1. I come across a headline: 'attitude is everything for breast cancer survivor.' I look for the headline 'attitude is everything for ebola patient ' or 'attitude is everything for guy with diabetes' or 'attitude is everything for those with congenital syphilis' or 'attitude is everything with lead poisoning ' or 'attitude is everything when a dog bites your hand' or 'attitude is everything for gunshot victim' or 'attitude is eveything for a tween with a hangover' or 'attitude is everything for a coyote struck by a Ford F150' or 'attitude is everything for gravity' or 'attitude is everything for the water cycle' or 'attitude is everything for survivor of varicose veins' or 'attitude is everything for dying coral reef'
Reading Anne Boyer's 'The Undying' and thinking about cancer, me/CFS, invisible illness, and the magical thinking that attends.
#cancerwriting #mecfs #millionsmissing #invisibleillness #theundying #disabilitywriting #disabledwriter
26.11.2025 13:07
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#7: first aid for obsessives (an open call for submissions)
I have what I've been told is an obsessive mind, and it's something I've long embraced as a navigation tool for my creative explorations.
Open call for submissions: 50-1200 words to be crafted into a zine in the shape of a first aid kit. We need it.
For a creative dare every 3 months or so: linktr.ee/mishgreen
#skearzines #zines #firstaid #communitycare #cripwriters #queerwriters #globalmajority #transrightsnow #disabilityjustice
04.06.2025 16:15
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Two pages of stickers which read: 'a trans person used this toilet and no one was hurt'. Top page has a swirly background design in magenta and orange, and bottom page has a swirly background in green and royal blue.
I made these stickers - trying to find direction for my rage - and the print shop sent me an extra sheet. And look: there's one missing. I'm hoping it's up in their bathroom at work.
#transrightsarehumanrights #therighttopee #transliberation #stickers #supremecourtuk
30.04.2025 19:06
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Freakonomics has a lot to answer for.
30.04.2025 12:59
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Disabled women know more than most how blocking access to toilets isnβt a minor inconvenience - itβs a form of segregation from everyday life. It is turning down drinks with friends as you worry you canβt fulfil a basic human need if you go out. And knowing society has made the choice not to care.
27.04.2025 07:46
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More tips for anyone scared shitless by the UK government's recent moves on disability support and PIP - practical thread v2
#chronicillness #disabilityjustice #pip #disabilitybenefits #mentalillness #invisibleillness #longcovid #mecfs #millionsmissing #rheumatoidarthritis #fibromyalgia #criplife
27.04.2025 13:06
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π§΅ p9 and p.s.
if anyone comes at you implying that this is advice on how to 'work the system' - remind them that the rate of disability fraud, by the government's most recent measuring in Feb 2025, is 0.2%.
27.04.2025 13:03
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π§΅ p8
Please see my other pinned post on PIP tips.
Pace yourself. Do it in stages. Get help to do it.
And do something life affirming along the way.
You matter, we matter, our lives are important.
We are so much bigger than their bureaucracy.
27.04.2025 13:03
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π§΅ p7 The timeframe is v important to mention if your condition causes cumulative consequences, like increased dizziness, pain spikes, post-exertional malaise etc, as it helps to illustrate the additional impact and the recovery you must do afterwards.
CRUCIAL for 'invisible' disabilities.
27.04.2025 13:03
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π§΅ p6 So for example:
"I can't prepare a meal every day on the cooker because [the debilitating exhaustion and brain fog] caused by my [ME/CFS] makes me [fumble the knife and cut myself, and burn food on the cooker.] I am able to safely cook a meal [once per week]."
27.04.2025 13:03
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π§΅ p5 What. Why. How. When.
They are less likely to recognise your disability if you don't explain each of these four elements.
27.04.2025 13:03
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π§΅p4 You can use this template for each question:
"I can't do/need help to do (activity) due to the [specific symptoms/impairment] caused by my [condition, diagnosis, injury etc] which makes me [consequence]. This happens [timeframe]
27.04.2025 13:03
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π§΅p3 The questions asked on the PIP form are not totally clear, and your answers need to give more info than the questions are asking for.
Your answers need to explain what, why, how and when. For every question.
27.04.2025 13:03
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π§΅p2 Text across six purple paint-sploshed slides reads as follows:
PIP* tip #2: a simple format for answering difficult questions
*Personal Independence Payment - a UK disability benefit that's not tied to work or income
27.04.2025 13:03
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Trans and Disability Justice: How Are Our Struggles Linked?
Great piece on #Trans and #Disability justice from @disrightsuk.bsky.social "When we start to question who deserves access to bodily autonomy and who doesnβt, it becomes a deathly game. A game Disabled people never win."
www.disabilityrightsuk.org/news/trans-a...
22.04.2025 16:27
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that's such a good tip. We've got such an increased burden when it comes to documenting an illness that's not only invisible (if you don't know what to look for) but also still not fully even believed by a shocking number of medics.
22.04.2025 12:42
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Call Out! 2025
Skear Zines is a collective of three artist writers who are interested in collaboration, making a difference, curiosity and love. All of our zines are limited edition and handmade from post consumeβ¦
SKEAR ZINES CALL OUT!
We wanna make zine first aid kits that explore care for planet, community, self. One will be 'traditional' folded paper, one will be in a matchbox, and one a postcard.
More detail at link, closing date is 13th June.
#zines #skearzines #firstaid #newwriting
shorturl.at/NSKhQ
22.04.2025 11:24
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The hilarious audacity of Hadley Freeman refering to 'the trans witch-hunt' as if she's not one of the witch hunters.
21.04.2025 22:06
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Just keep all your letters, print the medical records bit from Patient Access if you use it (it's a summary of your NHS record basically) and don't try to do too much of it all at once. It's designed to crush us, but we know how to pace.
21.04.2025 22:02
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This gem from Katelyn Burns has honestly set me up for the week.
Every time an anti-trans bigot calls herself a feminist, Simone de Beauvoir turns in her grave.
21.04.2025 22:00
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You are so welcome - I'm so glad it's useful. π
21.04.2025 18:35
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pt 4 π§΅ It's clear to me that privileged white women have repurposed the old 'white women as damsels in distress' batsignal that was leveraged so violently against Black men in the past (and present) and it will be Black trans women who bear the worst harm from this.
20.04.2025 13:17
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pt3 π§΅ *I made this sign for the 1st of many demos to come following the UK Supreme Court ruling that women are defined by the appearance of their external genitalia at birth; so, vagina = woman, which puts this ideology in line with misogynists - an irony that seems lost on the gender criticals.
20.04.2025 13:17
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p2 π§΅...part of the billions of intricately expressive forms of life that that make this place the gorgeous ecology that it is. Don't ever let them convince you otherwise.
Our place is everywhere.
20.04.2025 13:17
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a cardboard sign has handwritten all caps letters in yellow orange and green, reading 'NATURE IS TRANS'. Hazel twigs are sewn to the sides of the sign, their branches reaching up and out. The sign leans against a cream cupboard door.
My trans siblings, we are and always have been part of nature, part of the vast biodiversity of our home planet... pt 1 π§΅
#natureistrans #transrightsarehumanrights #lgbwiththet #lgbtqia #standupfightback #supremecourtuk #uksupremecourt #lgbtqia
20.04.2025 13:17
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Yes, this was coined by Sorcha who called these collected words 'The Cripothecary' - and that gives me a lot of comfort, esp when spending more/most time in the house. Eid Mubarak to you and your access intimates for tomo, and a collective goodbye to threadbare 'productivity' culture.
30.03.2025 14:34
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@dadafest.bsky.social
26.03.2025 19:07
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Six people of different genders and skin tones surround a multicoloured illustrative mural on a wall. Two of them wear hats, one wears a human, one wears a head bandana and two wea glasses. They're all smiling. Black text reads: DDIF 40 / Online Event / Street dreams: Urban Struggle Disability Pride - 27th March - 12pm - 1.30pm / Online Zoom
THURS 12 noon GMT online: Disabled artists from Jav, Bali, Cardiff and Liverpool talk about mark making in the places that disempower us & the value of mural and street art as hyper-local radical activism. FINAL CALL 4 TIX shorturl.at/c3twl #disabilityarts #streetart #cripcreative #dadafest
26.03.2025 19:06
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A map of upcoming DPAC actions on Wednesday 26th March!
24.03.2025 16:39
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