We get to watch and maybe ask questions of champions of our conditions discussing microclots, antiphospholipid syndrome, and hypercoagulabilty and symptoms that come from those, plus treatment.
Bring your friends!
I love that the paper mentions PPAR agonists!
Maybe we'll hear more at Roundtable with @dbkell.bsky.social & @resiapretorius.bsky.social (+ Dr. Vaughn + Dr. Schofield) + some very awesome panelists.
Fri MAR 13 1 pm EDT US by @renegaderesearch.bsky.social
us06web.zoom.us/webinar/regi...
Recording of Sleep Dysfunction and Breathing Mechanics, a Clinician's Roundtable with Dr. Avram Gold.
We learn via data & renegade discussion about Obstructive Sleep Apnea (OSA), Upper Respiratory Airway Syndrome (URAS), how you don't have to be a snorer, and more.
www.youtube.com/watch?v=R6XN...
Here is the recording of Sleep Dysfunction and Breathing Mechanics, A Clinician's Roundtable with Avram Gold, MD, of Stony Brook University.
www.youtube.com/watch?v=R6XN...
Here is the recording of the first one.
Sleep Dysfunction and Breathing Mechanics, A Clinician's Roundtable with Avram Gold, MD, of Stony Brook University.
www.youtube.com/watch?v=R6XN...
Here is the recording of Sleep Dysfunction and Breathing Mechanics, A Clinician's Roundtable with Avram Gold, MD, of Stony Brook University.
www.youtube.com/watch?v=R6XN...
Here is the recording of Sleep Dysfunction and Breathing Mechanics, A Clinician's Roundtable with Avram Gold, MD, of Stony Brook University.
www.youtube.com/watch?v=R6XN...
This is going to be a great event! If there’s more clinician, research and patient interest then we’ll look at booking a follow-up panel 🩸
Finally, if you would like to sign up for our newsletter to stay updated on our webinars, research projects, community discussions, medical coaching and virtual medical care, merch and volunteer opportunities:
Please register here! www.renegade-research.org/join-email-l...
You can also catch them eventually on our website at www.renegade-research.org/recordings
The recordings of our events will be available soon after each event on our YouTube channel, you can subscribe at www.youtube.com/@renegaderes...
We have another Clinician’s Roundtable on Friday, March 27 at 1 pm ET US:
“When the Gut-Brain Axis Goes Wrong: Mast Cells, Histamine, and Practical Clinical Management” with neurogastroenterologist Dr. Zac Spiritos bsky.app/profile/rene...
You can register here: us06web.zoom.us/webinar/regi...
Please join our other upcoming events:
Long COVID Awareness Day is March 15! We'll host an X Space on March 17 to discuss Long COVID community thoughts, feelings, concerns, needs, research, care x.com/i/spaces/1nK...
This event will be recorded and posted to our YouTube (and our website later)
We also recommend this podcast episode with Bendy Bodies by Linda Bluestein, “Investigating Autoimmune Disorders with Dr. Jill Schofield" to understand hypercoaguability and other autoimmune issues in Long Covid, MECFS, dysautonomia and mast cell disorder patients: www.youtube.com/watch?v=LbB8...
"A trial of antithrombotic therapy in patients with refractory migraine and antiphospholipid antibodies: A retrospective study of 75 patients” January 2021 journals.sagepub.com/doi/10.1177/...
Key: a 2–4 week trial of antithrombotic therapy in aPL-positive patients with refractory migraine may help
“Persistent Antiphospholipid Antibodies, Mast Cell Activation Syndrome, Postural Orthostatic Tachycardia Syndrome and Post-COVID Syndrome: 1 Year On” March 2021 pmc.ncbi.nlm.nih.gov/articles/PMC...
A case report of a Long Covid patient with POTS, MCAS & (aPL)-positivity 1 year+ after illness onset
“Autonomic neuropathy—in its many guises—as the initial manifestation of the antiphospholipid syndrome” January 2017 link.springer.com/article/10.1...
Key: autonomic neuropathy may occur with antiphospholipid antibodies & as initial manifestation of APS (IVIG & antithrombotic therapy may help)
“Immunotherapy with subcutaneous immunoglobulin or plasmapheresis in patients with postural orthostatic tachycardia syndrome (POTS)” August 2022 link.springer.com/article/10.1...
Key: Patients with severe, treatment-refractory POTS had major symptom improvements after SCIG or PLEX immunotherapy
“Elevated total serum IgM predicts the presence of antiphospholipid antibodies in dysautonomia patients” August 2024 link.springer.com/article/10.1...
“We propose total serum IgM as a reliable, inexpensive test... to identify dysautonomia patients at risk for persistent aPL-positivity.”
The other US-based clinic doing public testing for severe microclots is @rthm.bsky.social with @jencurtinmd.bsky.social and team, which serves a handful of states in the US www.rthm.com/resources/bl...
A news interview with Dr. Jordan Vaughn featuring how MedHelp Clinic in Birmingham, Alabama became one of the two current US clinics testing and treating for severe microclots in Long Covid, MECFS, vaccine-injured and other IACC patients: www.wvtm13.com/article/unlo...
Video interview with Dr. Jordan Vaughn about genetics involved in some patients with hypercoaguability and abrnomal clotting issues by Gez Medinger
“The Genetic Link to Abnormal Clotting in Long Covid with Dr Jordan Vaughn”
www.youtube.com/watch?v=gdTa...
“Prevalence of symptoms, comorbidities, fibrin amyloid microclots and platelet pathology in individuals with Long COVID/Post-Acute Sequelae of COVID-19 (PASC)” August 2022 pubmed.ncbi.nlm.nih.gov/35933347/
Key: microclots block capillaries, inhibit oxygen to tissues plus platelet hyperactivation
“Flow Clotometry: Measuring Amyloid Microclots in ME/CFS, Long COVID, and Healthy Samples with Imaging Flow Cytometry” June 2024 www.researchsquare.com/article/rs-4...
Key: MECFS and Long Covid patients both have amyloid microclot, thus a common pathology and dysregulated coagulation system in both
“A central role for amyloid fibrin microclots in long COVID/PASC: origins and therapeutic implications” February 2022 portlandpress.com/biochemj/art...
“Microclot formation, significant platelet dysfunction and a systemic endotheliitis drive systemic cellular hypoxia." All key in Long Covid
“Automated, Microscopic Measurement of Fibrinaloid Microclots and Their Degradation by Nattokinase, the Main Natto Protease” November 2024
ojs.exploverpub.com/index.php/je...
Research by our panelists:
“Virus-induced endothelial senescence as a cause and driving factor for ME/CFS and long COVID: mediated by a dysfunctional immune system” January 2026
pmc.ncbi.nlm.nih.gov/articles/PMC...
Jill Schofield is Founder/Director of Center for Multisystem Disease & a Clinical Associate Professor. She works in antiphospholipid syndrome, autoimmune dysautonomia (& underlying causes in patients conservative therapies fail) & mast cell activation syndrome (MCAS). centerformultisystemdisease.com
Jordan Vaughn is a physician/researcher at MedHelp, founder of Microvascular Research Foundation for Spike Protein & Long COVID, mvresearch.org
He works in endothelial damage & clotting via spike protein, immunofluorescent microscopy to see amyloid fibrin in blood medhelpclinics.com/service/long...
@dbkell.bsky.social is a Biochemist and Professor of Systems Biology. He studies chemical genomics, network biology, e-science, pharmaceutical drug transporters, iron as a cause of disease, synthetic biotechnology, amyloidogenic clotting in chronic inflammatory diseases like Long COVID.
dbkgroup.org
