Liz Nevra A.'s Avatar

Liz Nevra A.

@nlizaki

#MEActionNetwork health activist. Patient, project manager, translator & polyglot. ✊🏾 #Stoic #WoC @NLizaki & @SaveLizNevra on Twitter. #MyalgicEncephalomyelitis since 6. 28 now. #PMDD #hEDS #POTS #MCAS #LongCovid

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14.11.2024
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Latest posts by Liz Nevra A. @nlizaki

Screenshot from quella_the_dizzy_octopus on Instagram. Screenshot reads "Hi all! Nevra is currently in hospital. She is very ill right now so it is excellent she is getting medical attention. However, her GFM donations have stalled and she needs funds to pay for her hospital stay. A clean private room that protects her from infection and MCAS triggers is about 260 GBP/day. Nevra also does not have funds to pay for rent. It is essential we fundraise for this so she can recover in a safe place after being discharged. Please screenshot and share with her GFM links on as many platforms as possible. This is an emergency situation."

Screenshot from quella_the_dizzy_octopus on Instagram. Screenshot reads "Hi all! Nevra is currently in hospital. She is very ill right now so it is excellent she is getting medical attention. However, her GFM donations have stalled and she needs funds to pay for her hospital stay. A clean private room that protects her from infection and MCAS triggers is about 260 GBP/day. Nevra also does not have funds to pay for rent. It is essential we fundraise for this so she can recover in a safe place after being discharged. Please screenshot and share with her GFM links on as many platforms as possible. This is an emergency situation."

🚨 Nevra's situation is urgent. She can't afford both rent and hospital bills. 🚨

Please donate if you can, and share this post to spread the word.
PayPal: paypal.me/SaveLizNevra
GoFundMe: gofundme.com/f/save-nevra

#pwME #SevereME #MyalgicEncephalomyelitis #MillionsMissing #mecfs

09.03.2026 01:11 πŸ‘ 3 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

#pwME #SevereME #MyalgicEncephalomyelitis #MillionsMissing #mecfs

06.03.2026 21:28 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Screenshot of Nevra's instagram story that reads "Nevra is incredibly ill due to a severe MCAS reaction and is unable to use her phone. Please continue to donate, boost posts, and support her in whatever way you can. Thank you. - Helen, Team Nevra"

Screenshot of Nevra's instagram story that reads "Nevra is incredibly ill due to a severe MCAS reaction and is unable to use her phone. Please continue to donate, boost posts, and support her in whatever way you can. Thank you. - Helen, Team Nevra"

Screenshot of Nevra's instagram story that reads "Vomited 8 times, 103F"

Screenshot of Nevra's instagram story that reads "Vomited 8 times, 103F"

πŸ’™ Please continue to donate and boostπŸ’™

Nevra is incredibly ill due to a severe MCAS reaction. She has a fever of 103F and is vomiting continuously. Please continue to donate, boost posts, and support in whatever way you can.

PayPal: paypal.me/SaveLizNevra
GoFundMe: gofundme.com/f/save-nevra

06.03.2026 21:28 πŸ‘ 1 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
Screenshot of a post from Nevra's Instagram. It's a photo of Nevra in a hospital bed. She's wearing a mask and a hospital gown and she has an IV in her arm.

Screenshot of a post from Nevra's Instagram. It's a photo of Nevra in a hospital bed. She's wearing a mask and a hospital gown and she has an IV in her arm.

Please don't stop boosting my recent posts
#SevereME #pwME #food #pain #water

05.03.2026 07:11 πŸ‘ 4 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Screenshot from Nevra's instagram reads 
"🚨 £400 match funding alert!🚨 
All donations this month will be DOUBLED until Β£400 is reached. Β£10 becomes Β£20. Β£25 becomes Β£50. Let's unlock the full Β£800 together!"

Screenshot from Nevra's instagram reads "🚨 £400 match funding alert!🚨 All donations this month will be DOUBLED until £400 is reached. £10 becomes £20. £25 becomes £50. Let's unlock the full £800 together!"

🚨 £400 match funding alert!🚨
All donations this month will be DOUBLED until Β£400 is reached. Β£10 becomes Β£20. Β£25 becomes Β£50. Let's unlock the full Β£800 together!

Donate/share: paypal.me/SaveLizNevra & gofundme.com/f/save-nevra

#VerySevereME #pain #food #water #pwME #MillionsMissing #MECFS

04.03.2026 02:21 πŸ‘ 4 πŸ” 5 πŸ’¬ 0 πŸ“Œ 0

Nevra only has Β£1395 left which is not enough to cover rent & the hospital stay. We need to raise Β£1900 for a specialist appointment & Β£1500 for the hospital stay. If you’re able to donate, share, or boost this video, it truly makes a difference.

#VerySevereME #pain #food #water #pwME

03.03.2026 01:21 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Video thumbnail

‼️Nevra Hospital Update. Urgent Funds Needed ‼️

Nevra has very Severe ME and can no longer eat or drink. She has an infection that has travelled upwards. She needs 3 IV antibiotics for 5 days, keeping her in hospital longer. Scans revealed a fecal obstruction & a compression in the celiac artery.

03.03.2026 01:21 πŸ‘ 2 πŸ” 3 πŸ’¬ 1 πŸ“Œ 0
Graphic is a screenshot of an Instagram post that reads "Can't eat. Can't drink. Very severe ME. Keeps leading to infection. If we don't raise funs. I'm done for. It's goodbye from this Pakistani pwME. I have no words. All we know is that I have a compression. We need fun.ds ASAP in the next one day."

Graphic is a screenshot of an Instagram post that reads "Can't eat. Can't drink. Very severe ME. Keeps leading to infection. If we don't raise funs. I'm done for. It's goodbye from this Pakistani pwME. I have no words. All we know is that I have a compression. We need fun.ds ASAP in the next one day."

🚨 Nevra's situation is urgent. She can't afford both rent and hospital bills. 🚨

Please donate if you can, and share this post to spread the word.
PayPal: paypal.me/SaveLizNevra
GoFundMe: gofundme.com/f/save-nevra

#pwME #SevereME #MyalgicEncephalomyelitis #MillionsMissing #mecfs

02.03.2026 00:42 πŸ‘ 3 πŸ” 5 πŸ’¬ 0 πŸ“Œ 1

I'm begging for you (from the Global south/global majority) and all the ME orgs to treat this with the same urgency as you do for your white and western bipoc counterparts.

Thank you.
#SevereME #pwme #pain #food

28.02.2026 09:27 πŸ‘ 6 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I am getting care. I need it. I can no longer eat or drink and they're trying to find out why.

Please please, I have been surviving ME since I was 6.

Thank you.
#SevereME #pwme #pain #food

28.02.2026 09:27 πŸ‘ 7 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
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3rd dose at 2 pm. (Day 1) 4 more days to go.

I, as a very Severe ME patient, can not do this without your help.
Please alert everyone, send this to your friends and share, and if possible, please consider d0nating. gofundme.com/f/save-nevra

#SevereME #pwme #pain #food

28.02.2026 09:26 πŸ‘ 9 πŸ” 8 πŸ’¬ 1 πŸ“Œ 2

The situation is now very urgent.

28.02.2026 06:58 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

If I don't raise enough funds I'll have to get myself discharged despite needing antibiotics.
1122.89 gbp outstanding bill.

[28/02, 11:17] Nevra Liz Ahmed: After I pay this or stay more days
[28/02, 11:17] Nevra Liz Ahmed: I won't have money for rent #pwME

28.02.2026 06:57 πŸ‘ 5 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

Nevra has been diagnosed with an infection and needs antibiotics 3x a day for 5 days. She also has a celiac artery compression, fecal obstruction, and inflammation in the pelvic region.

#pwME #ChronicPain #EDS #SevereME #MyalgicEncephalomyelitis #MillionsMissing #mecfs

28.02.2026 03:11 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Graphic reads: I have major news. 1) slight compression in celiac artery. 2) infection travelled upwards, need antibiotics iv. 3) major fecal obstruction. 4) we will get me antibiotics and fundraise for a vascular compression syndromes expert. 5) inflammation spotted in the pelvic region in the cta ctv. Need antibiotics 3x a day for 5 days. Need funds for 5 more days in the hospital.

Graphic reads: I have major news. 1) slight compression in celiac artery. 2) infection travelled upwards, need antibiotics iv. 3) major fecal obstruction. 4) we will get me antibiotics and fundraise for a vascular compression syndromes expert. 5) inflammation spotted in the pelvic region in the cta ctv. Need antibiotics 3x a day for 5 days. Need funds for 5 more days in the hospital.

Nevra needs funds for 5 more days in the hospital πŸ₯

Please donate if you can, and share this post to spread the word!
PayPal: paypal.me/SaveLizNevra
GoFundMe: gofundme.com/f/save-nevra

28.02.2026 03:11 πŸ‘ 2 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0

We were asked to share this fundraiser for a community member in need.

Nevra @nlizaki.bsky.social has severe ME and is in hospital in Pakistan. Nevra has been active in our online community for years.

Please see video and links below.

#SevereME #pwME #MyalgicEncephalomyelitis #disability

26.02.2026 15:13 πŸ‘ 9 πŸ” 7 πŸ’¬ 1 πŸ“Œ 1

Nevra needs to be able to pay for both the hospital stay & ongoing rent but donations have slowed & she can’t afford both. Please donate and boost these posts. Thank you for your ongoing support ❀️

#SevereME #MyalgicEncephalomyelitis #pwME #MillionsMissing #mecfs

26.02.2026 06:25 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Video thumbnail

Nevra is back in hospital in Pakistan. Her health continues to deteriorate & she currently has severe amounts of pain, a high fever, glucose in her urine & is struggling to eat.

PayPal: paypal.me/SaveLizNevra
GoFundMe: gofundme.com/f/save-nevra

26.02.2026 06:25 πŸ‘ 5 πŸ” 6 πŸ’¬ 1 πŸ“Œ 1

Does the Tudca help even a little?

25.02.2026 14:28 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Preview
Pay Adrian Bamforth using PayPal.Me Go to paypal.me/SaveLizNevra and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.

PayPal: paypal.me/SaveLizNevra
GoFundMe: gofundme.com/f/save-nevra
#SaveLizNevra #SevereME #MECFS #MillionsMissing #pwME

25.02.2026 08:28 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Screenshot from Nevra's instagram account that reads "Don't have money for hospital and rent both but need hospital urgently"

Screenshot from Nevra's instagram account that reads "Don't have money for hospital and rent both but need hospital urgently"

Nevra is back in the hospital again. She is severely ill. Donations have stalled and she cannot afford both rent and a hospital stay. If you can, please donate to pay for critical medical care and a safe place for Nevra to recover after discharge.

25.02.2026 08:28 πŸ‘ 2 πŸ” 2 πŸ’¬ 1 πŸ“Œ 0
Screenshot from Nevra's instagram page that reads "Losing the ability to eat and process emotions"

Screenshot from Nevra's instagram page that reads "Losing the ability to eat and process emotions"

Nevra's situation is critical. She's living with very severe ME and is struggling to eat and drink. Please help support funds for housing, food, and healthcare.

PayPal: paypal.me/SaveLizNevra
GoFundMe: gofundme.com/f/save-nevra

#SaveLizNevra #SevereME #MECFS #MillionsMissing #pwME

23.02.2026 04:00 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

Nevra is extremely low on funds and may be forced to return to a DV setting that WILL worsen her very severe ME/CFS significantly. She is suffering significantly due to running out of antibiotics and estrogen cream to prevent UTI.

18.02.2026 02:22 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
Screenshot of an Instagram story from @ quella_the_dizzy_octopus that reads "We are beyond an emergency situation regarding Nevra's well being. Nevra is extremely low on funds and may be forced to return to a DV setting that WILL worsen here very severe ME/CFS significantly. This is extremely dangerous to her wellbeing and something that is causing her significant  distress. On top of this issue, she is suffering significantly due to running out of antibiotics and estrogen cream to prevent UTI. She currently has a UTI with fever. And it is causing her other conditions to flare dangerously. Please donate and share!"

Screenshot of an Instagram story from @ quella_the_dizzy_octopus that reads "We are beyond an emergency situation regarding Nevra's well being. Nevra is extremely low on funds and may be forced to return to a DV setting that WILL worsen here very severe ME/CFS significantly. This is extremely dangerous to her wellbeing and something that is causing her significant distress. On top of this issue, she is suffering significantly due to running out of antibiotics and estrogen cream to prevent UTI. She currently has a UTI with fever. And it is causing her other conditions to flare dangerously. Please donate and share!"

πŸš¨β€ΌοΈ We are beyond an emergency situation regarding Nevra's well beingβ€ΌοΈπŸš¨

Nevra currently has a UTI with fever which is causing her other conditions to flare dangerously. Please donate and share!

PayPal: paypal.me/SaveLizNevra
GoFundMe: gofundme.com/f/save-nevra

#pwME #MECFS #SaveLizNevra

18.02.2026 02:22 πŸ‘ 2 πŸ” 3 πŸ’¬ 2 πŸ“Œ 1

❀️🩷🀍 Save Nevra🀍🩷❀️
This Valentine's Day, please consider donating to help keep Nevra alive. Let's show Nevra how much this community cares for her! Please share, like, and comment on this post too.

PayPal: paypal.me/SaveLizNevra
GoFundMe: gofundme.com/f/save-nevra

#pwME #MECFS #SaveLizNevra

14.02.2026 22:38 πŸ‘ 4 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0
Preview
Pay Adrian Bamforth using PayPal.Me Go to paypal.me/SaveLizNevra and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.

🩷🀍 Save Nevra🀍🩷
Please share. Donations urgently needed.

πŸ’— Donate:
PayPal: paypal.me/SaveLizNevra
GoFundMe: gofundme.com/f/save-nevra

11.02.2026 19:56 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Preview
Pay Adrian Bamforth using PayPal.Me Go to paypal.me/SaveLizNevra and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.

Please donate or share if you can πŸ’™
PayPal: paypal.me/SaveLizNevra
GoFundMe: gofundme.com/f/save-nevra
#pwME #MECFS #SaveLizNevra

07.02.2026 21:28 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Graphic reads "Bipoc is a North American term. Not a one size fits all term. It does not represent us, the actual people living in the Global South. We deserve our own terms as we actually speak the languages of our lands and ancestors. We recognise the struggle & contributions of our westernised BIPIC brothers and sisters. But we refuse our own identity erase and to be viewed through a North American term and lens. We refuse."

Graphic reads "Bipoc is a North American term. Not a one size fits all term. It does not represent us, the actual people living in the Global South. We deserve our own terms as we actually speak the languages of our lands and ancestors. We recognise the struggle & contributions of our westernised BIPIC brothers and sisters. But we refuse our own identity erase and to be viewed through a North American term and lens. We refuse."

We refuse to be seen through your North American lens.
We respect you.
But Identity erasure is not something that is on ze cards.
As we clearly saw in Iran.

You. Do. Not. Represent. Us.

#حرية

07.02.2026 21:28 πŸ‘ 1 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
Preview
Pay Adrian Bamforth using PayPal.Me Go to paypal.me/SaveLizNevra and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.

3/3
Hospital care, reduced travel, and a safe place to recover are critical right now. We’re fundraising to cover medical care & basic living costs.
Please donate or share if you can πŸ’™
PayPal: paypal.me/SaveLizNevra
GoFundMe: gofundme.com/f/save-nevra

#pwME #MECFS #SaveLizNevra

02.02.2026 00:22 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

2/3
She now needs regular iron & vitamin infusions, but has very poor vein access, making treatment extremely difficult. Doctors are also urgently investigating a possible vascular compression syndrome, with specialist follow-ups abroad still needed.

02.02.2026 00:22 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0