Ginny Mason's Avatar

Ginny Mason

@ibcresearch1

Research advocate for inflammatory & advanced breast cancers. Exec, Director Inflammatory Breast Cancer Research Foundation, the only IBC nonprofit advocating for patients & research for over 25 yrs. www.ibcresearch.org. RN, full0time volunteer

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11.11.2024
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Latest posts by Ginny Mason @ibcresearch1

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FDA Grants Priority Review to Datopotamab Deruxtecan for Metastatic TNBC Phase 3 trial data show datopotamab deruxtecan reduces the risk of disease progression or death in patients with metastatic TNBC.

@bsky.app www.empr.com/news/fda-gra...

06.02.2026 19:40 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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On this #WorldCancerDay we again commit to doing what we can to improve the lives of those facing #IBC through advocacy & action. This is a global effort because cancer knows no boundaries. We're grateful for your support: ibcresearch.org/get-involved...

04.02.2026 14:40 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
A photo of Noah Feldman beside A quite with the ABC News logo β€œIf we cannot impeach a president who abuses his office fir his personal advantage, we no longer live in a democracy β€” we live in a monarchy, or we live under a dictator.@ Noah Feldman, Harvard Law School

A photo of Noah Feldman beside A quite with the ABC News logo β€œIf we cannot impeach a president who abuses his office fir his personal advantage, we no longer live in a democracy β€” we live in a monarchy, or we live under a dictator.@ Noah Feldman, Harvard Law School

02.02.2026 18:41 πŸ‘ 20072 πŸ” 5222 πŸ’¬ 460 πŸ“Œ 233

Remember this.
Poverty is a policy choice.
Concentrated wealth is a policy choice. Inequality is a policy choice. None of it is natural or inevitable.
Remember: We have the power to build a system that serves the many, not the powerful few.

Remember this. Poverty is a policy choice. Concentrated wealth is a policy choice. Inequality is a policy choice. None of it is natural or inevitable. Remember: We have the power to build a system that serves the many, not the powerful few.

Robert Reich

17.12.2025 03:22 πŸ‘ 5799 πŸ” 1587 πŸ’¬ 122 πŸ“Œ 56
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Register for our next ECLC webinar by Aeson Chang, PhD on 'Breast cancer got the nerves to resist chemotherapy' - January 15th, 2026 - USA: 5:00 PM EST | Europe: 11:00 PM CET | January 16th, Australia: 09:00 AM AEDT - bit.ly/44APSVI

17.12.2025 06:31 πŸ‘ 6 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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www.msn.com/en-us/news/p... Starting the day with nausea as I watched this disgusting video on X shared by the White House. #JingleBells

17.12.2025 14:18 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Jennifer Gunter & Eric Topol - Discuss Women’s Health From Dr. Jen Gunter and Eric Topol's live video

For people seeking information on hormone therapy I highly recommend this back and forth between 2 experts at translating information into knowledge.

vajenda.substack.com/p/jennifer-g...

26.11.2025 13:46 πŸ‘ 2 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
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www.msn.com/en-us/news/u... Yet another immigration judge fired in the middle of a hearing in SFO.

26.11.2025 21:45 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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As #pinkoctober winds down, I hope you've learned the importance of knowing & paying attention to your body & Realizing not all breast cancer has a lump. Know that evidence-based treatment is needed when dealing with cancer. learn more at www.ibcresearch.org

30.10.2025 02:13 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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The End of Rule of Law in America The 47th president seems to wish he were kingβ€”and he is willing to destroy what is precious about this country to get what he wants.

www.theatlantic.com/ideas/archiv...

29.10.2025 17:44 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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www.msn.com/en-us/news/p... Thanks to #MikeJohnson all power is now in the hands of a tyrant with no guardrails...this is dangerous.

27.10.2025 13:40 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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www.msn.com/en-us/news/p... Bannon says Trump WILL be president in 2028...who cares about the 22nd amendment.

26.10.2025 18:05 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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In 1994 there was no 'standard of care' for #IBC. The NCI tumor board suggested neoadjuvant chemotherapy based on a published study. Since then, we've learned that #chemofirst works best for aggressive breast cancers. Speak up if your doctor suggests surgery first....or get a new treatment team!!

22.10.2025 22:35 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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www.msn.com/en-us/news/o... Commentary on the #WhiteHouse renovations to suit current 'renter' #Trump

22.10.2025 13:49 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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It's hard to advocate for yourself until you learn. Check out www.ibcresearch.org for info and if your treatment team has limited experience with #IBC, direct them to NCCN.org for guidelines developed by physicians for physicians. (check the patient guide they offer as well) #Youareworthit

21.10.2025 01:57 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Oct 16 was #NationalMammogramDay. While they can be useful, they seldom pick up #IBC. Don't let a Dr dismiss your concerns just because they didn't see a lump. YOU know your body, so keep pushing for answers. #AdvocateforYourself

18.10.2025 23:01 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Last yr there was no IBC specific ICD code. It was difficult to obtain accurate numbers of ppl dx with IBC. Thanks to the the #IBCCollaborative, we made that happen! Share this info with your HCP's and don't forget to tell them about the #IBC Diagnostic Scoring Scale as well!

15.10.2025 20:38 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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www.msn.com/en-us/news/p... Disturbing commentary on a young GOP telegram group chat

15.10.2025 14:29 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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October is all about PINK & happy stories. 1/3 of #inflammatorybreastcancer pts are stage 4 at dx, 1/3 develop stage 4, remaining 1/3 are NED/no evidence of disease. Don't ignore stage 4....be there for those whose treatment goes on and on and on. They need your support & help. #stage4needsmore

13.10.2025 14:22 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Only 5-10% of breast cancers are hereditary. Most breast cancer is sporadic/random. Get your mammogram and clinical breast exam. Check your breasts for anything that looks 'different'. Look in a mirror...look under the breast. Know your body!! www.ibcresearch.org

13.10.2025 01:00 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Breast pain doesn't always mean cancer but symptoms that don't go away within reasonable time or with home care need evaluation by your HCP. Take it seriously & keep pushing for answers. www.ibcresearch.org

09.10.2025 02:34 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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www.msn.com/en-us/news/p... Poor excuses from Johnson regarding his delay on swearing in new Dem rep.

09.10.2025 02:32 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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#Clinicaltrials can be a great option for treatment but it can be tough to find one that includes #IBC patients. Not everyone can travel a distance to find a trial, insurance may not cover other care out of state and it's tough to leave your support system. Things need to CHANGE!

07.10.2025 22:35 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Think you're "OK" because you had a negative mammogram? Nothing showed up on my mammogram yet #Inflammatorybreastcancer was growing! Don't rely on a mammogram for #IBC....keep pushing for answers! www.ibcresearch.org

06.10.2025 20:38 πŸ‘ 2 πŸ” 2 πŸ’¬ 0 πŸ“Œ 1
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www.msn.com/en-us/news/p... The #Project2025 plan exposed...shutdown part of the plan.

06.10.2025 14:53 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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www.msn.com/en-us/news/p... "Morality is not a buffet"....pope's words remind people that #pro-life means taking care of others, no killing, etc.

03.10.2025 14:18 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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www.msn.com/en-us/news/p... The new #BigLie that will help them dismantle the constitution.

02.10.2025 18:28 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Video: The Man Expanding Trump’s Presidential Powers Coral Davenport, a New York Times reporter, explains how Russell Vought, the director of the Office of Management and Budget, plans to circumvent Congress’s budgetary powers to advance the Trump admin...

www.nytimes.com/video/us/pol...

30.09.2025 14:07 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Two amazing women/advocates!! Thanks for being there to #represent @coffeemommy.bsky.social 😍

29.09.2025 22:46 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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www.msn.com/en-us/news/u... First of all the #Constitution doesn't belong in a Bible (separation of church & state) but omitting amendments 11-27 is significant....abolishing slavery, women vote....

27.09.2025 14:32 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0