NIHR PRU in Dementia and Neurodegeneration Exeter's Avatar

NIHR PRU in Dementia and Neurodegeneration Exeter

@denpruexeter

This NIHR Policy Research Unit is part of @nihr.bsky.social and hosted by @exeter.ac.uk in collaboration with Bradford, LSE, Newcastle, Ulster & UNSW. Views own

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Latest posts by NIHR PRU in Dementia and Neurodegeneration Exeter @denpruexeter

2:15pm on Thursday 5 March: what should a reformed adult social care system look like? Follow the link to watch.

2:15pm on Thursday 5 March: what should a reformed adult social care system look like? Follow the link to watch.

NEXT: Baroness Casey will share insights from her ongoing independent review into adult social care in England at #ntsummit.

Watch for free via Zoom.

πŸ‘‰ buff.ly/9RtiYiq

05.03.2026 14:10 πŸ‘ 1 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0
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Our latest newsletter is out now

shorturl.at/NJ5lL

05.03.2026 13:03 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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The Big Dementia Conversation | Care UK Care UK is inviting you to be part of The Big Dementia Conversation.

Visit the link for further information about 'The Big Dementia Conversation': www.careuk.com/company/care...

#dementiafriendly #dementiafriendlyconversation #bigdementiaconversation thebigdementiaconversation #dementia

05.03.2026 11:15 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Read our latest blog - shining a light on health inequities through our research.

shorturl.at/Xqdtn

02.03.2026 18:26 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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🌟 Latest News – New NIHR report by Dr Catherine Alexander explores the challenges of supporting people who lack awareness of their dementia.

It highlights key issues and offers practical strategies for care.

πŸ‘‰ Read more: buff.ly/Ew2eo3n

@denpruexeter.bsky.social

#dementia #report #homecare

01.03.2026 08:00 πŸ‘ 1 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Odds And Socks Day 2026 - Dancing for Donations Help Catherine Charlwood raise money to support Huntington's Disease Association

It's nearly Odds and Socks Day! Please consider donating to this fantastic cause
#whataretheodds #huntingtonsdisease www.justgiving.com/page/aberbal...

24.02.2026 15:28 πŸ‘ 0 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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We’re proud to launch our 2026–2030 Research Strategy: Research for Impact! Built with input from people living with PSP & CBD, we’re focusing on Diagnosis, Treatment & Care. Watch why research matters: youtu.be/KQhNuOi-e8o #ResearchStrategy #PSPResearch #CBDResearch

19.02.2026 12:55 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Barriers and facilitators to health care for people
from minority ethnic communities living with a
neurodegenerative condition➑️ shorturl.at/o38ZU

18.02.2026 10:13 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Improving awareness of and reducing the stigma
associated with neurodegenerative conditions in
British Black and South Asian communities ➑️ shorturl.at/q7jXW

18.02.2026 10:13 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

We're pleased to share with you two new policy briefs!

A DeNPRU project exploring reducing inequalities across the care pathway for minority ethnic communities has produced two key policy briefs outlining key messages, findings and policy implications.

Follow the links below to read moreπŸ“–

18.02.2026 10:13 πŸ‘ 1 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
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New blog postπŸ’₯

Hear from Linda Clare, Director of DeNPRU Exeter, on living alone with dementia as an inequality.

πŸ”— shorturl.at/YYbXv

16.02.2026 10:09 πŸ‘ 3 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0

The DeNPRU Exeter team are returning back to our desks after a wonderful two day face-to-face meeting last week. We had positive and constructive conversations - reflecting back and looking forward to the year aheadπŸŽ‰

16.02.2026 09:16 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Interior of a black umbrella

Interior of a black umbrella

On way to #London for our annual face to face meeting for @denpruexeter.bsky.social policy research unit in #dementia and #neurodegeneration People with lived experience & researchers providing research evidence to support national policy making in England through #DHSC Still raining though #Exeter

12.02.2026 08:56 πŸ‘ 3 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Living alone with dementia brings unique challenges. Recognising this as a key research priority, @dementiauk.bsky.social hosted a November panel webinar with leading experts Professor Linda Clare, Dr Phil Joddrell, and Fay Valentine.

Catch up on the recording ➑️ www.youtube.com/watch?v=gqoW...

10.02.2026 15:24 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
SPCR Masterclass: Let’s talk dementia
πŸ—“οΈ Tues, 17 Feb 2026
πŸ•š 12noon to 1pm
πŸ’‘ Supporting communication in research partnerships involving people with dementia

πŸ”— bit.ly/44pnKF0

@nihrsphr.bsky.social 
@nihrsscr.bsky.social 
@sapc.ac.uk

SPCR Masterclass: Let’s talk dementia πŸ—“οΈ Tues, 17 Feb 2026 πŸ•š 12noon to 1pm πŸ’‘ Supporting communication in research partnerships involving people with dementia πŸ”— bit.ly/44pnKF0 @nihrsphr.bsky.social @nihrsscr.bsky.social @sapc.ac.uk

NEXT WEEK: SPCR Masterclass: Let’s talk dementia
πŸ—“οΈ Tues, 17 Feb 2026
πŸ•š 12noon to 1pm
πŸ’‘ Supporting communication in research partnerships involving people with dementia

πŸ”— bit.ly/44pnKF0

@nihrsphr.bsky.social
@nihrsscr.bsky.social
@sapc.ac.uk

09.02.2026 12:46 πŸ‘ 5 πŸ” 6 πŸ’¬ 0 πŸ“Œ 1
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What death certificates tell us about the inequities of living with dementia | British Geriatrics Society

"Our Age and Ageing article shows that 85% of people who died with dementia in England between 2013 and 2023 also had at least one other long-term condition (and up to ten) recorded on their death certificate" - @claudiacooper.bsky.social

Read more in Claudia's latest @gerisoc.bsky.social blog πŸ‘‡

09.02.2026 11:10 πŸ‘ 4 πŸ” 5 πŸ’¬ 0 πŸ“Œ 0
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Read the latest newsletter from DeNPRU Exeter!

πŸ”— shorturl.at/ktmYQ

02.02.2026 10:35 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
What is life with Lewy body dementia really like?
What is life with Lewy body dementia really like? YouTube video by The Lewy Body Society

On World Lewy Body Day earlier this week, we were incredibly honoured to host the premiere of our new short film about life with Lewy bodies at an iconic London landmark.

#lbaw2026 #lewybodyawaresnessweek #lewybodydementia

youtu.be/I2p9XQM5VLc?...

30.01.2026 12:43 πŸ‘ 4 πŸ” 2 πŸ’¬ 1 πŸ“Œ 0
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New blog! Read about key findings and implications from our Living Alone paper.

shorturl.at/4nbNF

30.01.2026 11:39 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Interesting data published today by @alzheimerssoc.bsky.social showing the extent of delays to discharge from hospital for people living with dementia

πŸ”— shorturl.at/H7tVo

29.01.2026 12:21 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

New reportπŸ“’

Authored by Dr Catherine Alexander, this report shares findings from stakeholder consultations on awareness for people living with dementia as dementia progresses.

πŸ”— shorturl.at/kfijS

29.01.2026 10:18 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Our new report β€œThe Prevalence of Dementia in Europe 2025” provides updated figures for the number of people living with dementia both for Europe as a whole (EU and non-EU), as well as each of the countries within.
#DementiaPrevalence #DementiaInEurope
www.alzheimer-europe.org/news/new-alz...

28.01.2026 09:02 πŸ‘ 6 πŸ” 8 πŸ’¬ 1 πŸ“Œ 1
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It is Lewy Body Awareness Week.

Sharing information about Lewy body dementia is one of the best ways to ensure more people will get the right dementia diagnosis.

Please help us connect the dots πŸ”΅πŸ”΅πŸ”΅

#lewybodyawarenessweek #lbaw2026 #connectthedots

26.01.2026 14:21 πŸ‘ 5 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

Do give my organisation a follow if you are interested in creative and positive #dementia work. We moved to BlueSky and have found it difficult to build our profile in this space. @innov-dementia.bsky.social

14.01.2026 11:10 πŸ‘ 4 πŸ” 7 πŸ’¬ 1 πŸ“Œ 0

We're extremely pleased to share that a publication from our living alone project has been selected as the INTERDEM article of the month!

INTERDEM interdem.org is a pan-European network for research in early, timely and quality psychosocial interventions in dementia🌏

ArticleπŸ”— shorturl.at/pAJev

12.01.2026 12:02 πŸ‘ 1 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0

We're kicking off 2026 with a newly published systematic review!

This paper shares findings from a scoping review of research on living alone with dementia, exploring the characteristics and needs of this population.

πŸ”— shorturl.at/86BK7

05.01.2026 11:23 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 1
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From all of us at DeNPRU Exeter, we wish you a wonderful festive period. We will be taking a break from socials and will be back on 5th JanuaryπŸŽ„πŸŽ

22.12.2025 12:36 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Our December newsletter is here!

πŸ”— shorturl.at/8asud

19.12.2025 12:25 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Fancy learning more about DeNPRU Exeter?

Have a watch of our new video introducing who we are and what we do🎞️

youtu.be/uMLHGqWlROA

18.12.2025 15:12 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Our newsletter will be sent slightly earlier this month with the festive period just around the corner!

Register to receive it straight to your mailboxπŸ“©

πŸ”— shorturl.at/gDIco

17.12.2025 13:53 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0