Flying Fox

Funded by the NIHR.
The UK gov will spend money on anything but actual ME CFS research.

Donated $100. We need this voice.

I donated 50$ because The Sick Times is a good source of COVID related news and that’s rare right now!

Urgent last request to help us meet our fundraising goal at @thesicktimes.org! Help be a part of independent journalism on Long COVID.

All donations and shares are greatly appreciated 🙏🏼😷

Appreciating you

Merry Christmas
🎄

Merry Christmas to everyone pushing long COVID forward.

The researchers, patients, advocates, clinicians, policymakers, etc.

Thank you for the care and persistence.

Millions are waiting under the tree, hoping Big Pharma shows up.

Meant to re administer every 3 months as prevention. The only anecdote I saw about effectiveness was on Reddit by a guy who said that he wasn’t infected after prolonged exposure to his gf, but n=1.

Still being cautious!

Miss skiing and surfing too

Been over six weeks since trying Pemgarda and have not noticed any effect on Long Covid symptoms (pem and pots).

There were side effects (flu like symptoms, muscle and joint pain, increase in pem) that subsided after a week.

There’s a difficult irony that many people would really rather not have to think about this (ie what started in 2020 that’s clearly still happening)… but willingness to confront it is also the best way to reduce your odds of ending up on this chart + having to think about it all the fucking time.

We don’t have to accept this dystopian hell

Join | The Sick Times The Sick Times is supported by people like you. Support The Sick Times today.

If you want to support independent journalism that reports on #LongCOVID & the ongoing pandemic, donate to @thesicktimes.org!

Unlike many mainstream outlets, we follow the science on COVID & highlight overlooked voices. If that resonates, donate here:

the-sick-times.fundjournalism.org/donate/

I feel especially grateful for how warmly Alice welcomed chronically ill people into the broader disability community.

1/ #NEISvoid

Please help support our fundraiser if you are able to 🙏🏼😷

🥂
Cheering for u

Learning how to live and die with long COVID - High Country News The late artist David Wojnarowicz’s work has brought me back from the dead.

👀 I'm listed in the notables for the 2025 Best American Science and Nature Writing!

My essay "Back from the dead: Learning how to live and die with Long COVID" for @highcountrynews.org was long listed by editor Susan Orlean. You can read it free here:

www.hcn.org/issues/56-6/...

i am forever radicalized by the history i've learned, by the stories that others have shared with me, and by the deep injustice that has been happening toward sick people for generations.

I’d be so grateful if #MedSky would share this—it’s a really quick way to get up to date with a common and debilitating outcome of Covid infection.

That POTS and dysautonomia are not Tik Tok trends as the Reddit medicine subs seem to think, and are actually on the rise because of pandemic.

Tomorrow, I'm speaking (along with a friend) with a group of medical students about the IACC patient experience. What do you want me to be sure to tell them?

Photo of a sunset over the ocean, green grass, rocks and trees

Acadia, 2020

The wellness, hippies and new age people to right wing pipeline is so annoying, as a lot of those people were a significant part of my friends group.

Oh thanks guys, feel a little less guilty for making unfollow a few people who were doing stories on Instagram.

i don't care what your politics are: if your assessment of the covid pandemic doesn't include long covid, you haven't assessed the covid pandemic.

Photo of a dune, sand, cloud and figures of people walking with Atlantic Ocean to the left

Dune du Pilat, France, 2017

Thank you for listening
🐱

Yeah, the ones I’m talking about are not gonna give up their audience on Twitter, which is okay, but guys, you are collecting each other likes, not convincing anyone outside your circle. Instant gratification and attention seeking instead of making purposeful impact.

Just want to vent about Twitter.
Kinda tired of all the attention seeking Long Covid accounts who just post clickbaits all day every day instead of actually meaningfully engaging in the advocacy.

A photo of a pink flower shaped like a heart under green leaves, with blooming garden greenery on the background.

Williamsburg Brooklyn, April 2024

What We Must Understand About the Dark Enlightenment Movement The “Dark Enlightenment” movement and Curtis Yarvin have curried favor with tech executives in recent years, writes Ed Simon.

If you want to know more about
technofascism ideology read about the Dark Enlightenment

time.com/7269166/dark...