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Miles for Migraine

@milesformigraine

A community hosting impactful events + programs which foster awareness + raise essential funding for migraine/headache disease.

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19.01.2025
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Latest posts by Miles for Migraine @milesformigraine

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Miles for Migraine (@milesformigraine.bsky.social) A community hosting impactful events + programs which foster awareness + raise essential funding for migraine/headache disease.

#purplemustacheproject is underway! Despite a young voter’s choice the sheriff won!

Currently in growth phase.
Mustache wax manufacturers may want to increase production.

The world’s first bleached and dyed purple mustache will be displayed for all @milesformigraine.bsky.social September 27, 2026.

11.03.2026 15:27 👍 1 🔁 1 💬 0 📌 0
Migraine Patient Access and the Inflation Reduction Act  - AHDA Advocacy Toolkit BACKGROUND The Inflation Reduction Act (IRA), passed in 2022, gave the Centers for Medicare... Read More

More info here from AHDA in case you’ve not yet seen it: allianceforheadacheadvocacy.org/migraine-pat...

24.02.2026 02:52 👍 2 🔁 0 💬 1 📌 1
Empowering Patients and Clinicians to Overcome Insurance Barriers Together An educational presentation on navigating Prior Authorizations with confidence

Ever had a medication prescribed only to be denied by insurance? Interested in learning more about the prior authorization process, and how to navigate? Join us online, Sunday 2/22. Details and sign up: www.eventbrite.com/e/empowering...

05.01.2026 20:59 👍 0 🔁 0 💬 0 📌 0
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Scholarship applications are now available for #AHSAM 2026. Join us June 4–7 in Orlando, FL!

Available Scholarships:
Frontiers in Headache Research
Runnin’ for Research (R4R)

👉 Learn more & apply by February 22 here: bit.ly/3KZX0o3

05.01.2026 18:41 👍 1 🔁 1 💬 0 📌 0
Preview
How Finding A Migraine Community Can Be Empowering As isolating as they may feel, you don't need to deal with your migraines alone.

“If it wasn’t for my friend, I would never have taken the initiative to find a specialist and try to get real answers.”

www.bustle.com/wellness/fin...

03.01.2026 19:30 👍 1 🔁 0 💬 0 📌 0
Exploring Migraine with IBS, MCAS, POTS, and hEDS (Instagram Live Event) Learn how migraine interacts with several chronic conditions including POTS, IBS, mast cell activation syndrome, hEDS and more.

Learn more about #migraine and #IBS, #MCAS, #POTS, & #hEDS at this upcoming talk hosted by @milesformigraine.bsky.social.

Dec. 12, 4:30p ET

#MigraineChat #NEISvoid

16.11.2025 21:44 👍 14 🔁 6 💬 2 📌 0

Thanks for sharing 💜

01.12.2025 19:12 👍 1 🔁 0 💬 0 📌 0
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The #purplemanbunproject / purple pony has solved the no pocket protector problem. @miles4migraine

bit.ly/m4mpmb

30.09.2025 20:45 👍 2 🔁 1 💬 0 📌 0
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I dyed

#purplemanbunproject
@miles4migraine

bit.ly/m4mpmb

24.09.2025 21:28 👍 2 🔁 1 💬 1 📌 0
Help Julie raise money for participating in Miles for Migraine - Pennsylvania 2025 on September 28, 2025 Migraine changed the course of my life. I went from a young, ambitious, eager law student to a bedridden shell of myself when Migraine attacks became chronic. Through the help of Dr. Young and Jeffers...

Have you supported me and @milesformigraine.bsky.social yet?

Well, get going! I'm really close to my goal! #Migraine

20.09.2025 02:57 👍 2 🔁 1 💬 0 📌 0
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On Tuesday September 23 hair will be bleached and dyed #purplemanbunproject
@miles4migraine
Donate bit.ly/m4mpmb 😃

21.09.2025 02:19 👍 1 🔁 1 💬 0 📌 0
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Hey--I went purple again to raise money for #Migraine research! I'm joining @billtheadvocate.bsky.social and @milesformigraine.bsky.social to raise funds for the #Philadelphia Run, Walk, Relax Event. Help us out by donating here: bit.ly/juliem4m25

15.09.2025 20:49 👍 3 🔁 2 💬 1 📌 1
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Clusterbusters and Yale University are conducting a brief survey with those who experience cluster headache and have used a specific treatment. Eligibility criteria is on the first page.
survey.alchemer.com/s3/8319518/O...

02.08.2025 17:12 👍 2 🔁 2 💬 0 📌 0
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Dr Gottschalk and I having a “Bun-off” at @clusterbusters.bsky.social in Dallas
#purplemanbunproject
@milesformigraine.bsky.social

12.09.2025 15:21 👍 1 🔁 1 💬 0 📌 0
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Making progress toward the goal
Please help and donate:
bit.ly/m4mpmb

#purplemanbunproject
@milesformigraine.bsky.social

12.09.2025 17:06 👍 1 🔁 1 💬 0 📌 0
Introducing Miles For Women’s Health

Women living with migraine and other headache disorders are often navigating much more than one condition.

Research shows that migraine frequently coexists with a range of chronic diseases, including asthma, other pain conditions, depression, anxiety, autoimmune conditions, sleep disorders, and more. This overlapping burden means women are
managing not only the debilitating symptoms of migraine, but also multiple other health challenges that impact their quality of life. This becomes even more confusing because all women will experience perimenopause and menopause, and the complication of hormones and migraine is overwhelming.

Despite this complexity, most women do not receive coordinated or comprehensive care. These conditions are often treated in isolation, each one addressed by a different specialist or clinic, with little to no integration. Primary care providers, though well-intentioned, are often too overwhelmed by patient volume and administrative demands to provide the coordination and continuity women need across their health conditions.

To make matters worse, women are typically caregivers in their families and often work full-time. Many of the women in our community report having three or more chronic conditions—and still being expected to manage work, caregiving, and household responsibilities. They simply do not have the time or energy to navigate a fragmented and confusing healthcare system on their own.

That’s why we are creating Miles for Women’s Health.

To kick off this initiative, we are hosting a national Women’s Health Summit, where experts will speak on the conditions women commonly face, the barriers of fragmented care, and ways to build coordinated solutions for a more supportive healthcare journey.

Our mission is to walk alongside women in their health journeys, offering the support, tools, and connection they need to feel seen, heard, and well at every stage of life.

Introducing Miles For Women’s Health Women living with migraine and other headache disorders are often navigating much more than one condition. Research shows that migraine frequently coexists with a range of chronic diseases, including asthma, other pain conditions, depression, anxiety, autoimmune conditions, sleep disorders, and more. This overlapping burden means women are managing not only the debilitating symptoms of migraine, but also multiple other health challenges that impact their quality of life. This becomes even more confusing because all women will experience perimenopause and menopause, and the complication of hormones and migraine is overwhelming. Despite this complexity, most women do not receive coordinated or comprehensive care. These conditions are often treated in isolation, each one addressed by a different specialist or clinic, with little to no integration. Primary care providers, though well-intentioned, are often too overwhelmed by patient volume and administrative demands to provide the coordination and continuity women need across their health conditions. To make matters worse, women are typically caregivers in their families and often work full-time. Many of the women in our community report having three or more chronic conditions—and still being expected to manage work, caregiving, and household responsibilities. They simply do not have the time or energy to navigate a fragmented and confusing healthcare system on their own. That’s why we are creating Miles for Women’s Health. To kick off this initiative, we are hosting a national Women’s Health Summit, where experts will speak on the conditions women commonly face, the barriers of fragmented care, and ways to build coordinated solutions for a more supportive healthcare journey. Our mission is to walk alongside women in their health journeys, offering the support, tools, and connection they need to feel seen, heard, and well at every stage of life.

We are excited to announce the launch of our new initiative, Miles for Women’s Health, dedicated to supporting women navigating migraine + other chronic health conditions.

Learn More:

www.milesformigraine.org/migraine-edu...

11.09.2025 16:57 👍 1 🔁 0 💬 0 📌 0

Check @billtheadvocate.bsky.social out. Donate to his #PurpleManBunProject team for the #Philadelphia @milesformigraine.bsky.social event today! bit.ly/m4mpmb

09.09.2025 21:47 👍 1 🔁 1 💬 0 📌 0

#Migraine peeps--this is my doc. He has been growing his hair so he can wear a purple man bun at the #Philadelpia @milesformigraine.bsky.social Run, Walk, Relax Event. We have to raise a bunch of 💲💲! His team is the #PurpleManBunProject, & funds raised will go to Jefferson Headache Center.

20.08.2025 06:02 👍 1 🔁 1 💬 0 📌 0
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This is my #Migraine doc, Dr. Young.He believes in wearing his advocacy. He's been growing his hair so he can have a #PurpleManBun at Philly's @milesformigraine.bsky.social event. He's got a big goal to meet to raise $ for Migraine research, and he needs our help! Please donate. donorbox.org/billpmb

04.08.2025 12:57 👍 1 🔁 1 💬 0 📌 0
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Welcome! You are invited to join a meeting: Miles for Migraine Social Series: Cooking Fresh From The Garden. After registering, you will receive a confirmation email about joining the meeting. Join Miles for Migraine for this virtual social event. Cooking with fresh ingredients straight from the garden is such a treat! Join us for inspiration and how to's!

This social event is more than just a class—it’s a fun way to connect, learn new techniques, and enjoy cooking together from the comfort of your own kitchen.

Free sign up: milesformigraine-org.zoom.us/meeting/regi...

13.06.2025 11:56 👍 0 🔁 0 💬 0 📌 0
Miles for Migraine Presents:

Cooking Fresh From the Garden

Cook along with us or just watch and enjoy to learn some new techniques. Virtual Social Event 

June 22nd at 1pm ET

Free sign up!

Miles for Migraine Presents: Cooking Fresh From the Garden Cook along with us or just watch and enjoy to learn some new techniques. Virtual Social Event June 22nd at 1pm ET Free sign up!

Join our hosts Alicia and Dino Migliazzo on Saturday, June 22 at 1pm ET for a free, virtual cooking class featuring bold, garden-fresh flavors and three of their favorite recipes:

🍅 Zesty Homemade Salsa
🍗 Creamy Pollo a La Crema
🍚 Fluffy Mexican Rice

13.06.2025 11:56 👍 0 🔁 0 💬 1 📌 0
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Today was the kick off of the EMHA (European Migraine and Headache Alliance) conference in Brussels. Proud to have Canada involved with global patient organizations to share and learn. Today we visited the EU Parliament for a tour. More to come with a full day of meetings Thursday and Friday.

11.06.2025 14:32 👍 2 🔁 1 💬 0 📌 0
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Join our Move for Migraine Calgary Walk! Save the date!

🗓️ June 7
⏰ 9:30 AM Mountain Time
📍 Bowness Park, in front of Seasons of Bowness Restaurant.

Option for a 5 or 7Km walk.

Remember to record your steps at: https://migrainecanada.org/move-for-migraine/

04.06.2025 13:09 👍 0 🔁 1 💬 0 📌 0

#MigraineChat #NEISvoid

Please give me your favorite fragrance-free shampoos and conditioners recs. Bonus if they're very moisturizing. TY.

05.06.2025 15:23 👍 11 🔁 3 💬 10 📌 0
Migraine, Not Just Head Pain 

Facial Tenderness/Sensitivity/Pain - Scalp Tenderness/Sensitivity/Pain - Neck Stiffness, Aching or Pain - Brain Fog - Gastrointestinal Changes (Nausea, Diarrhea, Constipation) - Food Cravings - Changes in Mood (Depression, Euphoria) - Irritability - Difficulty Concentrating - Increased Thirst - Increased Urination - Frequent Yawning - Fatigue - Difficulty Sleeping - Sensitivity to Light or Sound - Difficulty Reading or Speaking - Hyperactivity - Blind Spots (Outlined with Geometric Designs) - Shimmering Stars or Spots - Zigzag Lines Floating Across Vision - Flashes of Light - Temporary Vision Loss - Abdominal Pain - Smell Sensitivity - Ear Pain - Ringing in Ears - Vomiting - Nasal Congestion - Runny Nose - Pain with Light Touch - Dizziness - Motion Intolerance - Vertigo (Spinning) - Phantom Smells - Sinus Pressure/Pain - Jaw (TMJ) Pain - Tooth Pain - Difficulty Finding Words -
Loss of Balance - Disorientation and Rocking - Joint Pain and Stiffness

Migraine, Not Just Head Pain Facial Tenderness/Sensitivity/Pain - Scalp Tenderness/Sensitivity/Pain - Neck Stiffness, Aching or Pain - Brain Fog - Gastrointestinal Changes (Nausea, Diarrhea, Constipation) - Food Cravings - Changes in Mood (Depression, Euphoria) - Irritability - Difficulty Concentrating - Increased Thirst - Increased Urination - Frequent Yawning - Fatigue - Difficulty Sleeping - Sensitivity to Light or Sound - Difficulty Reading or Speaking - Hyperactivity - Blind Spots (Outlined with Geometric Designs) - Shimmering Stars or Spots - Zigzag Lines Floating Across Vision - Flashes of Light - Temporary Vision Loss - Abdominal Pain - Smell Sensitivity - Ear Pain - Ringing in Ears - Vomiting - Nasal Congestion - Runny Nose - Pain with Light Touch - Dizziness - Motion Intolerance - Vertigo (Spinning) - Phantom Smells - Sinus Pressure/Pain - Jaw (TMJ) Pain - Tooth Pain - Difficulty Finding Words - Loss of Balance - Disorientation and Rocking - Joint Pain and Stiffness

Invisible Disease, Real Symptoms.

Blind Spots | Brain Fog | Mood Swings | Difficulty Concentrating | Trouble Reading Or Speaking | Insomnia | Fatigue | Facial Pain Or Tenderness |
Light Flashes | Food Cravings | Frequent Yawning | Nausea Or Digestive Issues | Hyperactivity | Increased Thirst | Frequent Urination | Irritability | Neck Pain Or Stiffness | Scalp Sensitivity | Light Or Sound Sensitivity |
Shimmering Spots | Temporary Vision Loss | Zigzag Lines Drifting Across Your Vision | Blind Spots | Brain Fog | Mood Swings | Difficulty Concentrating | Trouble Reading Or Speaking | Insomnia | Fatigue | Facial Pain Or Tenderness | Light Flashes | Food Cravings | Frequent Yawning | Nausea Or Digestive Issues | Hyperactivity | Increased Thirst | Frequent Urination | Irritability | Neck Pain Or Stiffness | Scalp Sensitivity | Light Or Sound Sensitivity | Shimmering Spots | Temporary Vision Loss

Invisible Disease, Real Symptoms. Blind Spots | Brain Fog | Mood Swings | Difficulty Concentrating | Trouble Reading Or Speaking | Insomnia | Fatigue | Facial Pain Or Tenderness | Light Flashes | Food Cravings | Frequent Yawning | Nausea Or Digestive Issues | Hyperactivity | Increased Thirst | Frequent Urination | Irritability | Neck Pain Or Stiffness | Scalp Sensitivity | Light Or Sound Sensitivity | Shimmering Spots | Temporary Vision Loss | Zigzag Lines Drifting Across Your Vision | Blind Spots | Brain Fog | Mood Swings | Difficulty Concentrating | Trouble Reading Or Speaking | Insomnia | Fatigue | Facial Pain Or Tenderness | Light Flashes | Food Cravings | Frequent Yawning | Nausea Or Digestive Issues | Hyperactivity | Increased Thirst | Frequent Urination | Irritability | Neck Pain Or Stiffness | Scalp Sensitivity | Light Or Sound Sensitivity | Shimmering Spots | Temporary Vision Loss

Migraine is not “just a headache”

Help us raise awareness and learn more by visiting: migraineheadacheawarenessmonth.org

#mham

04.06.2025 13:15 👍 1 🔁 0 💬 0 📌 0
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The Price of Pain Every year, millions of Americans—most of them women—suffer in silence from a disease that is often dismissed as

“It’s time for Congress to prioritize migraine as a national health issue—by funding research, ensuring access to diagnosis and treatment through increased screening, and supporting legislation like the HEADACHE Act.”

www.realclearhealth.com/articles/202...

30.05.2025 18:30 👍 0 🔁 0 💬 0 📌 0
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We’re honored to welcome Qasim Amin Nathari to #ComorbidityCon, where he’ll lead a powerful session on “Challenges Facing Black Men in Diagnosis and Treatment.”
Qasim brings deep insight and lived experience to the intersection of race, gender, and chronic illness.

26.05.2025 14:16 👍 2 🔁 1 💬 0 📌 0

Join us online Tuesday, May 20th at 7:30pm ET for this free event!

18.05.2025 17:55 👍 0 🔁 0 💬 0 📌 0

In this session, Robin Boudette, Ph.D., psychologist and habit change expert, will introduce an evidence-based, three-step method for recognizing anxiety as a mental habit and shifting our relationship with it.

18.05.2025 17:55 👍 0 🔁 0 💬 1 📌 0
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Welcome! You are invited to join a meeting: Miles for Migraine - Unwinding Anxiety for Migraine. After registering, you will receive a confirmation email about joining the meeting. Did you know that anxiety is up to five times more common in people with migraine? The uncertainty of when a migraine attack might strike often leads to tension and worry—ironically increasing the lik...

Did you know that anxiety is up to five times more common in people with migraine? The uncertainty of when a migraine attack might strike often leads to tension and worry—ironically increasing the likelihood of another episode.

milesformigraine-org.zoom.us/meeting/regi...

18.05.2025 17:55 👍 0 🔁 0 💬 1 📌 0