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Science for ME online forum

@scienceforme

We are an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and the carers, clinicians, scientists and advocates who support us. This account is maintained on a part-time basis by patients.

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Latest posts by Science for ME online forum @scienceforme

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Long-COVID: assessment of circulating markers suggests no cerebral neuronal damage, neuroinflammation or systemic inflammation–a controlled study — Omdal et al.

#MECFS

10.03.2026 18:44 👍 0 🔁 0 💬 0 📌 0
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Association of symptoms of neuropsychological long COVID with imaging and plasma biomarkers — Taizen Nakase et al.

#MECFS

10.03.2026 14:44 👍 1 🔁 0 💬 1 📌 0
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Increased incidence of mild cognitive impairment in long COVID patients — Jennifer A. Frontera et al.

#MECFS

10.03.2026 10:44 👍 1 🔁 0 💬 1 📌 0
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Post COVID-19 condition is associated with altered regional cerebral blood volume as revealed by dynamic susceptibility contrast MRI — MacIntosh et al.

#MECFS

10.03.2026 06:44 👍 1 🔁 0 💬 1 📌 0
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Microbiota-derived extracellular vesicles link intestinal dysbiosis to neuroimmune activation in long COVID — Matheus Aranguren et al.

#MECFS

10.03.2026 02:44 👍 2 🔁 0 💬 1 📌 0
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Genome-wide DNA methylation profiling in COVID-19 positive patients reveals alterations in pathways linked to neurological dysfunction — Zameer et al.

#MECFS

09.03.2026 22:44 👍 2 🔁 0 💬 1 📌 0
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Plasma proteomic profile reveals persistent immune activation in post-acute sequelae of SARS-CoV-2 infection — Fineschi et al.

#MECFS

09.03.2026 18:44 👍 2 🔁 0 💬 1 📌 0
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Is the RACGP HANDI recommendation of incremental physical activity for chronic fatigue syndrome/myalgic encephalomyelitis harming patients? — Stallard et al.

#MECFS

09.03.2026 16:44 👍 2 🔁 0 💬 1 📌 0
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Identifying post-exertional malaise subtypes: Differentiating physical and mental PEM manifestations — Katherine Tuzzolino et al.

#MECFS

09.03.2026 14:44 👍 4 🔁 0 💬 1 📌 0
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The association between hair cortisol levels, Epstein-Barr virus infections and chronic fatigue in adolescents — Berit Elise Bergem Kongsnes et al.

"elevated hair cortisol levels prior to EBV infection were not associated with an increased risk of developing chronic fatigue"

#MECFS

09.03.2026 10:44 👍 5 🔁 0 💬 1 📌 0
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Assessment and Incidence Determination of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Following a SARS-CoV-2 Infection in a Prospective Cohort of Hospital Employees — Matthias Tack et al.

#MECFS

09.03.2026 08:44 👍 3 🔁 0 💬 1 📌 0
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Pipeline-optimized machine learning for chronic fatigue syndrome diagnosis: A lightweight, interpretable model using blood biochemical and metabolomic data — Li et al.

UK Biobank data, with self-reported diagnosis.

#MECFS

09.03.2026 06:57 👍 2 🔁 0 💬 1 📌 0
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Extracellular Vesicle Protein and MiRNA Signatures as Biomarkers for Post-Infectious ME/CFS Patients — Martina Seifert et al.

#MECFS

09.03.2026 06:44 👍 4 🔁 0 💬 1 📌 0
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Charting the circulating proteome in ME/CFS using cross-system profiling to uncover mechanistic insights — August Hoel et al.

#MECFS

09.03.2026 02:44 👍 3 🔁 0 💬 1 📌 0

🧵 of highlighted #MECFS and #LongCovid research papers being discussed this week on the Science for ME forum.

2 - 8 Mar 2026

08.03.2026 22:44 👍 18 🔁 5 💬 1 📌 0
News in Brief - March 2026 This thread has a Science for ME 'News in Brief' post for each week in March 2026 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Our latest News in Brief summary has headlines and links to further reading for ME/CFS, Long Covid, and related news for the week of Mar. 2 - 8:

Topics:
News, advocacy, articles
Coming events
Research news and commentary
Published research

www.s4me.info/threads/news...

#MEcfs #LongCovid

08.03.2026 20:14 👍 10 🔁 5 💬 0 📌 0
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Progressively Widening Healthcare Costs in Long COVID Over Five Years — Jingya Cheng et al.

#MECFS

03.03.2026 12:34 👍 0 🔁 0 💬 0 📌 0
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Symptom Patterns, Recovery, and Impact of Long COVID: Findings From a Longitudinal Survey — Ziauddeen et al.

"Data from a 1-year follow-up of an online Long COVID survey were used." "… Long COVID remains a debilitating illness, with only 5% (n = 54) of the study sample reporting recovery."

#MECFS

03.03.2026 08:34 👍 1 🔁 0 💬 1 📌 0
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Acute inflammation and fronto-striatal connectivity in the transition from acute to persistent fatigue after mild COVID-19: A longitudinal fMRI study — Zhu et al.

"patients with persistent fatigue exhibited elevated acute-phase CRP levels"

#MECFS

03.03.2026 04:34 👍 1 🔁 0 💬 1 📌 0
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Association of G-Protein-Coupled Receptors autoantibodies with vasoregulation in Post-COVID— Felix S. Seibert et al.

#MECFS

03.03.2026 00:34 👍 1 🔁 0 💬 1 📌 0
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Exploratory analyses of Immunologic Features in a Randomized, Placebo-Controlled Trial of Nirmatrelvir/Ritonavir for Long COVID — Bornali Bhattacharjee et al.

"no virological or immunological evidence supports [Paxlovid] as a treatment for Long COVID."

#MECFS

02.03.2026 20:34 👍 2 🔁 0 💬 1 📌 0
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CD169+ and HLA-DR+ extracellular vesicles are highly represented in human plasma and dynamically expressed in SARS-CoV-2 infection and long COVID-associated sequelae — Fanelli et al.

#MECFS

02.03.2026 16:34 👍 1 🔁 0 💬 1 📌 0
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ICD-10 Diagnoses prior to ME/CFS diagnosis in children and young people suggest potential early diagnostic indicators — Wirth et al.

#MECFS

02.03.2026 12:34 👍 4 🔁 1 💬 1 📌 0
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Systematic Examination of Gene Expression and Proteomic Evidence Across Tissues Supports the Role of Mitochondrial Dysregulation in ME/CFS — Gregory R. Keele et al.

#MECFS

02.03.2026 08:34 👍 3 🔁 0 💬 1 📌 0
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Outcomes of ME/CFS following infectious mononucleosis: seven-year follow-up of a prospective study — Jason et al.

"Seventy-nine percent of those with Severe ME/CFS 7 years later continued to meet the criteria for ME/ CFS."

#MECFS

02.03.2026 04:34 👍 3 🔁 2 💬 1 📌 0
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Single-cell analysis reveals immune remodeling of monocytes, NK cells, T cell exhaustion, and Galectin-9–associated depletion of gamma delta and mucosal-associated invariant T cells in Long COVID with ME/CFS — Shahbaz et al.

#MECFS

02.03.2026 00:34 👍 3 🔁 1 💬 1 📌 0
News in Brief - February 2026 This thread has a Science for ME 'News in Brief' post for each week in Februray 2026 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Our latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Feb. 23 - Mar. 1:

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

01.03.2026 23:04 👍 6 🔁 6 💬 0 📌 0
A thread on what people with ME/CFS need in the way of service I don't think trying to gather lots of signatories would be a good idea here. there are too many competing political interests. At this stage I am not sure that a signed letter is the way to go in fac...

Jonathan Edwards and other members of @scienceforme.bsky.social are drafting a document on what we want in terms of service provision for ME/CFS. Latest draft here: www.s4me.info/threads/a-th...

All welcome to comment and make suggestions before the document before it is finalised.

26.02.2026 14:46 👍 16 🔁 13 💬 1 📌 0

🧵 of highlighted #MECFS and #LongCovid research papers being discussed this week on the Science for ME forum.

23 Feb - 1 Mar 2026

01.03.2026 20:34 👍 19 🔁 3 💬 1 📌 0
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Association Between Post-COVID-19 Infection and Fibromyalgia: A Controlled Case–Control Study — Ayse Oz and Tulay Yildirim

#MECFS

23.02.2026 14:34 👍 2 🔁 0 💬 0 📌 0