When I ask people to mask it’s not out of a virtuous superiority or even an ethical code. It is because I am in the depths of this hellhole, and I am *screaming* at you not to come down here, and definitely not to shove anyone else in.
faith, hope, and motivation are the domain of religion.
this is clearly not science or medicine.
when the mind-body approach fails they call patients heretics.
J Craig Venter Institute and Mount Sinai, 13 participants, found SARS-CoV-2 spike lingering in gut biopsies was linked to a local immune imbalance in Long COVID, strongest in the colon.
www.biorxiv.org/content/10.6...
we're being failed by both political parties, and long covid patients in other countries are also being failed. it's not just RFK, this is a colossal failure to fund medical research and acknowledge that the virus is dangerous in the long term. millions of us left to rot while people point fingers.
you know that feeling when you sit funny and your foot falls asleep? long covid feels like that but it's your whole body, including your brain, and no amount of movement will get the blood flow back
We live in a society where the response to a mass disabling event was a massive shrug and renewed interest in the r word. Betrayed isn’t actually too strong a word.
remember when Monica Gandhi suggested that if you have long covid you can simply pop a benadryl lol
and now so many people are sick it's taking billions of dollars out of the global economy because the benadryl isn't cutting it
The trouble with long covid awareness is that people do not want to be aware.
People do not want to believe that there is an unchecked evil lurking in the world. there exists an untreatable, unmentionable illness that can destroy your future, and all that separates you from this terrible fate is one mouthful of bad air.
Many years ago a classmate died at age 18. I told someone about this and his reaction was "i know that guy, he's not dead!" He didn't believe me until i showed him the obituary. I think this is a normal human reaction: he didn't want to believe that people in his orbit could die young.
If i had not experienced long covid I'm not sure i would have believed it. what do you mean you can't sit upright for more than 20 minutes? What do you mean you've lost the ability to read? What do you mean you hyperventilate after walking to the mailbox? What do you mean you're bedridden?
sometimes i think that i died in 2020 and this is an oddly specific hell
i am not having a good time
good riddance to this twice-fired loser
once you get diagnosed with anything that has the word "syndrome" in it your quality of life is about to drop dramatically
This is the world that RFK Jr dreamed of—now that he runs the US health system he’s able to achieve his dreams each & every day, aided & abetted by Drs Bhattacharya, Makary, Høeg, Kulldorff, Prasad & Oz
We can’t rebuild the devastation until all 7 of these federal health agency leaders are gone
i saw one a while back where someone claimed their long covid was actually just a cat allergy and they're better now. the nerve it takes to go into a support group full of suffering, bedridden people and say "see you later suckers, I'm not sick like you!" is more common that i wanted to believe.
Spent all night on the bathroom floor being sick and anyway i think God should be in jail
$170B in lost wages and we're still calling this a "health story." It's a labor story. A productivity-obsessed economy that spent 2021-2023 telling sick people to push through created a disability crisis it now has zero infrastructure to absorb.
Rates of death and disability from any virus are irrelevant if they are preventable.
Any debate about percentages that does not first accept the need to prevent are just debates about how many people to allow to die and suffer so existing societal norms can remain mostly undisturbed.
Bloomberg: How Covid Quietly Rewires the Brain
Researchers keep discovering more about the long-term neurological effects of SARS-CoV-2.
By Jason Gale
www.bloomberg.com/news/feature...
don't worry, RFK is in charge of curing long covid! I'm sure he's taking the job very seriously and not laughing at the people who are suffering!
They think mass death is funny because they hate you
And it is hard being a person with Long Covid because we are a constant reminder of this failure. We make everyone uncomfortable just by existing and by still being sick. Our abandonment by (most) medical professionals and by the government is part of this memory-holing.
when you have only so much cognitive energy to expend, you don’t necessarily want to spend it explaining your new chronic illness to someone who maintains covid is over
must be nice to live in a world where covid is only a cultural problem and not a medical one
The absence of biomarkers makes it easier for bad actors to erase us.
Everyone sick for longer than a year doesn't exist to them because if you didn't recover it means sickness was your inevitable fate, virus or no. "we did a scientific study and it turns out you were born under a bad star"
Its easy to resolve that the complete consolidation of all HHS jobs around the same 5-6 people is more insular-ideology-by-convenience... because there is no one else willing to be part of this insanity.
his job at the NIH consists of nothing but appearing on podcasts, whining, and lying to the senate. this isn't an increase in his workload, this is just another line to add to his resume
Crucial paper published Friday that deserves much more attention in the #LongCOVID world: www.nature.com/articles/s41...
TLDR: 13/15 immunocompromised patients who had chronic COVID infections (>200 days) cleared the virus in under 2 weeks when given combo antivirals/monoclonals
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