pumpkin

yay not paralyzed! 💛💛💛

Raised $90 yesterday, thank you so much!! 🥹🥹♥️♥️ I am so grateful for every share, every donation and everyone who cares! Still lots of debt and lots of needs and bills. Please share and share some more, it’s a HUGE help! Donate only if able! Thank you! ♥️ #MutualAidRequest #HelpSky #HelpFolksLive2026

am i able to go to chiro to fix the EDS problems making me hurt

or do i not go and rest to try to fix the other things

i really want to go but i don’t think i can today 🥲

Happy Friday the 13!

and also Pi day is tomorrow! 3.14

short brown hair an inch or two below my shoulders, it is wavy with soft almost-curls.

ok i am enjoying my hair after the hair cut hehe

yay curly hair

any doctor who disses me (even internally) for looking up my symptoms is a bad match for me

unfortunately i can’t always replace them and i’m stuck with what i got. so i have to just pretend and stroke their ego to try to get any help at all. it sucks.

💛💛💛

and that’s great for some relief

so glad for that

still a struggle tho. yeah.

when i need to get up again it’s going to hurt a lot more

i have an orange hair tie now

so that’s the irish flag colors!

tiny joys heh

i texted my friend the things during my worse times and the word “green” and we had fun with colors. color stims are the best haha

still feeling awful but my meds helped!! so glad so so so glad

Can anyone that is able help Bex, please? I've donated $30, and if anyone can match that it will go a long way.

there should be a cheerleader emoji haha

📣🎉🎊💃

it sucks how expensive it all is to live and eat and meds. and there’s less and less supports out there. i’m really sorry 💛

i’m really glad you have your sisters place to take a break, i’m so glad

i get the food thing, i’m in a similar situation haha. and being bored of food can be really frustrating and kinda distressing to me, or idk about distress but, just makes everything bad.

and yeah, unmet needs suck 💛💛

🥹💫💛

it looks so beautiful to me, i didn’t even notice the parking lot as a bad thing

the tree line, the sun reflection
it’s so beautiful

i haven’t seen the sunset or sunrise in a long time. i rarely go outside or open the door, i only do it quickly for package deliveries. so, thank you for sharing 🥹

comfort shows are so nice to have 💛

i am glad you can enjoy it

oh yuck i sure hope not for you

i hope you solve the mystery and it isn’t so bad a reason!

that is so lovely to be an auntie 🥹 i’m so heart touched by your found family story

and i’m so glad you are there for them, and they have your support and you have their cheer!

good vacuums are hard to find i hear

i have wood floors so i only have my tiny vacuum for bed crumbs

there is a trend recently for “slow vacuuming” and people just vacuum very slowly and it picks up so much stuff haha. tis the season of vacuuming i suppose

thank you 💫 i hope you feel better soon too

oh maybe i am wrong mix them up?

no i goggle and it seems both of them unfortunately but squarespace is much better about it than substack so that is nice

and i don’t judge anyone for using what they have to use to get their words out. but idk that the companies will do more. wish they did tho

it sucks being so out of it and brain foggy that i can’t think of ways to relieve the pain and flared symptoms

it sucks a lot

but it is nice that i remembers at all
even if it taking some days of bad nights 😅

watching sub par anime bc i hurt a lot and it’s just filler noise and the right animes for filler noise isn’t always the best quality anime

we do what pain brain wants

yes and also the other way around

where i have pain and doubt pain meds will touch it and i take them and poof they work lol
that’s the good flip side of it the unexpected relief

usually it’s the opposite tho

snow!!

they host white supremacists and nationalists i highly doubt they’re going to care about that unfortunately

why tf is it only now occur to me taking back up bad day pain meds

jeez

it’s hurting so bad and the tears and the bad and the just

and i not even thinking until now for some help more help

hehe smiling about this still

pretty sure i’ve watched her add columns in spreadsheets before

i am glad we got to connect briefly

🤷‍♀️

you’re so kind and thoughtful and supportive to that family and many others 💛💛💛