Kate / Myeloma Amateur's Avatar

Kate / Myeloma Amateur

@myelomaamateur

Not a doctor or scientist; Spouse dx'ed with MM in 2020; Hope > hype.

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10.11.2024
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Latest posts by Kate / Myeloma Amateur @myelomaamateur

Commented elsewhere on this gem by quoting John Berger's pre-feminist insight from On Looking.

23.02.2026 22:40 πŸ‘ 190 πŸ” 46 πŸ’¬ 9 πŸ“Œ 4
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Instagram Create an account or log in to Instagram - Share what you're into with the people who get you.

@michaelhobbes.bsky.social @ifbookspod.bsky.social

Carnelian law + Epstein + vocal fry

www.instagram.com/reel/DU8uM8r...

23.02.2026 23:38 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Yes, and my apologies for sounding terse. Your larger point clearly stands!

31.12.2025 17:41 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

It was a leukemia

31.12.2025 17:32 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0
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The combination of LILRB4-targeting NK cell engagers and cGAS–STING agonists enhances the anti–multiple myeloma immune activity of NK cells @plosone.org
journals.plos.org/plosone/arti...

21.12.2025 17:11 πŸ‘ 1 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Someone ask him about the cost of his myeloma treatment

18.12.2025 13:41 πŸ‘ 28 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
My hand holding a shortbread cookie in the shape of an airplane. There are red sprinkles in the pattern of the survivorship bias plane.

My hand holding a shortbread cookie in the shape of an airplane. There are red sprinkles in the pattern of the survivorship bias plane.

A plate of the same cookies.

A plate of the same cookies.

Does anyone want a survivorship bias shortbread

29.11.2025 04:50 πŸ‘ 15414 πŸ” 4174 πŸ’¬ 147 πŸ“Œ 106
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Just out at JNCI, we review 20 years of RCTs in myeloma for lessons in drug development.

Surprisingly, head-to-head trials were as likely to be successful as add-on trials.

academic.oup.com/jnci/advance... #mmsm #myeloma

09.11.2025 22:07 πŸ‘ 2 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Eddie Cliff: Reviewing 20 Years of RCTs in Myeloma for Lessons in Drug Development - OncoDaily Eddie Cliff: Reviewing 20 Years of RCTs in Myeloma for Lessons in Drug Development / Alissa Visram, Aniko Szabo, cancer, Eddie Cliff, Edward R. Scheffer

Reviewing 20 Years of RCTs in Myeloma for Lessons in Drug Development - Eddie Cliff

@eddiecliff.bsky.social

oncodaily.com/voices/eddie...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #MM #Myeloma

11.11.2025 00:20 πŸ‘ 5 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

Yes, especially so we can hear Peter say "symbology" in his "reader who Dan Brown doesn't trust to know what 'semiotics' means" accent.

18.10.2025 21:06 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

is it for all comers, or just those without prior ASCT?

09.07.2025 20:14 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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a woman says it 's about the money in front of a bottle ALT: a woman says it 's about the money in front of a bottle
17.06.2025 18:41 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Our copay just went up to $2500 a month for the generic. It's very inexpensive to produce but does have to be tightly controlled bc of risks.

17.06.2025 18:40 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

We just learned our copay for the generic is nearly $2,500

17.06.2025 18:39 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Amer Zeidan MBBS,MHS ‏عامر Ψ²ΩŠΨ―Ψ§Ω† on X: "We are looking for a junior clinical investigator to join our myeloma program within division of heme malignancies at @YaleCancer @YaleHematology @Yale if you want to apply or recommend someone plz reach out to me or to our myeloma program leader @NataliaNeparid1 plz spread word" / X We are looking for a junior clinical investigator to join our myeloma program within division of heme malignancies at @YaleCancer @YaleHematology @Yale if you want to apply or recommend someone plz reach out to me or to our myeloma program leader @NataliaNeparid1 plz spread word

x.com/Dr_AmerZeida...

25.04.2025 20:39 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

I hope it's good news! πŸ’

25.04.2025 20:37 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

"I do solemnly swear that I will support and defend the Constitution of the United States against all enemies, foreign and domestic..."

anyone?

19.04.2025 02:44 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
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Aaron Goodman - β€œPapa Heme” on X: "Prevalence of medical writing (funded by pharma) of review articles. Sad we had to actually study this. Also many authors took direct payments from pharmaceutical for the drug they were reviewing in the article! https://t.co/K3WTDqepGI" / X Prevalence of medical writing (funded by pharma) of review articles. Sad we had to actually study this. Also many authors took direct payments from pharmaceutical for the drug they were reviewing in the article! https://t.co/K3WTDqepGI

x.com/AaronGoodman...

18.04.2025 17:28 πŸ‘ 1 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0
Myeloma Australia - Home - Myeloma Australia The only Australian myeloma specific not-for-profit organisation. We support, educate, inform, empower and bring hope to people affected by myeloma.

myeloma.org.au will be a good resource for you! Best wishes as you begin to navigate all of this. There is a ton of progress being made in this disease!

28.03.2025 18:59 πŸ‘ 0 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

To put this in context, that's the cost of *maybe* two months of Revlimid, a common "maintenance" drug many pts take for years after their initial round of treatment, which itself would have exceeded $50k many times over...

25.03.2025 21:22 πŸ‘ 1 πŸ” 0 πŸ’¬ 1 πŸ“Œ 0

I’m so sorry for your loss. I’m worried about ACA pre-existing conditions clause being overturned. My husband’s maintenance chemo for multiple myeloma bills at about $600,000 annually. His employer insurance covers, but if ACA is altered and his cancer isn’t covered, we can’t afford that. He’s 59.

23.03.2025 22:37 πŸ‘ 31 πŸ” 5 πŸ’¬ 2 πŸ“Œ 0

Skeet, skeet, against the dying of the light...

25.03.2025 21:08 πŸ‘ 3 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Well said!

25.03.2025 21:07 πŸ‘ 0 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

Yes -- so, please, take the same energy you brought to censuring Democrat Al Green for violating "rules, decorum, and accountability" and put it toward doing something about the daily dumpster arson committed by this administration.

25.03.2025 21:06 πŸ‘ 4 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0

@barackobama.bsky.social Dear President Obama: please speak up about the authoritarian actions of the current administration. This isn’t a normal successor of yours where the tradition for former presidents is to remain silent. We need you now.

23.03.2025 17:47 πŸ‘ 8 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0

The 10 Democrats who voted to censure Rep. Al Green:

Ami Bera, Calif.
Ed Case, Hawaii
Jim Costa, Calif.
Laura Gillen, N.Y.
Jim Himes, Ct.
Chrissy Houlahan, Pa.
Marcy Kaptur, Ohio
Jared Moskowitz, Fla.
Marie Gluesenkamp Perez, Wash.
Tom Suozzi, N.Y.

clerk.house.gov/Votes/202562

06.03.2025 16:07 πŸ‘ 222 πŸ” 122 πŸ’¬ 40 πŸ“Œ 67
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Improved Outcomes of Myeloma Cast Nephropathy in Newly Diagnosed Multiple Myeloma With Modern Anti‐Myeloma Therapies Myeloma cast nephropathy (MCN) is a driver of renal failure in newly diagnosed multiple myeloma (NDMM) and has been historically associated with increased early mortality. Since patients with moderat...

onlinelibrary.wiley.com/doi/full/10.... = @columbiacancer.bsky.social experience with newly diagnosed myeloma cast nephropathy in the modern era, under the aegis of Raj Chakraborty, Suzanne Lentzsch, Divaya Bhutani, Markus Mapara, Jai Radhakrishnan, and Metodi Balev!

25.02.2025 00:49 πŸ‘ 3 πŸ” 1 πŸ’¬ 1 πŸ“Œ 0
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Any other young adults 18-45 with Multiple myeloma cancer? Let's be friends! (Enjoy the meme my friend made recently) πŸ˜† #cancer #Multiplemyeloma #youngadultswithmultiplemyeloma #yacancer

21.01.2025 16:15 πŸ‘ 6 πŸ” 2 πŸ’¬ 1 πŸ“Œ 0

Very interesting to read this as I sip my Sunday morning coffee #Myeloama #HemeSky

24.11.2024 16:11 πŸ‘ 5 πŸ” 1 πŸ’¬ 0 πŸ“Œ 0
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Gene regulation study reports surprising results: Extensive regions of DNA belong to multiple gene switches Some sequences in the genome cause genes to be switched on or off. Until now, each of these gene switches, or so-called enhancers, was thought to have its own place on the DNA. Different enhancers are...

phys.org/news/2024-11...

24.11.2024 18:58 πŸ‘ 2 πŸ” 0 πŸ’¬ 0 πŸ“Œ 0