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Billy Hanlon

@bhanlon15

ME/CFS | Long COVID | IACC | Stand with Minnesota

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03.10.2023
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Latest posts by Billy Hanlon @bhanlon15

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Opinion | Minnesota Nice means protecting day cares from ICE I recently testified in support of a bill that would protect Minnesota day cares from immigration enforcement actions. Every single Republican voted no, Alexandria Reyes Schroeder writes.

Star Tribune: "Minnesota kindness should include protecting day cares from ICE, too"

'I expected disagreement with legislation proposing to do so. But the reasoning of those in opposition surprised me.'

www.startribune.com/mn-school-sa...

10.03.2026 21:13 πŸ‘ 4 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Ninth wave of Covid-19 suggests wane in immunity, expert says everyone must 'act to reduce impact' The latest figures show 50 hospitalisations and 19 deaths with the virus in the past week.

"As well as topping up antibodies, Baker said getting regular boosters reduced the risk of Long Covid.

The "disabling illness" was not being monitored at all in New Zealand which Baker said was a "gap" in tracking the virus."

www.rnz.co.nz/news/nationa...

08.03.2026 19:43 πŸ‘ 25 πŸ” 17 πŸ’¬ 2 πŸ“Œ 3
Preview
Ninth wave of Covid-19 suggests wane in immunity, expert says everyone must 'act to reduce impact' The latest figures show 50 hospitalisations and 19 deaths with the virus in the past week.

β€œBaker said people were not getting booster shots and for many, it had been quite some time since they were last infected and antibodies were dropping.
It was enough to give the virus "the edge".”

Might be an idea to have a louder health/comms response given our health system is much worse vs 2020🫠

08.03.2026 21:43 πŸ‘ 39 πŸ” 17 πŸ’¬ 1 πŸ“Œ 5

Spots are still available for people with Long Covid/MECFS in Ōtepoti Dunedin to participate in free facilitated creative writing workshops. I'm one of the facilitators. There's no commitmentβ€”if you think you might be interested, get in touch.

09.03.2026 06:59 πŸ‘ 26 πŸ” 18 πŸ’¬ 4 πŸ“Œ 1
Graphic for Long Covid Awareness Month titled β€œFacts about Long Covid we wish were not true: #4.” The text states that being in peak physical condition does not protect someone from Long Covid. It explainsthat professional runners, collegiate swimmers, and other athletes have been sidelined, and that formerly active people may experience post-exertional malaise, where even a short walk can trigger a debilitating crash. A teal and gray Long Covid awareness ribbon appears at the top, and a silhouette of a volleyball player appears on the left. The website longcovidcollective.org appears at the bottom.

Graphic for Long Covid Awareness Month titled β€œFacts about Long Covid we wish were not true: #4.” The text states that being in peak physical condition does not protect someone from Long Covid. It explainsthat professional runners, collegiate swimmers, and other athletes have been sidelined, and that formerly active people may experience post-exertional malaise, where even a short walk can trigger a debilitating crash. A teal and gray Long Covid awareness ribbon appears at the top, and a silhouette of a volleyball player appears on the left. The website longcovidcollective.org appears at the bottom.

Graphic for Long Covid Awareness Month titled β€œFacts about Long Covid we wish were not true: #5.” The text explains that invisible illness is often treated like an imaginary one. It notes that someone can appear healthy while experiencing severe symptoms such as crushing fatigue, neuroinflammation, and heart rate instability that are not visible from the outside but are real and disabling. A teal and gray Long Covid awareness ribbon appears at the top and theater masks appear on the left. The website longcovidcollective.org appears at the bottom.

Graphic for Long Covid Awareness Month titled β€œFacts about Long Covid we wish were not true: #5.” The text explains that invisible illness is often treated like an imaginary one. It notes that someone can appear healthy while experiencing severe symptoms such as crushing fatigue, neuroinflammation, and heart rate instability that are not visible from the outside but are real and disabling. A teal and gray Long Covid awareness ribbon appears at the top and theater masks appear on the left. The website longcovidcollective.org appears at the bottom.

Graphic for Long Covid Awareness Month titled β€œFacts about Long Covid we wish were not true: #6.” The text explains that past COVID infections do not protect someone from Long Covid. Each new infection carries a risk of developing Long Covid for the first time or worsening existing symptoms. Dice appear on the left to represent risk. A teal and gray Long Covid awareness ribbon appears at the top and the website longcovidcollective.org appears at the bottom.

Graphic for Long Covid Awareness Month titled β€œFacts about Long Covid we wish were not true: #6.” The text explains that past COVID infections do not protect someone from Long Covid. Each new infection carries a risk of developing Long Covid for the first time or worsening existing symptoms. Dice appear on the left to represent risk. A teal and gray Long Covid awareness ribbon appears at the top and the website longcovidcollective.org appears at the bottom.

More facts about Long Covid we wish were not true.

March is Long Covid Awareness Month. Learn more at longcovidcollective.org

#longcovidawareness

09.03.2026 12:57 πŸ‘ 17 πŸ” 15 πŸ’¬ 0 πŸ“Œ 1
Trial By Error: Aussie GPs Still Push Graded Exercise Therapy | Virology Blog By David Tuller, DrPH When I was in Australia for the first time in 2018, it was clear that the country’s general practitioners were fervent supporters of t ...

What's up with the GPs in Australia? They keep promoting GET as if the PACE trial were actually not a fraudulent, discredited piece of crap! virology.ws/2026/03/09/t...

09.03.2026 19:55 πŸ‘ 31 πŸ” 10 πŸ’¬ 1 πŸ“Œ 1

The 2nd Covid inquiry report shows broad approval for decisions made.

Were the funds well spent on two inquiries going over the same stuff - lockdowns, vaccines, testing, etc?

No.

Where is the inquiry looking into disinformation and Long Covid?

10.03.2026 00:14 πŸ‘ 53 πŸ” 17 πŸ’¬ 1 πŸ“Œ 1
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Warning for employers skimping on sick leave as Covid wave hits Under-pressure employers taking a hard line on sick leave are being warned to take care with the rules.

Having sufficient leave is really important. People need to be able to isolate while infectious. Also resting with a Covid infection can lower the risk of long term effects.

www.rnz.co.nz/news/busines...

10.03.2026 07:44 πŸ‘ 36 πŸ” 17 πŸ’¬ 0 πŸ“Œ 5
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The Greatest Feeling in the World Seven months with an electric bike.

β€œWhen I got home, I sat on the floor, wearing my helmet, and sobbed until I was hoarse with the overwhelm of my joy. I’d just ridden a bike for an hour! A bike! For an hour!”

The β€œgreatest feeling in the world” after Long COVID. E-bikes and accessibility, via @heatherhogan.bsky.social. #UrbanTruth

10.03.2026 17:06 πŸ‘ 241 πŸ” 52 πŸ’¬ 7 πŸ“Œ 11
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Women to bear the brunt of sick pay changes We are building a future where we do more, faster, to protect our planet and make sure everyone is treated equally.

Just noting the NZ Greens have been consistently clear that changes that will impact how much sick leave people get will disproportionately impact women.

Following on from this, in a Covid wave scenario this disproportionately increases health risk to women.

Yet another clear reason to vote Green.

10.03.2026 19:13 πŸ‘ 40 πŸ” 18 πŸ’¬ 0 πŸ“Œ 0

I am simply shocked this could have happened.

10.03.2026 19:15 πŸ‘ 52 πŸ” 22 πŸ’¬ 3 πŸ“Œ 0
I’m working with Governor Gretchen Whitmer on trying to save The Great Lakes from the rather violent and destructive Asian Carp, which is rapidly taking over Lake Michigan, and all of the beautiful surrounds. I’ll be asking other Governors to join into this fight, including those of Illinois, Wisconsin, Minnesota, Pennsylvania, Ohio, Indiana, New York and, of course, the future Governor of Canada, Mark Carney, who I know will be happy to contribute to this worthy cause. Separately, I am also working to save The Great Salt Lake, in Utah, which, in a short period of time, if nothing is done, will have no water. This is on top of everything else I am doing. Only β€œTRUMP” CAN DO IT! President DONALD J. TRUMP

I’m working with Governor Gretchen Whitmer on trying to save The Great Lakes from the rather violent and destructive Asian Carp, which is rapidly taking over Lake Michigan, and all of the beautiful surrounds. I’ll be asking other Governors to join into this fight, including those of Illinois, Wisconsin, Minnesota, Pennsylvania, Ohio, Indiana, New York and, of course, the future Governor of Canada, Mark Carney, who I know will be happy to contribute to this worthy cause. Separately, I am also working to save The Great Salt Lake, in Utah, which, in a short period of time, if nothing is done, will have no water. This is on top of everything else I am doing. Only β€œTRUMP” CAN DO IT! President DONALD J. TRUMP

Trump refers to Prime Minster Mark Carney as "the future Governor of Canada"

10.03.2026 18:17 πŸ‘ 1197 πŸ” 384 πŸ’¬ 436 πŸ“Œ 267
Post image

Really enjoying this watch! πŸ“½οΈ

[disclaimer: have 2 episodes left]

10.03.2026 19:18 πŸ‘ 4 πŸ” 0 πŸ’¬ 2 πŸ“Œ 0
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U.S. Commission on Civil Rights chair in St. Paul to hear testimony on ICE tactics The hearing will compile Minnesotans’ experiences during Operation Metro Surge, in hopes of persuading the commission to conduct a formal investigation.

Star Tribune: "U.S. Commission on Civil Rights chair in St. Paul to hear testimony on ICE tactics"

'The hearing will compile Minnesotans’ experiences during Operation Metro Surge, in hopes of persuading the commission to conduct a formal investigation'

www.startribune.com/us-commissio...

10.03.2026 17:46 πŸ‘ 5 πŸ” 2 πŸ’¬ 0 πŸ“Œ 0
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Judge says ICE stopped people solely because of their race, but declines preliminary injunction Several Minnesota residents accused federal agents of unfairly targeting Somali and Latino residents

Star Tribune: 'Judge says ICE showed β€˜unconstitutional policies’ during surge, but won’t block its practices'

'Several Minnesota residents accused federal agents of unfairly targeting Somali and Latino residents'

www.startribune.com/judge-says-i...

10.03.2026 17:40 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

I basically just learnt yesterday that this is gastroparesis. It was all IBS to me. I think it’s a sign of PEM for me too, goes away on my β€œgood days”.

09.03.2026 18:58 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Gastroparesis is the first warning of PEM for me.
The difference between the stomach and the guts making problems are very obvious when it has become familiar.πŸ€·β€β™€οΈ

09.03.2026 18:29 πŸ‘ 3 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
Health Experts Convene in Santa Barbara to Advance Clinical Care for Long Covid (SANTA MARIA, Calif.) – The County of Santa Barbara Health Department along with The Chesley Initiative, CenCal Health, the James S. Bower Foundation, and

Santa Barbara Independent: Health Experts Convene in Santa Barbara to Advance Clinical Care for Long Covid

3/21/26 1:30P-5:30P PST

Event gathers healthcare leaders, clinicians, researchers, and community members to help better diagnose & treat Long COVID & IACCI
www.independent.com/2026/03/09/h...

10.03.2026 14:35 πŸ‘ 9 πŸ” 3 πŸ’¬ 0 πŸ“Œ 0

Pretty sure that anyone with ME reading this is terrified for him.

His delayed exhaustion is a very ME thing, also the fact that it was triggered by a virus. And POTS is common w/ME.

If it's ME, this kind of forced exertion is extremely dangerous. I hope it isn't, but it raises all the red flags.

10.03.2026 13:38 πŸ‘ 6 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0
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After detainments and deportations, the lives left behind in Minnesota From abandoned possessions to unpaid rent, many Minnesotans had to lean on family, friends and community organizations for help with their unfinished business.

Star Tribune: 'After detainments and deportations, the lives left behind in Minnesota'

'From abandoned possessions to unpaid rent, many Minnesotans had to lean on family, friends and community organizations for help with their unfinished business.'

www.startribune.com/immigration-...

10.03.2026 13:23 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Sounds like post-exertional malaise to me! And what’s that a hallmark symptom of? MECFS.

10.03.2026 08:26 πŸ‘ 12 πŸ” 2 πŸ’¬ 1 πŸ“Œ 0
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With evictions looming, city leaders take a stab at solutions - MinnPost Lacking the dollars to address rent relief in the wake of Operation Metro Surge, advocates hope hard for a financial boost from the state.

MinnPost: 'With an eviction crisis looming, city leaders take a stab at solutions'

'Lacking the dollars to address rent relief in the wake of Operation Metro Surge, advocates hope hard for a financial boost from the state.'

www.minnpost.com/metro/2026/0...

10.03.2026 13:22 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
No Kings logo in black and yellow

No Kings logo in black and yellow

Guerilla Advocacy is back!

Join us for a virtual No Kings rally focusing on anti-intellectualism and censorship. We have a stellar lineup of speakers. Want to participate but want to go out in person as well? Go for it! We start at 6:30 pm Central. You can register at the link below.

1/6

10.03.2026 12:40 πŸ‘ 83 πŸ” 51 πŸ’¬ 2 πŸ“Œ 8
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ICE locked up a deaf kid without his hearing aidsβ€”and wouldn't let him have them back Rep. Eric Swalwell is working to help the family seek humanitarian parole.

New from me at @motherjones.com: Today, @ericswalwell.bsky.social said he's working to help the family of a Deaf kid seek humanitarian parole so he can continue attending CA School for the Deaf–and his staff brought his hearing aids to Colombia for him to use. www.motherjones.com/mojo-wire/20...

09.03.2026 20:44 πŸ‘ 424 πŸ” 228 πŸ’¬ 3 πŸ“Œ 10
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Class AA final outdraws all 11 Saturday NHL games The 19,648 attendance figure was bigger than every Saturday game across the NHL, including three in Canada.

Saturday’s thrilling Class AA final between Moorhead & Minnetonka drew a crowd of 19,648 to Grand Casino Arena, according to the Minnesota State High School League

'That attendance number was larger than all 11 NHL games played across the US & Canada on Saturday'

bringmethenews.com/minnesota-sp...

09.03.2026 18:38 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

One of my earliest symptoms was difficulty eating. People made fun of me for being a slow eater. I don’t think I even bothered mentioning it to the doctor.

09.03.2026 18:14 πŸ‘ 14 πŸ” 4 πŸ’¬ 1 πŸ“Œ 0

Mysterious is one of the top words I’d like to ban in health reporting.

09.03.2026 18:16 πŸ‘ 12 πŸ” 4 πŸ’¬ 0 πŸ“Œ 0
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Opinion | How to protect children whose parents are taken by ICE "A few weeks ago, a close relative who lives in my hometown of Minneapolis stood alone in her living room holding someone else’s baby. The child was 8 months old, and his parents had been taken by ICE...

Star Tribune: "How to protect children whose parents are taken by ICE"

'It does not take long to harm a child β€” nor to prevent this if we anticipate it and make thoughtful decisions in real time.'

www.startribune.com/child-protec...

09.03.2026 18:12 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Sorry, you can’t have healthcare or supportive housing or anything because 50 billion dollars have been set aside to ensure ample munitions for Operation Vanquished Toddler

01.03.2026 00:17 πŸ‘ 307 πŸ” 65 πŸ’¬ 3 πŸ“Œ 1

For a story in @thesicktimes.org, seeking organizers in any left movement work who’ve taken a break or fully stepped away from organizing sometime since 2020 due to Long COVID. They can be anonymous in the piece and may reach out directly at longdefeat.08 on Signal #LongCOVID #NEISvoid

04.03.2026 17:20 πŸ‘ 41 πŸ” 46 πŸ’¬ 1 πŸ“Œ 1