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Asociación Long COVID Aragón

@longcovidaragon

Asociación de pacientes afectados de #COVIDpersistente o #LongCOVID en #Aragón, #Spain. ¡Unidades Multidisciplinares Ya! 📧 covidpersistentearagon@gmail.com 🌐​ www.longcovidaragon.org #TreatLongCovid 😷

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30.11.2024
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Latest posts by Asociación Long COVID Aragón @longcovidaragon

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Seis años después de la pandemia, 2,4 millones de personas viven en el Estado español con covid persistente

‼️ Long Covid Aragón denuncia falta de reconocimiento, investigación y atención sanitaria y convoca concentración el 15 de marzo en Zaragoza: https://arainfo.org/?p=322997

09.03.2026 12:08 👍 7 🔁 7 💬 0 📌 0
At the top, on a black background: aerosols.
Text: The Covid virus, SARS-CoV-2, is transmitted through the air via viral particles suspended in the air. Ventilation, air purification, and the use of FFP2 masks and UVC are effective means of prevention. No public awareness campaign in France sufficiently highlights this mode of transmission. Yet it is essential to prevent acute COVID, as well as the delayed consequences of this virus, particularly long COVID. Bottom, in large print: Ignorance is not a public health policy.

At the top, on a black background: aerosols. Text: The Covid virus, SARS-CoV-2, is transmitted through the air via viral particles suspended in the air. Ventilation, air purification, and the use of FFP2 masks and UVC are effective means of prevention. No public awareness campaign in France sufficiently highlights this mode of transmission. Yet it is essential to prevent acute COVID, as well as the delayed consequences of this virus, particularly long COVID. Bottom, in large print: Ignorance is not a public health policy.

When health communication remains outdated, the virus circulates freely and continues to cause damage. Millions of people are living with #LongCovid : they are a constant reminder of this.
There is an urgent need to evolve.
#Prevention
#LongCovidAwareness


04.03.2026 21:30 👍 16 🔁 11 💬 1 📌 0
Text: You can't manage public health with outdated knowledge... Health authorities, if By refusing to adapt SARS-CoV-2 prevention measures. Larger text at bottom: Covid is transmitted through the air and through ignorance Image: An administrator sitting behind a desk, looking bored, behind an old computer.

Text: You can't manage public health with outdated knowledge... Health authorities, if By refusing to adapt SARS-CoV-2 prevention measures. Larger text at bottom: Covid is transmitted through the air and through ignorance Image: An administrator sitting behind a desk, looking bored, behind an old computer.

🔴 New poster diptych.
COVID is transmitted through the air, and through ignorance.
Ignorance of the data.
Ignorance of blind spots.

#PublicHealth
Link : winslow.fr/ressource...

04.03.2026 21:30 👍 37 🔁 20 💬 1 📌 0
An invitation for everyone to register for Long COVlD Defense Series III on March 4, 2026, 4:30pm - 9:00pm EST. 6 Q&A sessions will feature an extraordinary panel of speakers, with their masked portraits showing inside frames that say “Support Long Haulers and Mask Together America”. 
Schedule:
4:35 pm Delphine Crespo, President of Association of Long COVID Aragón 
5:10 pm Dr. Ciara Steele, co-founder of Clean Air Advocacy Ireland (CAAI)
5:45 pm Pamela Morrison, Long COVID Advocacy Ireland
6:20 pm Elisa Perego PhD, Long COVID Rise Up expert member who coined the term Long COVlD
6:55 pm Angela L., Creator of International Long COVID Awareness Day 
7:35 pm Devin Russell, Founder of Long COVID Foundation 
Register to join: https://bit.ly/LCDefenseForum_Mar4

An invitation for everyone to register for Long COVlD Defense Series III on March 4, 2026, 4:30pm - 9:00pm EST. 6 Q&A sessions will feature an extraordinary panel of speakers, with their masked portraits showing inside frames that say “Support Long Haulers and Mask Together America”.  Schedule: 4:35 pm Delphine Crespo, President of Association of Long COVID Aragón 5:10 pm Dr. Ciara Steele, co-founder of Clean Air Advocacy Ireland (CAAI) 5:45 pm Pamela Morrison, Long COVID Advocacy Ireland 6:20 pm Elisa Perego PhD, Long COVID Rise Up expert member who coined the term Long COVlD 6:55 pm Angela L., Creator of International Long COVID Awareness Day 7:35 pm Devin Russell, Founder of Long COVID Foundation Register to join: https://bit.ly/LCDefenseForum_Mar4

Join #LongCOVIDAwareness discussions at Defense Series III, March 4, 2026, 4:30pm-9pm EST in honor of patients and allies tirelessly advocating for health justice in this historic struggle, 6 Q&A sessions will feature an extraordinary panel of speakers. masktogetheramerica.org/blog/long-co...

02.03.2026 04:13 👍 28 🔁 7 💬 2 📌 1

LCDefense III
4:35pm Delphine Crespo @longcovidaragon.bsky.social
5:10pm Dr. Ciara Steele @cleanairie.bsky.social
5:45pm Pamela Morrison @lcaireland.bsky.social
6:20pm Elisa Perego PhD @elisaperego78.bsky.social
6:55pm Angela L. @lcawarenessint.bsky.social
7:35pm Devin Russell Long COVID Foundation

02.03.2026 04:14 👍 5 🔁 2 💬 1 📌 0
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🎬 🗣️ Launch of #LongCOVIDAwarenessMonth and its theme of the cardiovascular effects of Covid and #LongCovid, with this video to share! #LongCovidHeartbeats
👉 Every patient counts, every heartbeat counts.
(Youtube channel with several languages : www.youtube.com/playlist?lis...)

01.03.2026 14:06 👍 20 🔁 14 💬 1 📌 0
2026 International Long Covid Awareness social media ring with 6 gray dots and International Long Covid Awareness ribbon featuring year: 2026
white font reads: #LongCovidAwareness
Designed by: @haziethompson

2026 International Long Covid Awareness social media ring with 6 gray dots and International Long Covid Awareness ribbon featuring year: 2026 white font reads: #LongCovidAwareness Designed by: @haziethompson

2026--Six years. Still sick. Still raising awareness for prevention & treatments!
#LongCovidAwareness
#LongCovid
#LongCovidKids
#LongCovidHeartbeats
#LongCovidAwarenessDay
#LongCovidAwarenessWeek
#LongCovidAwarenessMonth
#LitForLongCovid
#OneInfectionAway
#TakeActionAgainstLC

01.03.2026 04:25 👍 17 🔁 12 💬 1 📌 0
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📣 En el marco del Día Internacional de la #COVIDPersistente #LongCovidAwarenessDay,
convocamos una concentración:
📍 Plaza España, #Zaragoza
🕛 a las 12:00 horas
🩵 Os esperamos con familiares y amigos para que se nos visibilice 🫂
@lcawarenessint.bsky.social @longcovidriseup.bsky.social

01.03.2026 08:38 👍 7 🔁 4 💬 0 📌 0

Nuestro más sentido pésame a la familia y los amigos 🫂🖤
Os acompañamos en el sentimiento. Un fuerte abrazo.

17.02.2026 14:05 👍 2 🔁 0 💬 1 📌 0
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María, una de las más jóvenes de AMACOP Amiga, compañera, embajadora de los pacientes de Covid Persistente, Disautonomía y otras Enfermedades Raras

Su positividad y alegría lo llenaba todo, aunque estuviese entrando y saliendo del hospital

17.02.2026 13:43 👍 4 🔁 5 💬 2 📌 2

El día 4 de marzo a partir de las 22h30, hora española peninsular 💯📣
👉 Hay que registrarse para poder asistir!

Muchas gracias a @togetherwemask.bsky.social y @msjulieslam.bsky.social por la organización 🫶

12.02.2026 09:09 👍 6 🔁 4 💬 1 📌 0

LCDefense III:
4:35pm Delphine Crespo @longcovidaragon.bsky.social
5:10pm Dr. Ciara Steele @cleanairie.bsky.social
5:45pm Pamela Morrison @lcaireland.bsky.social
6:20pm Elisa Perego PhD @elisaperego78.bsky.social
6:55pm Angela L. @lcawarenessint.bsky.social
7:35pm Devin Russell Long COVID Foundation

12.02.2026 01:32 👍 8 🔁 5 💬 1 📌 0
An invitation for everyone to register for Long COVID Defense Series III on March 4, 2026, 4:30pm - 9:00pm EST. 6 Q&A sessions will feature an extraordinary panel of speakers, with their masked portraits showing inside frames that say “Support Long Haulers and Mask Together America”. 
Schedule:
4:35 pm Delphine Crespo, President of Association of Long COVID Aragón
5:10 pm Dr. Ciara Steele, co-founder of Clean Air Advocacy Ireland (CAAI)
5:45 pm Pamela Morrison, Long COVID Advocacy Ireland
6:20 pm Elisa Perego PhD, a researcher who coined the term Long COVID
6:55 pm Angela L., Creator of International Long COVID Awareness Day
7:35 pm Devin Russell, Founder of Long COVID Foundation
Register to join: https://bit.ly/LCDefenseForum_Mar4

An invitation for everyone to register for Long COVID Defense Series III on March 4, 2026, 4:30pm - 9:00pm EST. 6 Q&A sessions will feature an extraordinary panel of speakers, with their masked portraits showing inside frames that say “Support Long Haulers and Mask Together America”.  Schedule: 4:35 pm Delphine Crespo, President of Association of Long COVID Aragón 5:10 pm Dr. Ciara Steele, co-founder of Clean Air Advocacy Ireland (CAAI) 5:45 pm Pamela Morrison, Long COVID Advocacy Ireland 6:20 pm Elisa Perego PhD, a researcher who coined the term Long COVID 6:55 pm Angela L., Creator of International Long COVID Awareness Day 7:35 pm Devin Russell, Founder of Long COVID Foundation Register to join: https://bit.ly/LCDefenseForum_Mar4

Join Long COVID Defense Series III to honor patients and their allies who are tirelessly advocating for health justice in this historic struggle. On March 4, 2026, 5:00pm-9:00pm EST, 6 Q&A sessions will feature an extraordinary panel of speakers. masktogetheramerica.org/blog/long-co...

12.02.2026 01:31 👍 25 🔁 10 💬 2 📌 2

🗞️ En este artículo, puedes leer la entrevista a una de las copresidentas de nuestra federación, #LongCOVIDRiseUp

🗣️"Nos han hecho invisibles: la llamada de atención de la nueva Federación #LongCOVID".

🧵Extractos traducidos del francés al inglés en el hilo siguiente 👇

11.02.2026 15:10 👍 2 🔁 1 💬 0 📌 0
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Los pacientes de covid persistente se unen en una asociación internacional: “En vez de evolucionar, se nos invisibiliza” La creación de Long Covid Rise Up, una nueva federación internacional, responde a la necesidad de situar la enfermedad en la agenda política europea

@longcovidriseup.bsky.social:
🗣️ “Llevamos alrededor de un año colaborando con las asociaciones francesas y con la de Cataluña desde el inicio de la pandemia, y creíamos que era necesario escalar la problemática a nivel europeo primero e internacional”.
www.aragondigital.es/articulo/san...

08.02.2026 11:14 👍 2 🔁 1 💬 0 📌 0

🗞️ En este artículo, una entrevista a una de las co-presidentas de nuestra federación.

"Los pacientes de #COVIDPersistente se unen en una asociación internacional: “En vez de evolucionar, se nos invisibiliza”.

#StopTheDiseaseProcess #BlockTheSpead

Artículo completo en el post siguiente 👉

08.02.2026 11:14 👍 2 🔁 1 💬 1 📌 0

👉 More coverage about the launch of our federation, this time in the French media.

🎙️ On Monday, February 9, the president of @winslowsp.bsky.social and co-president of Long COVID Rise Up, will speak on Radio Maritima at 12h00.

Don't miss it! ✨

#StopTheDiseaseProcess #BlockTheSpread

07.02.2026 16:28 👍 9 🔁 3 💬 0 📌 1
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Cuatro asociaciones europeas, entre ellas la aragonesa, se unen para combatir la covid persistente La federación reunirá a grupos de pacientes para exigir que se investigue sobre esta patología de forma “urgente".

"Four European associations, including the one in Aragon, are joining forces to combat #LongCovid."

#StopTheDiseaseProcess #BlockTheSpread
#LongCOVIDRiseUp

www.heraldo.es/noticias/ara...

06.02.2026 09:02 👍 6 🔁 3 💬 0 📌 0
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Nace Long Covid Rise Up, una federación internacional para combatir el Covid Persistente La federación reunirá a grupos de pacientes aliados y denunciantes para exigir que se investigue en la patología de forma “urgente"

Spanish article about the launch of Long Covid Rise Up, a federation of #LongCovid patients fighting against the pandemic. (Picture with a mask on!)
#StopTheDiseaseProcess #BlockTheSpread

www.aragondigital.es/articulo/san...

05.02.2026 16:23 👍 8 🔁 6 💬 0 📌 0

New alliance of organisations for #LongCovid @longcovidriseup.bsky.social

04.02.2026 17:10 👍 43 🔁 18 💬 0 📌 0
LCRiseUp CP English | Long Covid Rise Up

@winslowsp.bsky.social @longcovidaragon.bsky.social @covid19persist1.bsky.social & @COVIDLongSolidarité

📣 Read and relay our press release:
👉 longcovidriseup.eu/lcriseup-eng...

#StopTheDiseaseProcess #BlockTheSpread #LongCovidRiseUp

04.02.2026 16:10 👍 16 🔁 9 💬 0 📌 1
ALT : 4 logos, from left to right, top to bottom : Winslow Santé Publique, Asociacion Long COVID Aragon, Association COVID long Solidarité, et COVID-19 Persistent Catalunya

ALT : 4 logos, from left to right, top to bottom : Winslow Santé Publique, Asociacion Long COVID Aragon, Association COVID long Solidarité, et COVID-19 Persistent Catalunya

🚨 BREAKING
✨ Long COVID Rise Up is born!

🔥 Four European organizations fighting #LongCOVID & COVID have joined forces to launch an international alliance.
🗣️ Patients demand action.
🎯 Stop the disease process. Block the spread.

04.02.2026 16:10 👍 72 🔁 44 💬 5 📌 3
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La Asociación Long Covid Aragón señala un "trato inadecuado" a las personas con covid persistente: "Somos pacientes incómodos" Tras casi seis años de enfermedad, este colectivo, que cuenta con más de 700 miembros, asegura que siguen siendo enfermos "invisibles y prescindibles, a pesar de la elevada complejidad clínica y socia...

La asociación demanda que incluyan la #covidpersistente como una prioridad, con unidades de referencia dotadas de presupuesto y personal formado, protocolos asistenciales y una coordinación efectiva entre AP, hospitales, la consulta monográfica, investigación GAIAP y la propia asociación.
#LongCovid

30.01.2026 15:35 👍 0 🔁 0 💬 0 📌 0
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Pacientes con covid persistente denuncian "abandono" sanitario y "falta de seguimiento" en Aragón La asociación demanda que se comprometan a blindar una sanidad pública fuerte, accesible y digna para toda la ciudadanía aragonesa

🔴 Pacientes con COVID persistente denuncian "abandono" sanitario y "falta de seguimiento" en Aragón

@longcovidaragon.bsky.social

www.aragondigital.es/articulo/san...

27.01.2026 16:55 👍 2 🔁 2 💬 0 📌 0
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Feliz año nuevo, Happy New Year✨
Entramos en el 6o año desde el inicio de la pandemia, para muchos, casi 6 años enferm@s
Ojalá 2026 sea el año que vea el avance de la ciencia, los tratamientos y los derechos para los pacientes con #CovidPersistente #LongCovid
@sanidad.gob.es @isciiisalud.bsky.social

04.01.2026 14:58 👍 0 🔁 0 💬 0 📌 0

@covid19persist1.bsky.social @covidmadrid.bsky.social #ACOPASTUR #LongCovidCantabria @ugtcomunica.bsky.social @ccoo.bsky.social #satse @csifnacional.bsky.social
#LongCovid #CureLongCovidNow #Prevención #DerechosPacientes

21.12.2025 18:55 👍 0 🔁 0 💬 0 📌 0
Jornada Sociolaboral COVID Persistente Congreso de los Diputados 2025
Jornada Sociolaboral COVID Persistente Congreso de los Diputados 2025 YouTube video by LongCovid Aragón

📽️ Os dejamos la grabación de la jornada sociolaboral de #COVIDPersistente del día 17 de noviembre en el Congreso de los Diputados‼️
📌con @sanidad.gob.es @msocialgob.bsky.social @trabajogob.bsky.social @longcovidaragon.bsky.social
📌 mesas de pacientes, prevención y sindicatos
youtu.be/vBmDRYyuAtY

21.12.2025 18:55 👍 1 🔁 1 💬 1 📌 0

vulnérabilité particulière, génétique ou autre (bien que cela puisse jouer, comme pour toutes les maladies).

Poke aux camarades CL espagnol-es @longcovidaragon.bsky.social et @covid19persist1.bsky.social

20.12.2025 16:24 👍 4 🔁 2 💬 0 📌 0

@winslowsp.bsky.social @covid19persist1.bsky.social

16.12.2025 15:40 👍 2 🔁 1 💬 0 📌 0
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European Society of Cardiology: abordar riesgos cardiacos asociados al SARS-CoV-2 Declaración de la European Society of Cardiology (ESC) describe los efectos cardiovasculares de la infección por SARS-CoV-2 y destaca la necesidad de detección temprana, vacunación y rehabilitación.

‼️La infección por #SARSCoV2 y la #COVIDpersistente aumentan de forma considerable el riesgo de complicaciones cardiovasculares graves, como insuficiencia cardiaca, arritmias, ictus y tromboembolia, según una declaración de consenso clínico de la European Society of Cardiology
@escardio.bsky.social

28.11.2025 16:50 👍 1 🔁 1 💬 0 📌 0