This image promotes the "Hope Builders" program, part of the OMF Monthly Donor Program. It features a group of hands joined in solidarity, symbolizing community and support. The logo includes a heart encircling a globe, and the text encourages people to "Join Our Community of Hope Builders."

Hope for people with #MECFS and #LongCOVID starts with research.

When you become a monthly donor — a Hope Builder — you provide steady support that helps sustain critical research programs and move discoveries forward.

👉 Become a Hope Builder today: https://ow.ly/V98M50YpHsm

Notebook with the handwritten title “OMF Journal Club” and notes reading “March 11” and “11 am ET,” next to a pencil and a cup of tea on a light blue background.

📚OMF Journal Club: March 11 at 11 am ET

Dr. Meadows will discuss the latest paper from Dr. Jonas Bergquist and collaborators: "Plasma proteomic profile reveals persistent immune activation in post-acute sequelae of SARS-CoV-2 infection (PASC)."

👉 Sign up: https://ow.ly/qyW950YrjKe

What's up with the GPs in Australia? They keep promoting GET as if the PACE trial were actually not a fraudulent, discredited piece of crap! virology.ws/2026/03/09/t...

Table with pictures critical things that may be needed. Food, Hydration, Medicine, Toilet, Bathe, Brush Teeth, Fresh Clothes, Hygiene Wipes, Change Sheets

During a crash, people with ME/CFS may struggle to think, speak, or process information.

Communication cards can help patients point to needs like food, medication, pain, light sensitivity, comfort items, or emergencies.

Download them in our Crash Survival Guide:
bit.ly/44MgSS9

ME/CFS affects millions but isn't part of standard clinical training. This Advocacy Week (Mar 23–27), Solve M.E. & #MEAction Network will ask patient safety agencies to support our mission to introduce #MECFS questions into qualifying national medical exams.
Sign up:
🔗https://ow.ly/GbOp50YoTVe

Portrait of Dr. Wenzhong Xiao in a gray button-down shirt, hands resting on a railing, standing before a colorful molecular illustration with red‑blue helical structures. The text reads: Science Wednesdays: Significant

In the context of research, calling something “significant” is a statistical description. It’s a term that indicates it’s unlikely that random chance could explain a result.

🔗Learn more about calculating significance in #MECFS research: https://www.omf.ngo/significant/

The more severe I get the more my cycle affects ME/CFS and vice versa. I didn't even know one could have symptoms bcs of ovulation but 14 days after the start of my period my brain fog, cognitive, and sleep issues rise hundred-fold.
PMS now lasts 10 days!
And this is so rarely talked about.

A professionally designed title slide with a dark blue, abstract background featuring glowing light-blue nodes connected by thin lines. Centered in the lower half is a large light gray rectangular overlay containing the title in bold black text: “A chronobiology-based protocol for multi-omic mapping of menstrual cycle and diurnal rhythms in ME/CFS and long COVID”

In Case You Missed It: A newly published protocol in npj Women's Health introduces the MELLOW study, a global collaboration between OMF’s Melbourne and Uppsala teams.

🔗 Read the full protocol: https://ow.ly/pJlC50Y0new.

The British Association of Clinicians in ME/CFS issued a "therapy guide" last year. Very unsatisfactory. Professor Jonathan Edwards and colleagues have responded in an open letter. I spoke with Professor Edwards about it. virology.ws/2026/02/20/t...

A graphic for StudyME from OMF. It says, “Over 15,000 Participants Joined! Can we reach 16,000?” with lab and research images below. The StudyME logo is at the top, and the link www.omf.ngo/studyme/ is at the bottom.

Photo showing a summary of research studies conducted by universities and institutions around the world. The page includes icons and counts for different study types: Biobank, Registry, Remote/Online, and In-Person/Hybrid.

🎉15,000 Participants and Growing: The OMF StudyME Registry

🌎 StudyME is a free global participant registry, serving as a recruitment tool to accelerate research on #MECFS, #LongCOVID, and other related illnesses.

Learn more and join StudyME today: https://ow.ly/3ALK50Yl576

Collage highlighting Solve ME/CFS Catalyst Awards honorees with portraits and their research topics on ME/CFS and Long Covid.

🚨 New Catalyst Awards! Solve is funding two groundbreaking studies to advance urgently needed treatment and diagnostic research for #MECFS and #Long Covid.

Read more here:
https://ow.ly/rlfQ50Yl4yN

I feel like a war torn soldier, at war with the whole world for the most basic human rights.  But I'm a devastatingly fragile, severely chronically sick person.  Why don’t I feel like I’m being taken care of by a kind and loving society that wants me to thrive again?

#mecfs #LongCovid

The image shows a stylized, glowing blue brain formed from interconnected lines and geometric shapes. The text reads: Science Wednesdays: Encephalopathy

Encephalopathy generally describes a condition that affects brain function. There are different causes of it, including infection, exposure to toxins & more. Learn more about encephalopathy and the Uppsala CRC investigation into post-viral encephalopathy: https://www.omf.ngo/encephalopathy/

Orthostatic intolerance in ME/CFS & Long COVID isn’t just a heart rate issue.

Jennifer Bell, FNP-C, reviews vascular volume support, venous return, heart rate management & individualized medication selection.

Watch the full presentation:
https://youtu.be/NcStTltuDYE

@openmedf.bsky.social #MERC

Blood Flow and Exercise in ME/CFS and Orthostatic Intolerance - Open Medicine Foundation Exploring exercise's effects on ME/CFS patients with orthostatic intolerance, focusing cerebral blood flow, heart rate, and symptom severity.

OMF’s Melbourne ME/CFS Collaboration is conducting a study on cerebral blood flow in people with ME/CFS and how it might influence symptom severity and post-exertional malaise.

Read more about the study on our website 👉 ow.ly/ir5E50VWng7.

#MECFS #Orthostaticintolerance #MECFSresearch #PEM

In ME/CFS, issues with cerebral blood flow often present as orthostatic intolerance, when a person feels dizzy or faint after standing upright. In these cases, orthostatic intolerance may be a result of low blood flow to the brain.

A graphic titled "Cerebral Blood Flow" features a black-and-white 3D rendering of red blood cells in motion, symbolizing blood circulation. The image is framed with a teal border. At the bottom, the text reads “Science Wednesdays” in italicized blue font.

🧬Science Wednesdays: Cerebral Blood Flow

Cerebral blood flow is a measure of how much blood reaches the brain in a specific period of time. For example, a typical value for cerebral blood flow is approximately 50 milliliters of blood per 100 grams of brain tissue per minute (mL/100g/min).

The BMJ's recent propaganda piece about severe ME/CFS hijacked Maeve Boothby O'Neill's death to bolster its arguments. The lead author of the piece did that last summer as well: virology.ws/2025/05/21/t...

I’d love to compare my to do list with Simon Wessely’s. Bring it! 🔥 I mean if Simon insists on reducing people to this kind of “quantified desire for life” theory then how about we see how an ME/CFS patient compares to Simon on his own BS terms. Direct challenge 👊

The BMJ has a long history of publishing stuff promoting the "biopsychosocial" approach to ME and ME/CFS: virology.ws/2025/05/24/t...

1) I'm really proud to share that one of the most prominent Dutch medical magazines for doctors, Medisch Contact, has published a short review of our film Doctors as Patients.

When you make a film like this, you hope it reaches beyond the #PAIS/IACC bubble—that it finds its way to healthcare

Eine Fotocollage von drei Bildern einer Demonstration für die Anerkennung und Unterstützung von ME/CFS-Erkrankten. Auf dem ersten Bild liegen viele Menschen auf dem Boden, teils in Liegestühlen oder Rollstühlen, mit Schildern in den Händen. Ein Schild lautet „Für BO *1991 †2025“ mit einer gezeichneten Szene eines Betroffenen in einem Bett. Weitere Schilder fordern „Anerkennung, Versorgung, Forschung“. Das zweite Bild zeigt eine große, sitzende Menschenmenge. Im Vordergrund hält eine Person ein Gedenkschild mit Fotos und dem Namen „Jana“ sowie ein weiteres Plakat mit dem Schriftzug „ME/CFS KILLS!“, umrahmt von Namen. Das dritte Bild zeigt ein Plakat mit der Aufschrift: „Need to REST – forced to PROTEST – let us not ignore ME.“ Mehrere blaue Schleifen sind zu sehen. Viele tragen Masken, einige sitzen in Rollstühlen.

Danke Berlin 💙

@liegenddemo.bsky.social
Fotos: @mariahwa.bsky.social

#MECFS

It’s almost May 12, almost #millionsmissing

What’s that? Millions of people r missing. Missing fr work, fr school, fr their families, fr their own lives.

Where r they? Home, sick; struggling; some r homeless. Some can’t care for themselves.

They r hoping tomorrow’s better.

Help us get there!

Pink background with bright blue text saying: I haven’t been able to get downstairs in my own house for 2 years #SevereME

ME is one of the cruellest diseases you can possibly have. Most people think it’s as insignificant as having a cold.

#May12 #MEAwarenessDay #StillTheSaME #StillSickStillFighting #ME #MECFS #SevereME #LongCovid #EndMEcfs #MEAction #MillionsMissing #GreatestMEdicalScandal #ThereForME #BerlinBuyers

Infographic showing the number of people with ME in the UK represented through shoes. The top half has bold white and pink text on a dark blue background reading: "404,000 people have ME in the UK. In shoes this is the length of the M25." Below is a map of Greater London with a purple line tracing the route of the M25 motorway. The implication is that 404,000 pairs of shoes would stretch the full length of the M25. In the bottom corner is the Long Covid Advocacy logo. Dismiss 84

404,000 pairs of shoes. One invisible illness.👟

This is what ME looks like in the UK: thousands lost to a disabling illness.

Symbolised by shoes that stretch around London.

🛌Yet there is still no effective care

Time for action!

@ashleydaltonmp.bsky.social

#MEAwarenessDay #MillionsMissing

Farbfoto. Eine Gruppe Menschen sitzt auf dem Boden, im Hintergrund eine Wäscheleine mit Fotos und Geschichten von Betroffenen. Die Sitzenden haben viele Plakate vor sich. Sie hatten Träume. Jetzt zählen sie Stunden. ME/cfs kann jeden treffen. Sie sollte leben statt nur Überleben.

12.Mai ist #MEcfsAwarenessDay.

Es genügt NICHT zu sagen, das Ihr uns hört & seht.

#millionsmissing
Fotos von der liegenddemo.bsky.social 10.05.25 #Berlin
©Maria Wagner

Doctors as Patients (with subtitles) YouTube video by Anil about ME

1) OMG we did it‼️‼️

In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before.

They speak candidly about their experiences

youtu.be/J0ywwLIfH_w?...

NIH cancels its first and largest study centered on women The Women’s Health Initiative has produced numerous influential findings

Well the NIH has cancelled the Women's Health Initiative, the largest study of women in history

It has been running continuously since 1991 and has provided massive key knowledge about diseases in women

Unreal

www.science.org/content/arti...

Personalized Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients - Open Medicine Foundation Personalized treatment trial that analyses pre, during, and post-treatment data to develop a predictive algorithm for better outcomes.

OMF’s Melbourne ME/CFS Collaboration is conducting a study evaluating a variety of treatments that are being trialed through #MECFS and #LongCOVID patients’ general practitioners, including those using different routes of administration.

Read more about this study 👉 ow.ly/Roux50VGjyG.

A healthcare professional prepares an intravenous (IV) infusion against a blue background. The image is part of Open Medicine Foundation's 'Science Wednesdays' series, highlighting different routes of treatment administration.

🧬Routes of Treatment Administration

When you think about medications for different diseases, an important factor for some patients can be how the medication is taken, or the route of treatment administration.

There are 3 major routes of administration: