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Polio Survivors Network

@polionetwork

Here to support polio survivors, those living lives with healthcare lessons for the future.

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21.04.2025
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Latest posts by Polio Survivors Network @polionetwork

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Fears of polio resurgence as US vaccine adviser questions need for childhood shots Survivors say US healthcare system not ready for new cases – ‘the only thing to fix polio is the polio vaccine’

“The best prevention is: don’t get polio,” he said, highlighting the importance of vaccination.” - Dr Allan

“With polio, you’re never going to fix us, and that’s the problem. The only thing to fix polio is the polio vaccine.” - Yours truly

Shoutout to @melodyschreiber.com for this amazing work! 💜

23.02.2026 15:48 👍 87 🔁 38 💬 2 📌 8
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a snowy path with trees covered in snow and snow falling ALT: a snowy path with trees covered in snow and snow falling

Our 131st newsletter is out now mailchi.mp/a7e91ba9e52a...

08.01.2026 10:48 👍 1 🔁 0 💬 0 📌 0
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a white cat is surrounded by red hearts ALT: a white cat is surrounded by red hearts

The Joyce & Arthur Siegfried Memorial Fund kindly provide custom made shoes or braces for polio survivors in any country. post-polio.org/siegfried-fu... #polio #poliosurvivors #postpoliosyndrome #postpolioadvocacy #werestillhere

08.01.2026 10:46 👍 1 🔁 0 💬 0 📌 0
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Great initiative brainhealth-challenge.org Especially important for those with neurological conditions. #BrainHealthChallenge #ProtectYourBrain #BrainHealthChallenge2025 #polio #poliosurvivors #postpoliosyndrome #postpolioadvocacy

09.06.2025 09:30 👍 0 🔁 0 💬 0 📌 0
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We invite you to our Annual General Meeting. Email us for details of how to join online info@poliosurvivorsnetwork.org.uk #polio #postpolioadvocacy #pps #psn #poliosurvivors

21.05.2025 10:33 👍 0 🔁 0 💬 0 📌 0

We couldn't agree more @danielemagistro.bsky.social

21.05.2025 09:59 👍 1 🔁 0 💬 0 📌 0

Well done Zsuzsi #polio #poliosurvivor #postpolioadvocacy #psn

17.05.2025 15:45 👍 1 🔁 0 💬 0 📌 0
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Bring the ever important patient voice to our conference is Zsuzi Snarey, who will be talking on living well with post polio syndrome. tinyurl/com/AgileCon... #AddingLifeToYears #AGILEConf25

28.04.2025 08:25 👍 2 🔁 3 💬 1 📌 0

Our very own Zsuzsi is part of this fantastic event #poliosurvivorsnetwork #postpolio #psn #polio

21.04.2025 15:06 👍 1 🔁 0 💬 1 📌 0
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A word from our late founder ... #polio #poliosurvivorsnetwork #psn #postpolio

21.04.2025 14:38 👍 0 🔁 0 💬 0 📌 0
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Post-polio immune therapy aces human trials Recent human trials of a new one-year-long immune-based treatment for post-polio syndrome, which can strike polio survivors years after the initial infection and be very debilitating, have produced po...

Interesting trials taking place... #poliosurvivorsnetwork #postpolio #psn Post-polio immune therapy aces human trials
newatlas.com/disease/clin...

21.04.2025 14:37 👍 0 🔁 0 💬 0 📌 0
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Our 129th Post Polio Matters Newsletter is out now and will be shortly in your inbox or letterbox - mailchi.mp/2685fa80e056... #polio #poliosurvivorsnetwork #psn #postpolio

21.04.2025 14:35 👍 0 🔁 0 💬 0 📌 0