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k8lin

@k8lin

Assoc professor in LIS at Rutgers SC&I. I study online health information and what people do with it. I love clean air. Transplant recipient, cyborg, knitter, masker, maker, fiber artist. Solidarity. πŸ³οΈβ€πŸŒˆ

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11.08.2023
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Latest posts by k8lin @k8lin

It was on this day
six years ago
that the WHO
officially declared
COVID-19
a global pandemic.

So it is on this day
six years later
that all of us
officially enter
the seventh year
of this pandemic.

11.03.2026 19:04 πŸ‘ 77 πŸ” 36 πŸ’¬ 0 πŸ“Œ 1

β€œWhile this new paper suggests the OPTN policy had its intended effect, it does not solve racial disparities in kidney transplantation. Other research has suggested that the adjustment largely helped patients who had regular access to care, and were already on the waitlist”

10.03.2026 12:41 πŸ‘ 9 πŸ” 3 πŸ’¬ 1 πŸ“Œ 0
Preview
Removing race from kidney function algorithm helped more Black patients access transplants Removing race from the eGFR had a big impact, resulting in 5.3 more kidney transplants per 1000 Black candidates.

β€œSeveral years ago, nephrologists attempted a first-of-its-kind effort: remove race from a key clinical algorithm, and attempt to undo the harms… A new study found the change had big results, impacting 27% of Black patients and resulting in 5.3 more transplants per 1000 Black candidates.”

10.03.2026 12:38 πŸ‘ 179 πŸ” 78 πŸ’¬ 2 πŸ“Œ 5
absence of a diagnosis does not guarantee the absence of an illness - mamoru -  if someone you know has oeen been suffering yet a doctor says nothing is wrong, which has happened to a majority of chronically ill people at some point, you have a choice. you can either believe doctor that you probably never met, or the person suffering. and I cannot emphasize enough how absolutely damaging it is for a sick person to not be believed. the believe

absence of a diagnosis does not guarantee the absence of an illness - mamoru - if someone you know has oeen been suffering yet a doctor says nothing is wrong, which has happened to a majority of chronically ill people at some point, you have a choice. you can either believe doctor that you probably never met, or the person suffering. and I cannot emphasize enough how absolutely damaging it is for a sick person to not be believed. the believe

06.03.2026 22:15 πŸ‘ 121 πŸ” 31 πŸ’¬ 1 πŸ“Œ 1

Thanks πŸ’œ it was a huge shock but it's been ok so far. Just surreal how they can pull the rug out from under any of us whenever it suits their quarterly reports or whatever.

06.03.2026 23:45 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I got the letter about this cancellation 2 days before they stopped the service and on a holiday weekend, leaving me in a panic with no option to get my meds. The meds I've taken religiously for almost 30 years.

These companies are gambling with our lives and laughing all the way to the bank.

05.03.2026 16:49 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
Preview
Her Daughter Died After Taking a Generic Version of a Lifesaving Drug. This Is What She Wants You to Know. Hannah Goetz was 17 when she had a double lung transplant. Her tacrolimus medication was supposed to help her body accept her new lungs. She died at just 21 years old.

Astellas, the manufacturer of the brandname tacrolimus, stopped offering drug rebate coupons abruptly in 2024, forcing most patients like me to finally switch to generic unless we can pay tens of thousands of dollars annually for the privilege of taking our meds.

www.propublica.org/article/tacr...

05.03.2026 16:49 πŸ‘ 2 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

Folks need an old school twitter style teach-in about disability liberation & history. β€œAccessible technology” has always been used as a cover to hide the fact that tech β€œinnovation” regularly excludes disabled folks AND uses us as guinea pigs to make tech for abled folks. We get retrofitted slop

04.03.2026 20:35 πŸ‘ 59 πŸ” 23 πŸ’¬ 1 πŸ“Œ 0

You know how we resist fascism? Wear a mask ✊😷 It’s community care & a visual signal that says you will no longer accept anyone, including yourself, to be collateral damage for their profit. Demand clean air in schools, workplaces, every public space, just like we have clean water. It’s NOT too late

02.03.2026 13:37 πŸ‘ 15 πŸ” 10 πŸ’¬ 1 πŸ“Œ 1

If you are serious about "never again" then remember: it's not about standing up to a line of tanks when the camps are already running. It's about standing up to social & professional pressure when the whole thing is just getting started, when it's not yet cool to do so. That's bravery that matters.

22.02.2026 20:47 πŸ‘ 1097 πŸ” 279 πŸ’¬ 21 πŸ“Œ 17

Funny how wearing respirators is used as an impossible consideration for others because you β€œhave to live your life”, but it’s okay for high risk folks to spend >6 years being left out of that very same right because abled convenience and comfort is more important.

Super. Funny. πŸ˜’

17.02.2026 19:43 πŸ‘ 11 πŸ” 5 πŸ’¬ 0 πŸ“Œ 0

Important paper. Schools are high-risk environments for respiratory disease transmission MAINLY because classrooms are underventilated. This problem has a workable solution - it just needs political will. Air quality is as important as water quality for public health. MT @martinmckee.bsky.social

05.02.2026 22:59 πŸ‘ 647 πŸ” 310 πŸ’¬ 19 πŸ“Œ 12

Someone has sure already made this observation but the fact they can convert all those empty warehouses into prison camps means they could have converted them into housing, community centers, job training centers or, hell, libraries or schools all along. It’s always a matter of will not resources.

15.02.2026 17:30 πŸ‘ 41465 πŸ” 14037 πŸ’¬ 657 πŸ“Œ 593

Name names. Marty Makary, Vinay Prasad, Jay Bhattacharya, Tracy Beth Hoeg, Martin Kulldorff, Russell Vought, RFK Jr., Donald Trump. All of them contributed to this by their relentless attacks on vaccines and biomedical R&D.

13.02.2026 10:13 πŸ‘ 382 πŸ” 179 πŸ’¬ 13 πŸ“Œ 5

For all the evil that gets done legislatively and judicially, there’s something to be said about the complicity of regular people who are all too willing to be β€œoverly cautious.”

12.02.2026 14:54 πŸ‘ 87 πŸ” 26 πŸ’¬ 3 πŸ“Œ 0

you can always start masking again if you’ve stopped. it’s fine, good actually.

11.02.2026 18:45 πŸ‘ 151 πŸ” 78 πŸ’¬ 0 πŸ“Œ 0

Pandemic was a great dry run for thisπŸ‘

Hide the scary unpopular info that most people don’t want to know, and get most people not only accustomed to it but in favor of itβ€”then move on to hiding all the other facts that are inconvenient to those in power.

11.02.2026 20:49 πŸ‘ 138 πŸ” 50 πŸ’¬ 3 πŸ“Œ 0

if yall want a general strike you’re gonna have to start masking upβ€”protecting each others health matters regardless, but all the moreso when insurance is tied to employment; what effective resistance allows infection to spread?

12.01.2026 18:11 πŸ‘ 174 πŸ” 58 πŸ’¬ 2 πŸ“Œ 1

I’ve said it before & will again: wasting editor & reviewer time by submitting egregiously plagiaristic uses of genAI w/o even fact-checking should be grounds for being barred from submitting articles to that journal for a period of time (1-2y for first offense?)

20.12.2025 18:57 πŸ‘ 28 πŸ” 5 πŸ’¬ 2 πŸ“Œ 2

looking at you, folks who scoff at wearing masks in, at the very least, indoor public spaces even as we watch the wanton destruction of our public health system & collapse of healthcare infrastructure.

17.12.2025 21:00 πŸ‘ 265 πŸ” 101 πŸ’¬ 3 πŸ“Œ 1

Reminder: you should absolutely start wearing the best mask you can find in public spaces, even if you stopped before. We have no public health at the top level & repeat infections have ravaged immune systems.

If someone gives you a hassle, say "even if it's just a cold, I DON'T WANT THAT EITHER!"

10.12.2025 02:48 πŸ‘ 500 πŸ” 243 πŸ’¬ 4 πŸ“Œ 9
Court permanently blocks Trump's executive order to dismantle federal agency for America's libraries Press Release: Court permanently blocks Trump's executive order to dismantle federal agency for America's libraries. The U.S. District Court for the District of Rhode Island struck down the Trump Adm...

Court permanently blocks Trump's executive order to dismantle federal agency for America's libraries IMLS
librarytechnology.org/pr/31973

22.11.2025 15:00 πŸ‘ 761 πŸ” 267 πŸ’¬ 4 πŸ“Œ 34
Preview
40 years of life: the miracle of β€˜Baby Moses’ and the heart that changed medicine | News First and longest-living infant-to-infant heart transplant recipient celebrates 40th birthday at reunion event.

Via a friend: the recipient of the first successful neonatal heart transplant celebrated his 40th birthday a few days ago, still with the same donor heart transplanted into him when he was just days old: news.llu.edu/patient-care...

21.11.2025 03:09 πŸ‘ 369 πŸ” 85 πŸ’¬ 2 πŸ“Œ 3
Preview
How to Register to Be an Organ Donor | UNOS | Become an Organ Donor Learn more about eye, tissue, and organ donation including how you can make a difference by registering to be an organ donor.

Every 8 minutes another name is added to the transplant waiting list. Yesterday was another anniversary of my 2nd transplant and I am grateful every day for this blessed gift of life - consider becoming an organ donor and learn more at unos.org/register-to-...

21.11.2025 01:44 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

1. They are eugenicists.
2. Viruses don't care about your daily step count.

19.11.2025 22:23 πŸ‘ 82 πŸ” 16 πŸ’¬ 3 πŸ“Œ 1

I mean you are living through an attempt at inflicting mass starvation on millions of people. This is an ELIMINATIONIST political movement. The sooner folks wake up to this, the better for all of us.

03.11.2025 16:49 πŸ‘ 1151 πŸ” 405 πŸ’¬ 15 πŸ“Œ 0

Read this thread! 🧡 It’s been clarifying to witness just how fast workplaces went from β€œwe’re all in this together” to β€œforced infection is a condition of employment”. No discussion about making in-person work safer. CBC’s COVID coverage leaves much to be desired and sadly, this experience tracks.

02.11.2025 20:14 πŸ‘ 51 πŸ” 18 πŸ’¬ 2 πŸ“Œ 1
Preview
Wikipedia Says AI Is Causing a Dangerous Decline in Human Visitors β€œWith fewer visits to Wikipedia, fewer volunteers may grow and enrich the content, and fewer individual donors may support this work.”

wikipedia's data shows that AI is siphoning traffic away from the site, which is a danger to its sustainability. ironically Wikipedia is more important than ever to users who want reliable information instead of slop, and to AI companies that need it for training data www.404media.co/wikipedia-sa...

17.10.2025 01:15 πŸ‘ 7768 πŸ” 3749 πŸ’¬ 90 πŸ“Œ 340

but under no circumstances should we expect any common-sense mitigation practices beyond annual boosters for a vaccine the government is openly discouraging/preventing people from getting

wouldn’t want to seem ✨unreasonable✨

16.10.2025 16:54 πŸ‘ 28 πŸ” 9 πŸ’¬ 1 πŸ“Œ 0

I know it's too much to dream that people would also wear masks in publicly funded buildings (like post offices, the DMV, libraries, schools) - but a world where people try harder not to spread illness *is within reach.*

15.10.2025 20:02 πŸ‘ 4 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0