Current list of terminated grants by NIH. taggs.hhs.gov/Content/Data...
@sarahmwalter
Working to empower research participants and co-create research that involves their perspectives and priorities. Alzheimer’s, Dementia, Down Syndrome with Alzheimer’s, Clinical trials, Advocacy. PhD Candidate, University of Edinburgh
Current list of terminated grants by NIH. taggs.hhs.gov/Content/Data...
Affected in any way by recent federal science cuts? Please fill out and share a new survey to track impacts.👇
I'm unaffiliated but can vouch this is being run by a group of alumni of the AAAS Science & Technology Policy Fellowship and USAID Science for Development Fellowship.
This was fantastic, thanks for sharing!
Francis Collins, the NIH Director for 12 years, led the Human Genome Project and other NIH efforts for 32 years, resigned today. Key words from his resignation letter
www.nytimes.com/2025/03/01/u...
This is critical research. Cancelled.
Thank you for sharing this, Jace. I hope the researcher is able to appeal.
Please see a collective response from an esteemed group of leaders in the dementia field to the NYT article and book “doctored” by Charles Piller. www.nytimes.com/2025/01/24/o...
A scientist and dear friend wrote this response to misleading accusations of fraud in #Alzheimers research. www.nytimes.com/2025/02/06/o...
As a mom of a young teenage girl, I want to thank these researchers for this beautiful work! What a powerful example of good science and intentional co-production! #socialscience #inclusion #womenshealth
Go Oanh go!!
Y’all, @alzdemjournals.bsky.social Behavior & Socioeconomics of Aging (BSEA) has reached an important milestone ALREADY! 3 peer-reviewed research papers: PUBLISHED! Read and share: alz-journals.onlinelibrary.wiley.com/journal/2997...
So glad you are here!!
⭐Webinar reminder! Join us tomorrow, February 5th.
Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves.
#PatientEngagement #PatientPartners #PPI #PxP25
Really looking forward to this webinar on partnering with #Vietnamese communities - sign up here! Alz.org/research-webinars #dementia #research #participatoryresearch
This is unacceptable, clear disparity in diagnosis which will impact these individuals and families in enormous ways!
UW Madison seeks a visionary and transformative leader for Division Chief, Geriatrics and Gerontology. This is an exceptional opportunity to expand research on aging, guide the professional development of faculty and shape the next gen of medical professionals. To apply: lnkd.in/gWp23jDN
UK #PublicInvolvement #PPI news:
@nihr.bsky.social Centre for Engagement & Dissemination (formerly INVOLVE) to be hosted by @bmj.com group from 1/4. They will lead & coordinate 'Public Partnerships & Research Impact activities'.
www.nihr.ac.uk/news/nihr-in...
Will be watching with interest...
#PPIE
It's so important to listen to patients! 👇
#PatientInvolvement #PatientEngagment #Listen
When speaking to (or about) someone living with a #mentalhealth condition, it’s best to use person-first language that focuses on the individual, not the illness.
You can find a full list and a FREE DOWNLOAD wellbeings.org/LanguageGuide
N95 Masks are Available at all Los Angeles Public Library Locations
All Los Angeles Public Library locations are providing free N95 masks. Libraries are essential!
So wonderful to have the evidence that both researchers and community members benefit when we partner! Important learning —> community members value quality of relationship and a focus on #prevention #dementia #ppi researchinvolvement.biomedcentral.com/articles/10....
Happy new year #PublicInvolvement people 🎊
This starter pack is growing growing fast & almost at capacity. So if you work in health & care research #PPI &/or #Coproduction & would like to be added let me know 👋.
If you're on it already take another look 👀, as there may well be new people to follow
TIDE (Together In Dementia Everyday) has been awarded a grant by the Dementia Trust to begin some peer support groups for carers of people with young onset dementia (YOD) in conjunction with the Alzheimer's Society
(@alzheimerssoc.bsky.social).
Read More: buff.ly/3ZZa8gl
It was a research and development year- next year will be production…
The final Calvin and Hobbes cartoon. The entire page is mostly white as they're in the winter snow. The pair is walking with a sledge, nicely duffled in in scarves, hats, gloves. Calvin delightedly exclaims 'wow, it really snowed las night! Isn't it wonderful?'. Hobbes follows up with 'Everything familiar has disappeared! The world looks brand-new!' -- A new year... a fresh, clean start!' adds Calvin. As they look over the landscape, Hobbes observes 'it's like having a big white sheet of paper to draw on!' -- 'A day full of possibilities!' Calvin affirms. They get ready on their sledge and Calvin tells his friend 'it's a magical world, Hobbes, ol' buddy... let's go exploring!', and the pair sledges off into the wintery landscape.
31 December 1995. Still the perfect goodbye.
Critical findings from my man @bryandjames.bsky.social at Rush Alzheimer's Disease Research Center. Social activities may delay dementia onset by 5 years. That delay could result in $500,000 savings in healthcare costs. #ENDALZ #Alzheimer's
alz-journals.onlinelibrary.wiley.com/doi/10.1002/...
Fantastic paper- showing effectiveness of engaging with older adults to disseminate science!! Let’s go!!
🎅📡 Track Santa this Christmas!
The North American Aerospace Defense Command (NORAD)'s Santa Tracker uses radar, satellites & jets to monitor Santa's flight around the globe
A fun way to explore tech & science this Christmas!
Track Santa here: www.noradsanta.org
#Christmas #Santa #SciComm 🧪
Great to hear of new discoveries and I hope the exhibition bolsters conservation efforts 🧪🌍
#researchadvent for today - excited to be part of the team planning #publicengagement with www.Aptwebstudy.org anyone over 50 is welcome to join our online Webstudy #prevention #alzheimers #endalz