home.

delta should be doing for free since they take ICE money.

01.02.2026 17:49 πŸ‘ 6798 πŸ” 1693 πŸ’¬ 53 πŸ“Œ 47
ENGAGED - Civic Engagement - Trinity College Dublin

@skywatch.blue‬ you've marked this account as 'Suspected Inauthentic Behavior (Account)' - this appears to be the social media page of a real university and gov't initiative in Ireland: www.tcd.ie/civicengagem...

29.01.2026 20:12 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
Preview
ICE’s surveillance technology goes beyond facial recognition Federal immigration agencies are using a vast surveillance network in Minnesota – from facial recognition technology to β€˜stingrays’ that collect data by impersonating cell phone towers.

β€œWe’ve built this horrifying Orwellian surveillance industry over the last 10 to 20 years, and now ICE is buying access to all of it,” EFF’s Cooper Quintin told Minnesota’s Sahan Journal. sahanjournal.com/immigration...

29.01.2026 18:59 πŸ‘ 193 πŸ” 103 πŸ’¬ 1 πŸ“Œ 7

Lois McMaster Bujold's "Testimony of Mute Things"

27.01.2026 20:25 πŸ‘ 4 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
WSFS Deadline 
Purchase a WSFS membership by January 31, 2026 if you wish to nominate for the 2026 Hugo Awards

WSFS Deadline Purchase a WSFS membership by January 31, 2026 if you wish to nominate for the 2026 Hugo Awards

If you intend to nominate for the 2026 Hugo Awards, now is the time to sign up for a WSFS membership. Only those who are WSFS members prior to the end of day on January 31, 2026 have the right to nominate for the Hugos.

LAcon.org/Register

23.01.2026 01:09 πŸ‘ 20 πŸ” 18 πŸ’¬ 0 πŸ“Œ 1

Do we know where in Texas?

23.01.2026 19:39 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0